My beautiful 16 year old daughter, Faith, was diagnosed in September 2012 with Idiopathic Gastroparesis. We had never heard of this disease before, and to put it bluntly, while I was relieved that the doctors had finally could explain why my daughter had been so ill for several long months, I was also petrified as to what this diagnosis meant for my daughter. I came across the G-PACT website when I was doing research on my daughter's condition while waiting the two weeks it took between getting the diagnosis and actually getting an appointment to see her pediatric GI specialist. Many of the sites I found provided generic information about Gastroparesis, but the G-PACT site is different. As I looked at the information on this site, I knew I had found an organization that cared about my daughter and other people suffering from severe chronic digestive illnesses. Not only is G-PACT actively working to raise funds for research into diseases like Gastroparesis, it also provides support groups for and pertinent information about these disease to people who suffer from them. My daughter has been able to connect with other young people who also have Gastroparesis which has been a blessing because it has helped her realize that she is not alone. It is wonderful for her to be able to share her experiences with others who understand what she is going through. I have learned more about how to meet the needs of my daughter through the information provided by G-PACT than I have through any other source, including her doctor. We live in a state where we have no medical professionals who are specialized in treating Gastroparesis, so this information has been a life saver. I have just signed up to be a volunteer for G-PACT because I truly believe in and appreciate the work they do.
I love being able to have somewhere to go to look for information about the rare disease that I have. G-PACT is helping by getting information out and by getting those of us with digestive diseases to work together to have the government acknowledge these diseases and help find a cure!
I came to G-Pact through a friend about two years ago and joined the group. I was welcomed and made to feel like a part of this online family. I received information, support and compassion that I so desperately needed at that time and then no longer felt alone. I have made some amazing friends through G-Pact and I'm sure some will be lifelong friends. Being a part of something bigger when cHronic illness can make you feel so small and alone is just priceless. I am thankful.
my mom has gastroparesis and i am boarderline. this page helps me to keep up with the news and events regarding this horrible disorder. it also helps to know that we are not in this alone. thank you to the volunteers that post information and fight for us.
I have been diagnosed with gastropareis since 2007. My freshmen year of college. when i kept throwing up and the diarehia i didnt know what was happening to me. I ended up going to the hospital the Dr. there thought I was anerexic. I tried to explain to him i cant keep my food down. They just gave a prev pav to take 14 days. I was scared and went from 148 pounds to 98 pounds in a month or two. I really thought I was going to die. But someone preferred me to a GI Dr. they gave me the test where u eat the scramble eggs and have to lay down for two hours so they can watch how long it takes to digest your food. Right of the bat after taking the test getting the results he knew it was gastroparesis. i was happy that they found out what it was. i would think to myself i will be able to live and eat and get strong again. at the same time my boyfriend and i were starting to date. needless to say even though i threw up my food on our first valentines day and many other days. he was always there beside me giving me support and comfort. We just made it to our six year anniversary this year on Oct. 31 2012.If it wasnt for him i would have gone crazy. My eating improved after i took reglan for a week before i had blurry vision side effect, so they had to take me off of it. and on motillium. for five and half years i was doing good till Sept. 11, 2012 I started to have severe stomach pain.mit was Gastroparesis acting up i went back to my same dr. again and now im on the gastroparesis diet it has helped a lot. the pain eased up. i have a follow up appointment Nov 20 th. the only things i fear are: hoe long will this diet help me, will i get it even more severe than what it is now, not knowing if i have to get surgery or not, feeding tubes, stomach pacer, im not sure but i have asked my boyfriend is still gonna stay with me even though i have a chronic illness, he said, "yes i will be with you like i did at the biggening when it first started to the end..." so i hope i have a long life and that one day there will be better ways of treating this illness. this organization helped me in dealing with the sadness i had when i found out that this illness doesnt go away, made me laugh, suggestions on how other people who have the same thing i have deal with their own troubles of eating, change of diet, dresssing for comfort, and better ways of dealing with the symptoms of gastroparesis. I would like to thank them in helping me understand and deal with this chronic illness.
I have idiopathic gastroparesis. GPACT gives people like me a voice. They work so hard to advocate for people with this condition. I am always excited to see what project they are doing next. And they inspire me to get involved. GPACT is working hard to spread awareness of this condition so that we can have better treatment options and one day a cure.
I learned so much from the g-pact you tube videos produced by the founder Carrisa. When I learned about gastroparesis there was no facebook. But thanks to g-pact and Carrisa I was able to educate myself and even my family dr. And without the facebook g-pact group I would be so lost as to what to do and how to get treated. G-pact is an awesome group of volunteers that are often very sick themselves yet continue to put out a great support group for us and our dr.'s to follow.
I have never met a doctor that knows very much if any about this disease. After I was diagnosed with gastroparesis I was led to G-pact. They have been so informative for me. Many days I don't know what I would have done without them. I have suffered nearly 30 years with this disease and through G-pact I received more information than I knew what to do with. Thank you G-pact,
I have worked for a non-profit for going on 5 years and have worked for two non-profits prior to that. My passion is making a difference in the community. I have never seen a non-profit work as hard as G-pact though. I have Gastroparesis and it truly is a scary disease. Gastropareisis is lacking research from science, doctors and approval of any medications from the FDA. Without the work of G-pact patients like me would be completely alone in our fight to survive this horrible disease. G-pact thank you for all the hard work you do each day.
It took over 20 years of searching to find out what was wrong with me... years of being told it was all in my head because of the lack of Awareness of Gastroparesis not only with the general public but also in the Medical field. It was a year after I was diagnosed that I was directed to G-PACT on FaceBook and spoke with the founder of this wonderful organization. I discovered that every single person that works for this nonprofit are unpaid volunteers, the vast majority of them sufferers themselves who struggle through their own battles daily to try to help raise awareness. It should not take over 20 years for someone to get a diagnoses of a condition that is estimated to affect between 5 and 13 million Americans alone and G-PACT is working tirelessly to change that.
Prior to finding G-PACT, the only person I knew with Gastroparesis was my grandma. For over 20 years, it was just my grandma and I facing a random faceless disease. We didn't even know the diseases name. Once I received the formal diagnosis of Gastroparesis, I went on-line where I found G-PACT. I found a support group "G-PACT Middlers" where for the first time I was able to interact with others about GP. Words cannot express what it felt like to no longer feel stranded on an island. Through G-PACT, I have learned how to handle various symptoms, how to educate others, and how to laugh in spite of it all. I really don't know how I was surviving without all of my GP brothers & sisters that I found through G-PACT!
REVIEW OF G-PACT My daughter got Gastroparesis the summer after 9th grade. Everyone assumed that with a diagnosis there was a cure- there is not. We went through years of Dr's visits, testing that lead to more diagnoses but no more help, feeding tudes, surgeries, and years of struggling to eat, throwing up, chronic constipation, lack of energy, chronic pain, depression, and more. This was my daughter's high school years. At the time, there was virtually no information on this illness and our physicians at one of the best children's hospitals in the world offered little to us but more feeding tubes and surgeries. G-Pact was a source of information and most importantly a way to connect with other people who were suffering from the same illness. My daughter was one of the lucky ones! Her Gastroparesis has resolved, for now. Although she suffers from another conidtion that challenges her on a daily basis, she is leading a relatively normal life. That is not the case for thousands of Gastroperesis and Chronic Intestinal pseudo obstruction victims who cannot lead a normal life, have a meal, go to the movies, or even get out of bed. At its worst, this is a death sentence. So I continue to volunteer with this organization which is run solely by sick people and their families who continue to raise awareness and reach those who have no other lifeline in the hope that some day no other people will have to suffer with this terrible, gravely debilitating and relatively unknown illness.
This has been the only place I have found that is informative, supportive and most of all a place where you find people who understand. My daughter has had gatroparesis for 2 years and this has been a life line for us as for her doctor to obtain information and support.
I first found G-PACT via a friend and was directed to their Yahoo! Chat Group. I had been recently diagnosed with Gastroparesis and could barely pronounce the name let alone comprehend what was going on with my body. From there, in those early years I moved with them to Facebook and the information, support, restaurant cards and other information has continued to help me face my illness with courage, dignity and grace. I later developed Chronic Intestinal Pseudo-Obstruction in addition to esophageal dysmotility and through the journey I have had G-PACT and access to all of the support groups and open door policy for asking questions. I later joined as a volunteer so that I could find a way to "give back" if only a small amount of what the organization had given so freely to me. Also, the gift of information and support they gave to me in the early days and during this journey I wanted to make sure continued to the many that are newly diagnosed. Medical Awareness and Research is severely needed for GP/CIP and other digestive motility disorders (DTP) but G-PACT helps to fill a gap otherwise left open by the medical community. Does not matter the age, race, religion, or any other factors, if you have a digestive motility disorder or are a family member, friend or the care provider of someone diagnosed, G-PACT is there.
My teenage daughter has gastroparesis...we'd never heard of the condition before her diagnosis. This site has been such a wealth of information and positive support for us.
g-pact has been an absolute blessing to me - i have had gp for 19 years now and without the group i would never have even known others suffered the same disease. i didnt know there were treatment options had no idea about gp diets. medications, surgeries etc - so informative and incredibly supportive . I cope day to day because i can access gpact at any time and i consider it extremely vauable alongside my medical carers
G-PACT has been the most helpful source for my learning about my incurable disease Gastroparesis. There is a multitude of information that can be found no where else. I appreciate them greatly!
I've had Gastroparesis for 3 1/2 years. I'm so happy that I found G-PACT. Nobody understands this disease, and G-PACT has educated me far beyond what the doctors ever have. The members of this group are like my extended family now. There is a constant stream of information being shared between the members. Everything from symptoms to helpful hints and emotional support. I believe that this is the best support group, ever!
I have had Gastroparesis since I was 19 and have seen so many doctors and tried so many different medications with no positive outcome. G-PACT helps me everyday, whether it is a simple positive quote if I am feeling sick that day or being able to read others stories of success or failure. I have learned more from this nonprofit than I did face to face with a GI specialist. Thank you!