A medical group like no other, working for the ME/CFS patients and giving us hope unlike any other group or physician. After 34 years of disability with no cure or treatment, we NEED hope and great research. PLEASE HELP US.
OMF is a nonprofit organization that i support beacause they are very focus in finding a medecine to cure the ME. They are very well structure they have a lot of great reserchers that work for that cause. They need help in any means espacialy money.
I am sick of ME for 21 years and i am 59. My life for 21 years it is not a life.
The Open Medicine Foundation deserves the highest praise. It is an organization with a big heart that listens to, communicates with, and learns from patients. The impressive research team headed by Ron Davis is totally dedicated to finding answers as fast as humanly possible to a complex, horrible and neglected disease. For many patients and their families, they are the main source of hope. Anyone who contributes to this organization knows that the money will be spent carefully and strategically, in the interest of patients not careers or egos.
Hope that someone is paying attention
Hope that someone is DOING something
Hope that one day doctors won't victimize patients
Hope that a blood test, treatment, and cure is possible
Hope that lives can be restored
Hope that families can be reunited
Hope that despair will end instead of lives
I consider Open Medicine Foundation a leader in research for myalgic encephalomyelitis /chronic fatigue syndrome. Its origins are parent based. When a child is in danger there is no greater strength or focus.
Our son was diagnosed August 2015 following a four year flu that has slowly and painfully taken away his hopes and dreams. One by one. He remains hopeful but realistic about the roadblocks that our government continues to put in place preventing meaningful treatment or cure.
The first information we had about ME/CFS was a July 2015 video about Ron Davis, Janet Dafoe, their son Whitney and daughter Ashley. Little did we know the parallels our lives would share. But there was hope. We soon learned about Open Medicine Foundation and their commitment to fund research to end this horrid illness that has taken our son captive. OMF's President and CEO, Linda Tannenbaum is another parent with skin in the game.
Every opportunity we have, we give to this organization of parents trying to save our children. Cash, Amazonsmile, cars, family donations, offering outreach in our area and more. There is no research organization we trust more to find the answers. Today OMF is hosting a global conference for researchers followed by a Community Symposium for to public. It is sold out. Open Medicine Foundation has tremendous credibility in the ME/CFS world. They are the "good guys" who continue to make connections and fight for our son.
As a CFS/ME sufferer OMF has given me real hope in a cure being found. Their philosophy of sharing data and collaborating with other scientists globally to develop theories and research methods to find the cause and ultimate cure of ME/CFS is exemplary. They are not driven by monetary profit or personal recognition, but by the true desire of improving the lives of all CFS/ME sufferers worldwide.
As a ME/CFS suffer for nearly 3 decades, OMF is the reason I keep pushing onward. I dont know what the future holds for us patients, but OMF surely has given us more hope than any time in the past. Ive seen how little research is done, decade after decade. No one worked on this illness as a collaborated effort until now. OMF continually updates us on all the work they are doing. Continue to fundraise, and hold conferences globally. It is because of them, we see a small glow of light at the end of a tunnel of endless hell.
I am from Germany, where nearly no research is funded and done for ME/ Cfs.
So OMF is our only hope, to get progress in research in the US- and so later on in the whole world. Thats why we donate regularly to OMF. We trust in Prof. Ron Davis and all the scientist he has gathered.
Full open data and open access research. A team dedicated to the scientific research of the biological disease ME/CFS. I have suffered from the disease for 40 years and the first 20 I was still able to work. If there had been treatment options during that first 20 years I may not be disabled now. This is why great research organizations like the OMF need to be funded. Correct diagnosis with biomarkers, treatment options, and the right tools in the hands of clinicians must be made available as soon as possible. The Incline Village outbreak occurred more than 30 years ago and due to egregious missteps by the CDC, NIH, and the psychiatric field, no help came to those victims of the outbreak or for those who were ill prior and after.
This organization gives patients hope for a cure to a disabling disease. The government has been way behind in providing help so thank goodness for these dedicated scientists.
The OMF foundation work with top scientists to find a cure for ME. Sick people allover the world feel hopeful because of the great job they are doing in the process of finding more answers. Good science costs money. I'm glad to donate to OMF.
My 10-year sickiversary is approaching. OMF gives me hope for a test and a cure. Publicly available research can only make us better.
Donations to the Open Medicine Foundation (OMF) are helping fund much needed targeted research into M.E. Their ethos of “collaborative medical research” also means there is even more chance of finding answers for the people who suffer from this serious illness.
I’m in my forties and have had M.E for over 30 years, I am mostly housebound. The OMF gives me hope that something can be done about this illness in my lifetime, it’s hope I haven’t had in a long time.
OMF is the leading the way in ME/CFS research, without them, we would have very little hope of understanding this debilitating disease. They work tirelessly for a large global community of severely ill ME/CFS patients, their carers and loved ones, who desperate for change. ME/CFS patients are essentially living an extremely painful slow death, this research is crucial in putting a stop to losing yet another. As a severely affected ME/CFS patient, bed bound and lock away from the world, I need hope that one day we will understand what this disease is, and in turn develop an approved treatment, or even find a cure. OMF gives me hope that one day I will have my life back, one day my family will no longer have to step in as my fulltime carers, will no longer have to worry constantly if I'll wake up one day and not be able to move or speak or eat. They need their life back too. We need change, and OMF is at the forefront of that. Thank you OMF, I cannot imagine not having the hope that you bring.
OMF gives me hope because they are committed to finding a cure for ME/CFS, "the last great disease" that is not understood. I've been sick since 2013, and had to quit my very rewarding job as a PA-C specializing in Epilepsy. Now I'm at about 30% functionality, spending several hours a day in bed, having to budget every bit of energy expenditure from washing my hair, to standing in the kitchen to load the dishwasher. Studies show that those of us with this disease are more debilitated than patients with MS, heart failure, and AIDS.
OMF is led by individuals at the top of their fields, who are intensely committed to finding a cure, because they have children with the disease. Dr. Ron Davis is a world-renowned geneticist and inventor, whose innovations enabled the Human Genome Project to happen. He has recruited a group of world-class researchers, including several Nobel laureates, to take on the problem of ME/CFS. And he and Linda Tannenbaum are stirring up interest in the research community to invest time and money into this neglected disease. What is unique about their approach is the "open" philosophy, that the top priority is to share data with other researchers, to advance toward a cure, rather than holding results close to the vest in order to advance one's own career through publishing as the end goal. They have developed a device for testing drugs for ME/CFS, as well as a model for understanding the metabolic derangement sat occur with the disease. These are huge steps toward finding a cure. I couldn't imagine going on like this without the hope they provide.
OMF gives me hope for a better live I hope to life one day. I got sick at the age of 15 and am 21 by now, this is not what I imagend live to be when i was younger. This illness is one of the worst things, that could ever happen to you.
OMF are doing amazing work into ME. I have very severe ME and I'm so grateful to have them on my side in a world full of misunderstanding and judgement.
OMF give hope to patients all over the world. I have severe M.E. I am mostly bedridden, unable to care for my children. I miss being a functional mum so much. I cannot participate in life. ME is an underfunded disease. So much more research needs to be done, OMF are doing that, but they rely on the generosity of donors to continue their work. Please support them, so many lives affected, so many dreams lost to this devastating illness.
I suffer from ME/CFS. I have lost my career, hobbies and I can no longer look after my children or spend a day with them. I am partially bedridden, housebound and use a wheelchair. I cannot participate in life, severe M.E is existing in a seperate world. It is such a debilitating illness and it's impact is poorly understood. It is a disease that is totally underfunded in terms of research. The Open Medicine Foundation want to find diagnostic markers, treatments and ultimately a cure for this disease. They give hope to patients like me all over the world. I so want to live a little again, I want to live to see my children grow up. I do not want to spend the rest of my life confined to my house and bed. I am only 42 years old. It is heartbreaking not being able to go anywhere with my children, I can't cook for them. I am sick for two years now, my youngest child is 4. He will never remember me as healthy and well. Please support the Open Medicine Foundation. So many are suffering, please help us find answers to this dreadful disease. M.E can be fatal and life threatening. Many commit suicide as they see no hope for their future. The Open Medicine Foundation give all patients hope now, hope that was not there before.