February 2018 my husband felt ill as if he had the flu which was going around our community. Within 5 days he was in the emergency room as the doctors attempted to find the cause of the various symptoms he had. Within the next 24 hours he had to be flight for lifed to a large hospital that had an ICU that would save his life. He had gone into septic shock and had staph aureus throughout his body. After reading so many stories on the Sepsis Alliance site I learned that this is a serious illness that so many people and health professionals don't react quickly enough to the obvious symptoms. This non-profit has convinced me I need to help others in any way I can so another family doesn't have to go thru this.
I read the survivors' stories with much interest as my mom died unexpectedly of septic shock. My heart goes out to them. My husband and I are both college educated professionals, well-respected and established in our community. But we were unaware of the symptoms of sepsis and trusted the medical professionals with mom's care. Unfortunately, the system let mom down and we lost her. I think there are still many medical professionals who don't fully understand and recognize the indications of sepsis, and there are still hospitals without effective sepsis protocols in place. This is especially true in small towns with mediocre staff. We still have a lot of questions regarding how and why mom died, but it is a great comfort to us to have the Sepsis Alliance readily available to assist.
I knew next to nothing about sepsis util I ended up spending a week in the hospital being diagnosed and treated for sepsis. Afterwards, I did some internet research on the topic and found Sepsis Alliance. After reading dozens of posts I realized that little is known of sepsis within the general public. Many people begin experiencing the symptoms of sepsis and do not realize that they are confronting a serious and even deadly disease. The more people can be taught about sepsis, its symptoms and its seriousness, the better chance they will have to seek treatment timely and, in many cases, survive this horrible, deadly condition.
My mother died due to Sepsis and it took her life very quickly and unexpectedly. This website has comprehensive information on the ways Sepsis can take a fatal grip on you from something seemingly insignificant like a minor cut or insect bite. In my mother's case it started with a kidney infection. Unfortunately, Doctors and Nurses are not fully aware or do not act quickly enough when the signs are noticed.
I developed Sepsis in April 2011 after the birth of my daughter. It was caused by retained placenta products that were not discovered until almost two weeks after the birth. I had hemorrhaged so many products got left behind and later became infected despite an antibiotics course after I was discharged home. I made lots of calls to the doctor during that time due to pain and constant fevers only to be told my estrogen levels were coming back down. Having never had a child prior, I never questioned it.
It was not until I spike a 105 temp, an emergency U/S was done and then a D&E was performed that the toxins were released into my bloodstream and I went into septic shock. An All Hands Code was called and streams of doctors and nurses came in and out of the room. I was finally moved to ICU and stabilized.
I discovered Sepsis Alliance when I was home looking for information to finally understand the depths of what happened and what could have resulted. It was harrowing at best. I am here and do whatever I can to raise awareness and funds for this fabulous group. It is amazing how few people really know what sepsis is.
Review from Guidestar
I am a Sepsis/Septic Shock Survivor as a result of an obstructed Kidney Stone. I spent eight days in ICU, six days on a ventilator & medically induced coma, requiring dialysis treatments, several kidney procedures following, and numerous plastic surgeries on my feet and fingers due necrotic tissue. Needless to say, I was very uneducated about Sepsis and the damage it does to a person both physically & emotionally.
Sepsis Alliance Organization has provided me, my healthcare providers, and family with critical information on what to look for & how TIME plays such an important role. Most importantly, by reading Sepsis Survivor Stories & sharing my own experience, it has enabled me to gain the validatation I need to know I am not alone.
After I suffered Septic Shock caused from a bladder infection, and spent 6 nights in Critical ICU and 9 nights in hospital overall I was desperate to learn more about this condition and to read other survivors stories.
Sepsis Alliance taught me so much more about the condition and reading others stories helped me to heal.
I had never thought I would ever suffer from this and not knowing much about it could not identify it until I nearly died. Thank you so much to Sepsis Alliance. I will definitely be supporting them always in the future
As a septic shock survivor, and now a health care professional (nurse), Sepsis Alliance has been an invaluable resource for me along the way. I have been able to share my story, hear the stories of others (which has helped with reminding me I’m not alone) as well as been a wealth of info for me.
Sepsis alliance is one of my favorite non profits-I recommend it as a resource for many of my patients and I have benefited from it myself as I also was diagnosed with sepsis several years ago. Raising awareness and providing information in ways that everyone can understand are things that Sepsis Alliance excels at.
I started working with the Sepsis Alliance in 2016 after my college best friend died suddenly from Sepsis. I wanted to honor her memory by holding an event and did so in April 2018 by holding the Inaugural Washington DC Sepsis Awareness event.
Everyone at Sepsis Alliance was very supportive with the event and made sure I had everything I needed.
As a small non-profit, they do a tremendous job of spreading awareness about Sepsis and as a result have reached millions of people to educate them about the signs and symptoms of this condition, albeit with their limited staff and budget.
I feel confident in asking others for donations for this organization, as I have seen first hand that they use their funds very effectively.
I would encourage anyone seeking to donate to a cause that will help save lives to think about Sepsis Alliance as their first choice.
Thank you so much for promoting awareness about sepsis. I just recently lost my father to sepsis and reading the stories about others who have experienced such an illness makes me feel less alone!
My heart got shattered the day I found out that my mother had sepsis. At first doctors just said she had an infection and needed to stay in the hospital for treatment. They never told me she had sepsis u til my mother got a septic shock. I never knew what sepsis was until my mother was diagnosed with it. She had two septic shocks and after that she was in life support for 3 weeks. The doctors heartlessly had encouraged me to let her go since day one but my mother was a warrior and never gave up. She was resuscitated twice and survived it. She was able to fight off sepsis, however sepsis had already done enough damage to all of her organs and there wasn’t much to do about it. This has forever changed my life and it took away the most precious treasure God had given me. The doctors didn’t seem too concerned about it as it seemed like they didn’t know what to do. There was plenty of other patients going through a similar experience and my mother got sepsis after a surgery and negligence. I feel obligated to spread the word about sepsis, this is a life and death matter and your whole life can change within a few days! My heart is broken and I miss my best friend, first love, my amazing mother Rosa Peña. I will forever remember her and will do whatever I can to spread the word about sepsis and for doctors to find a way to preventing it in hospitals after a surgery and have enough knowledge to save more people’s lives. We’re here to fight off sepsis with the sepsis alliance organization and I am ecstatic that they exist! I wish there were more organizations recognizing how dangerous Sepsis is. I love you Mommy! I will fight for you because you taught me how to be a fighter and never give up till my very last breath, just like you mommy!
I didn’t know about Sepsis until it affected me personally with my father. I’m so glad there is a platform spreading awareness and also letting the people share their own stories from their viewpoints. There is nothing I miss more than my sweet father. I will always fight for Sepsis!
My dear Dad passed away in January 2018 of sepsis. At the time of diagnosis at the hospital my family and I had no idea what sepsis was. I found the Sepsis Alliance while searching for information online. This organization has helped me immensely while grieving my Dad. Reading the stories of the survivors and those that are no longer here have really opened my eyes to this terrible illness.
I became septic in 2016 from a typical UTI that progressed faster than I thought could ever happen. After finding Sepsis Alliance on Facebook, I have learned a lot from the site and from the stories they've published of people who've suffered from this little known condition. Their work in promoting the awareness of sepsis is critical in helping people to live and become aware of the signs and symptoms of sepsis.
April 2017 I went into septic shock and my chances of surviving were slim. After spending weeks in surgical intensive care I was well enough to go home. Scared and confused as to why this happened to me, I was searching the internet for answers and found Sepsis Alliance. I spent days on their website researching all the information and the stories of other people who encountered sepsis. Sepsis Alliance answered my questions when no one else could.
The Sepsis Alliance provides a wealth of important information regarding Sepsis. We were able to share our son's illness in hopes to continue to educate and promote Sepsis.
My family is very grateful for the staff & volunteers at Sepsis Alliance for providing support and resources for sepsis survivors and for families that have been forever changed from this illness.
I feel like I have been given a voice to try to be understood. It really matters that I don't feel alone in this experience. Sepsis Alliance has shown me that I am not the only one & I cannot express what that means. I don't really understand all the "after effects" of sepsis that I am going through. But today I have a place to go to find answers. Thank you from the bottom of my heart.
My beautiful 28 yr old, seemingly healthy daughter, died from sepsis on October 4, 2016.
No one knew the signs. She just thought she was fluish and wanted to rest. Little did she know, as she was resting, her body was shutting down with organ failure. She was too ill to even reach for her phone to get some help. When her boyfriend got home and realised how sick she was the paramedics were called.
She went into cardiac arrest, not once. but 5 times while in the ER.
None of us including the Drs. even thought of sepsis. They kept asking if she was on drugs, could she have mixed meds together etc. I told them she didnt use drugs.
She had kidney, liver, heart amd brain damage. It was too late. She couldn't be saved. We often ask ourselved had she gotten help earlier instead of resting, would she be alive today?
This is an incideous disease. No one thought of sepsis as she was not in the hospital etc for anything.
Her septic shock came from Enterocolitis. From being constipated since birth, her intestinal walls had thinned out so much that one day fecal matter seeped through and killed her. No one should die from being constipated. My goal is to get the word out there and let people know about sepsis.
As you can imagine we are heartbroken. She was a sweet, caring person who loved life. She was taken much too soon.
I had "severe" sepsis and 28 days of 24/7 intravenous antibiotics followed by antibiotic pills, in a hospital and then even longer in a nursing home. The doctors and nurses never said anything about potential sepsis after effects but after getting home I certainly did have some, so online I went and soon found Sepsis Alliance, thank goodness. I had never even heard of sepsis yet the Sepsis Alliance website provided very useful answers to my questions. And that meant, and does mean, a lot to me. I thank you, Sepsis Alliance sepsisalliance.org !