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International Association for Hospice and Palliative Care Inc

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Nonprofit Overview

Causes: Health, Health Care

Mission: Millions of patients around the world are diagnosed with life threatening conditions or advanced stages of diseases such as cancer. The vast majority of them do not have access to care, including pain relief. The mission of IAHPC is to collaborate and work to improve the quality of life of patients with advanced life-threatening conditions and their families, by advancing hospice and palliative care programs, education, research, and favorable policies around the world.We achieve this by:*Facilitating and providing palliative care education and training opportunities for care providers *Acting as an information resource for professionals, health care providers and policy makers *Developing collaborative strategies for hospice and palliative care providers, organizations, institutions and individuals

Results: Through our website we provide a lot of support and information to help those who are starting to develop hospices and palliative care programs, enabling them with the tools and information they need.

Target demographics: advance hospice and palliative care for patients and their families

Direct beneficiaries per year: hundreds of hospice and palliative care workers around the world: 48 workers from 19 countries received scholarships to attend seminars and training sessions; other 60 participated in workshops in Managua on pain treatment, over 80 participated in workshops to develop palliative care curricula for undergraduate medical students in Colombia, provided support and guidance to countries in Africa, Latin America and Eastern Europe, and much more!

Geographic areas served: Throughout the world

Programs: scholarships to hospice and palliative care workers, workshops with physicians and government representatives to improve access to treatment and care, developing awareness campaigns to improve policies and programs so that patients with life limiting illnesses receive the care they need.

Community Stories

84 Stories from Volunteers, Donors & Supporters

2

Professional with expertise in this field

Rating: 5

This year IAHPC sponsored a conference in Barbados that was for invited guests of 11 Caribbean countries. It sought to have us understand the barriers to opioid availability in our countries and develop SMART action plans. Opioid availability is important for patients with severe chronic pain and is the gold standard.

The conference was well organized, filled with knowledgeable speakers and kept us interested throughout. The shared experiences were invaluable and the mentorship provided was key to rounding off this great venture.

It was a pleasure to have attended this conference. IAHPC did a great job.

3

Professional with expertise in this field

Rating: 5

IAHPC plays a huge part in promoting clinicians resilience through sponsoring attendance at relevant conferences. I am Head of Counselling and Support Services at Island Hospice in Zimbabwe. Research we conducted into Resilience in our field of work a few years ago showed that - Resilience is boosted by networking with colleagues in the field, and ongoing education to increase both competence and confidence. Thank you IAHPC for sponsoring my attendance and presentations at the APCA conference August 2016.This conference was energizing and reaffirming in meeting so many diverse yet connected specialists in the field of palliative care.

2

Professional with expertise in this field

Rating: 3

I am a doctor in Zimbabwe, and I got to know about IAHPC when I was looking for sponsorship to do a diploma in Palliative medicine with University of Cape town. I joined IAHPC and was given a travel scholarship to attend the second contact week at UCT in June this year. I am very grateful for the work done by IAHPC in trying to promote hospice and palliative care throughout especially the support given to developing countries. I believe that by empowering as many health workers as possible in in palliative care in our setting even with limited resources we can go far in providing quality of life to patients with life threatening and life limiting conditions. I am currently working at a cancer centre and together with my team try to provide a holistic approach in our care of the patients. I hope that IAHPC continues to get the much needed support in-order to continue with this worthy cause.

3 सिंघई

Client Served

Rating: 5

I got a chance to visit my first ever International research meet. Thanks to IAHPC Travel grant, which supported my visit and registration in conference. The whole process from application for grant to receiving of grant was very smooth and transparent. Attendance at this conference helped me making new contacts in Palliative care, awareness with research ideas of western world. I would definitely thank IAHPC for this.

2

Client Served

Rating: 5

When my husband was diagnosed with lung cancer, we were told by the medical staff that he was incurable and could not offer any treatment and referred him to hospicecare. We were devastated and thought this was denying him care. I found IAHPC through the web, called and talked to a staff member who listened to me, clarified what hospice care is, gave us information about hospices in my area and provided ongoing support. It seem very little, but it meant the world to us.

2

Professional with expertise in this field

Rating: 5

I cannot imagine that there is a nonprofit anywhere in the world whose work is more important than that of the International Association for Hospice and Palliative Care (IAHPC). Under the ingenious, tireless leadership of Liliana de Lima, IAHPC is reponsible for bringing pain relief and comfort to dying patients in developing countries around the world. The IAHPC is the leading organization in the world promoting palliative care in poor countries. They have made it possible for countless clinicians from poor countries to gain the knowledge and skill necessary to treat distressing symptoms in dying patients. In addition, the IAHPC organized and implemented a rigorous project that resulted in a list of essential medicines for palliative care that has set the standard for palliative care around the world. IAHPC also published the first and still the most important handbook on palliative care for the poor. Finally, the IAHPC website is the single best source of palliative care training materials, guidelines, and other documents in the world. Without the IAHPC, the field of palliative medicine would not be nearly as advanced as it is, and tens of thousands of poor people with life-threatening illnesses would not have had their suffering relieved. I strongly recommend the IAHPC for prestigious health award.

1

Professional with expertise in this field

Rating: 5

I was invited by IAHPC to participate in a process to develop a list of Essential Medicines in Palliative Care. The resulting list includes all those medications that are needed to treat the most common symptoms in patients with life limiting conditions and diseases. I was able to participate in an online survey and then in a face to face meeting organized by IAHPC where the List of Essential Medicines was finalized and approved. This list has served me and my country well: it was used as the model to develop the medicines policies for the national palliative care program.

1 FrankDFerris

Board Member

Rating: 5

IAHPC is a key partner in the international advocacy and education process to build global palliative care capacity. As a participant in this process, I have found the services offered by IAHPC, partcularly the International Travel Scholarships to be invaluable to bring members together; the resouces at the IAHPC website to be easily accessible and very useful to many of the people I am working with; and now the access to palliative care journals to be a key resouces, as physicians and nurses in most countries do not have easy access to literature or educational resources.I hope IAHPC will dramatically increase its reach and membership in the coming year.

1

General Member of the Public

Rating: 4

I am originally from Eastern Europe and when I saw how IAHPC was supporting nurses and doctors from Russia I decided to donate. I am not a health care professional but I enjoy reading their newsletter and learning about their efforts in many countries of the world.

10

Professional with expertise in this field

Rating: 4

When I returned to my native Jamaica in 2002, after spending 12 years in the UK, working in Oncology and Palliative Medicine, I found that I was pretty much alone in promoting palliative care in Jamaica at the time. I then discovered the IAHPC which seemed to represent the "little people". This organization provides support, information, education and scholarships for health professionals principally from the developing world. I was a lucky recipient of such a scholarship in November last year when the award enabled me to attend an important educational meeting in Houston. The IAHPC is a champion for those of us in the developing world trying to advance hospice and palliative care in challenging circumstances.

5

Professional with expertise in this field

Rating: 5

We started with the Palliative Care Program 5 years ago, when nobody in our Institution had heart about Palliative Care before. At the beginning we hadn´t patients and therefore it was really difficult to get financial resources to support the Program, and at that moment the International Association of Hospice and Palliative Care (IAHPC) played a key role giving as the possibility to receive 3 years of financial support as a Faculty Development Program. At the beginning we were only one physician and one psychologist. Today we are four physicians, three nurses and two psychologist, and we work together with kinesiologist, members of the pastoral and of the psyquiatry department. But IAHPC is not only a source of funding, it’s also a great source of inspiration and education for all the professionals who are working in the palliative care field around the world. Personally, the opportunity to have been supported to attend international palliative care meetings and to know Liliana de Lima and Eduardo Bruera, was fundamental to believe in the spirit of Palliative Care represented by the IAHPC, a discipline which work to improve the quality of life of patients with advanced life-threatening conditions and their families. In our world it’s not easy to find Institution really moved by such altruistic motivations.

4

Professional with expertise in this field

Rating: 5

IAHPC is a very important organization to provide knowledge and practical help of palliative care. I've received the journals from it, and the articles in them can tell me the progression on palliative care. It also give me some oppotunities to get the scholarship to go abroad to enter the meetings on pallaiative care.

5

Board Member

Rating: 5

Like many others, I new IAHPC receiving the benefits it offers to the palliative care community - I used the word "benefit", but the right word is "opportunity": IAHPC gave many people - including me - the opportunity to take a look at the modern world of palliative care. I had the opportunity to become a board member, to know the institution from the inside and to participate in some of its projects. Currently it is the place where I join people willing to move forward - and this is my privilege.

4

Board Member

Rating: 5

I have been associated with IAHPC since early days of my career in palliative care. The organization has helped me in many ways to enhance my activities in the field. It is one of the best websites to access any information on palliative care. The newsletter is the highlight and I look forward to reading the each publication. I have also seen many of my other friends in developing countries getting hugely benefitted by various scholarships they offer and in that sense IAHPC is an organization which is truly global with an access to all.

5

Professional with expertise in this field

Rating: 4

I think IAHPC is a wonderful organisation which aims to spread the message of palliative care across the world. In this venture it helps the people to do courses in palliative care who otherwice will not be able to study becasue of the scarcity of resources. They have provided us with scholarships for doing palliative care courses in Trivandrum Institue of Palliative sciences. I know some people who has awarded with travelling scholarship by IAHPC which is very great. The IAHPC memebrs has taken keen interest to visit our organisation at Trivandrum,(Trivandrum Institute of Palliative sciences). I hope IAHPC will be able to more actively with supprot well wishers.

4

Volunteer

Rating: 4

IAHPC has been a great source of inspiration for all of us in Pallium India. The Executive Director Ms Liliana de Lima visited our clinic in Trivandrum and went to the villages with our home care team. She showed great appreciation of our work and made some very impressive presentations about palliative care to a large group of doctors and nurses

4

Professional with expertise in this field

Rating: 1

This is a wonderful organization helping people all over the world.Through their news,letters we get to know what is happening in other parts in the field of palliative medicine.Their travel grants and scholarships help people from low income and non developed countries attend the conferences and congresses in palliative medicine.

5

Board Member

Rating: 5

IHAPC is a very important organization to provide knowledge and practical help of palliative care throughout the world. Its bridges developing and delveloped world in a very important way. The membership structure and the way how IHAPC has membership fees reflects the philosophy. The homepage is a powerful tool to support many people around the world. Initiatives such as best practises for palliative care highlight also how IHAPC aims to make a difference at a very basic level at every patient throughout the world. Initiatives how to promote opioid availability in many many countries are of outmost importance. IHAPC has also the talent to liase with other organizsations with the main goal to make a difference. I am proud to be part of this organization and I am very impressed and thankful how it developed.

5

Board Member

Rating: 5

What qualifies an organization to be called truly international? A truly international organization cannot really ignore the needs of developing countries which form at least 75% of the World’s population. The International Association for Hospice and Palliative Care (IAHPC) stands out in the global health care scene due to its efforts to relieve pain and suffering in the developing world. I have the following specific points to make in support of the above statement: 1. It has a graded membership fee structure, by which a member from a resource poor country has to pay as little as 10 dollars a year, as against a member from an affluent country having to pay more than five times as much. 2. It has established traveling scholarship & fellowship programs as well as faculty development grants which all have helped the poor. 3. It has created several precious resources (like Essential Medicines List) which have helped people the world over.

4

Professional with expertise in this field

Rating: 5

Working with IAHPC for the past 10 years has been extremely rewarding. They are very good at their mission and I have found their efforts to be very fruitful. They put out an excellent monthly newsletter, and are targeted in their focus. Their staff are top notch, very responsive and conscientious. The Executive Director, Liliana De Lima, is a very well known professional around the globe. She is willing to assist in global efforts to improve opioid availability and patient access to pain medicines.