Metastasis is what kills cancer patients, but research in this critical area is woefully underfunded compared to the magnitude of the problem. METAvivor is a grassroots organization that is raising support for laboratory research directly targeting metastasis. They also provide support for patients living with metastatic cancer. Perhaps as importantly, they have begun to shine a light on the growing number of patients living with metastatic cancer -- their real problems, challenges and realities. METAvivor solicits advice from experts to assure that their research grants are going to the best possible science. They do all of this with a minimum administrative overhead. In short, if I want money going directly to metastasis research, this is the place I send my contribution!!
Metavivor is an organization dedicated to funding research for metastatic breast cancer. Everyone at the organization generously VOLUNTEERS their time. I am a blogger and an advocate who is extremely involved in all issues surrounding breast cancer. There are so many different organizations all competing for donor dollars. It is so important to be sure our donations are being used wisely. If you are looking to put your money into research to stop breast cancer deaths, this is where your donation should be sent. I know of no other organization whose sole mission is to see that the most "ignored" breast cancer patients, the ones who will likely die of the disease, are properly served. Metastatic research is sorely underfunded and Metavivor is spreading that message, too. They are doing everything right and should be held up as a model for all other organizations. They embody the meaning of grass-roots advocacy. Metavivor isn't just the name of a non-profit, it's a group of dedicated and devoted people working tirelessly to seek change. They are most worthy of any and all donations sent their way. The potential is there for Metavivor to be more than life-changing... they will be life-SAVING and nothing is more important than that.
I have worked as an editor in the magazine business for more than 20 years in California and Maryland. In fact, I was the editor of a magazine in Palm Springs that focused on philanthropy and good causes. In all those years, I never personally joined any of organizations I covered until I encountered METAvivor. They have such a clear, unclouded mission. There's nothing superfluous or nonessential in their efforts and campaigns. They are going to change the lives of people with Metastatic Breast Cancer. And I want to be there to help.
Not many people realize that metastatic breast cancer is almost always incurable, and that up to 30% of all breast cancer patients die from metastasis. That's more than 40,000 people every year in the US alone! Furthermore, metastasis is usually not discovered until years - even decades - after the initial diagnosis, surgery, and treatment, leaving hundreds of thousands of patients with years of uncertainty. Metastasis research is critical to improve breast cancer death rates, yet it is difficult and slow. METAvivor brings together patients, advocates, and experts to get accurate information to the public, and to raise money to fund important research specifically on breast cancer metastasis.
METAvivors is dedicated to raising the awareness of what metastatic breast cancer is and to raising fund to research metastatic breast cancer. I've read newspaper articles and seen t.v. reports featuring METAvivor leaders. As a metastatic breast cancer patient I've received phone calls and emails of encouragement, information, and meetings. Thank God for METAvivors. Three cheers!
I have been privileged to be a part of METAvivor since 2008. During that time I have been amazed at the progress made by this dedicated group of volunteers. Everyone works very hard to keep expenses down, and to raise money for our annual research grant(s). We are always happy to share details about our organization. Read more about us at www.METAvivor.org.
Review from Guidestar
Metastatic Breast Cancer Survivors volunteer as the brains, energy, and workers of the METAvivor family. They understand that over 90% of cancer patients will die from metastatic disease. They understand that about 30% of cancer patients will be told that their cancer has spread to other parts of their body. They understand that only a small percentage of research money supports research to understand the how and why a cancer cell can become metastatic. Undaunted by the poor research funding, they raise monies to support novel research in metastatic cancer. Money in hand, they request grant applications, review/rank the grants and award the funds directly to the researchers. They also raise grant money to support the all volunteer staff with supplies. Finally but most importantly, they provide one-on-one support to each other as their disease progresses. Like the disease they are sworn to conquer, they smoothly transition between fund raisers, research supporters, and loving care givers. Some researchers believe that Cancer Stem Cells are shed from the tumor early in its growth, move to other tissues and many years later emerge as a metastatic site. I like the idea that donating dollars to METAvivors directly supports metastatic cancer research and may contribute to finding a cure for cancer at its root.