My father was diagnosed with Pulmonary Fibrosis in October 2010. At that time we never heard of this disease. After my father's diagnosis we began to research IPF and was horrified to learn that there is no cure and very little awareness. I am saddened to say that my father lost his battle from IPF On December 21, 2010. After my father's passing my family embarked on a mission to raise funds and awareness for this disease. We have since held two fundraising walks in memory of my father and have combined raised a total of $30,000. This would not have been possible without the help and support of the Pulmonary Fibrosis Foundation. The Pulmonary Fibrosis Foundation is a wonderful foundation that works extremly hard to fight the battle to find a cure for this unforgiving disease. The staff is amazing and so supportive from organizing a fundraising event to allowing people to connect with others that have been touched by this disease. The Pulmonary Fibrosis Foundation IS A GREAT NON PROFIT!
My husband was diagnosed with Pulmonary Fibrosis in 2008 --He was told he had maybe 2-3 years left to live. We had never even heard of this disease. For years he was diagnosed with asthma, a common misdiagnosis. Thankfully , he received a new lung in 2010 ( on our 18th wedding anniversary!) and his life expectancy has been extended for many more years . This journey has been very difficult to say the least but the PFF has been there every step of the way -They are pushing very hard to spread awareness of this devastating disease as well as trying hard to get federal funding . This disease is being seen more and more ( particularly among men around 60 plus years ) and as Americans get older the expectation is that we are going to see more and more cases of this illness--an illness that many people don't even know about --so research, awareness and treatment options are CRUCIAL --The PFF is in the forefront and as the disease is growing I would like to see the Foundation have a deep and solid base of operations forever as it has become very apparent to me that this non -profit operation is going to become a major force to help fight this disease. Julie Halston
My background is in government and nonprofit management. Early this year I joined the board of a small nonprofit in Southern Indiana which is focused on providing education and awareness of Pulmonary Fibrosis, a progressive lung disease that is often misdiagnosed and has no known cure. More recently I became the executive director of the organization, and over the past 6 months have had the pleasure of getting to know and work with the staff and some of the volunteers of the Pulmonary Fibrosis Foundation (PFF). The focus of PFF is to support research efforts to find a cure for the disease, to advocate for the pulmonary fibrosis community, promote disease awareness and provide a compassionate environment for patients and their families. Everyone that I have met, whether staff, patients, doctors or donors, have been passionately committed to the success of PFF. With their support the Foundation has grown, not just nationally, but internationally. The organization has a clear vision and ambitious goals, but it also has developed the strategies and tactics to achieve them.
Pulmonary Fibrosis is a relentlessly progressive lung scarring disease without a known cause, treatment, or cure. I lost my father to Pulmonary Fibrosis two and a half years ago. He was only 65, was otherwise healthy, and lived an active life. There was nothing we could do to prevent him from getting this disease and there was nothing we could do to take the disease away from him. The Pulmonary Fibrosis Foundation answered my questions about this disease and they are working hard to promote awareness and raise money to help researchers find a cause, treatment, and/or cure for this disease. I have hosted two golf tournaments and a Global Dinner in an effort to help the Pulmonary Fibrosis Foundation with their cause. It is my hope that my children's generation does not have to worry about losing loved ones to this terrible disease.