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International Hyperhidrosis Society

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Nonprofit Overview

Causes: Health

Mission: It is our mission to promote hyperhidrosis research, educate physicians in optimal diagnosis and care, raise awareness about the condition's emotional and economic impacts, and advocate for patient access to effective treatments. As part of our mission, we continuously build programs that connect those who suffer from hyperhidrosis with those who provide care, while increasing public understanding of this debilitating medical condition.

Results: Educated hundreds of medical professionals in hyperhidrosis diagnosis and care; Provided bi-monthly e-newsletter to over 50,000 subscribers; Supported research and development of improved treatments; Millions of media impressions; Millions of visitors to our continuously-updated site: www.SweatHelp.org.

Target demographics: kids, adults, families suffering with excessive, uncontrollable sweating

Geographic areas served: Global.

Programs: physician education, research support, advocacy for sufferers, and public awareness.

Community Stories

115 Stories from Volunteers, Donors & Supporters

12 ltguy11

Volunteer

Rating: 5

I've been volunteering at IHHS ever since I was in high school and Lisa and the staff always treated me with care and respect. They go to great lengths to get the word out about hyperhidrosis and raise awareness about this disorder. I've known this organization almost since the beginning and seen them grow and do great things. Thanks to the work that is done, HH treatment and insurance coverage for it has come a long way. They're always in the know about upcoming treatments and work hard to facilitate progress in the field by interacting with scientists and companies that develop treatments for hyperhidrosis. There really is no other organization like this in the world.

5 Suzanna3

Volunteer

Rating: 5

IHHS has given me a life that I thought I would never be able to live. I thought I would have sweaty palms, hand and feet forever. How I came upon this organization was one day I was fed up so I googled sweaty palms, hands and feet and their organization was one of the links. I never knew there was a name for it. I just called it what it really was. So I reached out and
gave them my stories and my concerns because at that te I was a performer who used microphones and other electrical objects in my hand. I was worried with the way my hands sweated that I would get electrocuted. I was so self conscious about every thing. From the type of shoes to wear because of sweaty feet, they type of clothes to wear because of sweaty underarms, and whose hand I couldn't shake due to sweaty palms. My life was restricted until I came across this organization. They educated me and helped me with treatment. For that I am so grateful. With the help of their information I was able to go to my dermatologist and she diagnosed me with hyperhidrosis and treated me for it. It's been 6 years and I've been sweat free. Thank you so much. I am now more confident than I ever was and I can wear what I want.

8

Volunteer

Rating: 5

This organization has been a life saver for me. They are truly an AMAZING and dedicated group of people! Not only are these medical professionals "models" for the rest of their profession, but they were also clearly dedicated to compassionate and QUALITY PATIENT CARE!
I was honestly blown away this past weekend at the Hyperhydrosis Master Class in Seattle, WA. I was a patient volunteer on Saturday 7/25/15, who flew across the country from Raleigh, NC to be able to take advantage of the generous treatments from all of these wonderful people. After I left the event that day, I honestly COULDN'T get over how authentic and transparent this non-profit truly is. Their zealous advocation of patient care/treatment for all the people who suffer from this (and get denied necessary treatments by their insurance companies) is a rare, but wonderful needle in a haystack of medical "resources" that exist today.
The organization really lives by it's mission statement: "It is our mission to promote hyperhidrosis research, educate physicians in optimal diagnosis and care, raise awareness about the condition's emotional and economic impacts, and advocate for patient access to effective treatments. As part of our mission, we continuously build programs that connect those who suffer from hyperhidrosis with those who provide care, while increasing public understanding of this debilitating medical condition." (www.sweathelp.org)
....And I am beyond thankful that I was able to take part in this event opportunity that was full of teaching and treatment. I would fly across the country over and over each year, if it meant that I could receive such life changing help.

THANK YOU IHS!! My quality of life will be so much better and more manageable for the next 8-10 months as a result of the Botox injections you all helped provide for me at this master class in Seattle.
I want to be a part of this forever!!!

7 Adrian7

Volunteer

Rating: 5

This was my first time participating in an event by IHS and it was outstanding! I was part of the Seattle event and met some fantastic people at our table that REALLY made a difference in discussing the interesting challenges that only someone with this condition can understand.....truly understand.

The stories, the challenges, the real life strategy you have to take each day to hide, minimize, avoid, talk your way out of that will cause your condition to be exposed to others was truly awesome to talk to others about for a few hours. To live with something like this is such a tricky strategy to work into your life that to imagine what it's like to have dry hands(or other areas) seems like a dream after doing for your whole life. I was really impressed at the situations people have to deal with and how they do it every day. The discussion at our table for me was inspiring to overcome this challenge! As they say there is always someone that has it worse than you and I learned that today in a personal way.

The staff that administered the treatments today were top notch and it was nice to know that they were getting first hand education of this condition from a group of people that deal with it and were not trying to down play the impact it has on our life. Lisa was a fantastic facilitator and made us all feel comfortable and has a contagious smile creating an energy of hope for a possible solution to one day be able to proactively reach my hand out and introduce myself with a firm full grip hand shake and not get that face or reaction that we're all familiar with when that human contact factor is inevitable:)

Thanks to the awesome people at our table today- your stories were inspiring to learn there's a possible solution that can help us change the course of our life by being able to- shake hands, wear slippers in public, present in front of a group confidently, wear clothing without sweat consideration, and engage with others in the way we always imagined it would be like not having to hide from hyperhydrosis! Thank you for what you're doing!

Adrian
Vancouver, WA, USA

8

Client Served

Rating: 5

International Hyperhidrosis Society has literally answered every question that I've had since I was young about a serious medical condition that many doctors that I went to did not know how to treat. Hyperhidrosis negatively affects EVERY person who is affected by it in a negative way. I has affected the way that I went outside(night time to prevent unsightly sweat strains and drenched face), my job, school, and personal life(lack thereof). IHS has allowed me to finally learn and manage hyperhidrosis. I even direct my physicians to their website to be informed of the condition, and we use it to manage and plan treatments to battle it. I cannot praise them ENOUGH!!! Best organization hands down. They respond to emails promptly, sends out newsletters that aren't spam but provide actual information and scientific advancements, and provide treatment to individuals who battle with the condition for FREE in return of educating other health care practitioners of the condition. Every effort needs to be made to help IHS to expand to further serve the ill and educate the healthcare providers.

3 Katrina Zchori

General Member of the Public

Rating: 5

Hello everyone!
I'm Katrina, Owner/Creative Director of the women's apparel brand www.KatrinaZchori.com. I've battled with hyperhidrosis for many years and just last year began to find ways to share my story on a broader scale. That's also when I reached out to www.Sweathelp.org for advice on how to do that and without hesitation they were so helpful. A list of suggestions were given on what I could do to be involved and so that's what I'm doing now. As a fashion designer I share my story in hopes of helping others come out and share theirs too. It doesn't matter what you're dealing with, but it does matter what you choose to do with it. For years I allowed this condition to isolate me, but not anymore. Thank you for the opportunity to share and I hope this inspires you to use your voice to speak up about hyperhidrosis.

4

Professional with expertise in this field

Rating: 5

I absolutely love working with this organization! To see true care & compassion that is exerted from the physicians, to the organizers, to the staff working the seminars; it's truly amazing to watch everyone work together in effort to better these patients quality of life.

4

Professional with expertise in this field

Rating: 5

Each year I get the opportunity to participate at IHHS seminars where I interact closely with hyperhidrosis patients. It is truly a rewarding experience each and every time I get to see patients leaving with smiles on their faces after they've received their treatments. I look forward to these seminars every year and working alongside this wonderful organization to help others with excessive sweating!

3

Professional with expertise in this field

Rating: 5

Over the past several years I have had the privilege to attend and assist at IHHS events. Earlier today I had an opportunity to reflect on my experience with a friend, who happens to also be a patient of the private practice I work in. As I was explaining the IHHS to him, my eyes filled with happy tears thinking of the patients who have had life changing experiences due to the wonderful care given by the IHHS.

Excessive sweating is real and with the help of the IHHS, quality of lives are changing! During each event, I learn something new through the patients testimonies. These are memories I carry with me during my journey of caring for patients on a daily basis.

Thank you IHHS for all you do!

4

Client Served

Rating: 5

The IHS has helped me immensely. All my life I've perspired profusely but didn't realize that it was an actual condition and that there were treatment options available. The IHS not only identified the problem, but has offered solutions in which to help. Through their online newsletters and notifications to their website, the organization offers solutions and advice on how to deal with my problem. They also schedule annual sessions for medical professionals who desire to become better educated on the topic of hyperhidrosis. I've had the opportunity to serve as a volunteer for several sessions and greatly benefited from the experience. It is my sincere hope that they are able to continue their work in the field of hyperhidrosis prevention. Kevin T.

5

General Member of the Public

Rating: 5

What a fantastic resource to see available for those of use suffering from Hyperhidrosis. It was such a challenging thing to deal with growing up, I wish I had this available to me as a child. Even after having ETS, it was good to read through some of the information to help me deal with the compensatory sweating. I also feel blessed that my side effects from the surgery were not as severe as many who have had it. People who do not suffer from Hyperhidrosis often give me funny looks when I say I had a surgery for my sweating. "That's a bit extreme, isn't it?" It really is something that only those who suffer from the condition can understand. This organization is getting the word out and also helping educate, comfort and walk along those who are experiencing it.

4

Professional with expertise in this field

Rating: 5

I'm an RN and I love the work I'm able to do with the International Hyperhidrosis Society. Sharing the latest information, backed up by studies published in medical journals, and helping people to find the effective treatments they need is very gratifying.

5

Client Served

Rating: 5

I participated at an International Hyperhidrosis Society seminar where I received free treatment for my underarm sweating. Truthfully, I was nervous as the seminar approached. But, the IHHS made the treatment process seamless and put all of my worries to rest. And, I'm happy to say that my sweating stopped a few short weeks after being treated at the seminar. I hope to participate again so that I can get the same positive results. A heartfelt thank you to the IHHS for making me feel comfortable at their seminar and for making me experience dry like I've never known. What a life-changing experience!

6

Client Served

Rating: 5

The International Hyperhidrosis Society not only educates and trains physicians but provide support and education to patients and the general public about excessive sweating. The director, medical professionals and staff of IHHS are all very knowledgeable, accessible, and compassionate. They stay abreast of new products, and treatments and always share both the negative and positive articles, reviews, and interviews regarding hyperhidrosis. IHHS also allows for patients to participate in different treatment options through surveys, research studies, clinics, and demonstrations. Interacting with IHHS is always a pleasure and a relief because everyone is always so informative, courteous, and helpful.

Previous Stories
5

Client Served

Rating: 4

Hyperhidrosis is condition that can affect someone's life profoundly, both physically and emotionally. The International Hyperhidrosis Society is an organization that not only provides education, but also hope and hopefully widespread understanding of this condition.

Comments ( 1 )

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XSsweat 01/13/2014

Thank you for your excellent suggestion! I agree and will work to develop and promote our volunteer and involvement opportunities. Here's to a grand 2014!!

5

Client Served

Rating: 5

I am a Junior High School Nurse and recently received some free products. In talking to students about hygiene, it has been useful to be able to give out deodorant samples with instruction in taking proper care of their bodies. It also "softens the blow" while telling them "how NOT to stink"! I hung up two posters outside of my office and the students have gotten a real kick out of them, especially the "I am sweaty all day long..." poster. While waiting their turn to see me, I often catch them reading the poster out loud and they then come in to see me with a smile on their face declaring, "I have hyperhidrosis!" Thank you for helping to educate my students (and adults) in a fun and friendly manner.

7

General Member of the Public

Rating: 5

Growing up and sweating a lot just seemed like a quirky issue one had to deal with...until I came across the fact that this condition had a name "Hyperhidrosis" and there were medical professionals and organizations working to treat and educate those with hyperhidrosis. The IHS is a great organization that strives to help and direct towards treatment as well as share best practices. Thank you.

4

Client Served

Rating: 5

I have been a patient during a clinic they have had in Atlanta and I couldnt ask for a better experience. I would give anything to be able to participate again!

3

Volunteer

Rating: 4

From being so young and sweating all the time I never really paid it no mind because I was just young and thought whatever, but as I got older and people started to make fun of me I knew I was different from everyone else in my school and at home. I feel so blessed to have been able to participate in this experience and really hope their will be a cure for it soon anyone that has this problem its not fun and its just a good thing to know it is certain things you can do to deal with sweating .. thank you to emory and everyone else that was apart such wonderful and amazing people

3

Client Served

Rating: 5

This is a wonderful organization that gives support to patients and families with Hyperhidrosis. We never knew what condition my daughter had until we found this organization. They have helped us with products, treatments, referrals, and support. We wish we'd found them years ago! I only wish they were more well known because there are countless other people who could benefit from contact with the organization.

2 LaDonna F.

Volunteer

Rating: 5

I am not sweating! I just can not believe it! Every time I do things that I normally would sweat from, I'm sure to point out that I'm not sweating to everyone that knows me.

IHS is an amazing organization working on research and medical solutions for a very little known medical condition. I am so glad that I have got connected with IHS. They are continually providing information on the condition and helping us find ways to deal with it.

I will stay involved with IHS for the rest of my life!

1

Client Served

Rating: 5

I've suffered from night sweats my entire life. It wasn't until after ending my collegiate soccer career that my doctor realized that I was suffering from hyperhidrosis (when all my hormones calmed down and my metabolism slowed). My doctor recommended looking up what other people were doing online; that's when I found IHHS. They were wonderful and a wealth of knowledge! Very grateful for this organization!

Previous Stories
4

Donor

Rating: 5

I have had the privelege of being involved with IHHS for 2 years now and they continue to prove to be dedicated not only to their patients/consumers, but also to the products affiliated with their organization who are dedicated to helping others who suffer from hyperhidrosis. I am so proud to be affiliated with such a great group who continues to help people just like me! Thanks to IHHS, I can honestly say that I sweat happy and sleep wicked!