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2018 Top-Rated Nonprofit

USACFA, publishers of CF Roundtable

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Nonprofit Overview

Causes: Digestive Diseases & Disorders, Health, Lung Diseases

Mission: As an organization operated entirely by adults with CF who volunteer their time, our mission is to provide a source of information and education for adults with CF regarding the basis, nature and progression of CF, the latest treatments and research, and to assist in the psychosocial aspects of coping on a day-to-day basis. This is accomplished by publishing a free, quarterly newsletter called CF Roundtable, and through our website and social media sites.

Results: The US Adult Cystic Fibrosis Association now has over 3000 subscribers to the CF Roundtable newsletter, website and our social media platforms such as Twitter, CF Roundtable FB, CF Connect FB and LinkedIn. CF Roundtable newsletter is available in print (snail mail), by email (PDF) or online through our website when a person subscribes. Anyone can subscribe to learn more about CF and its effects on adults with CF and their families.

Target demographics: Adults with Cystic Fibrosis

Direct beneficiaries per year: Over 3000 subscribers and 13 college students with scholarships.

Geographic areas served: the United States with individuals and organizations within the CF Community

Programs: 1. CF Roundtable, our national quarterly newsletter available for free in print or online via our website, www.cfroundtable.com. 2. Website blog, resources, links to Facebook, Twitter and LinkedIn.

Community Stories

115 Stories from Volunteers, Donors & Supporters

General Member of the Public

Rating: 5

I started reading CF Roundtable after my friend, Jennifer Hale introduced it to me a few years back. I am an adult CF'er, and so inspired by all the stories. Their is always new things and ideas to be learned about this disease, and one of the best ways is to hear it straight from the people that are living it. I think its so great that nonprofits groups like USACFA can make the CF Roundtable available to everyone. Thanks so much!

Professional with expertise in this field

Rating: 5

I love the CF Roundtable. As a healthcare worker, I find it very helpful to be able to see things from a client's perspective. I sometimes get caught up in the need for adherence without focusing on the whole person. Jennifer Hale is especially inspiring.

Client Served

Rating: 5

I love the Roundtable. I get an insight in all the aspects of having CF and not just the physical issues. Jennifer Hale does a great job of telling stories and making an impact. I hope the Roundtable continues for years and years.

General Member of the Public

Rating: 5

CF Roundtable is an outstanding newsletter. It provides a lot of very useful information both for people who have CF and for people who are trying to understand the experience of someone they know who has CF. The articles are full of heart, because writers like Jennifer Hale are willing to open up and share personal stories, thoughts, emotions, and insights. CF Roundtable serves as a reminder to everyone that it is possible to be an extremely strong person without a strong body. I enjoy reading all of the articles in this newsletter, not just to learn about CF but also to learn about the art of perseverance, which is a life lesson we all can benefit from.

General Member of the Public

Rating: 5

Jennifer Hale's articles are candid, sincere and inspiring. As a Pediatrician I plan on referring my older CF patients to this magazine to help them learn more about how to live with CF in a positive way. Having CF Roundtable as a resource is a valuable asset to CF awareness. Keep up the great work!

General Member of the Public

Rating: 5

Jennifer's words are inspiring and truthful. All coming from someone so full of life! We have the pleasure of knowing Jennifer and her husband and spent many active days with them. Even with the difficulties and routines she endures on a daily basis, she is always chipper and smiling! Keep up the great work, Jennifer!

Donor

Rating: 4

I have been a reader of the CF Roundtable for many years and my wife, Jennifer Hale, is a contributing writer for the publication. I have learned many things about CF and the amazing people who live with this disease through the articles in the Roundtable. They cover a variety of topics with a variety of people which gives excellent insight into different ways of living with and battling the effects of CF. I highly encourage everyone who knows someone with this disease or an interest in learning about it to subscribe and read the magazined-especially Coughing with a Smile-an award winning column!

Jennifer214

Board Member

Rating: 4

The CF Roundtable that is published by USACFA is a wonderful organization to be involved with. The publication is very informative yet it will make you laugh and cry in the matter of seconds. Being involved behind the scenes with USACFA has been really great seeing how the clock ticks. The publication helps those with CF and those who are caregivers along with those who just might know someone who has CF. The stories are really inspiring and I have been a reader of the publication long before I became a board member..

General Member of the Public

Rating: 5

I have enjoyed reading the articles posted to the CF Roundtable. Jennifer Hale is the best writer because she lives with it every day and can help readers understand what life is like living with CF day in and day out. It's not pretty and she doesn't pull any punches...but she will make you laugh, cry and yearn for a cure.

Jane Ferguson

Volunteer

Rating: 5

My wonderful sister-in-law is a 41 year dynamo living with CF. She also happens to be one of CF Roundtable's writers (the incredible Jennifer Hale). The articles in CF Roundtable are insightful, humorous, informative, and eye-opening about living life to the fullest with CF.

Client Served

Rating: 5

As an adult with CF, I have enjoyed reading this organization's newsletters for many years. Insightful articles and great personal stories.

General Member of the Public

Rating: 4

I've read several CF Roundtables, and have found them to be be a great outlet for persons with CF. Additionally, for a lay person just reading it from "the outside", it gives a great insight into so many issues that people with CF experience. THe people who contribute tend to explain their unique-but-shared situations, in a true forum format. I am inspired by USACFA and the CF Roundtable. I hope more and more people check it out.