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International Association for Hospice and Palliative Care Inc

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Nonprofit Overview

Causes: Health, Health Care

Mission: Millions of patients around the world are diagnosed with life threatening conditions or advanced stages of diseases such as cancer. The vast majority of them do not have access to care, including pain relief. The mission of IAHPC is to collaborate and work to improve the quality of life of patients with advanced life-threatening conditions and their families, by advancing hospice and palliative care programs, education, research, and favorable policies around the world.We achieve this by:*Facilitating and providing palliative care education and training opportunities for care providers *Acting as an information resource for professionals, health care providers and policy makers *Developing collaborative strategies for hospice and palliative care providers, organizations, institutions and individuals

Results: Through our website we provide a lot of support and information to help those who are starting to develop hospices and palliative care programs, enabling them with the tools and information they need.

Target demographics: advance hospice and palliative care for patients and their families

Direct beneficiaries per year: hundreds of hospice and palliative care workers around the world: 48 workers from 19 countries received scholarships to attend seminars and training sessions; other 60 participated in workshops in Managua on pain treatment, over 80 participated in workshops to develop palliative care curricula for undergraduate medical students in Colombia, provided support and guidance to countries in Africa, Latin America and Eastern Europe, and much more!

Geographic areas served: Throughout the world

Programs: scholarships to hospice and palliative care workers, workshops with physicians and government representatives to improve access to treatment and care, developing awareness campaigns to improve policies and programs so that patients with life limiting illnesses receive the care they need.

Community Stories

84 Stories from Volunteers, Donors & Supporters

4

General Member of the Public

Rating: 5

This organization helped me greatly by helping me find a hospice provider for my mother in another country. They were very friendly and efficient and responded to my needs with care and compassion.

4

Board Member

Rating: 5

Many things make the IAHPC unique. It is a small organistion with a tremendous worldwide impact, somehow achieving so much on a shoestring income.It has contributed to the development of more than 8200 hospice / palliative care services worldwide, and on its modest website experienced professionals and the newest volunteers can find the information they need to start, maintain and then excel in this essential ministry, restoring dingity for the dying, and hope for all sufferers.

7

Professional with expertise in this field

Rating: 4

The website of IAHPC is very complete and has a lot of useful information about Palliative Care, I recommend it!

8

Professional with expertise in this field

Rating: 5

IAHPC is truely value international collaboration in field of palliative care. They provide such great opportunity for study aboard scholarship, participation in delphi consensus and regular upgrade member's benefit. They make me, a Thai doctor who lack of palliative care training background, to committ in palliative care field.

9

Professional with expertise in this field

Rating: 5

IAHPC has been an extremely valuable resource in my work both as a hospice nurse and as a clinical instructor. IAHPC provides me consistently with the best information on research-based hospice/palliative care interventions and recommended treatment. IAHPC also has provided me with the majority of information I need to train my nursing students in providing care to the hospice patient. Thanks IAHPC!

8

General Member of the Public

Rating: 4

I am regularly getting the IAHPC's monthly Newsletter, with reviews, Advice etc which greatly benefits & encourages me, to continue my efforts in reaching out to the Terminally ill patients, counselling, encouraging and praying for them. May the Loving Lord bless this IAHPC's work more & more for the Love of God to be felt by one and all.

6

Professional with expertise in this field

Rating: 5

It was not easy to transfer and tanscribe my Australian training and experience into reality in a poor rescource limited setting in India. As I was bewildered not knowing "How to go about", IAHPC "Getting started guidelines" were really helpful. It was like somebody has switched on the light at the end of the tunnel. With the help of these guidelines, I could start introducing palliative care to doctors, community and media, was able to set up a palliative care unit, determine staffing and infrastructure, start community palliative care and we are planning to have our own hospice. As I write this review my shoes and ends of my trousers are red with water mixed soil. I just came from the funeral of my first palliative care patient. My greatest reward is we could provide palliative care to a woman in such rural and remote setting with absolutely no resources. If this could happen IAHPC has a great role. It may not be a direct involvement in the form of an aid but thier untiring efforts in the form of providing web based resources to all of us here goes a long way in providing palliative care at an "international" level. The "association" may not be direct but we have a true bonding with IAHPC.With the help of IAHPC we will strive to improve standards and quality of care provision. I wish IAHPC all the best. May God bless everyone who spend all thier time and energy in this noble "God like work".

6

General Member of the Public

Rating: 5

This organization helps hospice and palliative care all over the world. They try to help the people who need it the most in under developed countries. please donate to this cause their funds are very well distributed.

6

Professional with expertise in this field

Rating: 4

This is a wonderful organisation helping people in every nook and corner through their activities and publications. Through their news letters, people like us get to know what is happening in other parts in the field in palliative medicine. Through their travelling grants and scholarships, they help people from developing and under developed countries attend conferences, workshops and courses in palliative medicine. We get to know of books and other publications in this field from the communications send to us.

5

Professional with expertise in this field

Rating: 3

I have been providing home palliative care services in my country which is poor with respect to the needed resources. In many ways therefore we have had to be ingenious in finding solutions to the challenges. It is helpful to share the experience and knowledge on how others helped those who suffer and are dying. In this light IAHPC have been very helpful by providing the links to relevant organizations, educational materials and magazines. This is of a great value especially for the resource poor countries with limited resources for subscription.

6

Professional with expertise in this field

Rating: 5

Excellent organization which focuses on education and sharing of palliative medicine throughout the world to palliative professionals. This organization enables professionals to attend important meetings and to spend time with a palliative organizations in other countries to facilitate learning and growth of palliative programs throughout the world.

10

Professional with expertise in this field

Rating: 5

The IAHPC, give the oportunity, to received a educacion in palliative care, with the gol to starts the first service of palliative cara in my country. They give me the tools, the educacion and the suport. They send me to San Diego Hospice for learning the meaning of real palliative care.

9

Professional with expertise in this field

Rating: 5

The IAHPC is a real bridge among different countries and cultures trying to reduce suffering from threatening illness. It is not possible to imagine the amount of work done by this association helping professionals to improve their knowledge on palliative care. IAHPC it is not only interesting in doctors but nurses, social workers, psychologist and health providers. Only with this real multidisciplinary approach live will change for many people at the end of life

10

Professional with expertise in this field

Rating: 5

To share the experience and knowledge how to help those who suffer and are dying is a vocation of almost apostolic dimensions. Now IAHPC are doing even more bringing the latest palliative medicine knowledge amongst medical community by providing open access to one of the most valuable scientific magazines. This is of a great value especially for the resource poor countries with limited resources for subscription.

13

Professional with expertise in this field

Rating: 5

The IAHPC Traveling Scholarship Program was started in 1999 and is designed to provide support to palliative care workers from developing countries who wish to attend a meeting, conference, seminar, internship or any other educational activity. IAHPC has supported Traveling Scholars from many developing countries in Africa, Asia, South Pacific, South East Asia, Latin America and Eastern Europe. To read the names of the grantees of this program, click here. Through the Traveling Scholarship Program, IAHPC is making a significant difference to the progress of palliative care in the developing world. The organization gratefully acknowledges the generous financial support of our sponsors and donors who make this program possible. This is an ongoing program and applications are accepted throughout the year. However, for certain events, IAHPC may set deadlines in order to be able to review and complete the process before the event starts. I have been involved in palliative care since 2002. We were the pioneers in the field in our region with the opulation of 3300000 and information and skills obtaining was and is of vital importance for specialists and palliative care advocates. The IAHPC supported my attendance the EAPC Congress which was held in Vienna in 2009 and the EAPC Research Congress in Glasgow in 2010. It was important to attedn the Congresses because I share the Congressws' information with Russian speaking specialists.

13

Professional with expertise in this field

Rating: 5

The International Association for Hospices and Palliative Care has helped and contributed for the development of Palliative Care around the World. Give finantial support to physicians,nurses, physicologist and diferent health profesionals to participate in educational courses in the country and in other countries. Give finantial support to attend to International Congresses They have a web page with information related with palliative care very useful for people around the world, but I sepcially mention Latinamerica, Argentina, where we have limited access to journals.

12

Donor

Rating: 5

For many years I've been following the dedication and restless work of the small group of people leading and supporting this association. Because of the lack of consciousness of what palliative care really is, the mission of this association is extremely difficult. There is a huge amount of money and resources invested searching for a cure for life-threatening diseases, but every year millions of people face the disheartening reality of only some weeks of months of life left. Providing these people a minimal quality of life and some relief for the physical and psychological pain, makes all the difference for them and for their families. Unfortunately, the attention paid and the resources invested in this area, specially in undeveloped countries, are almost nonexistent. This is what IAHPC is trying to change.

12

Professional with expertise in this field

Rating: 5

In the past, I studied to become pediatric intensive care physician. The main purpose of that decision was to fight against dead. Why? Well, with our husband we had two preemies baby in different pregnancies. It was to hard to believed that we can control everything but death. After I finished the felloship when I started to work in pediatric intensive care at the social security hospital. During that time, parents taught me different answers I wasn't expected to learn. It was their way to handle lost, death, their fear and so on. I learned too much and I decided to start a planning step to organize pediatric palliative care for an oncology pediatric hospital. After two years of working hard in this they accepted the propossal and I started to work full time in palliative care since august, 2005. This institution have a great philosophy in the attention of onchologic patients but not other part of the country. So I decided to volunteer in: I volunteer as physician helping in the organization of a hospice por pediatric pallive patients in Guatemala city. Everytime we summit a plan for maintenence of a hospice all say that they give money for health not for hospice. And we continue with this dream. This is a foundation different from the hospital that I work. I volunteer giving conferences to an Association for Palliative Care Patients (Adults) in Guatemala. And also in counceling about the organization of their institution. I volunteer giving lectures in Bioethic, specially related with end of life dilemas to a public University named San Carlos de Guatemala. I volunteer giving my opinion in the redaction of a preliminary law in palliative care for Guatemala hoping that someday we will have a law in palliative care. I've been preparing as volunteer, in the education of the personal who will be enrolled in the hospice in the future. Sometimes I advice people at the end of life care in decision making process. We are working in a Bioethical comittes for UNOP.

11

Professional with expertise in this field

Rating: 5

Over the course of several years I have used the assistance if the IAHPC to help determine whether dying patients who wish to go back to their native countries can received hospice and/or palliative care services there, and how to make referrals to the agencies in their native country. They are prompt and accurate in the information they give and represent an extremely important area of clinical practice. They also give scholarships to persons to go to other countries to teach palliative care.

10

Professional with expertise in this field

Rating: 4

International Association for Hospice and Palliative Care is a gift to the global healthcare community. They are extremely effective at connecting those in need of resources with those that have resources. As an organization they are aware of each countries public policy on death and dying, and pull together resources to advocate for change when needed. They maintain a well informed website that is continuously updated with worldwide provider lists, directories, resources, and educational materials. When funding is available, IAHPC will provide traveling scholarships for those healthcare professionals wanting to expand there education through conferences and educational materials that might not otherwise be able to afford it. They have earned and deserve support from those that can.