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2020 Top-Rated Nonprofit

Open Medicine Foundation

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Nonprofit Overview

Causes: Health, Medical Disciplines Research

Mission: Our Mission Supports collaborative medical research to find effective treatments and diagnostic markers for ME/CFS and related illnesses. Keeps the community informed by disseminating information on current research projects and results. Brings together thought leaders from around the world to brainstorm and participate in targeted initiatives. Encourages and engages the patient community to take an active role in research.

Results: Funded Research projects and new Research projects are underway.

Target demographics: Find diagnostic tests, effective treatments and a cure for ME/CFS and related illnesses

Direct beneficiaries per year: Medical Research for ME/CFS

Geographic areas served: Collaborative Research and Fundraising for ME/CFS and related illnesses.

Programs: Collaborative Medical Research

Community Stories

187 Stories from Volunteers, Donors & Supporters

1

Donor

Rating: 5

I am from Germany, where nearly no research is funded and done for ME/ Cfs.
So OMF is our only hope, to get progress in research in the US- and so later on in the whole world. Thats why we donate regularly to OMF. We trust in Prof. Ron Davis and all the scientist he has gathered.

General Member of the Public

Rating: 5

Full open data and open access research. A team dedicated to the scientific research of the biological disease ME/CFS. I have suffered from the disease for 40 years and the first 20 I was still able to work. If there had been treatment options during that first 20 years I may not be disabled now. This is why great research organizations like the OMF need to be funded. Correct diagnosis with biomarkers, treatment options, and the right tools in the hands of clinicians must be made available as soon as possible. The Incline Village outbreak occurred more than 30 years ago and due to egregious missteps by the CDC, NIH, and the psychiatric field, no help came to those victims of the outbreak or for those who were ill prior and after.

Dana Reynolds T.

Donor

Rating: 5

This organization gives patients hope for a cure to a disabling disease. The government has been way behind in providing help so thank goodness for these dedicated scientists.

Lene C.

Volunteer

Rating: 5

The OMF foundation work with top scientists to find a cure for ME. Sick people allover the world feel hopeful because of the great job they are doing in the process of finding more answers. Good science costs money. I'm glad to donate to OMF.

General Member of the Public

Rating: 5

My 10-year sickiversary is approaching. OMF gives me hope for a test and a cure. Publicly available research can only make us better.

Donor

Rating: 5

Donations to the Open Medicine Foundation (OMF) are helping fund much needed targeted research into M.E. Their ethos of “collaborative medical research” also means there is even more chance of finding answers for the people who suffer from this serious illness.

I’m in my forties and have had M.E for over 30 years, I am mostly housebound. The OMF gives me hope that something can be done about this illness in my lifetime, it’s hope I haven’t had in a long time.

General Member of the Public

Rating: 5

OMF is the leading the way in ME/CFS research, without them, we would have very little hope of understanding this debilitating disease. They work tirelessly for a large global community of severely ill ME/CFS patients, their carers and loved ones, who desperate for change. ME/CFS patients are essentially living an extremely painful slow death, this research is crucial in putting a stop to losing yet another. As a severely affected ME/CFS patient, bed bound and lock away from the world, I need hope that one day we will understand what this disease is, and in turn develop an approved treatment, or even find a cure. OMF gives me hope that one day I will have my life back, one day my family will no longer have to step in as my fulltime carers, will no longer have to worry constantly if I'll wake up one day and not be able to move or speak or eat. They need their life back too. We need change, and OMF is at the forefront of that. Thank you OMF, I cannot imagine not having the hope that you bring.

2

Client Served

Rating: 5

OMF gives me hope because they are committed to finding a cure for ME/CFS, "the last great disease" that is not understood. I've been sick since 2013, and had to quit my very rewarding job as a PA-C specializing in Epilepsy. Now I'm at about 30% functionality, spending several hours a day in bed, having to budget every bit of energy expenditure from washing my hair, to standing in the kitchen to load the dishwasher. Studies show that those of us with this disease are more debilitated than patients with MS, heart failure, and AIDS.

OMF is led by individuals at the top of their fields, who are intensely committed to finding a cure, because they have children with the disease. Dr. Ron Davis is a world-renowned geneticist and inventor, whose innovations enabled the Human Genome Project to happen. He has recruited a group of world-class researchers, including several Nobel laureates, to take on the problem of ME/CFS. And he and Linda Tannenbaum are stirring up interest in the research community to invest time and money into this neglected disease. What is unique about their approach is the "open" philosophy, that the top priority is to share data with other researchers, to advance toward a cure, rather than holding results close to the vest in order to advance one's own career through publishing as the end goal. They have developed a device for testing drugs for ME/CFS, as well as a model for understanding the metabolic derangement sat occur with the disease. These are huge steps toward finding a cure. I couldn't imagine going on like this without the hope they provide.

General Member of the Public

Rating: 5

OMF gives me hope for a better live I hope to life one day. I got sick at the age of 15 and am 21 by now, this is not what I imagend live to be when i was younger. This illness is one of the worst things, that could ever happen to you.

1

General Member of the Public

Rating: 5

OMF are doing amazing work into ME. I have very severe ME and I'm so grateful to have them on my side in a world full of misunderstanding and judgement.

neweimear

Donor

Rating: 5

OMF give hope to patients all over the world. I have severe M.E. I am mostly bedridden, unable to care for my children. I miss being a functional mum so much. I cannot participate in life. ME is an underfunded disease. So much more research needs to be done, OMF are doing that, but they rely on the generosity of donors to continue their work. Please support them, so many lives affected, so many dreams lost to this devastating illness.

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Client Served

Rating: 5

OMF is working hard for patients all over the world that suffer from the devastating illness M.E.
They are a source of great support and hope to the patient population. They keep us informed with monthly newsletters and always reply to emails. They are a shining light for all those with M.E

Client Served

Rating: 5

I suffer from ME/CFS. I have lost my career, hobbies and I can no longer look after my children or spend a day with them. I am partially bedridden, housebound and use a wheelchair. I cannot participate in life, severe M.E is existing in a seperate world. It is such a debilitating illness and it's impact is poorly understood. It is a disease that is totally underfunded in terms of research. The Open Medicine Foundation want to find diagnostic markers, treatments and ultimately a cure for this disease. They give hope to patients like me all over the world. I so want to live a little again, I want to live to see my children grow up. I do not want to spend the rest of my life confined to my house and bed. I am only 42 years old. It is heartbreaking not being able to go anywhere with my children, I can't cook for them. I am sick for two years now, my youngest child is 4. He will never remember me as healthy and well. Please support the Open Medicine Foundation. So many are suffering, please help us find answers to this dreadful disease. M.E can be fatal and life threatening. Many commit suicide as they see no hope for their future. The Open Medicine Foundation give all patients hope now, hope that was not there before.

2 Lynn R.2

Client Served

Rating: 5

ME/CFS has robbed me of the last thirteen years of my life. When I was first diagnosed, there was hardly a whisper about this horrible illness, let alone any kind of real research or possible treatments/cure. When OMF was established, I had no idea that they would not only help finance some of the worlds most prominent researchers and their projects, they would also help change the way researchers around the globe communicate and collaborate. Since it’s inception Open Medicine Foundation has worked continuously to bring awareness of ME/CFS, encouraged teaching institutions to add ME/CFS to their curriculum and have brought hope to millions of patients worldwide.

Donor

Rating: 5

The Open Medicine Foundation is a wonderful and caring organization. They are raising money to help research ME/CFS which is a horrible and debilitating disease that has been extremely underfunded and ignored by the majority of the medical community. This organization truly gives hope to those suffering and sometimes hope is all that gets people with ME/CFS through the day. Please give to this organization if you can. They are doing incredibly important work.

Marilee M.

Donor

Rating: 5

SCIENCE is my HOPE!! I support OMF because I know how hard Dr. Davis is working for us. When your child is ill, you'll move heaven and earth to help them. I think someday we're going to get some good news! Thank you, OMF!!

General Member of the Public

Rating: 5

FROM CANADA!! We run a local support group in Ontario and we're thrilled with all that Open Medicine Foundation (OMF) is doing on behalf of ME sufferers, not just those living in their own region or even in the States, but for the global ME community. They work hard on every front (research, education, awareness, fundraising, etc.) and have accomplished more in the last few years than we could possibly have imagined in decades previous.....yet there is still much more to do and OMF is up to the challenge. They have rekindled hope for many who felt abandoned and re-energized those of us who have become weary as caregivers, like myself (sadly there was no 'caregiver' option in choosing a role below). Keep up the wonderful work, OMF!!!!

General Member of the Public

Rating: 5

OMF has given hope that in the near future Dr Davis will discover a cure for this cruel disease.

General Member of the Public

Rating: 5

OMF has all my esteem for the enormous work it is doing and for how it is working! A great hope for millions of sufferers of ME / CFS. But their work could contribute to research into various diseases. Great commitment, seriousness, involvment of great researchers, excellent communication.

1 Marissa W.1

General Member of the Public

Rating: 5

This organization is my only hope for finding a cure for ME/CFS and having my life back some day. THANK YOU

Volunteer

Rating: 5

Great Organisation we definitely need them for this horrible disease. To be honest Prof. Davis and OMF is currently the onliest organisation that could really change something in the nearby futur.

Donor

Rating: 5

I honestly don't think I can articulate in a few words just how amazing the Open Medicine Foundation really is!
I've been a patient with ME for over 15 years and the fantastic work that the OMF does has given all patients with ME real HOPE that things will change for the better in the future. Linda T is so driven, enthusiastic and passionate about progressing research into ME and is linked to so many world-class researchers such as Prof Ron Davis at Stanford that real progress has already been made in researching the illness and I'm sure even more will be in future. I'm about to host a fund-raising event for ME and am absolutely delighted to be sharing the proceeds with the OMF as I know the money will be wisely spent in advancing our understanding of this debilitating illness.
THANK YOU to Linda and all the OMF for their amazing and inspiring work!

General Member of the Public

Rating: 5

OMF is one of the most dedicated research organisations to a discriminated disease. They stand strong against criticism and hostility from the medical profession, which chooses to stigmatize the 20 million people suffering from myalgic encephalomyelitis (ME), a highly disabling disease that receives absolutely no support or sympathy in most countries.

Most medical research non-profits benefit from social support and good will. They are praised for striving to achieve a goal that makes consensus: helping the sick. Research in ME receives none of this good will, instead facing criticism and derision from medical institutions and professionals who overwhelmingly deny our very existence.

It takes courage to do medical research in any setting. It takes so much more courage to do so when the whole world disagrees that your cause is worth fighting for. Discriminating against disease should be a thing of the past, but it continues, and I salute and thank OMF for their determination and pushing forward with this cause.

1 Mark2END-MECFS

Donor

Rating: 5

My son To is 23 years old, bedbound, semicomatose, suffering from severely severe M.E., Myalgic Encephalomyelitis, aka CFS, that affects 17 million worldwide. Yet gross discrimination by HHS, NIH against 1-2 million ill in USA has led to paltry, inadequate funding for R&D, so no FDA approved diagnostics, 80% are not diagnosed, and no FDA approved treatments, so millions remain ill, typically lifelong, since most never recover fully. OMF has organized leading researchers internationally, sponsor meetings of the best minds for ME in the world, & seeks donations, support from foundations, philanthropists, individuals to help #MillionsMissing with this #ForgottenPlague. Please help end a "Total Eclipse of my Son" for last two years, where he is bedbound, unable to open eyes, so shades and total darkness - and help millions of others. OMF.NGO is sponsoring the leading research in the world for M.E.! This medical disease is one of the last great mysteries in medicine, & is worthy of a Nobel Prize for whoever can figure out this complex puzzle.

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3

Donor

Rating: 5

OMF is raising funds to do leading edge research to find biomarkers, diagnostics, eventual treatments, cures, prevention for M.E., Myalgic Encephalomyelitis. Linda Tannenbaum is doing a superb job of leading this effort to cure over 1 million ill in US, perhaps 17,000,000 worldwide. She has met with experts and patients nationwide and even visited my 22 year son at our home last month, showing her true compassion. I focus my donations on OMF since it is a leading organization funding key patient R&D including the severe ME/CFS patient study that was started early this year (Feb 2016).

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3

General Member of the Public

Rating: 5

The Open Medicine Foundation does groundbreaking work for 20 million ME/CFS-sufferers worldwide. I live in Germany , bedbound, and the OMF is the reason I haven't lost hope. Ron Davis is brilliant and my personal hero.

2

General Member of the Public

Rating: 5

My experience of this non profit is quite simply one of hope. Their end me/cfs project, their collaborative approach toward research, the quality of research they fund and scientists involved, their support of having the pace trial questioned, their advocacy, its incredible and with all the focus on the science there is still clearly a genuine respect and appreciation for the real people who are living with the illness. But more than that as a person with m.e/cfs they give me hope, with a condition where you can feel neglected and let down, it is the difference between feeling utter despair and giving us something to hang in for. The omf and the work their involved with has single handedly restored my faith in the scientific community, in research, as a patient with cfs/me the omf has my utter trust, trust that they will fund quality research, trust that the research will be conducted properly by excellent researchers, trust that patients involved in research will be treated ethically, trust they're only agenda is one that will be in a patients and science best interests. I cannot speak highly enough of the OMF or truly express what their work means to those of us living with the condition, and I frequently see many people specifically cite OMF and their work as literally giving them a reason to keep going, there is no higher complement a person can pay. They are simply and without overstating it in any way, heroes.

1

General Member of the Public

Rating: 5

Efficient and smart use of funding. Very effective at building direct collaboration among scientists and medical professionals and promoting sharing of research at stages that are much earlier than the publication process. OMF is one of a severely limited number of non-profits focusing on ME/CFS research, a debilitating disease that currently has no FDA approved diagnostics or treatment. This organization has attracted brilliant researchers, and their Scientific Advisory Board is an impressive line-up of talent. Their dedication to fast-tracking research is very evident and extremely unique. They are also excellent with transparency and organization, which are critical for being a top, effective non-profit. Not only do I trust them to make the most of funds I have donated, as an ME/CFS patient, I trust them with my future.

2

Donor

Rating: 5

I'm very happy with the recent research breakthroughs they've made, and the diagnostic blood testing material that they're developing in addition to trying to learn more about ME/CFS, and develop a treatment or cure. They're a shining beacon of hope for those of us that are struggling to do the things that a healthy adult would consider necessary to survive.

1

General Member of the Public

Rating: 5

My daughter has ME, and I run the ME/FM Society of BC in Canada. The work that the OMF does gives us hope. They provide the community with excellent research, great information and opportunities, such as the live streaming of their Community Symposium on 12 August at which world class researchers and clinicians will be presenting the latest research. The OMF is a beacon in the darkness that is this awful illness.

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10

Donor

Rating: 5

My daughter is 24 and has been disabled by this ME/CFS since her late teens. There has been shamefully little funding made available for this illness, and The Open Medicine Foundation is one of the few organisations doing serious research in this area. They have worked tirelessly to bring the best minds to their projects, and their efforts are all the more laudable because they are functioning in an environment where there is little to no financial support for such work. The OMF is a great source of hope for my daughter and our family, and hope is all we have to keep us going right now.

1

General Member of the Public

Rating: 5

Their work could change our lives & possibly in my lifetime.
That's exptreme,y important for those of us who are at the severe & extreme end where quality of life is lower than those with MS & those undergoing chemotherapy.
It feels like we've been seen. It feels like we've been heard. It feels like a miracle could happen.

General Member of the Public

Rating: 5

Amazing people, highly engaged and involved especially in the ME/CFS field. Groundbreaking research towards the end of ME/CFS.

1

General Member of the Public

Rating: 5

So far, OMF is one of the best things that has happened to the ME community.
OMF has given me new hope for tomorrow.
It means the world to me, to be understood and to be high priority to doctors, that they are working to solve this madness.
I'm so grateful!
I'm so happy that nonprofitt still has a value for people, and that to make a difference is enough.
Love and kindness still exists, in the Medicine-world, too.
We have seen the bad things that money has done in the case of the ME/CFS study PACE.
I'm convinced that NON profitt is important.
The medical advisery board of OMF is amazing.
Thank you for doing this!

Kathrin Storheil, Norway.

1

Client Served

Rating: 5

OMF are giving patients like me with CFS/M.E hope for the first time. They have become a global force for groundbreaking research into this debilitating disease, and their efforts to educate and advocate around the world are inspiring. OMF are a lifeline to us!

1

Professional with expertise in this field

Rating: 5

The OMF is an exceptional group of scientists that go way above and beyond to increase the understanding of the disease ME/CFS worldwide. The have an incredible knack of doing mind blowing science and communicating those findings into an easy to understand message.

1

General Member of the Public

Rating: 5

This organization is constantly working on behalf of finding a cure for this horrible disease.

2

Volunteer

Rating: 5

Open Medicine Foundation is on the cutting edge of genetic based research and medicine not only for chronic mysteries such as ME/CFS, FIBRO, LYME, but all diseases. The leadership duo is stunning with both leaders having family members directly impacted by these illnesses and the skills to solve the problem. They have assembled a global team that is collaborative, not competitive, and as such is a stellar example for government entities as NIH, CDC, HHS who are light years behind medicine required for the 21st century. As a Bay Area Development Director of 20 years, and now a bedridden ME/CFS patient for 4 years, I recognize talent, and the recipe for success at every level in OMF which has more than earned 5 stars - in less than 3 years. Join M.E. in #SillySheets, a volunteer driven campaign in solidarity with bedridden patients, to raise awareness and funding for OMF www.omf.ngo - from bed! #EndMECFS

Volunteer

Rating: 5

Open Medicine Foundation is very import to cfs/me sufferers. Their amazing work gives hope!

2

General Member of the Public

Rating: 5

They are giving me hope. Something I lost. I feel that they are fighting for me, I mean really fighting. I'll be forever thankful.

1

General Member of the Public

Rating: 5

Amazing work towards understanding and helping those of us with ME /CFS!

3

General Member of the Public

Rating: 5

Open Medicine Foundation has given me back my hope, when I had all but given up. I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) for 22 years, & for the first time since I became ill with this very disabling disease, I feel that their research may bring about some sort of treatment, & hopefully, a cure. Until recently we were forgotten, disbelieved, left without treatment, support & understanding, by the medical profession, governments, friends & family. Millions of people worldwide are struck down with ME, & have nowhere to go to get help. OMF has shown we are physically ill, when so many didn't want to know. Not much money is allocated into research of this illness, & I am forever grateful to OMF for trying to get answers with their End ME/CFS research programme. They have an understanding, & compassion for those of us afflictedwith ME, & a dedication to getting results. A huge thank you to all of you at OMF!! Please keep on doing what you do best...

1

Client Served

Rating: 5

Open Medicine Foundation is a shining star for patients who suffer from ME/CFS. This organization's efforts in organizing and conducting research into this long-neglected, incapacitating but very common disease is light years ahead of the status quo. If an option were available, I would be giving it 100 stars.

1

Volunteer

Rating: 5

The OMF is funding groundbreaking research on ME/CFS and deserve recognition not only for scientufic advancement gained but also for their excellent awareness campaign.

2

Client Served

Rating: 5

Open Medicine Foundation and their relentless effort to find diagnostic tools and a cure for this disabling disease gives hope to all ME sufferers around the world.

1

Donor

Rating: 5

Open Medicine Foundation (OMF) has brought together some of the world's top researchers in an attempt to tackle the devastating disease, ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome). In just a few short years, they have identified several potential biomarkers and are working tirelessly to find a treatment.

ME/CFS patients are desperate for relief. Many spend their days and nights closed off from the rest of the world due to extreme sensitivities to light and noise, profound exhaustion and weakness as well as cognitive impairment. They are often unable to do basic activities of daily living such as taking a shower or doing simple chores around the house. A great deal of patients also experience severe pain thoughtout their bodies and suffer in silence due to lack of support and care from the medical community and our government.

As a single mom with severe ME/CFS (mostly bedridden), I am thrilled that we have OMF fighting to bring us better tomorrows. Their passion and determination, in conjunction with their caliber of scientists and staff members, bring patients great hope.

1

Donor

Rating: 5

I have donated to this charity numerous times and they are doing an incredible job finding the route cause of ME/CFS. They have world class talent and world leading technology. With enough funding, I'm confident they will find an effective treatment.

1

Client Served

Rating: 5

Before discovering OMF I was on the verge of giving up my life. I had no energy to fight, physical or emotional. I had nothing to fight for. And even had I wanted to do something about my disease I didn't know what to do. However after discovering OMF, Ron Davis and his team of Nobel Award Winning scientists have truly given me hope and determination to fight this horrific disease. They have made tremendous scientific progress over the past few years and so many breakthroughs looks incredibly promising. I have found my source of strength and hope and knowing that by donating everything I have to OMF, I am not only saving myself but I will also be helping the millions of others who are suffering the same fate as mine.

2

General Member of the Public

Rating: 5

OMF is the leading organization that brings hope to many suffering with this awful disease!! They do such incredible work and fight such a tough battle! They have an amazing group of scientists who work tirelessly to find a cure and biomarkers! OMF never stops reaching out to raise awareness and bring hope to the patients fighting to get their lives back! I'm so glad to have them on our side!

1

Donor

Rating: 5

Even in France, OMF bring some hope for those who are housebound or too sick to take care of themself. OMF share a lot of information with us and we fell supported for once.

1

Donor

Rating: 5



I have had ME for over 15yrs and was seriously starting to give up hope, when I first learned about Dr Ronald Davis and the Open Medicine Foundation's impressive research into MECFS and other related illness. From the first day I contacted Marilyn Simon-Gersuk (director of communications/development) for more information, I felt confident that I had found the right non-profit to stand behind. Everyone I have come in contact with has been helpful and timely in answering any questions I might have. They have been nothing but welcoming and supportive, to me and thousands of others suffering from this debilitating disease. Now, through regular newsletters and video updates, as well as their social media platforms, I am kept well up to speed on the progress/discoveries the OMF's researchers are making. Not least of all, the good works of Linda Tannembaum (CEO/President) and the volunteers of OMF's EndMECFS campaign, who's monumental efforts in raising ME awarness are truly inspirational. All over the world, different countries, different cities, this dedicated non- proffit organization is striving to educating and raise funds to continue this much needed research. Thanks to the entire team at the Open Medicine Foundation, I like many others, have hope again that our suffering will end and we will get out lives back.

2

Donor

Rating: 5

The best ME/CFS charity worldwide. Brilliant highly dedicated people working with complete integrity. Their latest revolutionary research has provided some much needed hope to patients and carers globally.

2

Donor

Rating: 5

This is what a medical charity should be like! Transparent, informative, humble, dedicated, well organised and honest. These qualities shine through in everything they do and all their publications.

2 Neunistiva

Donor

Rating: 5

OMF has given me hope I have not even dared to feel all these years being severely ill with ME/CFS. People involved have the unique blend of stunning expertise and personal investment in finding the cure. That way I know that every dollar I donate goes straight into solving ME/CFS in the best and quickest way possible. And their results so far have shown I've been right to trust them. Thank you.

2

Donor

Rating: 5

Great communication. Finally some hope for such an important but ignored area.

2

Client Served

Rating: 5

O.M.F are pushing through to find answers to M.E/cfs like no other research facility has done in the past 30 odd years. As a sufferer of this illness for at least that long believe me I know. Their board and team are fantastic and we are kept informed of research,which gives us all hope. Historically M.E./cfids has been chronically under funded and things still have not changed.

4 Seán

Donor

Rating: 5

The leading researcher for ME/CFS - They give hopes to millions of us struggling with this disease, when all others have failed us.

3

Donor

Rating: 5

Raises funds and gives grants to scientists, medical researchers, geneticists and computer experts to combine their talents to look deeper than even the CDC and NIH have done at the condition of CFS/ME and actually seems to have proved it can be diagnosed in labs by biomarkers.

Finally after three decades we patients have proof that it is not "all n our heads" nor "mysteriously inexplicable."

Publicizes its efforts through reputable peer-reviewed scientific papers, mass media and social media as well as public events. Makes highly specialized knowledge understandable even to laypeople through excellent communications programming, such as linking the journal articles to Q & A sessions with the investigators.



8 leelaplay

Donor

Rating: 5

Ron Davis and his team of stellar scientists, including many Nobel laureates, is doing some of the best, most promising, research in ME and CFS, bringing hope to millions. NIH is funding ME at $5, MS at about $200 and HIV at about $3000/patient. They haven't contributed a penny to this ground-breaking research, which is appalling. OMF fundraises to get this research done, which could lead to testing and treatment in the near future.

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Client Served

Rating: 5

I went from a highly active university professor to a slight step above bedbound within a few days of contracting ME. 15 years ago. NIH has underfunded the disease - about 2% of the funding for MS and Parkinsons and 0.5% of AIDS funding. This leaves us with no accepted biomarkers or treatments, though the work of experts is finding antivirals, immune modifiers, cancer treatments that work for some patients if they can be made available. Most patients, like me, however, are left to rot. And most medical schools either don't even cover ME or have wrong information. We need good biomedical research now to solve these problems and bring life back to 10s of thousands like me.

OMF is one of the good biomedical researchers. And one of the few that is looking to research the severe patients. I've participated in past studies and am so excited at the new study awaiting funding to study severe patients. The researchers and advisory board are stellar - nobel laureates, Stanford, Harvard...... And the planned study results could soon change the bleak picture people with ME face now.

5

General Member of the Public

Rating: 1

The OMF's breakthrough discovery of metabolic biomarkers is revolutionary. It's not even just that they found something but that they actually looked for something being wrong with severely ill people with Me/CFS. For decades the CDC and NIH have followed the psychiatrists who "hijacked the disease" claiming it was a mental health disorder and blaming the patients for being ill.
The dedication and finding safe and collaboration of these scientists is unheralded - scientists whose primary aim is to help patients and ovturn decades of neglect.
Millions of woman and men worldwide have "lost"their lives due to this disease yet the USA government has ignored us.
Promises of funding after the publication of the IOM and P2P reports have come to naught, so far. Is that because diseases rhat predominantly affect woman are ignored??
The work by the OMF is Changi g the way ME/CFS is perceived worldwide, despite the lack of government funding. Imagine how fast and how huge the breakthrough started would be if the OMF was funded??

5

Donor

Rating: 5

For the last thirty years, the severely disabling myalgic encephalomyelitis, also called chronic fatigue syndrome, has been neglected by governments and by researchers and academic centers around the world. As a 2015 U.S. National Academy of Medicine report noted that ME is more functionally disabling than multiple sclerosis, end-stage renal disease, congestive heart failure and a number of other chronic diseases. And yet, this report noted there has been a paucity of research funding and remarkably little research outside the field of psychiatry. The report further noted there are no diagnostics or treatment, and doctors have not taken the disease seriously, have treated patients with hostility, and have recommended treatments that have harmed patients. One million Americans with ME and 17 million worldwide have been abandoned with so little hope that a leading cause of death in ME patients is suicide.

In its short existence, the OMF has done more to catalyze biomedical research into this disease than the National Institutes of Health have in all the years that they have been researching this disease. The OMF has recruited internationally renowned scientists - including Nobel Laureates and Academy of Science Fellows - from other fields to their team, bringing fresh perspective to a very challenging disease. They are driving the very edge of science in this field and finally creating real hope for patients that they will finally get their lives back.

6

Client Served

Rating: 5

If I could give OMF 10 stars I would!! OMF offers the first real hope for persons with ME/CFS (myalgic encephalitis/chronic fatigue syndrome). It is doing groundbreaking research into ME/CFS, making discoveries in a very short time, with no federal funding. Dr. Ron Davis of Stanford and his research team at OMF (which includes 3 Nobel laureates) are brilliant. Dr. Davis’ son is extremely ill with ME/CFS, so he will do whatever it takes to find an answer.

My life essentially stopped 18 years ago due to ME/CFS. I had to quit work, am mostly homebound and my activities are primarily limited to essentials of daily living (food, laundry), and even those often with difficulty.

ME/CFS has been compared to end-stage AIDS in its level of debilitation, only we live with it for years and years and years. And yet the medical community at large has ignored, neglected and even ridiculed those with ME/CFS. Almost no government money has been spent on ME/CFS research and in fact research has been discouraged - more money is spent on male pattern baldness. The medical community’s non-scientific, nonprofessional and extremely ignorant stance is in stark contrast to the commitment and brilliance of Dr. Davis and the OMF team. The ME/CFS community is beyond grateful to Dr. Davis and OMF.

7

General Member of the Public

Rating: 5

OMF is one of the few hope-giving research institutes for ME patients. They work without any funding from NIH, and yet are doing the biggest data study to date. The study has a big chance of yielding biomarkers and blood tests, which would turn this disease, and the life of patients, around. I have ME since early childhood, a rare form where the onset is gradual and not clearly initiated by virus or infection. The recent studies by Naviaux and Davis include non-infectional triggers, which would explain this form of ME. ME is a disease that takes over your life, and especially if you have ME since childhood, explanations can put your life into perspective.

7

Donor

Rating: 5

I have a servere ME/ cfs and there is no help or cure for me. But I am still dreaming that one day I can put my shoes on and start walking again. And that is because Open medicine foundation is working hard and fast trying to help people like me. They are among the few reasearchers who are including servere ME- pasients in their work. And that brings hope deep in to my heart. Thank you.

7 Juliana4

General Member of the Public

Rating: 5

This organization has helped so many people and is doing very important work.

8

Donor

Rating: 5

The Open Medicine Foundation has been for me a pillar of HOPE. Being ill from this horrible disease and it's co morbid issues for over 14 years I thought that I would just wither away in my bed for the remainder of my life.. Then I read about this foundation and the work they are doing. I spoke on several occasions with Linda Tannenbaum who is always so supportive. I became involved with the studies and the wonderful staff by phone and in person. I began to be able to believe that there were great people in the medical community that do care about our suffering and are working tirelessly to find treatments or a cure for ME/CFS. They have kept me informed almost daily of discoveries and advancements being made through social media and by newsletters. On Mondays they post a motivational quote that helps me look a bit forward in my life. Developments are happening very quickly and it is all due to the dedication of this foundation. They are my lifeline at this point. Thank you OMF for all you do.

8 Susanna D.

Client Served

Rating: 5

OMF do great biomedical research on ME/CFS. Me and millions of others around the world have lost our active lifes to this devastating illness, waiting for a relief, to be able to work and contribute to society and our familys again. OMF is our greatest hope!