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Prostate Cancer International

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Nonprofit Overview

Causes: Cancer

Mission: Prostate Cancer International will transform global understanding of the risks associated with prostate cancer and the strategies to manage those risks until prevention is possible and a cure can be found.

Target demographics: Men who are concerned about their risk for or who are diagnosed with prostate cancer, and their familes

Direct beneficiaries per year: Between 1500 and 3000 people every single day of the year through our online initiatives

Geographic areas served: America and across the globe

Programs: The "New" Prostate Cancer InfoLink (a prostate cancer news service) and its associated social network (a prostate cancer-specific discussion form with > 6,000 members), along with other communication and advocacy initiatives.

Community Stories

174 Stories from Volunteers, Donors & Supporters

1

General Member of the Public

Rating: 4

This information was very valuable to me because i got to read facts of personal experiences that relate to my situation. I have not had the oppertunity to hear from people with similar symptons and situations. It made me relax a little more reading about others who are facing similar problems. The people who take part in this were quick to answer my questions and it helped me make decisions about what type of treatment to choose. I am very thakful that i became a part of this group and i appreciate the help.

1 Stephen F.

Client Served

Rating: 5

I was diagnosed with PC this past December, received HT and IMRT radiation through this past spring. Since diagnosis, I have been frequenting numerous PC oriented websites to learn anything I can about this disease i now have. I have been especially impressed with the site www.prostatecancerinfolink.net for several reasons. It is well organized, provides a good variety of PC related topics, and, especially valuable to me, provides rapid response answers to questions that one can enter to them online. I have been especially impressed with the depth of knowledge and rapid response time of Mike Scott, one of the resource persons on that site.

1

Client Served

Rating: 5

The information and support from this site, and the ability to have information remain confidential has been extremely helpful to us as we go through this unwanted journey.

1

General Member of the Public

Rating: 4

Very reassuring to be able to contact the experts behind the website and get their opinions on your situation as you progress through your own concer pathway

2

Client Served

Rating: 5

I am a 59 year old man who was diagnosed with prostate cancer in 1999. Although I had surgery, followed by radiation therapy, followed by androgen-blocking therapy, the disease continued to progress and has metastasized to one area of my spine. The disease progression has been significantly retarded, I believe, by my participation in several clinical trials over the past several years, at Johns Hopkins and elsewhere. "The 'New' Prostate Cancer Infolink" is the best source of information I have found in my considerable research about cutting-edge prostate cancer issues, and especially about new drugs and clinical trials. It is of great importance to patients like me to have such a resource available. For example, the daily posts or blog that I receive from the sitemaster by email have helped me--and my physician--decide upon the appropriate sequencing of the several clinical trials for which I have been eligible. The issue of optimal sequencing is highly uncertain but is important, because choosing to participate in certain clinical trials early on can disqualify a patient from participating from other, potentially beneficial trials later on. I particularly like the site's daily blog because it is written in language that a layperson (like me, an antitrust lawyer) can readily understand, but the information is not simplistic or "dumbed down," and the blog provide links to articles and resources that are useful even to my oncologist. (My oncologist runs clinical trials himself, but he can't get to every conference that the Infolink sitemaster reports on.) In other words, the presentation of the information achieves an excellent balance of technical detail and accessibility. I am grateful for the efforts of those involved and for the clear, direct prose style of the blog.

1

General Member of the Public

Rating: 5

I am the spouse of a prostate cancer survivor. During the early days of the disease I used this sight to gain information from other cancer victims. After the surgery (non-nerve sparing) I read about how people coped. During radiation and hormone therapy we did the same. This site was a saving grace. It made me feel less alone. There is almost more information than a person can read, but that is a good aspect.

1

General Member of the Public

Rating: 5

New Prostate Cancer Infolink NPCI is an operational service of PCI. I needed to find out as much as possible about prostate cancer when my father was diagnosed with terminal prostate cancer. He succumbed to prostate cancer two years ago. Since I first started following it, NPCI has been an excellent an frequently updated source of information about appropriate prostate cancer treatment and new developments in treatment. Obviously I'm biased, but NPCI is probably the most readily accessible source of patient appropriate information about the PSA screening test for prostate cancer. In addition to timely news commentary, notification of published research and new clinical trials, NPCI also provides sophisticated, on point, response to questions and comments on new postings. NPCI is an awesome resource for those interested in prostate cancer treatment.

1

General Member of the Public

Rating: 5

Diagnosed and RP in May 2007. The info link has beeb a beam of hope without having to become involved in support group or otherwise. I read it almost every night. Very informative without agenda of promotion.

Previous Stories
1

General Member of the Public

Rating: 5

I was diagnosed with prostate cancer in 2007, radical prostatectomy in May 2007, with chemical recurrance in May 2009. The aprostate Cancer Intl. site has provided invaluable information on many aspects of this journey, and I read it on a daily basis. It has been a better source of useful information than resources that I have investigated and/or purchased. I have shared information with my treating Urologisrt/surgeon that he was unaware of. This site provides excellent information and support to those of us that have this disease.

1

Client Served

Rating: 5

I was first diagnosed with prostate cancer five years ago but only became aware of the PCI website in the last year. It is excellent and the best website I have found. In the U.S the only other website I have used is Malecare, whcih is good but is v ery US centric, while PCI has a good internatioal side to it. I have found nothing of value outside of these two websites. I wish it every success.

1

General Member of the Public

Rating: 1

This November will be the 5th anniversary of my high grade prostate cancer diagnosis. After much research and consults with conventional and alternative doctors, I made the decision to go the alternative route and with God's help, my two alternative doctors, my conventional urologist and personal changes on diet, exercise and mind monitoring I am better now than prior to the diagnosis. It is very sad and discomforting that you maintain a site that just promotes the VERY process that most honest doctors are acknowledging that it is very far from providing a cure for this type; actually any type of cancer.

1

General Member of the Public

Rating: 5

When my husband was diagnosed with prostate cancer this year. Without "New" Prostate Cancer InfoLink, the amazing moderators, contributors, medical specialists and treatment links it provides, I think we would have emotionally drowned. We got a response to my first post within a couple of hours-unheard of on most internet medical info sites. The support and information we got allowed us to calm down, investigate our options, make a decision and be hopeful. This cancer will be an ongoing battle but at least I have a reliable source to turn to when we need fresh troops.

1

General Member of the Public

Rating: 5

This is a great site and helpful for patients and family to discuss shared issues. It also promotes advocacy and awareness and is well run.

1

General Member of the Public

Rating: 5

Was able to obtain valuable information about my health issues with my prostate and gained vital insight about the disease of cancer of the prostate. Very comforting to have people who have experienced similar symptoms/results and finding out what they did specifically to fight this horrible disease.

1

Client Served

Rating: 5

I found the advice given to me on this web sight invaluable. It answered all my questions and helped me come to terms with the advice given and that was to have radical surgery. I have since had the operation (two months ago) and have recovered very well. I followed all advice given especially in choosing a doctor who is very experienced with this kind of surgery. I have my first PSA blood test done next week and am fully confident that all the cancer has been removed. Best Wishes. Ray Stubbings.

1

Client Served

Rating: 5

Most important was their immediate response to any question that I had. They are extremely knowledgable, professional and caring.

2

Professional with expertise in this field

Rating: 5

I have used/read this site for over 3 years. This is the best overall site on the web for prostate cancer. The discussion and opinion of the moderator is very valuable. I take the information on this site and share it in prostate cancer support group, so the impact of this site has a large multiplier effect in that a lot more patients are benefiting from the site than just the visitors.

2 Alan13

General Member of the Public

Rating: 4

People can get very good information about prostate cancer. They are very very helpful.

2

Client Served

Rating: 5

Provides great information! Up to date science and research which would be unavailable elsewhere.

2 Richard33

Client Served

Rating: 5

This is a wonderful website. It got me through understanding how to deal with my cancer much more effectively than anything else I could find on the web.

1

General Member of the Public

Rating: 5

A superb site. About the best there is related to prostate cancer.