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Girl Power 2 Cure Inc

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Nonprofit Overview

Causes: Health

Mission: To empower a movement to see Rett Syndrome become the first curable childhood neurological disorder. OUR CORE STATEMENT OF BELIEFS:
We believe Rett Syndrome can be the first reversible neurological disorder.
We believe that children are powerful and positive community leaders and mentors.
We believe in empowering Rett Syndrome families by supporting and encouraging their creative fundraising and awareness initiatives.
We believe amidst the mass confusion going on within their central nervous systems, Rett Children are smart, strong and waiting bravely for us to unlock the door to their recovery.
We believe that finding a successful treatment for Rett Syndrome will pave the way to treatments of other neurological disorders such as: Autism, Alzheimer’s, bipolar disorder and more.

Results:
92% of every dollar supports GP2C programs
We have raised over 1.5 Million dollars towards research
We support almost 500 families
We have over 1200 registered students through our educational platform - Rett University

Target demographics: Children/Adults and their families with Rett Syndrome.

Geographic areas served: Worldwide

Programs: We inspire action
We support families
We educate & raise awareness
We fund research
Donor support fuels our mission to work fearlessly to see Rett Syndrome become the first curable neurological disorder.

Community Stories

130 Stories from Volunteers, Donors & Supporters

Dawn62

Client Served

Rating: 5

My daughter has Rett Syndrome. From the moment I heard about GP2C I knew they were special. The support, the inspiration, the knowledge they have and share has been amazing. I have made wonderful friends who I know will always be there for my daughter and our family. My journey as a parent to a child with Rett Syndrome was forever changed and made easier just by being a small part of this wonderful organization's family.

Volunteer

Rating: 5

This past summer, I was given the opportunity to work as an intern for Girl Power 2 Cure. In short, Girl Power 2 Cure raises awareness, support, and research funds in an effort to fight Rett Syndrome, which is a debilitating neurobiological disorder that mainly affects females. I loved working for them, to say the least. Not only did I get to meet wonderful people like Ingrid Harding and Cynthia Colalillo, but I was truly a part of something bigger than myself. Before coming in contact with this organization, I was not aware of the devastating effects of Rett Syndrome. I hurt for the girls who experience this and for their families. The work that Girl Power 2 Cure does to empower and aid these girls and their families is INVALUABLE! They are bringing a community together where before rett families were scattered and information on how to care for rett girls was even more scattered. I am very excited to see where Girl Power 2 Cure goes in the future - especially with their proposed program Rett University, which would revolutionize how rett girls and their care teams are taught and connect.

Volunteer

Rating: 5

GP2C is the most inspiring organization I've ever encountered! not only does it provide funding but it provides support and LOVE!

Volunteer

Rating: 5

GP2C was an organization that I wanted to be part of when my sixth child was clinically diagnosed with Rett syndrome. This organization gives hope when sometimes life with Rett is incredibly difficult. They do an amazing job with supporting parents, raising money for a cure and they absolutely thrive on doing their best.

Volunteer

Rating: 5

My great niece Julia Miller has Rett Syndrome. She has a loving family who has been trying to raise money for research to cure this disease. Recently with the help of Girl Power 2 Cure, a benefit was held and they raise $13,000 to aid in finding a cure. Julia's Mom, Tarah Miller, organized the benefit and with the help of friends and family she made it a huge success. It was amazing to see how supportive the Girl Power 2 Cure team was in showing her Mom what needs to be done to make this benefit successful. I got to meet Ingrid Harding, the Founder and Executive Director of Girl Power 2 Cure who traveled from Florida to give assistance where needed. I also got to meet so many of the girls with Retts. People who attended Julia’s benefit were exposed to so many informative brochures to help educate more people on Retts.

I would like to thank all who were involved in this wonderful opportunity to find a cure for my Julia.

Volunteer

Rating: 5

My daughter Olivia made a friend in Kindergarten named Laura. Laura has Rett Syndrome. Olivia was very excited about our 1st annual Rockin' For Rett and asked me to contact Laura's mom, Tina, and ask how we could help. Since then, we have volunteered our time and had 2 more Rockin' for Rett events, to benefit Girl Power 2 Cure, in hopes that Rett Syndrome will one day be cured. I know that Girl Power 2 Cure has been a great resource to Laura and her family and they are thrilled to be a part of such an amazing and supportive organization. Keep up the great work GP2C!

Board Member

Rating: 5

I learned about GP2C from my sister. Right after my daughter was diagnosed she was searching to learn more about Rett Syndrome and came across GP2C. She sent me an email with the info and I signed my daughter up. Right away I was contacted from someone to welcome me and let me know that they were there for me if I needed anything. I am grateful to GP2C for helping me out through hard times and for celebrating good times with me. I love GP2C!!

General Member of the Public

Rating: 5

My 7 year old daughter is battling Rett Syndrome. From the day of her diagnosis, GP2C has been a part of our life. They strive to provide us with support, information, research and most importantly HOPE that a treatments and a cure are within our grasp!

specialmommyx2

Client Served

Rating: 5

I connected with GP2C over 5 years ago after receiving my daughter's Rett Syndrome diagnosis. The website was so "upbeat" and positive - in a world where doom and gloom of what life with Rett Syndrome might look like, this organization was a pleasant change. It encouraged me and encouraged me to channel my energy in what my daughter CAN do. I felt so "at home" with the organization I soon became MORE involved and ultimately became the Family Support Coordinator. After six years with our diagnosis, I am glad that I am at a place where I can now help other families along their journey.

Volunteer

Rating: 5

I recently helped with and attended GP2C's event and it was incredible! I learned about Rett Syndrome and the organization from Tarah Miller, Juila's mother. Julia is a beautiful and inspiring little girl with Rett's. Tarah organized this event to raise monies to find a cure for her daughter and so many other little angels effected by this disease. For a first time event, it was amazing. Tarah worked behind the scenes for months and months writing donations letters, gathering volunteers, organizing bands to play and spreading the word about Rett's and the event in several media outlets. The evening was an overall huge success. The event was coordinated so well. The bands were great, everyone enjoyed singing along and dancing. The gift baskets and raffles were a wonderful. Overall, it was just amazing to see so many people gather to learn about and support such a worthy cause. My favorite part of the evening was seeing so many Rett Girls and their moms out on the dance floor!

Tina W.

Volunteer

Rating: 5

From: Dave, father to 8 year old Laura Rayne Walton, our Rett Angel.
I am very impressed with everything I see from Girl Power 2 Cure. They are a very dedicated group and their caring and giving attitudes are most amazing. I have attended several Rockin' for Rett events and the organization and excitement generated is always impressive. I know that they will keep up the high level of enthusiasm and work; and with time I know they will become even greater!

General Member of the Public

Rating: 5

The Benefit I attended was an Amazing turn out. The out pouring of Love to help kids with Rett was just pure Love and Kindness. It was very well organized and showed how many people in this world that people can come to the plate and show that they really do care. I'm glad I was to be a part of the Event.

General Member of the Public

Rating: 5

This benefit was a great turn out. The event was amazing! It was a lot
Of fun and just nice to meet new people and spread awareness for RETT syndrome. Tarah did an amazing job with this benefit, a lot of hard work definitely paid off!

1 Elizabeth103

Donor

Rating: 5

Girl Power 2 Cure Inc is an amazing organization. My little girl has Rett Syndrome and I've seen this organization grow from inception to the wonderful group it is today. Their idea that there is power in every girl and that we can all harness that power within to help find a cure for Rett syndrome is a perfect way to reach out. I have attended a fantastic fundraiser this week that was emotional and heartwarming. I have sold paper flowers and grown a Girl Power 2 Cure garden. The organization is run by people who truly care for this cause, often due to the fact that each person knows someone or is related to someone with Rett Syndrome. I know I can call them and get support. Their website is always filled with heartwarming stories and pictures of our girls as well as being a great resource of information. Their "purple" card has helped me share my child's story, our lives, with others. I'm proud to know the people who run Girl Power 2 Cure Inc.

1

Volunteer

Rating: 5

I am not only a volunteer and donor, I am also a mother of a Rett girl. This organization is more then inspiring! They made me want to do more then just wish and pray for a cure, but rather become part of finding one! They make you feel so welcomed and understood, as if they have know you all your life. GP2C brings such joy and hope to something many would find sad and heartbreaking. I am honored to be apart of GP2C!
Tarah Miller

Professional with expertise in this field

Rating: 5

I have been involved with this organization since its inception. It has gone from a founder's organization to a group with talented outside leadership. I believe, given the dedication of this board and the leadership, that they will be significant players in finding a cure for the debilitating condition.

1

Volunteer

Rating: 5

I am not only a volunteer and donor but my niece has Rett Syndrome! I am lucky enough to have a close personal relationship with GP2C! I simply do not have the words to explain how AMAZING this organization is as well as the people who run this charity! Their knowledge and resources have helped countless individuals. They spread awareness and touch the lives of families all across the world! Their flower has come to represent hope and power! Girl Power and hope that a cure for Rett Syndrome is in our NEAR future! Please share Girl Power 2 Cure with all your friends and family! They will touch your heart and give you inspiration for greatness!

1

General Member of the Public

Rating: 5

This organization is absouelty incredible. I'm a teenager and was doing a school project in rett syndrome when I came across GP2C. I spoke with them and they really helped me launch my project. It was truly a gift to have their help. Every single action they take is to help cure Rett syndrome. I have never seen a more committed and passionate group of people in my life. Their girls are in a fight everyday just to be normal. We need to continue to allow this organization to do their amazing work by supporting them. I LOVE GP2C with all my heart and hope that their work will continue for a very long time. I have been able to speak with several families who have girls with Rett syndrome and I could tell right away what girl power 2 cure has done for them. It FANTASIC! They have created an outstanding resource for parents to go to if they ever have questions or just want to connect with other rett families. GO GIRLPOWER and GO GIRLPOWER 2 CURE

Volunteer

Rating: 5

Girl Power 2 Cure is a wonderful organization that goes above and beyond to support families who are battling Rett Syndrome. I am blessed to be part of GP2C as their Program Coordinator. Each day we are working towards raising awareness, to reach as many girls out there to give them our support and most importantly the hope that there will be a cure one day.

Volunteer

Rating: 5

Girl Power 2 Cure is an amazing organization! I have had the priviledge to vounteer for them and see first hand the difference they make in the lives of girls and families affected by Rett Syndrome. All of the individuals involved are filled with passion to spread awareness about Rett Syndrome and work towards a cure for this terrible disorder, every event I have seen has been filled with positive energy and hope that a cure is coming soon. I have enjoyed every moment of time volunteered with this organization and hope to work with them again in the future.

Mimi B.

Volunteer

Rating: 5

My daughter was diagnosed with Rett Syndrome in 2006. For the first few years of her diagnosis I searched for support, information, and for a tread of hope. I felt alone in this journey. It was years later (in 2009) when I learned of Girl Power to Cure, and our lives were forever changed.... I realized that we were not alone, and that together~ we CAN make a difference. There were so many other famlies out there to talk to. To support eachother in good times and bad. There are friends, strangers, and famlies coming together to raise awareness, and working towards a cure. GP2C helped me lear that, and brought us together with so many famlies. They are a place for information, support, friendship, and HOPE.

Board Member

Rating: 5

I am honored to be on the Board of Girl Power 2 Cure. With the great strides that are being made towards finding a cure it is more important than ever that we support our researchers as well as our girls. Girl Power 2 Cure does both through fundraising efforts for research and incredible family support and outreach.

Roger21

Board Member

Rating: 5

Our family found Girl Power 2 Cure in 2009 shortly after our daughter Juliana's diagnosis. We were so moved by the care and compassion we received, I became a board member in 2010. I currently serve as Board Chairman and I am very proud of the support we provide families, the awareness we create across the country, and the efforts we put towards finding a cure for Rett Syndrome through fundraising. Girl Power 2 Cure gave us hope, hope for a better future for our daughter and taught us that when we work together, we can do amazing work. They have been our source of inspiration and family over these last years and I could not be more proud to be affiliated with such a remarkable organization. We will find a cure for our girls one day and it will be because of the coming together of all of us, working together and believing our girls deserve so much more. - Roger Brooks, Juliana's Dad

Danielle34

Client Served

Rating: 5

This is who I've been looking for since my daughter's diagnosis! An amazing group of parents who are welcoming and supportive.

Volunteer

Rating: 5

Girl power 2 cure has given me such hope, especially when my sixth child, Anna was diagnosed with Rett syndrome. Their website was bright and their attitudes were brighter. I looked into other organizations that dealt with Rett, but GP2C definitely won my heart. I am thankful to this organization that brought me out f darkness and saw great potential in my daughter's future!

Volunteer

Rating: 5

I joined this group without knowing anyone. I do not have a daughter with Retts. The group was amazing! The other parents so grateful and welcoming. All my questions were answered. Support and help was always available. Best experience working to make a difference. Highly recomend this this group.

Board Member

Rating: 5

GP2C is nothing but support and power when it comes to helping families of girls with Rett Syndrome. Our daughter, Laura, received her diagnosis in March of 2007 and since then we were brought in to the wonderful family called Girl Power 2 Cure. These people radiate hope and a never ending drive to keep striving for what you BELIEVE in. With a belief that Rett Syndrome will be cured some day in the near future, we all work to keep the faith, support each other and others as needs arise.

Jen_16

Volunteer

Rating: 5

GP2C first entered our life almost 5 years ago when our then 2 year old daughter was diagnosed with Rett Syndrome. In a time when were scared and heard more of the bad than the good, the little flower of hope gave us a focus. There WILL be treatments for this disorder. There is HOPE. I will continue to support this fantastic organization with my time and talents to help others they way GP2C has helped me!

Kristin2345

Volunteer

Rating: 5

Girl Power 2 Cure has given our family great support, hope, and the opportunity to BELIEVE in the power to cure Rett syndrome. We have been involved with GP2C for 4 years and are grateful for all they have done in that time. They have grown much larger since! Which is a wonderful accomplishment. GP2C has supported our family, other Rett families and communities around the nation with different events. I Believe they should receive well beyond a 5 star rating as anon-profit and I look forward to watching them grow even bigger! Job well done GP2C!

Previous Stories

Advisor

Rating: 5

We have been involved with Girl Power 2 Cure for 3 years! They have given us so much support and information about rett syndrome. Because of Girlower 2 Cure, our family has been able to advocate for Brynn better and raise much awareness! I have never felt love and support from any other non profit and they deserve well beyond 5 stars!

Client Served

Rating: 5

I have a daughter with Rett Syndrome and first came across this organization at the 2012 Disney Princess Half-Marathon Expo. GP2C is an amazing organization which raises awareness, supports families and rasies funds for research. They offer great products such as little purple cards - which tell the Rett story for a specific girl, t-shirts, buttons, and paper flowers. All of these items are very beneficial in getting the word out about this debilitating disorder. The GP2C website offers many items that supports families. The ideas that are shared there including recommended technology, iPad apps, ideas for various issues that arise with Rett are very helpful for families. The fund raising for GP2C occurs in a "grass roots" type of format. It is amazing that seemingly small dollar amount fundraisers held across the country can add up to so much funding for research. The passion found in this organization is second to none. We all want a cure for Rett Syndrome and this organization has taken that desire to the next level.

Client Served

Rating: 5

I have a daughter with Rett Syndrome. Ever since the diagnosis, my family has gone through some difficult times dealing with this devastating disorder my daughter has. Kelly Butler at Girl Power 2 Cure, Inc. has helped me to connect with other families. GP2C provides support and resources for the families and I feel that my family is able to move on and be empowered by the support of the community GP2C helped us to build. GP2C promotes awareness and raises fund for research and family support. I strongly encourage newly diagnosed families and anyone who wants to be educated and get involved in Rett awareness to contact GP2C.

Lori234567

General Member of the Public

Rating: 5

my daughter has Rett Syndrome and the Girl Power 2 Cure is working hard everyday and in every way to inform people about this aweful disease. They are a wonderful support system for Rett Families.

This 'thing' that has taken our daughters from us can only be repaired; cured, through research. Funding is needed for research to find that cure. My family puts on a fundraiser every year to help raise funds for this important research. Knowledge is Power!!! Power Can Cure!!

Client Served

Rating: 5

Originally our daughter's Auntie bought a beautiful rett girl flower sun catcher after she was diagnosed last year. We then began to connect with families on facebook and met a mom/team member there. We then began to plan for a better future than what we have been offered for our daughter, and we sent in a small donation and we immediately recieved an email and call from the exec director. The family support is phenomenal and the educational opportunities are endless with the web support. We are blessed to have a team like this on our side. After launching Keira's page we were able to raise $600+ for research and support and it was totally free for us! Thank you GirlPower 2 Cure!

Marta C.

Volunteer

Rating: 5

I contacted Girl Power 2 Cure the day we received Caroline's diagnosis. They immediately reached out to us with assistance and information, and connected us to other families in our area. Since then, we've received daily support, encouragement, and benefited from the incredible knowledge base of the GP2C staff and community. We are deeply grateful.

Marta Conner

Client Served

Rating: 5

Our daughter Anna was diagnosed with Rett Syndrome in February 2010. We were devastated and needed family support and a positive attitude about living with Rett. Girl Power 2 Cure not only connected us with other families but it also gave us practical ideas on everything from alternative communication devices to fundraising for a cure, and just about everything else you can imagine. We love our GP2C family!

Vickie

Client Served

Rating: 5

I found Girlpower2cure on facebook. I looked at their page and was sure I had found a way to raise awareness and money for research that would be easy and fun to do. I dont have much free time so this was exactly what I knew I could commit to. Kelly had Vicoria's web-page up and running in less than 24 hours I was pleasantly surprised.With-in days I had my flowers for her garden, and personalized fliers. Yesterday I recieved my beautiful purple cards. In less than a week I had all the tools needed to get started. I have a meeting at Victoria's school today to get this garden planted. I know I will use Girlpower2cure for all future fundraising projects,Kelly made it simple and she was available to help me get started. Thank-you ladies for giving moms like me a way to help raise awareness for Rett Syndrome it blesses many.

Lisa D.

General Member of the Public

Rating: 5

I came upon Girl Power 2 cure shortly after my daughter was diagnosed with Rett Syndrome. My local hospital had very little information for my husband and I. This web site had provided a life line for us! Not only have I connected with the wonderful folks like Kelly who work for GP2Cure but other families as well. They have helped me to create tools such as a web page and business "like" cards that allow me to introduce others to my daughter Lily while explaining Rett and spreading awareness! They have wonderful marketing ideas and fundraising tools which has been such an amazing resource in such a little amount of time. Again, when I think of GP2Cure, I think "my lifeline!" They are fabulous and I don't know what I'd do without them!

Kelly S.

Volunteer

Rating: 5

We became part of the Girl Power 2 Cure family after attending one of the fundraising events they have created. There are so many things that Girl Power 2 Cure is doing for families, to raise awareness, and to support families in fundraising. Notice I am saying "family" alot? Well, that is because Girl Power 2 Cure is like a family for this family of a beautiful girl with Rett. Through them, this Mom feels empowered, and the little sister of this family does too! We can make a difference in our Rett Girl's life and Girl Power 2 Cure is helping us do that with information, support, and advice. Thank you Girl Power 2 Cure!

General Member of the Public

Rating: 5

We found Girl Power 2 Cure when our daughter was diagnosed with Rett Syndrome. This non profit is an amazing organization that reaches out to families and the general public to spread awareness and raise funds to fund a cure and treatments for rett syndrome. Their dedication and commitment to this cause surpases many with not only their care and kindness but their expertise that many other organizations lack. I am blessed to have found this organization.

Kristy J.

Client Served

Rating: 5

I became involved with Girl Power 2 Cure after our daughter was diagnosed with Rett Syndrome. We wanted to be part of the Rett Community and learn what we could do to help. We have found exactly that in GP2C! We feel like part of the "Rett Family" as they have opened their arms to us and have given us the resources to help our baby girl and so many other families through fund raising (Dress Up 2 Cure) and links (rettgirl.org) to helpful information and so much more. Thanks so much for ALL you do!

Volunteer

Rating: 5

I became aware and involved with Girl Power 2 Cure after seeing my friend's beautiful daughter diagnosed with this crippling illness. I remember holding her when she was born and was so excited that my friend was blessed with such an awesome little girl. Even though Brooklyn can't do many of the things that other girls can do, that feeling of optimism still lingers because of organizations like Girl Power 2 Cure. I started donated to the organization on behalf of Brooklyn and the hundreds of other girls. I feel it is my duty as a woman to stand up for these girls. I am also helping to get a fundraiser together now so Girl Power 2 Cure can educate, advocate and help fund research around Rett Syndrome. At the heart of the organization are 2 women who will do whatever it takes for their girls and others. I also love that fact that the organization brings together families around the world for support. They are an inspiration and I am proud to suppor this organization.

General Member of the Public

Rating: 5

I found Girl Power 2 Cure in January 2010 shortly after I found out my then 2 year old daughter was diagnosed with Rett Syndrome. The organization provided me with information and resources that other organizations could not provide, that was the personal experiences of the Rett parents. Through GP2C I have connected with many amazing Rett Moms that I consider to be some of my closest friends and I know that are with me on this journey. In addition, I have found resources on ways to improve my daughter's quality of life, which is priceless.

Volunteer

Rating: 5

Our Granddaughter was diagnosed with Rett Syndrome 21/2 yrs ago. It was heartbreaking to think she will never walk or talk.. but with the effort of Girl Power 2Cure and all the caring people she will be able to do these things... We just need more people to care about the research and donate to accomplish this... Then not only our Granddaughter but her family can have a normal and better life... Please help as I would love this to happen in my lifetime for her and many other beautiful girls. Thank you.

Client Served

Rating: 5

What awesome support and great resources Girl Power 2 Cure provides to families with Rett Syndrome! Our daughter was diagnosed with Rett Syndrome in September 2008. After meeting Ingrid Harding and learning about GP2C, we have made connections to services, equipment, and other families. Their website provides recommendations for every aspect of Rett Syndrome. Kelly Butler helps with any questions you have! What a great "place" for Rett families!

7

General Member of the Public

Rating: 5

My name is Debbie Davis and I am blessed to know Ingrid Harding and Kelly Butler with Girl Power 2 Cure. These two amazing women are the epitome of "mom-power". The love and hard work behind Girl Power 2 Cure reminds everyone that no act is too small. We can make a difference, and Girl Power 2 Cure promotes this. This great cause is changing the lives of girls affected by Rett Syndrome, and it is inspiring fellow peers who do not have Rett to know how special they are, too.

8

Volunteer

Rating: 5

My granddaughter was diagnosed with Rett Syndrome around her second birthday. Our family was devestated! We knew nothing about Rett! My daughter searched the internet and found Girl Power 2 Cure...What a Blessing!! She was able to connect with other moms who could "walk her through" what was to come. It is so good to know you are not alone.

7

Volunteer

Rating: 5

My daughter was diagnosed with Rett Syndrome in May of 2006. It was a devastating time for our family. We took time to grieve and get our daughter the help that she needed. When we were in a more stable place we decided that we would do everything possible to help our daughter and to fight for her cure. We started networking with other families and looking into medical research for Rett Syndrome. Through that networking we met woman named Monica and she introduced us to Ingrid, founder of Girl Power 2 Cure. After meeting Ingrid and reading about Girl Power 2 Cure I was thrilled. I loved the positive attitude that the organization portrayed and how they empowered families, kids and schools to come together and do something amazing: raise funds for Rett Syndrome research! Since I have been working with Girl Power I have come to know and love so many families and their girls. I am constantly supported and assisted in any and all fundraising endeavors. And the positive, empowering attitude is very much contagious.

8

Volunteer

Rating: 5

Girl Power 2 Cure is a fantastic organization that raises awareness and funds for Rett Syndrome as well as promotes over all positive self image and empowerment of young girls! I am a teacher and have participated in their Dress Up 2 Cure fundraising campain the past three years and it has been an amazing experience for my thrid grade students. They have become more aware and accepting of children with disabilities over all which is always a great thing to be a part of. This year my students REALLY fell in love with my neice Brooklyn and even made her birthday cards this year....they adore her! I love the work of Girl Power 2 Cure!

7

Volunteer

Rating: 5

Girl Power 2 Cure is a part of my life and run by the most wonderful and caring individuals. They are so much more than a fundraising organization. If I am having a bad day I get a call or an email. If my daughter is sick I get a shoulder to cry on and a hand to hold. I have never seen or heard of anything like this from any other charity. They are truly hands on and they make sure they KNOW each and every person they serve and their families. Truly the best!

7

Donor

Rating: 5

If an organization could run on passion alone, GP2C would have cured Rett Syndrome 10 times over. The founders have literally put their heart and soul into this work, because it will translate into saving girls with Rett Syndrome. All the work is done by volunteers with mostly borrowed or donated supplies. Almost every penny raised goes directly to research aimed at curing this debilitating condition.

6

Client Served

Rating: 5

My name is Myrna Johnson. My grand daughter was diagnosed with Rett Syndrome a few weeks after her second birthday. My son posted on his blog about Nora's diagnosis since so many people follow their blog and would be able to find the details there. One of the first people to comment on his blog was Kelly Butler from Girl Power to Cure. We didn't have to go looking for a support group they found us before we even could start thinking about the support that would be needed. She just put a short comment on my son's blog that she had a daughter with Rett Syndrome too and to check out their site for a lot of good details. I now follow Kelly's personal blogs and the Girl Power to Cure site almost daily. There have been many times that I have had questions. I have emailed Kelly and within hours I have a response back. It's a good feeling to know that there are people out there that have walked in your shoes and are eager to help in any way possible to make the path a little easier. Girl Power to Cure cares so much about Rett Syndrome that they are a big encouragement to the rest of us to help find a cure for this sad syndrome. I'm glad I can depend on those at Girl Power to Cure to be there to help when help is needed most. They're the best!

8

Client Served

Rating: 5

My name is Lori Moorehead and in 2008 I was granted custody of my step-granddaughter, Xayia. Two months after she came to live with us she was diagnosed with Rett Syndrome. I was devastated. I started scouring the web looking for information and support. Everything I read and all the organizations were so bleak. I went to an Autism support meeting and was told (by the area rep) that she really hoped she would never have to meet any family with Rett Syndrome. Needless to say I never returned. Xayia's early intervention specialist suggested something called Girl Power 2 Cure. So I poured over my computer and found out there is hope and I can handle this and my little Xayia will be ok. I spoke on the phone and through emails with Kelly Butler and Ingrid Harding and received words of encouragement and the knowledge to raise our girls. This year I have helped Girlpower2cure raise over 800.00 in my small community and I am but one of many members working to raise money for a cure and to spread the word about this syndrome that can affect many girls. These wonderful women have helped me realize Xayia and I are in control of our lives not Rett Syndrome. We are not victims, we are soldiers fighting a battle that we will win.

6

Volunteer

Rating: 5

My daughter was diagnosed with Rett Syndrome in 2004. Shortly after her diagnosis, we attended a national conference of another Rett Syndrome organization, and I was recruited to service as a local state rep. During the 2 years I served in this role, I was able to meet and connect with many families with daughters suffering from Rett Syndrome. At this time I also began raising money for Rett Syndrome research, and while I was very hopeful in direction of research and science, I felt disconnected from the organization and did not feel that its stated mission of finding a cure for Rett Syndrome was first and foremost. My daughter was selected for a Littlest Hero photo-shoot in June of 2008, and through the photographers blog Kelly contacted us and we began exchanging emails. It was so great to meet some more families who are 100% behind finding a cure for Rett Syndrome. I love the energy and enthusiasm of both Kelly & Ingrid and all the incredible families I have meet since joining the GP2C team. We all work very hard to raise money throughout the year, and the focus on a cure is never lost. There are no distractions, very little (if any) overhead costs, and all money raised goes directly to cutting edge research (RSRT). I am very proud to be a part of this organization and love all the positive ways in which we are able to help and support each other and our daughters. Kelly & Ingrid Rock!

8

Client Served

Rating: 5

Edda was diagnosed with Rett Syndrome four years ago in 2006. Girl Power 2 Cure brings the "fun" to fundraising! They work tirelessly to drum up money to fund research to find a cure for Rett Syndrome. Their hard work and optimistic attitude inspires me always to do more!

2

Board Member

Rating: 5

When my daughter was diagnosed with Rett Syndrome in September 2008, I immediately needed to find a place for support and a place where I felt I could use the pain of such a devastating diagnosis to help find a cure. Girl Power 2 cure was a perfect fit. Kelly Butler and Ingrid Harding welcomed me with open arms and helped to give me a feeling of empowerment - that we could beat the monster that had taken over our girls. I was invited to become a member of the Mother's Advisory board and with it the opportunity to connect with other families all around the world, who are struggling everyday with this little known disorder. Being able to help others has provided me with a huge amount of strength and strength to others!

2

Donor

Rating: 5

My daughter was diagnosed with rett syndrome in May of 2009. This was the most devastating and heartbreaking news my family and I had ever received! I felt so lonely and lost until i met Bridget. Bridget is on the mothers advisory board for Girl Power 2 Cure. She introduced to me to this fabulous organization that i had never heard of. I am so grateful for Girl Power 2 Cure! They have helped me to become a stronger person and better mom to my daughter. Girl Power 2 Cure is helping me to spread rett sydrome awareness in my community with such confidence. Girl Power 2 Cure has truly been a power of positive change for me and my family. I have never felt so full of life and empowered!