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Metavivor Research and Support Inc

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Nonprofit Overview

Causes: Cancer, Health, Public Health

Mission: Fund the research that will initially extend life and ultimately end death for persons diagnosed with metastatic breast cancer. Support persons with the disease. Raise critical awareness so that we can carry out our mission.

Results: We have awarded ten research grants totaling $600,000 for metastatic breast cancer research. We fund out-of-the box ideas that have far-reaching impact and stand the chance to make a significant difference for the metastatic breast cancer patient in the future.

Target demographics: persons with metastatic breast cancer wherever they might live

Direct beneficiaries per year: 1000s of patients and we funded three metastasis research proposals

Geographic areas served: Annapolis MD

Programs: RESEARCH -- first and foremost to extend life and ultimately end death from metastatic breast cancer SUPPORT for the patient so that they can get together, face-to-face with others going through precisely the same thing that they are going through. AWARENESS so that people everywhere can understand what stage IV cancer is all about and can help make a difference for our community.

Community Stories

71 Stories from Volunteers, Donors & Supporters

12

Professional with expertise in this field

Rating: 5

Metastasis is what kills cancer patients, but research in this critical area is woefully underfunded compared to the magnitude of the problem. METAvivor is a grassroots organization that is raising support for laboratory research directly targeting metastasis. They also provide support for patients living with metastatic cancer. Perhaps as importantly, they have begun to shine a light on the growing number of patients living with metastatic cancer -- their real problems, challenges and realities. METAvivor solicits advice from experts to assure that their research grants are going to the best possible science. They do all of this with a minimum administrative overhead. In short, if I want money going directly to metastasis research, this is the place I send my contribution!!

1

General Member of the Public

Rating: 5

METAvivor is the only national organization that exclusively supports research that benefits patients living with metastatic breast cancer through a peer-reviewed grant process. 100% of every donation made to METAvivor goes directly to research. Thanks to volunteer efforts and direct sponsorships, not one penny of donations are used for overhead. I love that.

2 Colleen41

Client Served

Rating: 5

This is a very accepting organization that counseled & supported me when I was diagnosed with Stage IV cancer at the age of 32 & continue to support me to this day. I have 2 very young daughters & the women of the group have helped me throughout the many hardships I have endured. My breast cancer spread to my liver, skin, lymph nodes, & brain. i have been on chemo since diagnosis & also had surgery & radiation. each time i was connected to someone in the group who had gone before me - told me what i can expect & the truth about side effects. They have also given me the opportunity to make a difference in the world. They connected me to the right people & recommended me as a patient advisor. I have been able to share my story through their guidance. Every time I do I am encouraged & uplifted by hope. This organization is the key to research & ultimately a cure to stage IV breast cancer.

Review from Guidestar

1

General Member of the Public

Rating: 5

This outstanding organization has put metastatic breast cancer on the map and in the consciousness of the public, literally from the grassroots. METAvivor started as a local program and, through the sheer determination and dedication of its founders and volunteers has developed quality programs, amazing outreach, and steady, growing fundraising.

Review from Guidestar

1

Volunteer

Rating: 5

I recently co-chaired a luncheon for this great organization. After attending the luncheon last year and meeting one of the nonprofit’s co-founders, who while very ill, made sure that she worked to make the luncheon a success, I was very inspired to help. Metastatic breast cancer research is distressingly unfunded for the most part. What METAvivor is doing to raise funds and raise awareness is exemplary. The spirit and dedication of this group made me proud to be a volunteer for them.

1

Volunteer

Rating: 5

METAVIVOR as an organization that has shown tremendous respect for the metastatic breast patients by being an advocate for those whose voices may not be heard due to the overwhelming attention given to the breast cancer community who are not Metastatic. They have committed to helping those whose disease has progressed and are fighting to ensure that research continues for those whose outlook may be more challenging.
By working with us in the community they have made it easy to partner with them in building fund raisers that will benefit metastatic patients and help get money for research and provide a hopefully longer, enjoyable, productive life for the metastatic patient and bless their families with more time and love.
A wonderful organization, helping patients have a wonderful outlook on the future.
Doug McGuire

Review from Guidestar

General Member of the Public

Rating: 5

I have watched this grassroots organization since its inception and have seen these women with metastatic breast cancer work tirelessly and without any compensation I might add, make funding for metastic breast cancer a reality. What they do for one another and the Metastatic Breast Community as a whole is remarkable. I applaude their determination.

Review from Guidestar

2

Professional with expertise in this field

Rating: 5

As a genetic counselor, I know that one can make all the right lifestyle choices, do all the recommended screening and/or surgery and sometimes still not avoid metastatic breast cancer. Metavivor is completely dedicated to women with metastatic disease. This organization puts 100% of donations towards funding research that pursues new insights, new protocols and new results. One phone call to them will convince you that they keep up to date so that they can make the best decisions about the allocation of funds, and support the women who come to them for hope.

J.H., LCGC

1

Professional with expertise in this field

Rating: 5

As a nurse, I know and hear the stories of women with metastatic breast cancer, and I know the place to send them. Metavivor understands what they are going through like no one else. They help fund the research that makes a difference an support the women, who need it most and who are the most neglected. They give the patient the respect, information and support that can truly make a difference in their lives now, while funding the research that will make a difference in the future.

Donor

Rating: 5

This is an amazing organization, professionally run by volunteers. Because of this they are able to give 100% of donations to metastatic breast cancer research. Leadership is mostly by people with metastatic breast cancer. This is such an important issue that is often overlooked by traditional breast cancer organizations. The research Metavivor funds is critical for women with MBC.

Review from Guidestar

Professional with expertise in this field

Rating: 5

It is an honor to work with such amazing people who are committed to the cause.

Review from Guidestar

Volunteer

Rating: 5

I am a volunteer working with patients/families on the journey with breast cancer. Unfortunately and often overlooked are those who have been diagnosed with metastatic breast cancer. The unbelievable, dedicated and energetic members of METAVIVOR have been instrumental in gaining funds to support research to change metastatic breast cancer from a terminal disease to a chronic disease that can allow for the journey to be long...NOT short-lived. I have known many of the members of this group and, in addition to their tireless work, they have had to deal with the emotional challenges of watching their members succumb to this dreaded disease. Please go to METAVIVOR.ORG and offer help to eliminate this terminal disease which can affect anyone of us!

Review from Guidestar

Professional with expertise in this field

Rating: 5

I am a medical anthropologist, health educator and administrator, working with metastatic breast cancer patients for the past 7 years. I know of no better organization for metastatic cancer patients, than Metatvivor. Their commitment to funding research which will benefit the stage IV patient, and their total volunteer status, gives me complete confidence that my personal donations will do the most good. But in addition to funding research they provide direct , hands on support and care with knowledge, grace, and practicality. I am confident when I refer a patient to them, that they will be well taken care of. And I myself turn to them for up to date and practical information about options for treatment and the relevance of programs I might be considering. This is not the kind of organization that spends more time promoting itself than looking for solutions or giving support, but rather the kind you want when you or your loved ones need guidance. I give them my highest recommendation. Kathryn Devanny, MA, MPH

Review from Guidestar

Advisor

Rating: 5

This organization is run by an amazing group of professionals - all volunteer and all extremely accomplished in their fields. Their professionalism and tireless dedication is reflected in the success of this very worthy charity .

Beverly14

General Member of the Public

Rating: 5

So far, I have been one of the lucky ones: a woman whose breast cancer was caught early and treated successfully. But my heart goes out to my sisters who are not so fortunate. METAvivor has been in the forefront of raising money for research into this woefully underfunded disease, metastatic breast cancer. The organization is run completely by volunteers, and you'll never meet a more competent, dedicated group. I cannot thank them enough for the efforts they are putting into extending and saving the lives of so many women. We all know the odds: 1 in 8 women will be diagnosed with breast cancer in her lifetime.

Review from Guidestar

Professional with expertise in this field

Rating: 5

This dedicated non-profit group is focused on helping men and women with metastatic breast cancer. They understand the physiological, psychological, social and spiritual impact of metastatic breast cancer. The volunteer leadership of this group is working to increase options to prevent and treat metastatic disease. Articulate and professional, the leadership has presented to Congress, as well as outreached to the public. This non-profit organization is stellar in their mission and approaches it with integrity and conviction. MOK

Review from Guidestar

Board Member

Rating: 5

In the midst of so much pink hype, especially every October, it's hard to find a breast cancer charity that has a meaningful impact on the national stage, which does its work with integrity, and which is responsible, accountable and transparent to donors. METAvivor is all of that! As a 100% volunteer group, every penny is available to fund critical research to support scientific study that will directly benefit those of us living with metastatic breast cancer.

General Member of the Public

Rating: 5

Good to see this organization get the support it needs to continue serving those with Stage IV cancers. Please donate. The money will all be for research.

Joanna F.

Client Served

Rating: 5

Despite having Metastatic Breast Cancer we as a community do not feel represented by the general Breast Cancer organizations. It is though they don't want to bring the "true" statistics to light and if we are around they would have to explain the truth about our disorder eg roughly 30% of early stage breast cancer patients will progress to Metastatic(stage IV) cancer and 8-10% start with MBC that means the approx 40% will have MBC AND that is a VERY different picture to the PINK story that says BC has a 90% cure rate. Metavivor advocates that 30% of funds should go towards MBC research. this is the stage where people die!!! Stop the metastasis= stop the deaths!! NO BODY DIES from EARLY STAGE BREAST CANCER!!!

Volunteer

Rating: 5

To find an organisation that is so transparent about everything it does is quite frankly surprising, even in the non-profit world. I have metastatic breast cancer and we need to be noticed and accepted, especially by the breast cancer community as a whole who usually ignore our existence as we are not pink fluffy "survivors". We don't fit into the Pink Survivor scenario although uur plight is used to raise funds that do nothing to help or benefit those who have MBC. It is as though there is nothing between early stage breast cancer (which is survivable) and End of Life. Well, THERE IS, and METAvivor is the only group I know of which is dedicated to the life of these men and women, and to finding treatments for us. 30% of the "Early Stage Survivors" will develop metastatic disease and METAvivor is actually doing something to help them when they cross over the divide between SURvivor and METAvivor.

Volunteer

Rating: 5

Metavivor is dedicated to stage IV Metastatic Breast Cancer Research and is dedicated to placing a spotlight on metastatic breast cancer which kills nearly 40,000 a year; approximately 30% of breast cancer patients with breast cancer develop MBC-cancer that has spread beyond the breast. The Metavivor organization's analysis of cancer organizations from the western world suggests that only 5% of total cancer research funding goes towards metastatic disease. Unfortunately, metastasis can happen to anyone, at any stage of the disease making additional research funding and patient support services critical for stage IV patients in a time when the efforts of fundraising are geared towards early prevention and detection and because of this, stage IV is cast in the shadow-"Out of sight, out of mind" MBC IS the worst nightmare of every patient with breast cancer but so little funding is given to save so many lives-MBC is fatal so lets work together to make a change, our lives are depending on it!!!