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Prostate Cancer International

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Nonprofit Overview

Causes: Cancer

Mission: Prostate Cancer International will transform global understanding of the risks associated with prostate cancer and the strategies to manage those risks until prevention is possible and a cure can be found.

Target demographics: Men who are concerned about their risk for or who are diagnosed with prostate cancer, and their familes

Direct beneficiaries per year: Between 1500 and 3000 people every single day of the year through our online initiatives

Geographic areas served: America and across the globe

Programs: The "New" Prostate Cancer InfoLink (a prostate cancer news service) and its associated social network (a prostate cancer-specific discussion form with > 6,000 members), along with other communication and advocacy initiatives.

Community Stories

174 Stories from Volunteers, Donors & Supporters

1

Client Served

Rating: 4

this particular site was very helpful and helped to relieve some of the stress and fears of this dreaded disease. the info and information was VERY helpful to me... and hey..... i never wrote a review before!

1

Client Served

Rating: 5

We appreciate the "new prostate cancer infolink. concerned about certain issues relating to my husband's cancer without the ability to get a second opinion. We gathered useful and professionally accurate information. Thank you. Coralee

1

Volunteer

Rating: 3

i need help.. i have the thing..PC but i am unemployed with no health incsurance.. i have not yet been treated ..how can i survive... i dont know what to do.. or where and how to get the treatment i need.... Tim D. bluzboy2001@yahoo.com.. please email me if you may have some thing that may help.. a organization... or something... too bad Obama s new healthcare.. wont help me.. women can get medicaid if they hae breast cancer.. and illegal aliens can even get medicaid... but i the white unemployed ..now the minortiy american.. i guess i am just screwed..please help me (higher power)

Comments ( 1 )

profile

mike 12/21/2011

Bluzboy2001: If you go to http://prostatecancerinfolink.ning.com and register, we will see what we can do to help you get you appropriate assistance.

2

Volunteer

Rating: 5

I was diagnosed with PCa back in May 2010. Having been under pressure and wanting to learn from others who have gone through this experience I resorted to Prostate Cancer International. I have provided my PSA tests results, Gleason score, CT scans, etc.. and sought advice on how to proceed with treatment. Prostate Cancer International was great as many of its members responded with advice on how to proceed, what to watch for and what to say and ask the medical specialists who were sought by me for consultation. All this helped make my journey quite a learned and comfortable one, given the circumstances. After more than a year with PCa and initial radiation treatment, I continue to link up with Prostate Cancer International and its wonderful and helpful volunteers.

1

General Member of the Public

Rating: 5

Prostatecancerinfolink.net is at the top of my favourites page.

It is the best site that I have found for constantly updating itself with relevant well explained articles on developments in the prostate cancer field.

The collation of information by this site is excellent. It saves me trawling through the half dozen other sources I used to look at and piecing together my own news feed.

I always find the latest developments in the PCa field at this site.

Highly recommended!

JK (in the UK).

1

Client Served

Rating: 4

I found great help encouragement and support when i found I had prostate cancer. I was given accurate information that was not available from my physician and an unbiased list of treatment options. Later I was given free medical information that eventually enabled me to decide on the treatment I had with good results.
This site save me a lot of stress and fear at a difficult time.
The contributors are very generous sharing their medical knowledge and experience free of charge for the benefit of those having a difficult time.

2

Client Served

Rating: 5

I've been accessing this site for the two years since I had PC surgery. Not only provides a wealth of information on diagnosis, treatment options and the latest research, but also has opportunities to post question, share experiences and otherwise benefit from contact with a wide community of cancer survivors and those just approaching their treatment and the years after that. Research is reviewed and made very accessible for all, and the various kinds of networking available at the site make it by far the best one out there for Prostate Cancer!

1

Volunteer

Rating: 3

I accessed this site for information regarding results of a prostate biopsy and was provided with greatly helpful and assuring information. James

1 Larry W.

General Member of the Public

Rating: 4

I was diagnosed with Prostate cancer June 2010 and in doing internet research I cam across their forum. Within a few hours reading and posting my concerns and questions, I had the answers to approach my disease with confidence and the right questions to ask my Dr.
The people in the forum and Dr Scott were there to guide comfort and help me through the whole journey. the people there had been through it and willingly shared their knowledge. I tried other forums but always came back to this one for answers.

1

Client Served

Rating: 5

When I was diagnosed with prostate cancer three years ago, at 44, I went everywhere looking for information. The information here was tremendously helpful and the community was supportive. The combination of factual information and the social network is unique in my experience and the two function together well.

2

Client Served

Rating: 5

I am a prostate cancer survivor. I had my prostate removed on June 10, 2010. The prostate cancer survivors network has helped me a great deal, both in helping select treatment options and in the slow recovery process following the surgery. I would hope the PCSN will continue to grow and help as many prostate cancer victims as possible.

1

General Member of the Public

Rating: 4

In the nearly 3 years since my diagnosis of prostate cancer, I have visited the prostate cancer infolink.ning site almost daily. It was a great source of information after my initial dagnosis; a great source of support during my recuperation from surgery; a great source to "compare notes" with other survivors; and a great place where I can help to provide support for others, both newly diagnosed and long-term survivors. It is wonderful to have a place to speak openly and frankly with others who are walking the same path due to PCa.

2 William D.

Client Served

Rating: 5

I am a prostate cancer survivor. I have had surgery in the past year. This site is a good source of timely information on what to expect from the first diagnosis of elevated PSA to a diagnosis of cancer. It gives the patient that information the doctor may be uncomfortable in discussing.

1

Client Served

Rating: 5

The Prostate Cancer InfoLink is where I get current information on prostate cancer treatment. It is also where I get links to cutting edge research and treatment. As a recently diagnosed cancer patient, I appreciate this site very much.

1 John C.

Client Served

Rating: 4

Top research. Strong, educated responses to questions. Medically sound. Daily updates. A bookmark in my browser used daily. This site/organization has a face and a human scale interaction. Fully worthwhile and a must for anyone interested in fact based information about prostate cancer.

2

Client Served

Rating: 5

As a prostate cancer survivor I have had numerous opportunities to share my story with other men who have been diagnosed with pCa. PCI was there for me when I needed information about the disease, treatment options, and encouragement in dealing with the emotional side. Now I frequently direct other guys to the PCI website to get the same help. They have always told me how helpful the PCI site was and how much they appreciated the site being there for them. The information is personal, accurate, and non-biased.

1

Volunteer

Rating: 5

There is excellent information available on the website. The support groups offer strategies for coping with prostate cancer, whether you are the patient or the family member. Survivors and caregivers share their personal anecdotes pre and post surgery.

1 Charles M.

Client Served

Rating: 4

Fantastic source of un biased up to the minute news on treatments and general stories surrounding the disease.

As a sufferer it gives me hope to read about new treatment and research.

Great job well done.

1

Client Served

Rating: 2

I was lucky to find the webside of "Prostate Cancer International" right after been diagnosed. At the time I knew nothing about the desease and did not learn much from the doctors treating me. So I read a lot and had a discussion with E.Michael ("Mike") Scott. His ideas about my treatment and his prompt answers to my questions (about the wight time to restart my ADT,for example) helped me a lot. Contacts with the other PC servivals ware also very useful.
Thank you "PC International"!

1

General Member of the Public

Rating: 5

Prostate Cancer International has been, for me, a great help to cope with my disease. Found their website very helpful and thrustworthy. Highly recommend this organization for man who have been diagnosed with PC and their family.
Regard Rinze.

1

Client Served

Rating: 5

The site they run has provided invaluable information in the difficult time after my prostate cancer diagnosis. By providing a central location where fellow cancer patients can share information, and where doctors and others in the field can comment, it opens the door to many options that were not clear before visiting the site.

2

Professional with expertise in this field

Rating: 5

PCaI has provided and continues to provide professional and knowledgeable information regarding issues involved when diagnosed with prostate cancer as well as the treatment of that cancer both early on as well as when recurring. Every single day the latest information from medical journals is posted on this excellent website with knowledgeable and expert commentary. The site then provides the capability for readers to comment either pro or con or with additional information to support that having been posted. Truly an outstanding website for prostate cancer patients, caregivers, and physicians involved in the diagnosis and treatment of this insidious men's disease.

1 Frank C.

Client Served

Rating: 5

Prostate Cancer International has afforded me quality information important for my health ever since I was diagnosed with prostate cancer more than a year ago. I heartily recommend this site for anyone with prostate cancer concerns!

2

General Member of the Public

Rating: 5

There is a plethora of media announcements, usually based on feeds from interested parties, which can cause problems for men diagnosed with prostate cancer and their supporters. The New Prostate Cancer Infolink decodes these and helps people understand which contain useful information and how this may help them and which (regrettably it seems the majority) are merely a distraction.

In addition valube information from technical journals is summarised and these entires are of enormous help to people trying to understand the intricacies of prostate cancer.

I just wish more people knew of it - it is underutilised in my opinion.

1 Mike S.

Board Member

Rating: 4

Prostate Cancer International is a small but active non-profit, founded in 2008, that is primary focused on ensuring that men in general as well as newly diagnosed and long-term prostate cancer patients in America and around the world have access to helpful, current information about the diagnosis and management of one of the most common forms of cancer.

At present our primary activities are on line. We provide a daily news service (The "New" Prostate Cancer InfoLink; see http://prostatecancerinfolink.net), a social network for patients and others to share information (see http://prostatecancerinfolink.ning.com), and we have other longer term goals that will need funding and work.

In addition, Prostate Cancer International is a member of the Prostate Cancer Roundtable (see http://prostatecancerroundtable.net).

Previous Stories

Board Member

Rating: 4

Prostate Cancer International is a small but active non-profit, founded in 2008, that is primary focused on ensuring that men in general as well as newly diagnosed and long-term prostate cancer patients in America and around the world have access to helpful, current information about the diagnosis and management of one of the most common forms of cancer.

At present our primary activities are on line. We provide a daily news service (The "New" Prostate Cancer InfoLink; see http://prostatecancerinfolink.net), a social network for patients and others to share information (see http://prostatecancerinfolink.ning.com), and we have other longer term goals that will need funding and work.

In addition, Prostate Cancer International is a member of the Prostate Cancer Roundtable (see http://prostatecancerroundtable.net).