I'm very pleased to have found the Open Medicine Foundation and their "End ME/CFS" work. At last, a chance to beat this insidious disease. My son has suffered from CFS for 12 years. He is 34 now, so he has lost the best years of his life.
It requires a concerted effort like this to make progress; the mainstream medical research organisations seem only interested in the high-profile diseases like Cancer and Heart disease.
I am happy to donate and hope that enough others will join me to defeat ME/CFS.
The Open Medicine Foundation is working hard to move the science forward for ME/CFS (Myalgic Encephalomyelitis /Chronic Fatigue Syndrome) and other neuroimmune illnesses. I've had CFS for decades, and it's only in the past few years I've started to feel hope that the pathology and causes of this illness will be unravelled, in a great part due to organizations like the Open Medicine Foundation. They have an all-star lineup of researchers, and are using "Big Data" and sponsoring studies on both genomes and gene expression to try to figure out what's going on. I would love to see them get all the support they need to follow their vision on this research.
My plea is on behalf of people who are severely ill with CFS. By severely ill, I mean formerly healthy people who can no longer walk or speak or feed themselves--and no one knows why. These people have been treated with contempt by most government research grantors for at least 30 years.
The OMF is the very first research group to understand that these extremely ill people are the ones who MUST be studied in order to find a group of biomarkers to distinguish their disease from other diseases. The OMF doesn't just give lip service to this idea. They are designing ways to send researchers into severe patients' homes to collect the five types of bodily fluids they will study. The OMF includes some of the world's best scientists, and my hope lies with them.
The OMF has top scientists with a great research plan that is ready to move forward. When you donate to them your money goes directly to real science for a cure.
The OMF is aggressively searching for answers for Neuro-Immune illnesses. With a rock star Scientific Advisory Board that is led by Professor Ron Davis who is Professor of Biochemistry & Genetics, and Director of the Stanford Genome Technology Center at Stanford University it won't be long till major headway is made in understanding this area of science. This is a first class organization that desperately needs all our support! The beauty is there making a difference NOW in patients lives by offering cutting edge treatments.
OMF is providing hope for those who suffer from one of the least understood major diseases out there today. Their research on neuro-immune disease is cutting edge and collaborative which means that they are sharing information and building relationships within the neuro-immune disease research community so that the world can make advances faster and hopefully find a cure sooner. I also very much appreciate how they are working to build awareness and have greatly helped my daughter in finding ways to educate people on her disease which is so misunderstood. They have also helped our family find the resources and team of doctors that we need to support us through this disease.
This charity is fantastic, the people behind it so inspirational and innovative problem solvers. Their plans to devise biomarker panels for Myalgic encephalomyeltis will start to bring about understanding of parthenogenesis that has been desperately lacking, subsequently likely helping to bring about treatments to give patients back their lost lives.
Open Medicine Foundation offers open scientific collaboration, expertise, courage, and endurance. This is what M.E. patients, including me, have been awaiting for decades. One can only hope that the NIH wakes up and realizes that this work needs to be fully funded. Will more children, adults , and caregivers have to lose their lives to this disease while at the same time being asked to provide evidence that they are sick? I hope not, and I hope anyone who reads this will support the Open Medicine Foundation.
As a patient, to say I'm grateful for the work of the Open Medicine Foundation (OMF) is an understatement. Members of the OMF's scientific advisory board comprising world-renown researchers, including two Nobel Laureates, are "...contributing their time, experience, connections, and brilliant minds to ending ME/CFS and the suffering it causes". Thank goodness, because ME/CFS patients like me need this caliber of scientists to work on our behalf and move knowledge of this disease forward in the near-absence of funding or support by the US government.
Members of the OMF Board are equally dedicated. Linda Tannenbaum, the Executive Director, is a parent of a patient. She and others successfully raised funds needed for Phase One of the End ME/CFS project. Please consider donating to the OMF for Phase Two.
This non-profit organization is simply our best hope! A bigwigs class is ready to mobilize for us, ME sufferers, dying patients in our beds, living dead ... They only needs the funds ... that NIH still refuse to give ! ME Research is no experience subsidies, while we are millions in the world to suffer! Wordwilde, there is almost only the OMF for helping us, so please, consider this organization, we need so much OMF and their work! (sorry for my poor English)
A French ME Sufferer
I am an ME sufferer. I am housebound and invisible. The work the OMF is doing is the only thing giving me hope in a very hopeless situation. Thank you from the bottom of my heart!
This is one of the few organizations undertaking real scientific research into myalgic encephalomyelitis and other poorly understood neuroimmune diseases. ME patients have been neglected by the federal government's research funding and healthcare agencies for thirty years. That is starting to change now, largely thanks to OMF and its stellar scientific advisory board. There is now at least a glimmer of hope for patients with this truly horrible, debilitating disease.
Having suffered from severe ME unable to feed or wash myself, a charity that fights for funding and research is one of the few hopes we severe ME sufferers have left.
Fundraising for the best research ever proposed to investigate and end ME/CFS.