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The Leukemia & Lymphoma Society

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Nonprofit Overview

Causes: Cancer, Cancer Research, Health

Mission: The mission of The Leukemia & Lymphoma Society (LLS) is: Cure leukemia, lymphoma, Hodgkin's disease and myeloma, and improve the quality of life of patients and their families.

Target demographics: create a world without blood cancers.

Geographic areas served: USA / Canada

Programs: Research LLS is at the forefront of the fight to cure cancer. Compared to other blood cancer nonprofits, LLS is the largest funder of cutting-edge research to advance cures. We have invested nearly $1.3 billion in research. We are leaders in advancing breakthroughs in immunotherapy, genomics and personalized medicine. This research saves lives. These revolutionary new treatments originally discovered through blood cancer research are now being tested in clinical trials for other cancers. Patient Access As the leading source of free blood cancer information, education and support for patients, survivors, families and healthcare professionals, LLS helps patients navigate their cancer treatment and ensures they have access to quality, affordable and coordinated care. Research will help us achieve an end to cancer. In the meantime, patients need help before, during and after their diagnosis and treatment. LLS is the leading nonprofit that does just that. Policy and Advocacy Through our nationwide grassroots network of more than 100,000 volunteers, we advocate for policies at the state and federal level in a commitment to remove barriers to care for cancer patients. Our efforts have helped increase federal research funds, speed the review and approval process of new therapies and ensure patients are able to access lifesaving treatments. Many of the policies that we advocate for, at the state and federal levels, are universally beneficial for all cancer patients.

Community Stories

181 Stories from Volunteers, Donors & Supporters

4 Joel B.3

Client Served

Rating: 5

The care, concern, information, and resources I received from my interaction with Kritstin at LLS was life-giving. Plus she followed up by sending me recap info and resources that solidified all the rather sketchy info I had collected from my doctors and google. I had ironically hosted a few fundraising events for LLS before I was even diagnosed with Lymphoma. I am so grateful to know that they are putting their resources to such good use by helping patients like me navigate the rough journey of blood cancer. I get my confidence and peace from God, but these angels have helped me maintain that peace.

Volunteer

Rating: 5

LLS is an amazing nonprofit. While I was working with them their mission was clear: help the most we can the best way we can. The work that the employees and nonprofit does is extremely tough but I was able to see how they helped people and gave hope back to families who needed it. Through the efforts of donors, volunteers, directors, and many others, the organization is able to do work that is of the upmost importance. I was very grateful to be able to work with an organization so dedicated to a worthy cause. Please help out in anyway you can for those who will benefit from The Leukemia and Lymphoma Society.

Mark P.6

Client Served

Rating: 5

when i was first diagnosed with CLL last year the Leukemia & Lymphoma Society helped me a great deal by providing lots of informative information to me via booklets and over the phone assistance. I was stuggling with no insurance and very limited funds. LLS was able to find ways for me to receive assistance and get the care I needed. The group chats they host too are really good. Thank God for LLS.

General Member of the Public

Rating: 5

Three years ago at age 39, I was diagnosed with Multiple Myeloma. My world came to a crushing halt. I was spinning out of control and didn’t know where to find answers. My son was young and needed his mother. My husband was devastated at the thought of loosing his best friend. It was in this time of need that I was pointed in the direction of LLS. LLS was a lifeline. They helped me understand my diagnosis. With understanding came calm. While there is no cure, I have found a support system of people who understand. LLS has provided emotional support and financial support that has helped my family and me greatly on this journey. Without LLS I don’t think I would be where I am today. Thank you to everyone at LLS for your kindness, support, and friendship.

Client Served

Rating: 5

My husband's jaw was broken in two places by a dentist that pulled his last four teeth. He has had an ongoing infection for over a year and a half and they need to do major surgery and take a bone out of his leg and put it into a jaw with a titanium plate. He has a hole going from the inside of his mouth and coming out where the top of his chin is. Everything that goes into his mouth, comes out the hole. It has been extremely difficult for him and for me as a caregiver.

In preparing him for surgery with the surgeon, we found out that he has a rare blood disease named CMML-2. It is rare form of leukemia and he can't have the surgery until we get the white count cells in his bone marrow high enough to have the surgery so he can heal.

LLS provided $100 for us which may not seem like much too many, but dear reader, financially we have been struggling. LLS set us up with a dietitian and she helped me to understand how to increase my hubby's calorie intake because he was losing so much weight.

They are saying stem cell replacement is his only cure and LLS had someone call me and my husband who had that done the same age as my husband to answer any questions and give support.

The LLS staff are so kind when you call, they go above and beyond to try to help you because they know you are struggling.

Everyday I go to the website because there's a general fund of $500 that is closed right now ... hoping to see an opening. It would help so much, When my husband is finally ready for surgery before he does the stem cell replacement, I will be sleeping in my van, because the hospital is 7 hours round trip and we don't have the funds to pay for a hotel.

Most don't realize how hard it is until you're in the situation. I'm not only a caregiver, I am total home maintenance (we just purchased a little cabin a little over 1 year ago and my husband has been down since then), I am the housekeeper the dishwasher the cook and the secretary to all this medical paperwork that is going on.

There are families who have their children and Children's Hospital that usually would be staying at the Ronald McDonald house but because of the colvin thing they are sleeping in their cars as well.

Dear reader, we need people like you to help because when you have nothing left, it's the only thing to rely on and it gives hope. Thank you so much if you've helped in the past and if you're thinking about helping and you can, please do.

From our heart to all of yours,
Stay well and be happy.
Debra L. & Thomas L.

Dino C.1

Professional with expertise in this field

Rating: 5

My name is Dino Chaz Smith Sr and I was diagnosed with Leukemia Cancer in January 2019 and I was totally scared that Cancer finally got me like it did with all the males in my family. See every Male gets Leukaemia Cancer at age 30. Some survive and some don't. Me, I served 27 years in The United States Marine Corps and retired from active duty as a First Lieutenant with a Huge Jacket Full of Purple Hearts and silver stars and 2 Gold Stars for being above service and bringing home all 192 Fellow Men and Women Marines Home, Every single Time. Except my fight against Cancer is coming to a halt really soon. Doctors have told me that I have 6 to 10 months until it is my time to go. I did alot of positive things with my life. But The Leukemia and Lymphoma Society has given me strength and guidance to keep fighting against Cancer and I'm doing just that. If someone came up to me and asked me what do I think about The Leukemia and Lymphoma Society, I would say that if you need someone to help you out and sit down with you and make a plan of action and not scare you into doing anything you don't want to do.
Sincerely, Dino Chaz Smith Sr.

1

Client Served

Rating: 5

I was diagnosed with NH lymphoma, stage IV, in 2017. The “trusted” resources from the Leukemia and Lymphoma were of tremendous help. Their weekly chats help connect patients and caregivers with a trusted host. I keep emphasizing “trusted” because it is important for patients to have an reliable anchor in the midst of incorrect information. The LLS booklets, written for the new patient and the patients on continued maintenance were key in helping me understand.

1

Client Served

Rating: 5

And so, it begins. About a year ago I began to develop a rash on my chest. It did not itch or otherwise bother me and my cardiologist believed it was caused by some of my medication. After switching the meds back and forth several times, nothing worked. Life rocked on. I don’t go to the beach and don’t have a fit muscular body to show off to anyone, so I thought who cares about a rash.

Beginning in January, the rash took on a life of its on. At first it only mildly irritated me. And, as the weeks went by the rash became increasingly worse. It reddened and began to intently itch. Not a regular itch, but an uncontrollable one coupled with burning one. It felt like someone had pressed a lit match not my flesh. At night it would wake me up. Normal topical ointments did not work.

Finally, my family doctor referred me to a dermatologist. She began treatment and gave me cortisone shots and a compound ointment. It helped, some. She performed a biopsy and reported she did not know what the rash was only what it wasn’t. Go figure. More months passed and the rash was no closer to being resolved. Finally, she sent me to an allergist who performed a complete battery of bloodwork. “Mr. Teel”, the allergy doctor said. “This is Dr. Rosenblatt. I need to speak to you about your bloodwork. I don’t like your blood.” This made me pause. No one ever told me they didn’t like my blood.

A year ago I had a kidney infection and my urologist told me he did not like the looks of my urine. I looked him in the eye and said, “Doc, I am almost seventy years old and this is the first time in my life anyone ever told me they didn’t like how my piss looked. I am hurt.” He started to laugh and laugh and so did I. “Mr. Teel, no one ever said that to me”. He answered.

The allergist wanted me to see a hematologist/oncologist. That got my attention. I wasn’t not worried only concerned. People say the word “concerned” as a step down from “worried”. Worried is a step down from “scared”. So, I was at the concerned stage. One bad thing about having an illness is not knowing. The great unknown. Knowing is power and healing and relief. In a real sense I looked forward to meeting the oncologist and learning what was wrong. Dr. Yates is caring and honest. “Well, you have T Cell Lymphoma”, he calmly told me. And the next thing he said was greatly welcomed. “It is entirely treatable.” I wonder if he heard my sigh of relief? He went on to say he was sending me to an expert in the field for an evaluation.

As I drove to the second expert’s office I did not know what to expect. His office was efficient and pleasant. Dr. Raza’s first words were, “Do you know what you have?”

“I was told it was T Cell Lymphoma”, I answered.

“That’s right.” He went on to to explain what that meant. It is a form of cancer of the blood and bone marrow. Unlike other forms of leukemia, the disease begins on the skin not in the blood and it migrates to the blood. I did not know that. He looked me over carefully and sat back and explained he will be my primary expert but my treatment will be supervised by Dr. Yates in Oxford where we live. I will see Dr. Raza every three months and can drive myself to treatments locally. Since the treatment facility is less than fifteen minutes from home this is a good plan. I will have an infusion of chemo once every three weeks. Dr. Raza ordered a bone marrow biopsy and. PET scan and explained the purpose was to ascertain the markers in my blood which can be used as a guide to attack the cancer cells.

I must admit I was apprehensive about the biopsy. Not because of the results but the pain that might be involved. The process takes several hours. First, you report to the lab for the PET scan. The technician/nurse injects you with a dye containing sugar water and a radioactive material. Then you sit for an hour while the substance works it’s way through your system. You are placed in a tunnel device such as a CAT scan or MRI. For over an hour you entire body is scanned. The machine moves you in and out, in and out until it has completely its work. The technician explained the PET scan sliced up your entire body. Sliced and diced.

The bone marrow biopsy is invasive. You report to the lab and don that skimpy open in the back hospital gown. You lay on your stomach and are numbed in your hip area. They give you an IV which places medication in your system to relax and calm you. It works. Then the doctor takes a long needle (I never saw it) and he inserts it in your hip bone and extracts bone marrow. This is subsequently tested. To my great surprise it was not painful only mildly uncomfortable at best. Did I mention the gallons of blood they take during the initial diagnostic process? Yeah. Lots of sticks. Lots of blood. But, I have plenty.

When I returned for my follow up with Dr. Yates he told me I needed a port installed in my chest to facilitate the infusions. Frankly, I was relieved. I take blood thinners for my heart (an infarc, triple bypass, stents, afib) and whenever I bump myself, even slightly, it leaves a nasty bruise.
Getting a port is no big deal. Back at the lab again. You wear the hospital garb, get sedated mildl through an IV, and off you go to the surgical unit. The doctor used some sort of X-ray device to perform an incision in your upper chest. A port is just a tube that intersects with your vein in your neck. A round like object is under your skin. This is where future IVs are inserted. It causes little pain and is far better than having an IV in your arm week after week. For me this is a good thing. Being hooked up to a bag of drugs dripping in your system may as well be semi comfortable.

On my first day of chemo now and back home. I found the process simple and comfortable. Everyone in my doctor’s office and the Baptist Hospital Infusion Center is nice and caring. A person can always tell the difference between being a caring person and just going through the motions. I was pleased the center has a 24 hour fully maned emergency contact number where you can report any problem and get an answer back quickly.

The procedure is as follows. Report to the doctor’s office. Have the port checked and flushed out. Then they draw blood fro the port not my arm. What a relief. Then you walk down to the infusion center and pick a nice comfortable lounge chair. You have more flushing and wait for the blood test results to come back. Then when the nurse gets the all clear you get a bag of saline and then the medication. Mine is Adcetris also known as Brentuximab Vedotin. There are side effects. Primarily fatigue and nausea. More are possible, but I won’t go I to these possibilities because I don’t want to jink myself by discussing them. You begin by taking orally Tylenol, Benadryl, and an anti nausea med.

All went well today. I leaned back and read my iPad. Checked the mail. Threw out more articles about politics, checked the local obituaries (my name didn’t appear), and generally relaxed. So far, so good. My wonderful granddaughter dropped me off and picked me up on this test run. Next time I will drive myself. I can do this.


Donor

Rating: 5

I will always be extremely grateful for the financial assistance that was given to me while undergoing treatments for CLL. It certainly helped to ease the anxiety of not only knowing you have leukemia but, also reduces the stress of worrying about the mounting medical bills. Whenever I can, I will donate to this wonderful Society and I have encouraged others to do so, also!

Client Served

Rating: 5

I’ve been retired since 2008. I was diagnosed with MDS two year ago. When I was told about LLS By a nurse friend I applied for help. They were more then happy to help me with my insurance payments and travel assistance. They have been a blessing.

Karla Tessaro V.

Client Served

Rating: 5

LLS has been a huge support To my family since my son was diagnosed with leukemia at the age of 13 months. From printed materials to financial and emotional support, we are so grateful for the help.

Client Served

Rating: 5

The Leukemia and Lymphoma society has provided me with invaluable information throughout my battle with lymphoma. I have a 1 year old son and had to stop working throughout treatment for almost the past year. We qualified for some financial assistance provided by the LLS which was hugely helpful and we are so grateful for.

John W.13

Client Served

Rating: 5

I was completely blindsided by this disease and had no idea how to deal with the cancer physically or financially. LLS helped me get thru both. I don’t know what I would have done without them. The weekly chats and other services have been so informative as well as comforting, allowing me to share and learn from others with the same cancer as I.

Client Served

Rating: 5

We loved working with LLS to promote awareness of the need for childhood leukemia research, especially for AML. Our daughter Lucy was diagnosed at the age of 8 months with a poor prognosis for survival. Better research can give parents like us more information to make decisions for the best possible outcome. Here Lucy is pictured helping with an LLS fundraising event.

Volunteer

Rating: 5

Leukemia and Lymphoma society has saved my life even though I don’t have cancer...

My father and nephew both have cancer diagnoses, and the Big Climb event was the catalyst I needed to go from 254 lbs of misery with fractured relations with my
family to a happy, healthy and active person at 184 lbs that volunteers, donates, loves his family, gives back and has yet has received so much more in return.

The path has not been easy, but it has been well worth it, and my struggles pale in comparison to the pain and suffering caused by cancer, as it destroys lives and rips people apart.

I am eternally grateful to Leukemia and Lymphoma Society for helping me rebuild my life and the lives I’m able to touch and impact.

Client Served

Rating: 5

My husband was recently diagnosed with pcns lymphoma. I never heard of LLS prior to his diagnosis. They are full of information and are helpful with funding to get you through a tough time. Most of my questions were readily answered by the numerous publications they provide. The social worker at the hospital recommended them to me and I'm grateful she did. I can't say enough good about LLS.

Client Served

Rating: 5

If it were not for the LLS, I would not have been able to get the necessary treatment to get my Multiple Myeloma under control. My first award was back in 2009 when I finally found a doctor who cared enough about me to tackle this beast. After 4 1/2 years of treatment it was under control and dormant enough for me to take a 5 year break from treatment. Now, it is active again. Thankfully, the LLS is there for me again, doing a phone interview and working with a wonderful young man, my application was submitted and approved! I start treatment this Wed, and though I would rather not, I am very grateful that I can, and work to get the myeloma back under control. Thank you LLS for helping me to do this, and be here for my children and grandchildren!

Matty A Martines S.

Client Served

Rating: 5

I was diagnosed with incurable CML July 28, 2018. One of my CML group members told me about LLS & help they offer for us patients. During the pandemic LLS provided me a $250 debit card, $100 check & $500 Travel Card for expenses during this crisis. Thank you for your kindness and help during this difficult times.

Sincerely,
Matthew A Martines

Client Served

Rating: 5

They helped me a lot with my financial hardships. I’m on a fixed income; Social Security, 82 yr old, living alone, with Non Hodgkins Lymphoma.

Johnathan M.

Volunteer

Rating: 5

Hello,
My name is Johnathan Manning. I am currently an eleventh-grade student at Bishop McDevitt High School, and I am honored to be a candidate for The Leukemia & Lymphoma Society’s (LLS) Student of the Year campaign of 2020. I am writing today to ask for your support in my efforts to help LLS in its mission to ensure access to cures and treatments for blood cancers. For seven weeks at the start of 2020 (January 16th to March 6th) students across the country will be raising awareness for research, programs, and advocacy being conducted through LLS, in addition to raising funds to support the mission to cure blood cancers. Several Student of the Year candidates, myself included, are competing in Central Pennsylvania, and we will each put our best fundraising foot forward in honor of all those fighting blood cancers. While childhood leukemia has the highest cure rate of any blood cancer, it is still the top cause of death by disease for children and young adults under the age of 20. This needs to change and I know that as we come together and partner with LLS we will find a cure.
I chose to run for Student of the Year because of the great number of losses I have experienced throughout my life. In July of 2018 a very close family friend of mine, Natalie, was diagnosed with cancer. Knowing the impact that Natalie made on my life, and seeing her impact on everyone she touched, inspired me to want to share her story. Losing both of my parents at such a young age has horribly affected my life, but I've managed and lived through it. Seeing people I care for struggle to fight against disease and ultimately lose has given me the inspiration to take that next step: to raise awareness, hope, and money for LLS. I want to help as many families affected by blood cancers possible and I cannot do it alone.

Lisa Elliott K.

Client Served

Rating: 5

Being diagnosed with leukemia is very scary and you might even feel alone, people don’t understand all the things we need to get through the battle. It’s not like a cancer with tumors that can be removed it’s an every day battle for the rest of your life and it’s not cheap. The leukemia and lymphoma society has been a wonderful help to me, not just helping with expenses but also with moral support. To give to this nonprofit organization is giving Support and virtual hugs to the people who suffer from leukemia and lymphoma.

Client Served

Rating: 5

In 2006 my husband was diagnosed with Chronic Lymphocytic Leukemia. We were told it was no big deal, so we lived life as normal, both of us teaching and leading extracurricular activities in a rural area. Then in 2012, 3 weeks after we married, my husband saw his oncologist. The CLL had blasted which meant his blood stream was filled with leukemia cells that were killing his cells. He had less than a third of the red blood cells we need to carry oxygen. He went through 8 months of chemos where it became obvious that neither of us would work again. Then the only option left was a stem cell transplant. We had to leave our home and move 200 miles away for this. During this time, the Leukemia and Lymphoma Society helped us so much with paying for medications, insurance premiums and all the other costs associated with a cancer diagnosis. My husband was able to take early retirement but I am not able to work because he needs a 24/7 caregiver. Our income was slashed by 75%. Even with lots of support from friends and family, we just wouldn’t have been able to afford to live and pay for the out of pocket medical expenses without the help of the Leukemia and Lymphoma society. Today is my husbands 7th birthday for having a stem cell transplant. We still need and receive help from the LLS. We are very grateful for their support. We would never have made it through this time without their support. And yours! This is my husband, our daughter and granddaughter. Without the support from LLS , my husband would not have met his grand daughter and grandson. We are grateful.

Volunteer

Rating: 5

I was a candidate for Student Of The Year in 2019 and I had the most eye opening experience. It allowed me to meet a ton of people and hear their stories of battling cancer. At times it was stressful however knowing that you are making a difference in people’s lives makes it all worthwhile. I was able to spread more awareness about blood cancer and how it effects people around the world by utilizing social media to the fullest extent. I am continuing to work with the organization because of how amazing everyone was to me and how happy I was doing it. Everyone who I’ve met that works in this organization have been such kind and hardworking people and you can tell that they truly care about what they are doing.

General Member of the Public

Rating: 5

The experience with leukemia & Lymphoma Society was very helpful with getting my travel Visa card for gas since my drive is 80
miles around trip I’m going on 39 infusions
at the Clovis cancer Institute Clovis California thanks for all your help
Bobbie Mills USAF Veteran

Volunteer

Rating: 5

I am an elementary school teacher and coordinator for our annual Pennies for Patients campaign for the Leukemia and Lymphoma Society. Years ago, we decided to participate because we had a student at our school who was a leukemia survivor. But it became much more than that. We were touched by the stories of other survivors and the families whose lives were made better through the work of this organization. To date, our small elementary school has raised over $50,000 and it has changed the culture of our school! Students approach me months in advance to ask me when our campaign starts and to let me know that they have been saving their coins for a year! Our students truly can sense that they are a part of something greater than themselves, and that is why we will continue to participate in the years to come. Thank you so much for the incredible, life-changing work that you do!

Client Served

Rating: 5

I really don’t know where I would be without the LLS COPAY ASSISTANT PROGRAM!!! I was diagnosed at age 45 with Lambda Light Chain Myeloma. The team at my Cancer Center informed me of the services so I applied and was accepted. I have now being fight for 16yrs. I have had 3 Autogolous Stem Cell Transplants, numerous types of chemotherapy treatments over the years. Just dealing with the disease is enough on a person and their family not to mention the financial aspect. This program with some work on my end... proof that I have paid the bills helps me get reimbursed for Medicare premium, my secondary that picks up what Medicare doesn’t pay, my drug plan & also gives me a drug card through them that picks up medications that are covered under a formulary. I cry every time I go to the mail box and receive the reimbursement check. I pay almost 500.00 out of my pocket for all of this coverage so whatever I get helps my husband and I. I am on disability and get 1338.00 a month so the insurance comes off the top. I think many time GOD what have I done that you would be so kind as to help me in this manner. As of today I just found a few days ago that I am out of remission again but this time is different Lytic Lesions are now involved which has not been the case in the past 16 yrs. I have a big lesion on the head of my femur and others in my pelvic area on the left and right so I am now having to walk with a walker and suffer with constant pain. BUT yeah I can still walk, be with my family & friends I SM BLESSED!!!!
All I can say is the comfort of knowing that LLS is here for me and a multitude of others is overwhelming!!!! I hope that just reading a little of my story YOU will know beyond a shadow of a doubt that YOU supporting ALL OF US means more than you could ever fathom!!!!

Donor

Rating: 5

I donate to the Leukemia and Lymphoma Society on a regular basis and am so inspired by all they do to help people. This is truly a great organization!

Robert M.11

General Member of the Public

Rating: 4

It all started in July 2011. I started getting short of breath just walking in a store.
I then nicked my neck shaving and couldn't get the bleeding to stop easily. Then one morning taking a shower I notice large brushes on my legs groin and arms. The next morning I went to my VA hospital. They took blood and had it analyzed. Results came back that my wbc was extremely high (may be wrong how I describe) Dr said normal was around 10000 my was 157000.
They transmitted slides to a specialized co in coloroda to define what it was.
They reported it is APL leukemia. Then two doctors came in to tell me this type has a 85% favorable out come.

I was immediately transfered to University hospital in Cincinnati. (The rest is not pleasant to read, but I feel the end message can be comforting to some) Almost immediately i had a team of doctors who would visit me everyday. I was diagnosed with DIC and DVT. Dic is brain bleeding and dvt is blood clotting. They told me they couldn't treat the two because one treatment would complicate the other.
They put an iv filter in the artery in the stomach to filter clots. APL's characteristics are internal bleeding. I was bleeding internal alot, so I had many blood transfusions for this.
I was given a wonderful drug , Atra. It was developed in France by observing how the Chinese where treating APL which i believe was vitamin A. The French eventually were instrumental in developing Atra. I was also started on chemo.
I had all of the awful side effects, but the doctors did everything possible to make me comfortable. I was discharged 5 weeks later in remission. Had to go to a nursing home for a while to get back to physically stronger. I had to give myself two injection everyday of Lovenex in the stomach fat. Really was not that bad. The needle is very short and thin, really doesn’t hurt.
I then had 52 visit to an out patient oncology clinic for more chem, IV Arsenic Trioxide.
This is when all my skin peeled off in sheets. Also all my nails started falling off. One good side effect was it killed off my toe fungus.
This w a s not a difficult time.

Overall it took about 30 months to get back to normal. Gained back the 50lbs I lost.

My message to people with APL is it is highly survivable. I considered it another bump in the road of life. I never never thought of not fighting it or giving up. I believe it gave me an insight on how vulnerable we could be but knew technology was on my side.

It's been 9 years and the only symptom that MAY be related is peripheral neuropathy in my feet. But medication is available for this.

That's about it, keep faith.

Donor

Rating: 5

Allow me to start by saying that I am a survivor. When diagnosed (NHL Follicular Lymphoma), all I heard was the”C” word! Afraid, Alone, Unsure. Kicked fight in the belly! The questions like whats left?, how long?, is there hope? Now my fantastic doctors tried to explain and comfort but they were the ones that laid this on me! That’s where LLS came in. They were my source for educating myself about the disease. A true wealth of knowledge was waiting. I found out just how many persons, young and old suffer from these blood cancers. I read about the current treatments and the treatments being researched. There was hope and encouragement! But I also became aware of the financial costs in researching and developing new treatment regimens. Exploring outside of the boxes. That is when I decided to participate in my first Light The Night fundraiser walk in Pittsburgh. It was there that I saw the young and old with their families. I saw the doctors, nurses and technicians that care for us. And... I mean CARE with Capital letters!!! My family became immense in a heartbeat. This family, here and throughout the country, is the family that will defeat these blood cancers. I am currently in remission. I never realized how sick I had become until I became well again! The treatments worked for me. When we walk, we survivors wear a light blue t shirt to signify our journey. There are many light blue shirts in the crowd but far from enough! We need more help. We need more stem cell donors. We need more financial donors to carry on further research. Please join our family!

Patricia A. C.

Client Served

Rating: 5

Oh my God, I am so grateful for a non profit such as LLS.
My name is Patricia Castro and I was diagnosed in January 2018 with multiple myeloma. I went through a lot of financial, emotional and physical despair.
LLS have given me someone to talk to that is going through the same as I and around the same age. I appreciated that so much. I am in touch with the two lively ladies and I now call and check on them. So I would say that they help me are excellent networkers in connecting you with someone to talk to. Because everybody don't understand what you go through daily. So i just stay connected.
LLS give back. I have ask for help financially and I have never been turned away. They help me get to my appointments by giving me gas money. Food to eat when I had no finances but for rent. They are a blessing to me in all areas
Counseling help when you need someone to talk to also.
Thank you LLS for all you do for us. Thank you for giving back.
Please donate for that reason alone. They give back.

Cathy C.6

Volunteer

Rating: 5

I am both a client served and a volunteer. My son Reilly, died of leukemia at age 17 in 2017. He had an extremely aggressive form of T-cell leukemia and I turned to LLS for information and advice. I want LLS to continue their good work, so I have done volunteer work for my local chapter as well. It’s a fantastic organization working to fight a horrific disease.

Client Served

Rating: 5

I have been fighting Stage IV Non-Hodgkins since 2012. In my bone-marrow and spleen. The Leukemia,& Lymphoma Society has been so wonderful and kind to me. I am 73 years old and their financial support has taken a lot of worry off my mind. My Medicare and AARp United health care, and Silver script are almost $400.00 a month. Without LLS I would be in dire straights. I have had 46 Chemo treatments , This cancer is treatable, but not curable so you need good insurance. Thank You LLS. for all your help.

Volunteer

Rating: 5

I'm malichai, my school did a fundraiser for the leukemia and lymphoma society. This meant so much to me because I lost my auntie Lexi during her fight with leukemia back in 2016. To be a part of something to help those in need during their battle with leukemia, lymphoma, any cancers, or life threatening diseases meant so much to me. So with the help of my momma and her reaching out to her friends and our family, we were able to raise more than $200 for the cause. It felt so good know it could bring comfort or happiness to even one person struggling. Thank you to the leukemia and lymphoma society for letting me be a part of it all!!!

1

Client Served

Rating: 5

During the darkest time and days filled with anxiety and fear this organization gave accurate,scientific,current information of the highest caliber. I attended one of their symposiums and learned first hand from the foremost practitioners in the world. They also are a source of financial support for some and emotional support for all. This organization makes a very tangible contribution to the patients and families and there is no way I can say enough about them.

1

Client Served

Rating: 5

My daughter was diagnosed with Pre-B Cell Accute Lymphoblastic Leukemia when she was just 6 years old.

Her father was diagnosed with Non-Hodgkins Lymphoma.

During the most difficult times of our lives,, our family has thrived thanks to the compassion shown by LLS. With every walk, every support platform they offer; even down to the reading material provided, we've come to feel very cherished by the foundation.

We will forever consider LLS part of our family.

Now with two amazing cancer SURVIVORS, we hope to help support LLS the way they've supported us.

1 Brent N.2

Donor

Rating: 5

LLS is a amazing non-profit.

They combine a focus on fighting to save people’s lives with a fundraising approach that meets supporters wherever they are, whether you are an athlete, a survivor, or a business person wanting to be sure the most important good is done.

We have participated in the Annual Light the Night walk for 4 years, starting as my sons Leukemia treatment started. One if the most powerful aspects of this walk is it allows you to be drawn in to your comfort level. The first year friends and family joined us, but we stayed on the periphery of the crowd, not really sure.

Last year, we were invited to join a team by the clinic where our son was being treated, we were drawn all the way into the middle, fully participating in the Ring of Honor, and it was deeply moving.

LLS funds research, but at the same time they build a community. Definitely an outstanding organization.

General Member of the Public

Rating: 3

I am major Singh Sivia I am patient of blood cancer (CML)PLEASE HELP ME MONEY I AM PATIENT OF BLOOD CANCER I HAVE NO MONEY FOR TREATMENT PLEASE HELP ME I AM CURRENTLY UNDERGOING TREATMENT I AM CURRENTLY NOT EMPLOYED MY CONDITION DIFFICULT

1

Client Served

Rating: 5

Way back in April of 2011 I was diagnosed with Chronic Myeloid Leukemia or CML. My oncologist recommended that I could get my best information from LLS. That fall my daughter and wife formed our first LLS Light the Night Team and then dragged me to my first LTN event (I was still very angry about CML). They brought about 8 of my closest family and friends and I've never looked back. All the informational materials and activities from LLS were and are FREE. Our first LTN Walk brought tears of joy to my eyes. The stories shared by the honorees were just what I needed. Currently my CML is completely under control thanks to the medication that was developed through support of LLS and the genius of Dr. Druker. I am an active chat member through LLS' CML Chat, am captain of Team zLightful for LTN, I've been trained as a First Contact. LLS helped me find my way through this difficult journey. If you have a blood cancer or are a caregiver LLS is here for you.

1 David R.13

Volunteer

Rating: 5

I had the privilege of working with the Leukemia & Lymphoma Society Oklahoma chapter. I worked on a team during the Man and Woman of the Year campaign. The campaign kicked off shortly before the COVID pandemic. I was amazed at how well this organization was able to shift their fundraising efforts to a virtual campaign. Since blood cancers don't halt during a pandemic, the work of this organization is truly essential to so many.

1

Volunteer

Rating: 5

Last spring I was given the amazing opportunity of working with the Leukemia and Lymphoma Society and raised awareness and support for all they do. I truly enjoyed working on the Student of the Year Campaign as a Team Member because every single person was there to benefit others. I thought it was a great way to get the youth of today active in supporting the fight against cancer and educating everyone in what LLS does. It meant so much to me that I was able to care for others while at the same time doing it for my family members that have personally struggled with cancer. It was a wonderful experience that I wouldn’t change for the world! I learned so much by listening to our guest speakers, meeting our strong role model, Portia, and engaging with members of our community. This organization makes the goal of ending cancer seem that much more achievable and I am thankful I got to be apart of it!

1

Client Served

Rating: 5

I had never heard of them until some of my treatment was going to be very expensive. The patient advocate at my Drs office asked if he could try and get me a grant to cover the gap in the pharmacy coverage. I have since used the L&L society several times and their grants really help.

1 Patrick J.4

Donor

Rating: 5

I can’t believe how well they keep donors informed with life stories and advances in treatments.

I love helping this cause because they really care so much about those whom they seek to serve.

1

Client Served

Rating: 5

I was diagnosed with Hodgkin’s Lymphoma at the age of 22 and underwent 6 months of chemotherapy, and unfortunately relapsed less than 3 months after finishing treatment. I then received more chemotherapy and a bone marrow transplant, and I have been in remission since April of 2019. Thanks to LLS, I was granted a prepaid bank card that could be used for transportation expenses, this was extremely helpful as my treatments were out of town. Not having to worry about travel expenses was a huge relief to me and my family. LLS continues to provide care and support to anyone effected by blood cancer.

1

Client Served

Rating: 5

My name is Renee, I am a survivor of Multiple Myeoloma. I was diagnosed in August of 2014. This was hard and I was afraid for a moment; because my mother had died from pancreatic/liver cancer in 2008. The Leukemia & Lymphoma Society has truly been my help and life saver.
This organization has provided resources for me to help with my mental health, assistance with my expensive medication that I am told that I have to take everyday for the rest of my life. I have been blessed to be here to witness the birth of my newest grandson and have the opportunity to be here for other 4 grandchildren. This year they helped with a grant for food because I was furloughed from my part-time job due to Covid-19.

Leukemia and Lymphoma Society is a God send and I am so grateful for the many people who provide donations to this organization.

God bless you.

1

Client Served

Rating: 5

My son Braden was diagnosed with ALL in December 2017. The Leukemia & Lymphoma Society has helped us financially and informatively. For that we are forever Thankful. It's one of the Best nonprofits hands down!

1

Client Served

Rating: 5

I was diagnosed with Plasma Cell Leukemia (an aggressive form of Multiple Myeloma, an incurable blood cancer) in December of 2019 and began chemotherapy on January 30, 2020. Because my daughter had a friend who volunteered with LLS, she learned and passed on to me that LLS provided financial assistance as well as educational information from top MM specialists throughout the country. I have recently been made aware that my MM was likely caused by agent orange exposure during military service in Vietnam. While I have been undergoing treatment, the services offered by LLS have greatly benefited me and my family. I am currently in remission awaiting a stem cell transplant and can’t say enough about this great organization!

1

Client Served

Rating: 5

I was diagnosed with myeloma in 2008. I was in denial at first because I just couldn't imagine me having cancer. Without the help of LLS there are somethings I don't know how I would have gotten through. I love you LLS and I will always be there to help as much as I can, anyway I can.

1

Client Served

Rating: 5

This nonprofit has been a saving grace for my family. I was diagnosed in 2018 with stage 4 Hodgkin lymphoma withe three relapses and finally an auto stem cell transplant to save my life. They gave me food gift card, gas gift cards, and lodging. I have to children and am a single mother that has been through the ringer with cancer and they are amazing.

1

General Member of the Public

Rating: 5

I was first diagnosed in Oct 2011 with Waldenstroms cancer and have been in treatment since. I am thankful for the doctors and their staff for all their help. I want to tell all never give up as things change every day. All the people I have been in contact with are amazing. Hope all who read this remember never say never. I am a woman of 80 years young and I intend to be around for many more years.

1

Donor

Rating: 5

For many the idea of donating bone marrow is a very scary proposition. Fortunately
The Leukemia & Lymphoma Society, and groups like theirs, really do a great job of walking potential donors through the process. They fill-in the knowledge gaps and make you as comfortable with the process as possible. Beyond that they really bring home how important your donation is to not just the recipient, but the recipients family as well. second only to the day I became a father, the day I donated my bone marrow was one of the the most humbling of my life. Everyone of us has the potential to save a life, sign-up and help The Leukemia & Lymphoma Society continue to do this most important work.

1

Volunteer

Rating: 5

Started with DLBCL lymphoma in 2013. Received RCHOP and was free of cancer for 6 years. DLBCL has come back along with CMML leukemia. Currently 2 weeks into CAR-T therapy. Wondering who else has had CAR-T and how it worked out. Also wondering who has had any experience with CMML?

1 Christina F.3

Donor

Rating: 5

As a leukemia survivor myself, I feel like the Leukemia & Lymphoma Society does so much to not only support patients through some of the most difficult times in life but help their caregivers navigate through understanding their needs and condition. They work tirelessly to fund research which in turn helps patients get the latest and greatest of care. Thank you LLS!!

1

General Member of the Public

Rating: 5

My experience has been in participating in the walk the last two years. My 34 year old daughter is a two-time recipient of bone marrow transplant and is doing great. I thank God for LLS because of all you have done finding cures and treatments for people like my daughter. It has been amazing seeing all the ways my daughter’s life has been saved. It has been a miracle seeing so many caring, kind, compassionate, knowledgeable people involved in helping my daughter, from doctors and nurses to chaplains and patient services. Thank you LLS!

1

Donor

Rating: 5

The highest standards at the service of the noblest of causes, research and support to families that are victims of cancer in the Leukemia and Lymphoma forms. And behind the caregivers that help support all of us.
Kudos for the wonderful work and bringing hope to all of us !

1

Client Served

Rating: 5

When my husband was diagnosed with multiple myeloma we called the cancer society to be basically told there were lots of programs but not for us since we had income!
At the suggestion of friends I called the LLS who could not have been more helpful and supportive. We did not need a handout. We needed a person who understood and could give us info and keep us calm. They did. They actually called once a week to check up in us until we left town for his treatments. They still touch bases every so often to make sure we are ok.
We are surviving and getting back our lives. And a good portion of our sanity and state of mind and heart is due to the volunteers at the leukemia & lymphoma Society.

1 Lynia D.

Client Served

Rating: 5

This is the best non profit I ever known ,they help me more than I can ever imagine. I wouldn't be able to afford my cancer medication without them. I praise the Lord for that foundation.

1 Tom Nomiddlename M.

Client Served

Rating: 5

Research news keeps me informed of latest trials and study results for Multiple Myeloma. It gives me an arsenal of hope when current treatments slow down or fizzle out. It's encouraging to know I have a strong advocate in my corner. Thanks for your hard and dedicated work!

1 Mickey J.

Volunteer

Rating: 5

I first heard about the LLS Light the Night walk about 20 years ago and have been participating every year since. My dad passed away from Leukemia i 1985 before there were options to treatment. I am so glad to help out any way I can so that future generations can get the medications they need and possibly put an end to blood cancer. Our local chapter has been extremely helpful with materials that I need, advice, and I was part of a team that brainstormed ideas to promote the walk. I would not have been able to raise money and awareness without my local chapter!

1

Volunteer

Rating: 5

My name is Anthony Russo and I work for Bayer Pharmaceuticals in Whippany, NJ. During my first week of employment back in august 2019 I attended an LLS event in one of the showrooms at our office and I was immediately hooked in. Bayer already had a Bayer LLS team so I joined without hesitation. My wife and I attend the Night the Light event in Morristown and it was just a wonderful event with so many success stories and stories that tugged at your heart string. Ironically on 6/12/20 of this year I myself was diagnosed with Multiple Myeloma and am currently undergoing my treatment plan. Everything happens for a reason and I'm grateful more than ever for joining the Bayer LLS team and helping such a worthy cause.

Thanks you.

1

Client Served

Rating: 5

I was diagnosed with myloplastic leukemia and given 6 months to live I had a bone marrow transplant. I survived 17 years then found out I had AML 40 % of my marrow was infected with cancer in 2019, I was given 3 months to live, i had a stem cell transplant in November of 2019 it has been 9 months and I am 100% leukemia free.

1

Client Served

Rating: 5

I was so fortunate to learn about LLS when I was diagnosed with AML leukemia atWVU Hospital. Besides my health I was worried about the financial burden I was putting on my husband! At 70, I am not wealthy. Because of all the contributions of supporters, the financial aid has been a God send! Now I can concentrate on getting well. I thank everyone who helps me! Medical bills, transportation costs, and many other expenses! God Bless you all!

1 Angel C.3

Client Served

Rating: 5

LLS saved my life! I am a survivor of multiple myeloma thanks to life saving prescription and insurance reimbursement from LLS. During treatment, the cost of medication and covering deductibles would have been impossible. LLS covered it immediately allowing me to continue treatment. I continue to receive support following two stem cell transplants as the cost of insurance continues to rise. Not only the financial support but the education and patient support is excellent. The staff is always pleasant, supportive and easy to communicate with in a stressful time, they are a blessing.

1

Client Served

Rating: 5

Saved my sanity after 2013 diagnosis of MCL and following chemo and radiation. Still here and under control.
Grandpa

1

Volunteer

Rating: 5

It has been an amazing process, LLS has a great staff and being apart of the student of the year program. It is amazing seeing LLS enabling these high school students to do incredible things. Setting them up with leadership, and networking skills. Something That no other program teaches high schooler. I love this nonprofit and am greatly invested in is movement.

1

Volunteer

Rating: 5

I contacted LLS to learn if they had a position on Roundup. I received the statement and other contact information. I administer a Facebook support group for patients with Mantle Cell Lymphoma and their caregivers. We have 614 members. This information will be very helpful for them when the lawyers begin their second round of badgering for business. Special thanks to AnaPortillo for such a quick response. Thank you, Ana.

P.S. I am also a patient of MCL, Blastoid Variant.

Review from Guidestar