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2010 Top-Rated Nonprofit

International Association for Hospice and Palliative Care Inc

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Nonprofit Overview

Causes: Health, Health Care

Mission: Millions of patients around the world are diagnosed with life threatening conditions or advanced stages of diseases such as cancer. The vast majority of them do not have access to care, including pain relief. The mission of IAHPC is to collaborate and work to improve the quality of life of patients with advanced life-threatening conditions and their families, by advancing hospice and palliative care programs, education, research, and favorable policies around the world.We achieve this by:*Facilitating and providing palliative care education and training opportunities for care providers *Acting as an information resource for professionals, health care providers and policy makers *Developing collaborative strategies for hospice and palliative care providers, organizations, institutions and individuals

Results: Through our website we provide a lot of support and information to help those who are starting to develop hospices and palliative care programs, enabling them with the tools and information they need.

Target demographics: advance hospice and palliative care for patients and their families

Direct beneficiaries per year: hundreds of hospice and palliative care workers around the world: 48 workers from 19 countries received scholarships to attend seminars and training sessions; other 60 participated in workshops in Managua on pain treatment, over 80 participated in workshops to develop palliative care curricula for undergraduate medical students in Colombia, provided support and guidance to countries in Africa, Latin America and Eastern Europe, and much more!

Geographic areas served: Throughout the world

Programs: scholarships to hospice and palliative care workers, workshops with physicians and government representatives to improve access to treatment and care, developing awareness campaigns to improve policies and programs so that patients with life limiting illnesses receive the care they need.

Community Stories

76 Stories from Volunteers, Donors & Supporters

6

Professional with expertise in this field

Rating: 4

This is a wonderful organisation helping people in every nook and corner through their activities and publications. Through their news letters, people like us get to know what is happening in other parts in the field in palliative medicine. Through their travelling grants and scholarships, they help people from developing and under developed countries attend conferences, workshops and courses in palliative medicine. We get to know of books and other publications in this field from the communications send to us.

5

Professional with expertise in this field

Rating: 3

I have been providing home palliative care services in my country which is poor with respect to the needed resources. In many ways therefore we have had to be ingenious in finding solutions to the challenges. It is helpful to share the experience and knowledge on how others helped those who suffer and are dying. In this light IAHPC have been very helpful by providing the links to relevant organizations, educational materials and magazines. This is of a great value especially for the resource poor countries with limited resources for subscription.

6

Professional with expertise in this field

Rating: 5

Excellent organization which focuses on education and sharing of palliative medicine throughout the world to palliative professionals. This organization enables professionals to attend important meetings and to spend time with a palliative organizations in other countries to facilitate learning and growth of palliative programs throughout the world.

10

Professional with expertise in this field

Rating: 5

The IAHPC, give the oportunity, to received a educacion in palliative care, with the gol to starts the first service of palliative cara in my country. They give me the tools, the educacion and the suport. They send me to San Diego Hospice for learning the meaning of real palliative care.

9

Professional with expertise in this field

Rating: 5

The IAHPC is a real bridge among different countries and cultures trying to reduce suffering from threatening illness. It is not possible to imagine the amount of work done by this association helping professionals to improve their knowledge on palliative care. IAHPC it is not only interesting in doctors but nurses, social workers, psychologist and health providers. Only with this real multidisciplinary approach live will change for many people at the end of life

10

Professional with expertise in this field

Rating: 5

To share the experience and knowledge how to help those who suffer and are dying is a vocation of almost apostolic dimensions. Now IAHPC are doing even more bringing the latest palliative medicine knowledge amongst medical community by providing open access to one of the most valuable scientific magazines. This is of a great value especially for the resource poor countries with limited resources for subscription.

13

Professional with expertise in this field

Rating: 5

The IAHPC Traveling Scholarship Program was started in 1999 and is designed to provide support to palliative care workers from developing countries who wish to attend a meeting, conference, seminar, internship or any other educational activity. IAHPC has supported Traveling Scholars from many developing countries in Africa, Asia, South Pacific, South East Asia, Latin America and Eastern Europe. To read the names of the grantees of this program, click here. Through the Traveling Scholarship Program, IAHPC is making a significant difference to the progress of palliative care in the developing world. The organization gratefully acknowledges the generous financial support of our sponsors and donors who make this program possible. This is an ongoing program and applications are accepted throughout the year. However, for certain events, IAHPC may set deadlines in order to be able to review and complete the process before the event starts. I have been involved in palliative care since 2002. We were the pioneers in the field in our region with the opulation of 3300000 and information and skills obtaining was and is of vital importance for specialists and palliative care advocates. The IAHPC supported my attendance the EAPC Congress which was held in Vienna in 2009 and the EAPC Research Congress in Glasgow in 2010. It was important to attedn the Congresses because I share the Congressws' information with Russian speaking specialists.

13

Professional with expertise in this field

Rating: 5

The International Association for Hospices and Palliative Care has helped and contributed for the development of Palliative Care around the World. Give finantial support to physicians,nurses, physicologist and diferent health profesionals to participate in educational courses in the country and in other countries. Give finantial support to attend to International Congresses They have a web page with information related with palliative care very useful for people around the world, but I sepcially mention Latinamerica, Argentina, where we have limited access to journals.

12

Donor

Rating: 5

For many years I've been following the dedication and restless work of the small group of people leading and supporting this association. Because of the lack of consciousness of what palliative care really is, the mission of this association is extremely difficult. There is a huge amount of money and resources invested searching for a cure for life-threatening diseases, but every year millions of people face the disheartening reality of only some weeks of months of life left. Providing these people a minimal quality of life and some relief for the physical and psychological pain, makes all the difference for them and for their families. Unfortunately, the attention paid and the resources invested in this area, specially in undeveloped countries, are almost nonexistent. This is what IAHPC is trying to change.

12

Professional with expertise in this field

Rating: 5

In the past, I studied to become pediatric intensive care physician. The main purpose of that decision was to fight against dead. Why? Well, with our husband we had two preemies baby in different pregnancies. It was to hard to believed that we can control everything but death. After I finished the felloship when I started to work in pediatric intensive care at the social security hospital. During that time, parents taught me different answers I wasn't expected to learn. It was their way to handle lost, death, their fear and so on. I learned too much and I decided to start a planning step to organize pediatric palliative care for an oncology pediatric hospital. After two years of working hard in this they accepted the propossal and I started to work full time in palliative care since august, 2005. This institution have a great philosophy in the attention of onchologic patients but not other part of the country. So I decided to volunteer in: I volunteer as physician helping in the organization of a hospice por pediatric pallive patients in Guatemala city. Everytime we summit a plan for maintenence of a hospice all say that they give money for health not for hospice. And we continue with this dream. This is a foundation different from the hospital that I work. I volunteer giving conferences to an Association for Palliative Care Patients (Adults) in Guatemala. And also in counceling about the organization of their institution. I volunteer giving lectures in Bioethic, specially related with end of life dilemas to a public University named San Carlos de Guatemala. I volunteer giving my opinion in the redaction of a preliminary law in palliative care for Guatemala hoping that someday we will have a law in palliative care. I've been preparing as volunteer, in the education of the personal who will be enrolled in the hospice in the future. Sometimes I advice people at the end of life care in decision making process. We are working in a Bioethical comittes for UNOP.

11

Professional with expertise in this field

Rating: 5

Over the course of several years I have used the assistance if the IAHPC to help determine whether dying patients who wish to go back to their native countries can received hospice and/or palliative care services there, and how to make referrals to the agencies in their native country. They are prompt and accurate in the information they give and represent an extremely important area of clinical practice. They also give scholarships to persons to go to other countries to teach palliative care.

10

Professional with expertise in this field

Rating: 4

International Association for Hospice and Palliative Care is a gift to the global healthcare community. They are extremely effective at connecting those in need of resources with those that have resources. As an organization they are aware of each countries public policy on death and dying, and pull together resources to advocate for change when needed. They maintain a well informed website that is continuously updated with worldwide provider lists, directories, resources, and educational materials. When funding is available, IAHPC will provide traveling scholarships for those healthcare professionals wanting to expand there education through conferences and educational materials that might not otherwise be able to afford it. They have earned and deserve support from those that can.

9

General Member of the Public

Rating: 5

While searching for hospice and palliative care information I found the IAHPC website. It has lots of very useful information and resources.

6

Professional with expertise in this field

Rating: 5

The International Association for Hospices and Palliative Care has helped in Latinamerica and in my case in Colombia with the strengthening of Palliative Care. They have: 1. Support Workshops with The Ministry of Health and regulators to improve opioid availability, 2. Give finantial support to physicians,nurses, physicologist and diferent health profesionals to participate in educational courses in the country and in other countries. 3. Give finantial support to attend to International Congress where I adquired tools for my professional practice 4. They have a web page with information related with pallaitive care very useful for people in our country 5. Support for our work trying to improve laws and regulations in our country.

5

Professional with expertise in this field

Rating: 5

I have been involved in palliative care for more than 20 years. During this time the challenges facing health professionals have grown in complexity and in scale. For those of us working in less developed countries, in addition to advanced cancer, end stage organ failure and progressive neurological diseases, we are now faced with HIV/AIDS and XDR TB. I have been inspired by the capacity of colleagues in the various national and international associations of hospice and palliative care to rise to these challenges. I have had the privilege of working with these colleagues in research, writing textbooks on palliative care, and more recently, participating in leadership training for physicians involved in palliative care. Without organisations such as IAHPC, we would have struggled to cope and may have given up trying to find ways to meet these challenges. I read the newsletter and review articles from IAHPC regularly every month. There is always something to learn from each edition. Many of the international associations in health care are inclined to focus on the needs and interests of North America and Europe. IAHPC is truly international in its activities and emphasis.

6

General Member of the Public

Rating: 5

Website and e-mail alerts are very efficient in educating audience about issues of pain care and palliative care. Their special expertise is bringing an international focus to the subject. My understanding and viewpoint has been enhanced and broadened due to their efforts.

6

Professional with expertise in this field

Rating: 5

I am Colombian researcher living in Germany and England. In my interest in supporting the research in palliative care in Latin-American I contacted the International Association for Hospice and Palliative Care (IAHPC) and the Latin American Palliative Care Association (ALCP) in January 2010. I obtained a traveling scholarship in order to visit the V Congress of the Latin American Palliative Care Association (ALCP) in the beautiful city of Buenos Aires/Argentina. The aim of this meeting was building up a network of researchers in Latin America in order to promote research activities as well as the publication of studies in this continent. At the congress I have met hundreds of people from different countries in Latin America, but also from Europe, Canada and USA, who are interested in this region. The participation in the congress allowed me to have a better view in the situation of the research -and researchers- in Latin-America and to link with some research groups, with who I am planning new research projects and thinking about the best way to expand research in the continent. I hope that it was the start of a successful work together, aimed to improve the research in Latin America. Thanks to the IAHPC for this opportunity!

6

Volunteer

Rating: 4

IAHPC is a patient- and caregivers- oriented organization with restricted resources. It is maintaining a very reliable website - Hospicecare.com, where one can get complete information on palliative care. You can download free materials, books; get news; and much more.

5

Professional with expertise in this field

Rating: 5

IAHPC has had a very significant impact in promoting palliative care worldwide, in particular in South America, and in providing very useful material and concrete support to help professionals working in disadvantaged environment to have access to intenational cooperation and to the palliative care scientific community. IAHPC has interpreted this role with great respect for the role of professionals and non-professional associations empowering leaders within its organization who are internationally recognized and respected.

9

Professional with expertise in this field

Rating: 5

I would like to express my positive opinion about IAHPC organization as a leader organization allover the world in the field of palliative care development and education. I wish them very best in their dedicated work for the terminally ill patients and for the development of these services around the world.