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Nonprofit Overview

Causes: Birth Defects & Genetic Diseases Research, Health, Health Care

Mission: The Huntington’s Disease Society of America is the largest 501(c)(3) non-profit volunteer organization dedicated to improving the lives of everyone affected by Huntington’s Disease. The Society works tirelessly to provide the family services, education, advocacy and research to provide help for today, hope for tomorrow to the more than 30,000 people diagnosed with HD and the 200,000 at-risk in the United States.

Target demographics: everyone affected by HD and their families.

Geographic areas served: all of the United Stated

Programs: Research - supplies research as advised by its medical & scientific affairs committee. The research projects are involved in finding cures and treatments for huntington's disease.

patient and family services - provides counseling and referral services to patients with huntington's disease and their families.

chapter development - provides workshops, seminars, and symposiums on huntington's disease through a network of chapter affiliates and branches throughout the united states.

education

Community Stories

124 Stories from Volunteers, Donors & Supporters

1 Frances17

Donor

Rating: 5

HDSA is a major platform for individuals who are at risk, have HD or have loved One's who suffer from the disease. I am thankful for HDSA and the awareness this organization raises for the disease, as well as the resources it provides for individuals/families affected by the disease.

1

Volunteer

Rating: 5

Thank you HDSA for all of your support. We appreciate the help and resources.

Client Served

Rating: 5

I have attended education days in my state and i am so grateful for HDSA bringing awareness to people in my community. I have been able to connect with other family members.

General Member of the Public

Rating: 4

I have called HDSA several times and they are always helpful, courteous and compassionate.

Client Served

Rating: 5

Thank you for all that you do for our family, we appreciate all of your help.

Donor

Rating: 5

HDSA offers families a place where they can find the most up to date information on HD. Often they are the first place a person with HD calls when they learn that HD is in their family. HDSA advocates for the HD community every day.

Professional with expertise in this field

Rating: 5

There is so much incredibly valuable information on the HDSA.org website and on HDSA's social media pages. The HDSA YouTube Channel has everything families need from research news and caregiver tips. HDSA also coordinates excellent community events and support groups from coast to coast.

Donor

Rating: 5

This is a great non profit fighting for a worthy cause!

Client Served

Rating: 5

I have called the help line to receive information and they have been very knowledgeable. Thank you for all of your help.

Volunteer

Rating: 4

This nonprofit needs support. This disease is unknown to most and deserves our attention. These families have generations of unfortunate and almost unimaginable discrimination. It is one of the worst mental and physical disabilities known to man. These families are struggling and need our financial help. Because the families are so mentally affected they are unable to ask for help. PLEASE consider this charity for donations. Google it for more info.