The Sepsis Alliance gave me footing in very unsettled ground; a place to start from as I began learning about sepsis after a personal experience with sepsis and septic shock in January of 2012. Not only was the SA a place to start and work from, it was clearly the place to return to, regularly, for current and up to date information. The Sepsis Alliance, founded by Dr. Carl Flatley, is The Nucleus of sepsis information; a reliable center for learning and teaching. I'm grateful to all who are involved with efforts to raise awareness of sepsis. ~ Paige
Review from Guidestar
My sister, Erin, died from sepsis on April 30th 2002. She developed sepsis after having a simple, outpatient procedure! At the time of her death, I had never heard the word sepsis before. A huge part of me died with her that day and my life has never been the same! She passed away 4 months before my wedding and 2 weeks before my birthday. Erin was young, just 23 years old. She was pretty, smart, fun, loving, kind and loyal. Her zest for life was contagious and she is missed everyday by so many of us who loved her! My father, Carl Flatley, founded the Sepsis Alliance shortly after her death and I marvel at what it has become today! I am so proud to be a part of this great organization that is truly saving lives! Awareness of sepsis is key in reducing the death rate from this equal opportunity killer! Suspect Sepsis, Save Lives and Limbs!!
I felt guilty that I had survived septic shock, and bewildered by the side effects that left me physically tired and with cognitive problems. I battles insomnia as my mind tried desperately to piece together missing days. I was unable to connect with other septicemia survivors until I found Sepsis Alliance on the internet. It started with a few email exchanges with other survivors, and has blossomed into a network of supporters who have helped me overcome my negative feelings about surviving, and provided encouragement as I improve physically. At the same time, I have learned more about recognizing the early symptoms of septicemia. I have made efforts to personally contact friends who have loved ones in the hospital, especially those battling infections of any kind, with information about recognizing symptoms and asking health care providers is they have a sepsis protocol to follow. This condition causes far too many deaths, especially in hospitalized patients, and this organization helps save lives by disseminating information and helps enrich lives by giving the survivors a voice.
I nearly passed of Sepsis in May 2009. I am a single mother of 2. I am blessed to be alive. However, there have been complications. I felt like my concerns were not being heard. In June 2012, I was perusing videos on Sepsis within YouTube. I was blessed and stumbled upon Dr. James O'Brien's video. I was compelled by how informative his video was. I then took a chance and reached out. Dr. O'Brien personally returned my call. He validated a lot of my concerns. He suggested connecting with the Sepsis Alliance. I did by submitting my story under Faces of Sepsis. www.sepsisalliance.org/faces/angie_lembo/ I started to network with other Survivors, family members of those lost to Sepsis. Finally, I felt validated. Then, on Sept 13, 2012, Sepsis Heroes Gala in NYC. I was honored to be present and volunteer by "tweeting" on the event. Moreover, I was honored to just be present. The experience gave me goosebumps. To hear and meet such wonderful people who are devoted to Sepsis Awareness gave me hope. And, the drive and motivation to spread Sepsis Awareness. Before, I felt like a leper. I've encountered both MD's and EMT's that when you mention Sepsis, they have a befuddled look on their faces. A big Congratulations to The Sepsis Alliance for receiving the Edwards LifeSciences Grant! The Sepsis Alliance needs to be #1 for 2012! ~Angie Lembo, Sepsis Survivor
November 2012 my 3 week old son became terribly ill and doctors were unable to diagnose his condition/illness. On our 2 (maybe 3rd) day out of 30 in the hospital, the infectious diseases doctor mentioned sepsis and septic shock. I was clueless. I began researching what sepsis was and learned enough to understand what it did to the body, but nothing else. Thank God my son survived and we made it home. I continued my research of sepsis and came across Sepsis Alliance. I began to read their "Faces of Sepsis" stories and learned so much more than I had imagined. I learned that sepsis is a very common killer and yet very little people know about it. Sepsis Alliance allowed me and many others to share our experiences with the world and to educate and spread awareness. That mission is to spread awareness (KNOW SEPSIS) and save lives. I have been fortunate to share my son's story, as well as the Sepsis Alliance website and Faces of Sepsis stories and educate friends and family. Me telling my experience was just one "incident" and if others can read and learn about how common and dangerous this actually is , then lives CAN be saved. This is why I nominate Sepsis Alliance for this award/recognition.
This site helped me understand that I am not the only person who survived SEPSIS and that the post symtoms I had are shared by many people who survive SEPSIS. I hope this continues to educate people, the general public and researchers who work to spread the SEPSIS does not have to be a deadly disease but a disease that can be caught in its early stages and be treated quickly and effectively.
Sepsis Alliance shines light and educates about this killer. It has brought me friendships and support that will last a lifetime. We are blessed to have such an organization.
When I lost my sister in 2010 to this deadly disease, I was stunned to find out how few knew anything about it. The blank looks people gave when I told what claimed this vibrant person. The Sepsis Alliance has done so much to educate the world about this preventable sickness. In addition it has provided me with a group of people I now consider my good friends. Their understanding and compassion has put me on a path of healing. I will forever be thankful.
My husband and I got involved with Sepsis Alliance when my husband came home from WakeMed Hospital in Raleigh, NC. Until he was admitted to the ICU, we had never heard of Sepsis. Carl Flatley and the Alliance have been a great source of information about the deadly killer within. Carl and Jim travel and speak to individuals and groups. Gary is one of the faces of sepsis posted on the sight and was inspired to write: Gyroscope: A survival of sepsis and to start a website to help with awareness. www.sepsisawarenesstoday.com click on events to see recent videos. Again we thank Carl and Jim and all the others at Sepsis Alliance.
The Sepsis Alliance helps educate the public and healthcare professionals alike. As the Founder, who lost a young daughter to sepsis and a victim myself, I can say my involvement helping others and saving lives and limbs has been therapy for me to live on with out my daughter. This organization of dedicated lay individuals and health care professionals provides comfort to me and solace that I am doing something positive to continue to heal from a personal tragedy . This work will keep me alive! SA will save " Lots of Erins"!
I became involved with Sepsis Alliance about two years ago. When I worked actively as an RN, I did care for patients with sepsis but I didn't realize the issues behind it. I just helped treat them and, hopefully, get them well enough to be discharged. Since becoming involved with SA, speaking to people who have survived sepsis and those who have lost someone to sepsis, I am more dedicated than ever to help raise awareness about this disease.