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Prostate Cancer International

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Nonprofit Overview

Causes: Cancer

Mission: Prostate Cancer International will transform global understanding of the risks associated with prostate cancer and the strategies to manage those risks until prevention is possible and a cure can be found.

Target demographics: Men who are concerned about their risk for or who are diagnosed with prostate cancer, and their familes

Direct beneficiaries per year: Between 1500 and 3000 people every single day of the year through our online initiatives

Geographic areas served: America and across the globe

Programs: The "New" Prostate Cancer InfoLink (a prostate cancer news service) and its associated social network (a prostate cancer-specific discussion form with > 6,000 members), along with other communication and advocacy initiatives.

Community Stories

174 Stories from Volunteers, Donors & Supporters

2

General Member of the Public

Rating: 5

Dear Sir:I am as suffer with prostate cancer gleason six,I have had people in our surronding area who have passed ,with this terrible disease. through your web pages and vidoes it has given me more info that has resured me that there is help out there and some confort that progress is continuing to be made.The medical profession seems to be divided as to what is the best process to follow ,watch and wait ,radiation or surgery Thanks very much for your help .regards Joseph mac Isaac

2

General Member of the Public

Rating: 5

The Prostate Cancer Information link is my primary source for all new information about prostate cancer. It always provides excellent summaries of all the latest developments and research.

1 Geoff M.

Client Served

Rating: 5

I was concerned as a 59 year old with prostate tests. This site helps men'look at facts and not fear. My generation was not informed about prostate health until guys lost much o their sexual ability from PC. We need go replace fear with facts. Some doctors miss that point. Thanks for this site!




1 Jim_21

General Member of the Public

Rating: 5

Prostate Cancer International provides an invaluable service for all men with prostate cancer. The information is up to date and presented in an easy to understand format.

1

Client Served

Rating: 5

This organization Prostatecancerinfolink (PCaI) done considerable work in the field of prostate cancer, making it a unique case, the most interesting site on the internet

2 Nick19

Client Served

Rating: 5

I was looking for answers and general information about prostate cancer. There were no support groups in my area that I could find. Dr. Scott explained what my test scores meant and encouraged me to keep looking for someone who cared about my outcome as much as I did. I found such a group and am very relieved to find this solution. Without a hands on support group, this web site and chant room was very helpful.

1

Client Served

Rating: 4

I am a retired physician. When I gave up the profession 15 years ago there was a definite lack of information/knowledge about prostatic cancer. This was true in both the public realm and most tragically in and among the medical profession. I shudder to think of the men we sent for TURs without other consideration than urinary flow. We just did not know better. Now I find myself a victim of my own ignorance. Since developing prostatic cancer I have begun to try to educate myself on the subject. I have read literally thousands of papers and reviews. Indeed I am now far better educated but really unable to help myself. I have searched for answers and found many contradictions. In this aearch for a information I have found several on-line sites which offer real information. Among these I find I read the "New Prostate Infolink" most often. Good information well presented. Still not everyting I could hope for but the best available.

2

Volunteer

Rating: 5

I am Chairman of a PC support group in the UK and write a monthly news letter for my members. I find the "new" prostate cancer info link tremendously helpful, nay essential, in this excercise. I trawl many websites and generally pick-up most of the emerging news stories but this news site puts things into perspective; translates lots of medical mumbo-jumbo and makes the obscure clear. Long may it continue.

1

Client Served

Rating: 5

Valuable source of sensible information. I found it very reassuring to be able to read the experiences of others.

1

Client Served

Rating: 5

I was able to gain valuable knowledge from this website that has afforded me and my husband to make wise choices regarding treatment options. This website has also been a blessing to us in that it is nice to know we are not alone in this fight. I am truly thankful for the people associated with this site.

1

Client Served

Rating: 5

Excellent site to learn and discuss specific issues, and even a broad spectrum of problems faced by those with Prostate Cancer.

1 Robert M.

General Member of the Public

Rating: 4

I am an advanced Prostate cancer patient. This site provides much needed info regarding new treatments and clinical trials. They even allow my remarks to stand when I disagree with their bias for using radiation treatments. They deserve to be mentioned for their commitment to patients in my condition.

Previous Stories
1

General Member of the Public

Rating: 4

A shill for x-ray treatments, but beside that, a source of info about current news in the PCa world. He still allows me to post on his site. I can disagree with him but this is a source of CURRENT info. This field is a moving target and patients are very hungry for news.

I would temper his advise with other sources.
malecare (who reviewed here) is a good source.
My site could be of interest if you would like a cure for early stage PCa.
pcact@blogspot.com Watchful waiting is NUTS!!!
Miliken thinks there will be a cure for PCa around 2015. I hope I am still alive to live it.

1 Elise C.

Professional with expertise in this field

Rating: 5

I am a Nurse, working mother, with a father who passed away in Nov 2011 with Advanced Prostate Cancer. Due to my involvement in his care, I have joined, participated, and also started various prostate cancer groups and forums. The New prostate cancer Info Link has been an absolute god send to me. You supply all the news/medical information I need, quickly, in one place, that I can then research and use to advise others looking for this information. Excellent job, please keep it up. You are a wonderful site and I couldn't give you any higher praise.

1

Client Served

Rating: 5

At possibly the most worrisome and scary moments in one's life, PCI is wonderful source of info and understanding.

2

General Member of the Public

Rating: 5

Read daily. It is informative and has caused me to look at my disease from a totally different perspective. Highly recommended to family and friends. Al Hagan Okotoks, Alberta, Canada

1 Keyo L.

General Member of the Public

Rating: 4

I was recently diagnosed with prostate cancer so I wanted as much information and support as I could get. This site is very helpful and supportive: if I have any questions about treatment I ask them and I always get a quick and full response.As a layman my condition seems quite complex, with many possible treatments combined with the possible decision to not have any treatment. Thanks to this site and my doctor's advice, I have now decided to have a radical prostatectomy as the odds of living longer after this treatment are more favourable that without.So it's a big thanks to the infolink people.

1

General Member of the Public

Rating: 5

info from this site helped me select active survellance instead of rp as my current treatment choice.

1

General Member of the Public

Rating: 4

I am the daughter of a Prostate Cancer (PC) patient. There is so much developing in the fight against Prostate Cancer right now, and it can be quite difficult to "run across" all the valuable information that is out there. THE 'NEW' PROSTATE CANCER INFOLINK does a wonderful job of putting a great deal of all this info in one place, making it much easier to keep apprised of progress in the fight against PC. I consult it every day and have discovered information that has been helpful to my dad (resulting in a drop in his PSA) that we were not otherwise aware of. Thank you Prostate Cancer International for this wonderful service!!

1

General Member of the Public

Rating: 4

This information service has been very useful in sorting out the vast range of data related to PC. PC has to be one of the most difficult cancers to determine a proper course of action. Valid treatment options range from doing nothing to radical interventions. Historically overtreatment may have resulted in the quest to fail safe and sometimes created outcomes worse than the disease (do no harm). The urologists have valid points to make but independant objective information is priceless.

1

General Member of the Public

Rating: 5

THE FIRST THING I DO EVERYDAY WHEN I CHECK MY EMAIL, WHETHER ON MY CELL OR COMPUTER IS LOOK FOR MY EMAIL FROM PROSTATE CANCER INFO LINK. I RECEIVE MUCH OF MY GUIDANCE WITH THE INFORMATION THAT I OBTAIN FROM THIS WEB SITE.HAVING UNTREATED PC AND DOING ACTIVE SURVEILLANCE. I LOOK AT MANY WEBSITES BUT THIS IS MY PREFERENCE BECAUSE OF THE CLEAR AND PRECISE AND UP TO DATE INFORMATION. THIS KEEPS ME INFORMED AND FRIENDS WORRIED ABOUT GETTING PC ARE ALWAYS ASKING QUESTIONS ABOUT THEIR PROBLEMS KNOWING I STAY UP TO DATE, BY READING THESE STUDIES I FEEL I MADE THE RIGHT CHOICE AS MY PCA3 TEST WENT FROM 94,5 IN 2010 TO 34 IN 2012 I WOULD LIKE TO THANK, YOU AND I'LL BE LOOKING FOR YOU TOMORROW. THANKS AGAIN.