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Trisomy 18 Foundation

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Nonprofit Overview

Causes: Birth Defects & Genetic Diseases, Birth Defects & Genetic Diseases Research, Down Syndrome, Health

Mission: T18F is dedicated to making Trisomy 18 a preventable and treatable condition and ensuring that all parents have access to compassionate and knowledgeable care that respects the humanity and potential of their child diagnosed with Trisomy 18.

Target demographics: families and their children impacted by Trisomy 18

Direct beneficiaries per year: over 10,000 families

Geographic areas served: United States, Canada, International

Programs: Trisomy 18 Patient Education, Legacy Pages Program, Peer Support Communities, Accelerating Research into Potential Therapies and Preventions, and Community Events and Awareness Days.

Community Stories

109 Stories from Volunteers, Donors & Supporters


Client Served

Rating: 5

I don't know how I would have handled the diagnosis of my daughter Alexa without the Trisomy 18 Foundation team and their online support. My first pregnancy 6 years ago, I was blessed with twin girls, Alexa and Sophia . We found out half-way through our pregnancy that one of our beautiful babies had Trisomy 18 and as you can imagine, we were devastated. Before then I had never heard of such a condition and so I searched the internet and came upon the Trisomy 18 Foundation's website which taught me so much. I was then contacted by an admin and then also paired with a volunteer who happened to be another mom that had gone through exactly what I was going through and helped me every step of the way. It's an amazing network of other families that are supportive and a foundation leader that fights for families and children with Trisomy 18 every day. I am forever grateful.