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2017 Top-Rated Nonprofit

ICAN, International Cancer Advocacy Network

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Nonprofit Overview

Causes: Cancer, Health, Philanthropy, Private Independent Foundations, Technology

Mission: ICAN provides Personalized Medicine Cancer Case Management Programs, through its customized patient advocacy services, to Stage IV patients who have been written off by their oncology teams. The organization specializes in complex and rare diagnoses, whether pediatric or adult cancers. ICAN, given years of experience with oncology issues and the anticancer drug pipeline, assists patients in the battle to extend life with high quality of life through physician referrals, cutting-edge information and advocacy services, clinical trials research, compassionate use analysis, molecular profiling services, and palliative care program services. ICAN has been profiled in Newsweek based on the still enduring complete remission of one of its breast cancer patients and in Pharmaceutical Executive Magazine (where ICAN was viewed as the exemplar of cancer patient advocacy--out of 5000 organizations to choose from). ICAN has also been featured in the Robert A. Nagourney, M.D.'s pivotal book "Outliving Cancer" and is featured in the upcoming biography of anticancer drug discoverer G. Robert Pettit, PhD (published in June 2015).

Results: When you are dealing with individual cancer patients and their specific cases, the metrics are extending time to progression and working toward disease-free survival. The question becomes "compared to what?" since no cancer patient is like any other cancer patient. The one metric that counts at ICAN is an overwhelming number of our patients, given the countless accolades we have received over the past 20 years, testify to ICAN's pivotal assistance in making a critical difference in life prolongation and quality of life issues. On the metric of "Was there a stone left unturned in the patient's journey with cancer?", our ICAN patients and their families resoundingly answer "No."

Target demographics: All ages, all socioeconomic backgrounds.

Direct beneficiaries per year: more than 1000 patient/spouse advocate/care partner/public inquiry cases at ICAN.

Geographic areas served: While we are headquartered in Phoenix, we work throughout Arizona; across the U.S. and all U.S. territories; 54 countries worldwide

Programs: Our Personalized Medicine Cancer Case Management Programs and our Cancer Patient Advocacy and Clinical Trials Advocacy Programs--as well as ICAN's more than one hundred Named Programs (named by families in memory of or in honor of a loved one in the battle)--may be found on our website at http://askican.org

Community Stories

177 Stories from Volunteers, Donors & Supporters

Shari B.

Client Served

Rating: 5

I was at work when I got the news - my breast cancer had returned to my spine and I was now Stage IV. The Doctors did not give much hope and told me only 16% survive past five years. My girlfriend volunteered at a Jewel of the Ball fundraising event ICAN was holding in 2006 and she decided to volunteer. Little did she know it would change my life.
ICAN called me the very next day at work and reassured me we were going to fight this and it was not gloom and doom. They immediately went into action and referred me to a doctor who helped save my life. I am now in remission over six years and although they won/'t use the word cure, I know I wouldn't be here today if it wasn't for this organization. They truly are the remission coaches of the cancer world and have my support and trust forever.

Client Served

Rating: 5

I reached out to ICAN earlier this year when my father was diagnosed with Stage IV Melanoma. Since we were new to the cancer world, we didn't have much knowledge about the cancer or what all of the treatment options out there meant to us. It was so very scary to us and how could we trust 1 doctor to make the right decisions for my father. I explained all the options we had in front of us to Marcia Horn and she right away eased all of our concerns and worries. We felt good about choosing a treatment plan appropriate for my father after speaking with her. She is extremely knowledgable and was able to provide so much information to us about the drugs, their side effects and effectiveness. She is truly dedicated and always has you in the back of her mind.

Client Served

Rating: 5

Hi I'm Jay C. 38 years old from Cavite, Philippines and I'm one of the lucky cancer (testicular cancer) patient who was readily been assisted by Ms. Marcia Horn. She is a jewel for us who has cancer. She helps us in all the steps to undertake to make us prepared for the challenges ahead. She also makes good advises and serves as my 2nd opinion that guides me well in my cancer treatment. I couldn't thank you more and we are lucky to have and know you.

Keep up the good work and God bless you always. More power!

1

Client Served

Rating: 5

As the parent of a cancer patient, our family is so grateful that there is an ICAN and a Marcia Horn. ICAN, thru the unbelievable efforts of Marcia Horn and her dedicated advisory board and volunteers, is there every step of the way to help when others say there is no hope.

They provide the gold standard for an organization! They are there to help, encourage and give one hope during your darkest days and nights.

We pray that ICAN and Marcia Horn flourish in the years to come and that the day will come that we will no longer need the services of this wonderful organization and it director and volunteers. I know she will cheer along with everyone who works so tirelessly to see that day come to fruition. WAY TO GO ICAN

6

Volunteer

Rating: 5

ICAN is an amazing organization. You have the benefit of working from home and having a great resource in Marcia Horn available to you. Marcia makes certain to provide assignments that are rewarding (based on your interests) and that will help develop your skills. It was my privilege to have volunteered with ICAN and I encourage others to do the same!

9

Volunteer

Rating: 5

In November of 2008, my wife was battling late stage cervical cancer. We were at MD Andersen in Houston being evaluated for a clinical trial when we receieve a referral to Marcia Horn, CEO of ICAN. The person providing the referral told us we could contact Marcia "at any time of the day or night." We were very concerned about our options given the stage of my wife's cancer. We had more questions than we had answers and time was not on our side. Marcia was an incredible savior helping us navigate the plethora of information available while guiding us to an oncologist with unique expertise. Over the final 5 month's of my wife's life, I must have had two dozen or more phone conversations with Marcia. It was not unusual when checking my emails first thing in the morning to have emails from Marcia that were written and sent at 3am. Where can you find such dedication and advocacy? Sadly, my wife lost her battle April 2009. Of my many wishes, I wished we would have been referred to ICAN a year or two earlier. Maybe, just maybe I would still be married to the woman of my dreams.

8

Volunteer

Rating: 5

Since retiring, I have chosen to give back by helping non-profits upgrade their web presence. I started working with ICAN in March of 2009, and I have spent more time with ICAN than any other of the non-profits I work with. This is not because they are difficult to work with -- far from it! Marcia Horn and her cadre of dedicated staff are friendly and appreciative of the volunteer help they get. I spend the time I do with ICAN because of the unique work that they do. There is no other cancer-related organization that does what ICAN does, and I can think of no other organization as worthy of the time I can give them.

8

Volunteer

Rating: 5

Marcia Horn is the expert when you don't know where to go. She knows all the best oncologists and surgeons and is up to date on the latest trials. Her services are needed as she will be the one to help find a cure for this horrific disease.

8

Client Served

Rating: 5

Marcia Horn could not be more helpful with resources and help than anything. I was referred to this organization from another client that knows my sister and am very thankful. I email Marcia every time I need assistance and receive a reply within 2-12 hours each time, which is comforting. I appreciate their assistance each and every time as I know they are very strapped for cash and help. Thanks for allowing me to review International Cancer Advocacy Network and give them 5 stars. Beth Howison bahowison@sbcglobal.net