Finding out about the ACHA has been the best part of a rather unexpected journey for me. After having had successful open heart surgery when I was 10, I was surprised to learn of the need for a 2nd surgery 41 years later (I'm 51). Finding myself a "heart patient" again after so many years could have been a frightening experience; however, the connection and resources provided by ACHA did so much to mitigate that possibility. Within a few weeks, I was introduced to my ACHA Ambassador who was a wonderful sounding board for many of the concerns I had. Beyond that, the organization provides a wide ranging library of resources, webinars and information that can answer all your questions. Perhaps most importantly, for many old/new heart patients, the organization provides you with a community of individuals that provide support, encouragement and inspiration. In short, they rock!
I became involved with ACHA because my daughter has a congenital defect. ACHA helps to educate people on the facts about heart defects and what to do to get the best care. They are working to get more research and recognition for congenital defects.
ACHA is a wonderful place to learn about everything you need as an adult living with a congenital defect. I am one, I just went through another surgery and ACHA is a wonderful lifeline of information! I am also a volunteer-I raised funds for the Heart Walk and volunteered in helping with the walk as well. As a volunteer I felt the walk was not the best, and in raising enough funds to get a "reward" from ACHA-the reward took way too long to even care about it in the end. Maybe it is because I am in a different state from where corporate ACHA is-but I would like to be involved more in things that are ran better. Overall-a wonderful nonprofit.