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Lungevity Foundation

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Nonprofit Overview

Mission: LUNGevity Foundation is firmly committed to making an immediate impact on increasing quality of life and survivorship of people with lung cancer by accelerating research into early detection and more effective treatments, as well as providing community, support, and education for all those affected by the disease.

Results: Since 2002, LUNGevity has funded 115 scientific research projects at 58 institutions in 23 states. Whether we are supporting early-career scientists or established researchers, we work with top lung cancer experts to identify and fund promising and innovative research into the early detection and targeted treatment of lung cancer.

Target demographics: anyone impacted by lung cancer

Direct beneficiaries per year: people impacted by lung cancer

Geographic areas served: lung cancer research, education, information, survivorship, support, events

Programs: Research funding, education thru our comprehensive website, lung cancer 101, webinars and expert videos, Lung Cancer Support Community Message Boards, LifeLine Support Program, , online Survivor Resource Center and Caregiver Resource Center, Voices of Hope Videos, National and Regional Hope Summit survivorship conferences and a national grassroots events program.

Community Stories

108 Stories from Volunteers, Donors & Supporters

susanlgamble

Volunteer

Rating: 5

I am a stage 4 NSCLC adenocarcinoma one year survivor. I found LUNGevity after I had been through my first rounds of chemotherapy and was on a genetically targeted therapy that was just beginning to work. My sisters formed a team at Ann Arbor, Michigan's Breathe Deep event. I started to explore the website and learned of Hope Summit 2012 when Katie Brown wrote me a thank you note for my donation to the Breathe Deep event. She also invited me to apply for a scholarship to attend Hope Summit for lung cancer survivors. I am a bit shy, so it was a big step to attend the Summit. I have gotten support and been involved with the LUNGevity online community ever since. I have begun to volunteer as a moderator in the discussion forums on the site. I did not know anyone with lung cancer. LUNGevity has supported me, given me friends that are also fighting cancer and has given me purpose again in my life. I love this organization and have so much respect for the folks that run it. They are the REAL DEAL!

Nikole V.

Volunteer

Rating: 5

LUNGevity Foundation is a top notch non-profit organization. They truly care about lung cancer survivors and anyone affected by this deadly disease. I found LUNGevity after my father passed away and began to volunteer at a local event raising funds for much needed research. I wish I would have found LUNGevity while my father was still living to get much needed help. I am proud to say I volunteer for this amazing organization.

Randy9

Volunteer

Rating: 5

Lungevity is a wonderful organization to be a apart of if you are living with Lung Cancer or know of someone who is living with this disease. Full of wonderful caring people who are there to inspire and motivate and share the tears with when you want to cry. they are a great group trying to make progress in the fight against Lung cancer every day in every way!! I have served as a moderator since my wife was fighting Lung Cancer and that has been about 8 years now. Since she passed away they have been there to support me in my grief and help me through the good and bad days !!

2

Volunteer

Rating: 5

My husband was diagnoised with LC 6 years ago. I was so scared I thought it was a death sentence. I had nowhere to turn until I found Katie and Rick Brown's support webpage. It actually changed my life. There are so many people on there who are survivors and it they gave me such encouragment. And they are so knowledgable and helpful... My husband cancer came back 3 times. The last time he was treated with cyberknife and has been C free for 1 1/2 years the longest he has gone! It was LC help that introduced us to cyberknife... Katie and Rick to me are angels here on earth!! Also because LC is on the bottom of the list as far as funding, we joined Lungevity to help with awareness. We have been walking the South Jersey Heather Saler walk for 5 years now. We ourselves have raised over $20,000.00 over those 5 years. We are making a difference but we need VOLUNTEERS!!! Maryanne & Joel

Review from Guidestar

3

Volunteer

Rating: 5

My husband was diagnosed with lung cancer over five years ago. He has since passed away. LUNGevity was there for me as a wonderfully helpful support.

Review from Guidestar

4

Client Served

Rating: 5

I was diagnosed with lung cancer last year and felt so alone until I found Lungevity. I fould the most wonderful support group I could ever want.

Review from Guidestar

1

Volunteer

Rating: 5

I was diagnosed with Stage IIIB lung cancer in December of 2004... Soon after, I found Lungevity and felt an immediate bond as their mission matched the goals I wanted to begin to accomplish during my healing. Since 2006, I have had the awesome privelege of supporting Lungevity's mission. Their focus on grants for research is certainly proving true that "lives are being saved". I am so proud of this organization and am excited to see what the future holds for the growth of such an amazing organization. Keep up the great work Lungevity!!!

Review from Guidestar

2

Volunteer

Rating: 5

My step-dad was diagnosed last summer with Stage 4, non-operable lung cancer. He started treatment immediately and was going through Radiation and Chemotherapy at the same time. When I discovered this, I needed to find a way that I could "help" in his fight to win. I did a lot of research and came across LUNGevity Foundation. I feel so blessed to be a part of such a wonderful organization and in doing my part to help obtain money in order to aid research. I am VERY happy to announce that in March they indicated that my dad is cancer-free. I am still SO committed to this cause and will do whatever I can to spread the awareness and eventually discover a cure.

Review from Guidestar

5

General Member of the Public

Rating: 5

When I was dx'd almost three years ago, I read the stats for advanced lung cancer--3 to 5 yrs. I was devastated. All my family and friends were at a distance. In my search for info about my cancer, I was fortunate to find the Lungevity support community. It saved my life then and supported me through every crisis real or imagined every since. Hopefully, I am now a member who can offer the same to others. A primary message, we are not a number, we are an individual.

Review from Guidestar

4

Client Served

Rating: 5

I can testify to the fact that there are no more horrifying words to hear than, "You have lung cancer", and it becomes a part of who you are for as long as you may survive. I have found no better place to interact with other lung cancer survivors and caregivers than Lung Cancer Support Community. Katie has done an amazing job as founder and director of it.

Review from Guidestar

5

Client Served

Rating: 5

LUNGevity has given me a place to receive and give on-line support to others impacted by lung cancer - be they patients, survivors, caregivers, family, or friends. Being able to find others who have been through the same or similar treatment has been a great resource. I am particularly grateful that this site maintains a respectful attitude to different opinions. I'm guessing the site moderators have a hand in that. Katie Brown's attitude of loving kindness permeates the discussions.

Review from Guidestar

1

Client Served

Rating: 5

In 2008 I was diagnosed with lung cancer for the second time. In 1998, when I was first diagnosed, I tried to find some type of support group, but there was nothing. In 2008, when I tried again to find some type of support group, I was so pleased to find Lungevity. Initially, the people at Lungevity gave me hope, and they continue to do so to this day. I would not want to have to go through this journey without them.

Review from Guidestar

6

Client Served

Rating: 3

In March, 2007 I was desparately seeking information on lung cancer. My mother had been diagnosed with Stage IV non Small Cell Lung Cancer in January of that year and I had been crying for two months thinking that she was dying. And then I found Lungevity and the Lung Cancer Support Community (LCSC). I remember reading the stories of long-term survivors and feeling for the first time that here was hope. The LCSC and Lungevity have been my constant companions for the past three years. Anytime my mom began a new treatment I knew I would get reliable information from the survivors and caregivers there. If there was bad news, the LCSC was the first place I went because I knew they would understand. When there was good news I also rushed to LCSC because these were the people I knew would celebrate with me. I don't know why I am speaking in the past tense. At 41 months since her diagnosis my mom is going strong. I think Lungevity is one of the reasons. The information I have received over the past three years has been vital to her survival. I appreciate Lungevity's dedication to research for lung cancer treatments and I know that my last three years as a caregiver have been easier because of the support I've found on the LCSC. Thank you, Lungevity!

Review from Guidestar

5

Donor

Rating: 5

I first became aware of Lungevity through LCSC. Thanks to Katie and all the other folks that are part of the online community I found support during my mother's short battle with lung cancer and have continued to receive the love and support from these folks in the years since. I couldn't have made it through without them. Since then, I founded my own charitable organization (with Katie's help) and have raised funds for Lung Cancer research. Lungevity has been the single largest recipient of those funds because I am confident that they are good stewards of the resources we provide and their mission is a riteous one. This is a great organization.

Review from Guidestar

5

Client Served

Rating: 5

I found the forum right after I was diagnosed with stage 2b lung cancer. I was so scared and looking for any kind information and hope. The response to my 'just diagnosed' post was overwelming and so very welcomed. It helped so much to talk to others that really understood what I was going through throughout my journey---and to get helpful information from those that really knew how to deal with the pain from the surgery, the sickness from the chemo and the anxiety that comes with the testing after treatment. Only those that have been touched by this beast can help others as much...

Review from Guidestar

5

Board Member

Rating: 5

After my lung cancer diagnosis in October 2007, I found this forum shortly afterward. It has been a blessing in disguise! Everyone is so supportive and caring & goes above and beyond to show their concern for all it's participants. You'll find no other health forum anywhere close to this one. This was a great discovery for me & has been instrumental in my recovery process.

Review from Guidestar

5

Client Served

Rating: 5

I don't know where I'd be without the LUNGevity foundation and especially the LCSC. Two days after my Mom was diagnosed, after reading awful, hopeless statistics, I logged onto LCSC for the first time. Their I found hope, support, and friendship. I clung to the message board as a lifeline throughout my mother's illness, her decline, and even after her death. It was the only place that I found where people 'got it' about Lung Cancer. Katie Brown who began the support board and whose role with LUNGevity has expanded recently is an amazing voice of compassion and support. She workds tirelessly to support and advocate for those dealing with this disease. LUNGevity not only gave me support through the support boards, but provided an avenue to raise funds and awareness myself. I enjoyed walking as a satellite walker in one of the walks a few years back and I try to support others walks and endeavors as well. I love it's focused support for the deadliest cancer out there.

Review from Guidestar

5

Client Served

Rating: 5

I found this organization in May 2007 after my mother was diagnosed with lung cancer. We were terrified of the diagnosis and were sure it was an immediate "death sentence". We were quickly calmed by the wonderful people sharing their experiences living with lung cancer...some for many, many years! The people have knowledge of so many research studies, treatment possibilities, side effects and the emotions involved that there was never a situation we were in that someone didn't have experience in. It became a place where I found life-long friendships that I treasure, all from one of the worst times in my life.

Review from Guidestar

5

Client Served

Rating: 5

Thanks to Lungevity my road to recovery from lung cancer has been helped trmendously! I have met so many wonderful people,all willing to help with every aspect imagineable. So much great advice when so despartly needed.

Review from Guidestar

5

Client Served

Rating: 5

I found this organization in 2004 when my husband was battling lung cancer. Since then, I have come for support and encouragement during some very difficult times as I lost my husband, dad, mom and uncle to lung cancer. Everyone has been great and so supportive. Katie Brown is a gifted individual with great ideas and leadership for this community.

Review from Guidestar

7

General Member of the Public

Rating: 5

When my wife was diagnosed with lung cancer in March 2010 the family and myself were totaly ignorant and confused. My eldest daughter discovered the web site and since then I have had only proffessional and personal advice from all the members. Every posting was promptly answered on and advice or compassionate help offered. We ar all in the same situation and Lungivity Foundation has proved its worth with all the help and also the reports of the research taking place to try and eradicate or better treat this terrible disease. My wife has passed away but I will continue visiting the site. Once again thank you or everything you did for me and the family

Review from Guidestar

6

Board Member

Rating: 5

Katie Brown among so many other members have helped me beyond words during my 9 month journey. I can never them enough,

Review from Guidestar

Previous Stories
6

Volunteer

Rating: 1

Lungivity came along at the perfect time for me when I was dealing with my husband's lung cancer. The support and encouragement I got from this group was amazing. Even now, after eight months of his passing I "know" I can always count on these wonderful people. God Bless each and everyone one of them.

6

Volunteer

Rating: 5

I became involved when my mom was diagnosed with lung cancer in 2003. I received so much support, it was truly amazing. I also made friendships which will last a lifetime. Best charity ever! So much money has been raised for lung cancer research by members.

Review from Guidestar

8

Client Served

Rating: 5

I found this organization by searching the web for a lung cancer support site. My Mom, Aunt, Uncle, Mother-in-Law and Brother-in-Law all died from lung cancer. Then I was diagnosed with it. Have been trying to find my new normal ever since, and wanted to find a site to help normalize the experience, and also to be able to share and help others. It is an amazing place with amazing and kind people. I highly recommend it for anyone living with or loving someone with a lung cancer diagnosis.

Review from Guidestar

7

General Member of the Public

Rating: 5

I came across Lungevity after the passing of my father in 2008. The people I met have been wonderful! They get you through the toughest of times and give you praise for exciting news! I don't know where I would be if I hadn't found this website.

Review from Guidestar

8

General Member of the Public

Rating: 4

I first came across when I joined Facebook and became friends with those who had lost relatives ttis disease and tried to offer words comfort and understand from them what a wonderful job Lungevity do in thier support of those with this disease and their relatives - also came to know something of the fund raising which takes place

8

Volunteer

Rating: 5

After a dear friend was diagnosed, I searched far and wide for an organization truly dedicated to lung cancer research. LUNGevity fit the bill in every way. LUNGEvity is a revolutionary non-profit. Recognizing the national need for additional funds for lung cancer research, theyve joined forces with other organizations to effectively DOUBLE the amount that LUNGevity raises for research. An amazing grass-roots effort, with the soul of its organization being members of its community who have been impacted in some way by lung cancer. Knowing where your charitable contributions end-up is an important part of giving. With LUNGevity, I know that the money we raise for the foundation is used in the absolute best ways possible. You cant find that in many of the larger cancer charities that claim to "cure" cancer.

Review from Guidestar

8

Volunteer

Rating: 5

LUNGevity has given me a place to get and give support. I lost my dad to lung cancer and so many friends and thru LUNGevity I am making a difference by coordinating an awareness/fundraising event and by supporting others going thru what we went thru.

Review from Guidestar

8

Volunteer

Rating: 5

I have been with Lungevity for several years now since losing my wife to Lung cancer over 4 years ago! I started out as a regular member and have grown in my duties to moderating several forums for Lung Cancer support Community forums now! The members at LCSC and Lungevity have been nothing short of caring wonderful people who strive to raise awareness and advocate for other members with Lung cancer and their families!!!

13

Client Served

Rating: 5

When I was diagnosed with stage 3b lung cancer Lungevity Foundation provided education and support. The online community is just the best and I belong to several. Now that I am disease free I am working to give back to this wonderful foundation.

13 charmaine

Volunteer

Rating: 5

The Lungevity Foundation was the first lung cancer foundation. It was founded in Chicago by six women who were all lung cancer patients, only one of whom survives. Lungevity was founded to fund research for lung cancer. Their dedication has resulted in over 7 million dollars of research funding. I learned about Lungevity not long after my diagnosis. A neighbor mentioned the foundation and their November Fall Benefit. I have attended the benefit for two years and last year, was asked to give the Survivor's Speech at the benefit. I have also served on the Benefit Committee soliciting raffle and silent auction prizes.