My beautiful 16 year old daughter, Faith, was diagnosed in September 2012 with Idiopathic Gastroparesis. We had never heard of this disease before, and to put it bluntly, while I was relieved that the doctors had finally could explain why my daughter had been so ill for several long months, I was also petrified as to what this diagnosis meant for my daughter. I came across the G-PACT website when I was doing research on my daughter's condition while waiting the two weeks it took between getting the diagnosis and actually getting an appointment to see her pediatric GI specialist. Many of the sites I found provided generic information about Gastroparesis, but the G-PACT site is different. As I looked at the information on this site, I knew I had found an organization that cared about my daughter and other people suffering from severe chronic digestive illnesses. Not only is G-PACT actively working to raise funds for research into diseases like Gastroparesis, it also provides support groups for and pertinent information about these disease to people who suffer from them. My daughter has been able to connect with other young people who also have Gastroparesis which has been a blessing because it has helped her realize that she is not alone. It is wonderful for her to be able to share her experiences with others who understand what she is going through. I have learned more about how to meet the needs of my daughter through the information provided by G-PACT than I have through any other source, including her doctor. We live in a state where we have no medical professionals who are specialized in treating Gastroparesis, so this information has been a life saver. I have just signed up to be a volunteer for G-PACT because I truly believe in and appreciate the work they do.
When I was diagnosed with gastoparesis seven years ago, I had never heard of the disease. I would spend hours online trying to find information about the disease and despite the information, I still felt so alone. There wasn't anyone in my circle of friends or family that truly knew what I was going through. Then, I found G-PACT. Not only did I receive great information about gastroparesis, more importantly, I found a support system. I found people who knew and understood what I was going through. Having that support system has helped me more than words can express. I have since started volunteering with the organization and am proud to be a part of a group of dedicated volunteers who fight for better treatments and a cure.
Back in 2001, when I was finally diagnosed with gastroparesis after years of suffering, I found G-PACT. They knew more about this disease than most physicians and helped me with choosing the best options for treatment and medication. I began volunteering with them shortly thereafter and am impressed with how far this organization has come with a fully volunteer staff of patients. G-PACT reaches thousands of people each day and provides a number of services for patients. It is the leading non-profit organization in the United States that deals primarily with digestive tract issues.
This is a wonderful organization for those suffering with Gastroparesis. They truly care about everyone and are trying their best to raise awareness and offer support.
I was diagnosed in March 2012 with Gastroparesis. This changed my life as well as my family's living/eating habits. I hit the computer to find help, as my GI Dr at that time (I now have a new one) did nothing for me, education/reassurance/nothing! In all of my on-line search for help to understand GP, I found G-PACT to be the most informative. I ordered a Restaurant Card from them so when I was out 'eating' with family, I could order a small portion or off the kid's menu without a problem. They have links for credible doctors and other helpful info. G-PACT has several campaigns going as well. Such as the one asking the Federal Government for funding for research. This doc is so close to being passed, I can almost taste it and it is much needed for all of us! Just picture having the flu 24-7 and you are only partially in our daily shoes! G-PACT is involved with so much and they provide up-to-date information (check Facebook too), that I asked what I could do for them in return. That is how I became a volunteer and have just now assisted with the launch of our “Please, Pass The Puree” on-line fundraiser. We wanted to honor all of us that are unable to eat a Thanksgiving Meal! This is currently going on, so check it out. I can't picture not being part of this great non-profit organization. It is my dream one day to be able to eat food again and enjoy life the way I did before GP hit me. It is my belief that with G-PACT we can make this happen!
I was diagnosed with gastroparesis in 2008 and in 2009 joined Gastroparesis Patient Association for Cures and Treatments (G-PACT). It is a wealth of information for those of us with Digestive tract paralysis and other related diseases. People need to be made aware of the disease and how to live with it so G-PACT offers waya to be aware of the disease and how to treat it. We also work on research as to date there is no cuire and the disease has been wreaking havoc on many, of all ages. This non profit is trying to help treat the sympltoms, educate, and promote research. As a member of the BOD for 2 1/2 years I see the importance of these functions and want to see G-PACT on the top of the list.
I have had Gastroparesis for the past 7 years and GPACT was very critical in the beginning helping me understand what I was facing and how to deal with it. To know that there were so many others who suffered the same thing that I did eased a little bit of my anxiety, but as I delved deeper and deeper into what Gastroparesis was and what I could be dealing with I was horrified. Members of the online group are some of the most uplifting, caring, compassionate people I have ever met. No matter what they are going through, they are ready to set that aside and lift you up and give you information that has helped them. It is never medical advice and if it is a medicine or something else that has helped them, everyone is encouraged to discuss it with their doctor. Almost 2 years ago I decided that I wanted to be a part of this amazing community being able to help others that are just starting to find out they have this, or maybe the ones that are far in it but have gone up against a setback. It is important to make sure we are always encouraging people. I am not someone who is right up front showing everyone what I am doing, I would rather be a "behind the scenes" type of person and the other volunteers were very patient trying to find the perfect fit for me. I am so glad that I have found such an amazing nonprofit that is just trying to help the patients and go to the many different companies and doctors to try and get some funding to get research and better treatment options and hopefully a CURE!!
At the age of 16 my daughter was diagnosed with idiopathic gastroparesis. Gastroparesis in not rare but it is relatively unheard of for some reason and there is very little the medical community can do for GP patients and there is very little research being done. Armed with little information from the medical community I had to search out to find my own, something - anything, to make my daughter's life tolerable. After dropping from 116 pounds to 86 pounds in a little over 2 weeks I was desperate and went online in search of some hope in a seemingly hopeless situation, this is when I found G-PACT. Without this wonderful non-profit and their community of GP patients my daughter would not have near the quality of life that she has today. Everything from tips and tricks, current news to shoulders to cry on, it has given us more to work with than any Doctor, Specialist, Nutritionist of internet search engine ever could.