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2015 Top-Rated Nonprofit

Metavivor Research and Support Inc

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Nonprofit Overview

Causes: Cancer, Health, Public Health

Mission: Fund the research that will initially extend life and ultimately end death for persons diagnosed with metastatic breast cancer. Support persons with the disease. Raise critical awareness so that we can carry out our mission.

Results: We have awarded ten research grants totaling $600,000 for metastatic breast cancer research. We fund out-of-the box ideas that have far-reaching impact and stand the chance to make a significant difference for the metastatic breast cancer patient in the future.

Target demographics: persons with metastatic breast cancer wherever they might live

Direct beneficiaries per year: 1000s of patients and we funded three metastasis research proposals

Geographic areas served: Annapolis MD

Programs: RESEARCH -- first and foremost to extend life and ultimately end death from metastatic breast cancer SUPPORT for the patient so that they can get together, face-to-face with others going through precisely the same thing that they are going through. AWARENESS so that people everywhere can understand what stage IV cancer is all about and can help make a difference for our community.

Community Stories

71 Stories from Volunteers, Donors & Supporters

12

Professional with expertise in this field

Rating: 5

Metastasis is what kills cancer patients, but research in this critical area is woefully underfunded compared to the magnitude of the problem. METAvivor is a grassroots organization that is raising support for laboratory research directly targeting metastasis. They also provide support for patients living with metastatic cancer. Perhaps as importantly, they have begun to shine a light on the growing number of patients living with metastatic cancer -- their real problems, challenges and realities. METAvivor solicits advice from experts to assure that their research grants are going to the best possible science. They do all of this with a minimum administrative overhead. In short, if I want money going directly to metastasis research, this is the place I send my contribution!!

1 Kelly S.4

Donor

Rating: 5

What's not to love about an organization that devotes 100% of donations to research!!!

Donor

Rating: 5

We are always happy to donate to METAvivor, as we know that 100 percent of our donation will go directly to Metastatic Breast Cancer Research. Their peer review grant process insures that the very best research will be funded. With 30 percent of breast cancer patients (both men and women) ultimately metastasizing, it is very sad that only 2 - 5% of research funds are allocated to help the already metastasized patient. We are very aware of breast cancer, lets put some funding to research for metastasis.

Previous Stories
3

Donor

Rating: 5

Metavivor is one of the non profits that we support annually. All money goes directly into research for metastatic disease. Metavivor has been a leader for support, advocacy and fund raising for metastatic breast cancer. The research done as a result of Metavivor's grants will directly or indirectly lead to progress in all metastatic cancer. Each year they innovate many new ways to raise funds for this worthy cause. Well done, and keep up the good work!

Review from Guidestar

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Volunteer

Rating: 5

METAvivor is the only 501c3 in the United States that gives 100% of donations to stage IV metastatic breast cancer research!! They also have a nationwide peer to peer support group, the annual Stage IV Stampede in Washington DC to lobby legislators for more research funding, and the Sea to Sea campaign to spread awareness of MBC! Thank You for all that you do for the metastatic breast cancer community!!

Professional with expertise in this field

Rating: 5

METAvivor is an outstanding organization that funds peer-reviewed cutting-edge metastatic breast cancer research and also offers caring patient support. METAvivor truly puts patients first. Scientists support METAvivor!

1 Leslie85

General Member of the Public

Rating: 5

This is the bestwebsite and cancer support/research organization on the web. I have had metastatic breast cancer since March 28th 2011. I haven't seen as much activity towards research and education as I have in the past year. All largely due to metavivors social media campaigns. More people are truly aware of metastatic breast cancer and its sad statistic because of the activity of metavivor during breast cancer awareness Month. It is the first time I have had hope in these last four years. Thank you guys for raising money for research and making the public truly more aware

Review from Guidestar

General Member of the Public

Rating: 5

As someone living with Metastatic breast cancer, Metavivor is an organization that is helping spread awareness for my type of disease. I hope that with their advocacy and grants for research leads to finding a cure so that I may live.

Review from Guidestar

Roseanna S.

General Member of the Public

Rating: 5

keeps me updated as I have this disease. Thx for all you do'

1 Vikki S.

General Member of the Public

Rating: 5

I have friends with breast cancer and support them - and I know they are at risk for metastatic disease. I know of others who have died from metastatic breast cancer and left behind loved ones who needed them - a teenager with a disability and no one else to provide care, a husband, now a widower. Metavivor has found a niche for an underserved group in the battle against cancer and present a powerful and convincing case for boosting research to help them, while being honest and real, not asking for pity but for a cure or at least treatment to extend life This group shares the strength and support that will let all affected women live to the fullest for as long and as well as possible.

3

Client Served

Rating: 5

Truly non-profit. All monies go toward research for a cure for breast cancer. MBC is the elephant in the pink room. 30% of Breast cancer patients will go on to have MBC they have a recurrence (stage IV MBC) or are initially diagnosed with stage IV. Only about of 3% of Breast cancer funds go to research for MBC and a cure. Those of us who are METAvivors or Cancer lifers believe we deserve our fair share of research dollars. Don't ignore stage IV. METAvivor is completely staffed by volunteers and all monies go toward research for a cure. Please for my sake and that of the 40,000 plus men and women who die each year of MBC give to a real,non-profit that does what it's mission says. I support METAvivor because I am a Cancer lifer and METAvivor and they support and educate me and thousands of others who have nowhere else to,find support and education.

3

General Member of the Public

Rating: 5

METAvivor is one of 2 breast cancer organizations I donate to. I have a dear friend with Stage 4 breast cancer and she made me aware of their work. They fund RESEARCH! They are actively working towards a cure, which is what other groups SHOULD be doing! And their ratio of money going directly to funding research is awesome!

2

General Member of the Public

Rating: 5

I am a five year metastatic breast cancer lifer, and I so appreciate that Metavivor donates all of their proceeds to metastatic breast cancer research. It may not save me, but I love envisioning a world without MBC for my four children. Keep up the great work! Love you guys!

2

Board Member

Rating: 5

100% of donations to metastatic breast cancer research.
Volunteer run organization
Support, outreach and awareness

2

Donor

Rating: 5

This non profit is fighting for all of us, a cause long overdue, stage iv breast cancer. No one dies from breast cancer, they die from its metasticizing. We need to concentrate on eliminating stage iv breast cancer and give everyone with breast cancer a chance at life

2 Linda371

Client Served

Rating: 5

Metavivor staff provided me with " The Truth ", so I could pass it on. They appreciated the "truth" work I had begun, never knowing they existed until we gave CJ a ride from the airport to a MBCN conference about five years ago. They continue to offer truth, raise monies for research into Stage IV breast cancer, the stage that kills 111 women and men in the U.S. Every day! No other charity cares enough to give all, 100% of donations to the research that is directed to finding a real cure for the breast Cancer Death Sentence!

4

Donor

Rating: 5

Metavivor is the only cancer organization that I support, for many reasons, among them because they do such a fantastic job of both supporting victims of this cruel disease, and they uniquely fund research to fight it. Having watched my mother undergo treatment for breast cancer, as well as too many dear friends, it is not an option for me NOT to support worthy organizations searching for a cure. I choose to support Metavivor because they are so effective in what they do; because metastatic breast cancer is NOT supported by most fundraising fighting breast cancer, thus Metavivor's unique role vs metastatic breast cancer; because they provide support for women whose situation many people mistakenly think has already much support; because of their transparency, so you know that your dollars go where there is the most need (to the researchers); because of their educational efforts that clarify the issues simply and effectively, and finally and of great importance, seeking out and funding the best researchers who are searching for cures for this deadly disease.
On their website (metavivor.org) they run an excellent video, full of information that most people, even those with breast cancer themselves, are not aware of. Hard-hitting, factual and with a message that should change the course of breast cancer research funding, these women of Metavivor.org (and associated men) support an under-served population, people whose situation is misunderstood for the very reasons explained so well in this video! This is an organization that deserves everyone's support, for the sake of all of our wives, mothers, daughters and granddaughters, aunts, cousins, and our future.

2

Donor

Rating: 5

Great organization filling a real need. Led by "metavivors", the organization is focused on fighting the disease and helping those who are fighting it. Unlike many nonprofits, it is not caught up in trying to have the splashiest brochures, coolest office, etc. As a donor, it is refreshing to know that donations are actually used for the purposes intended.

Review from Guidestar

2

General Member of the Public

Rating: 5

Metavivor is a wonderful organization that stands out from other cancer related nonprofits. I am amazed at the hard work, quality of work, and dedication each of member of this organization contributes in order to raise awareness and fund research directly related to metastatic breast cancer. I look forward to following this organization to see the amazing things it continues to do.

2 Susanne6

Volunteer

Rating: 5

Metavivor fills a dearly-needed role in making sure metastatic breast cancer gets the attention and research it needs to help the 150,000 Americans who are living with MBC. The staff is living with this disease themselves, so they understand all too well the urgency and importance of Metavivor.

Review from Guidestar

1 dja_2

Professional with expertise in this field

Rating: 5

As a breast cancer surgeon, I am asked to support many breast cancer related non-profit organizations. Metavivor is at the top of my list. They are one of the few organizations providing support to individuals as well as researchers who focus on metastatic breast cancer - these women are not well represented in clinical trials and research efforts. In addition, they are extremely transparent regarding where the donations are going. For these reasons, I will continue to support Metavivor and would recommend that others do so as well.

Review from Guidestar

1

General Member of the Public

Rating: 5

Metavivor is a nonprofit organization that supports people living with metastatic breast cancer. 100% of the proceeds go to research. Unlike Susan G. Komen. I donate exclusively to Metavivor in the hopes that metastatic disease will be part of our past.

Susan Rahn

Review from Guidestar