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Nonprofit Overview

Causes: Health, Medical Research

Mission: Lymphatic Education & Research Network (LE&RN), formerly Lymphatic Research Foundation (LRF), is a nonprofit organization founded in 1998 to fight lymphatic disease and lymphedema through education, research and advocacy. We seek to accelerate the prevention, treatment and cure of the disease while bringing patients and medical professionals together to address the unmet needs surrounding lymphatic disorders.

Results: LE&RN is at the forefront of raising awareness of lymphatic disease and lymphedema. Founded in 1998 as the Lymphatic Research Foundation, LE&RN provides annual grants to Research Fellows at the world’s leading universities, putting lymphatic diseases on the radar in the medical community, in academia, in government, and with pharmaceutical companies. Through LE&RN’s education programs, such as our popular Medical Symposium Series, medical practitioners, therapists, patients, and family members can benefit from hearing presentations given by the world’s leading lymphatic and lymphedema experts. LE&RN’s Patient Registry and Tissue Bank provides researchers with access to information about those afflicted with these diseases and can provide tissue samples from lymphatic disease patients to further research discoveries in the field. The quarterly journal Lymphatic Research and Biology delivers the latest developments and advancements in lymphatic biology and pathology from the world’s leading biomedical investigators. Through events such as the annual Walk for Lymphedema & Lymphatic Diseases and through advocacy efforts such as fighting for passage of the Lymphedema Treatment Act, LE&RN is building an extensive network of people looking for answers, demanding better treatment options, and, ultimately, finding a cure so that no one will have to suffer with lymphedema and other lymphatic disorders.

Target demographics: fight lymphatic diseases and lymphedema

Direct beneficiaries per year: fund researchers worldwide, and brought our educational symposiums to tens of thousands.

Geographic areas served: the United States and internationally

Programs: research, education and advocacy. We seek to accelerate the prevention, treatment and cure of the disease while bringing patients and medical professionals together to address the unmet needs surrounding lymphatic disorders.

Community Stories

22 Stories from Volunteers, Donors & Supporters

7

Volunteer

Rating: 5

Four years after having surgery to cure cancer in 2004, I discovered I had swelling crawling up my left leg. It began in my toes, and inched up to my thigh over the course of a few years. My doctors were stumped. One even suggested I was just "getting old." In 2011, I discovered my disease has a name -- lymphedema. Finding the Lymphatic Education & Research Network (LE&RN) was just what I needed because up until that point, I didn't know much about lymphedema at all, and I was forced to do my own research. But LE&RN made researching so much easier, with its pages upon pages of information, symposiums and personal stories from people who also suffer from the disease. I was so impressed with them that in 2014, I decided that instead of having a bridal shower, I would hold a LE&RN fundraiser, raising $3,000! My husband and I then spend our honeymoon participating in the Walk for Lymphedema in NYC, a LE&RN fundraiser, and walked over the Brooklyn Bridge with others who also suffer from the disease or care for family members who do. LE&RN is such a great tool for those newly diagnosed with lymphedema, and it's a great resource for all lymphedema patients to find new information and support. Thank you, LE&RN!

6

General Member of the Public

Rating: 5

I was asked to make a donation toward my friend's walkathon account, and it made me take a closer look at the organization she was raising funds for. I was pleasantly surprised to see all the different things this foundation has to offer. My friend has had lymphedema for 15 years, and I know she is always frustrated by how little information is out there. Now, she has a place to not only find out the latest information on lymphedema, but she even has a place to send her doctors and therapist so they can also learn more about her condition.

Review from Guidestar