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2016 Top-Rated Nonprofit

Gastroparesis Patient Association for Cures and Treatments, Inc.

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Nonprofit Overview

Causes: Digestive Diseases & Disorders, Digestive Diseases & Disorders Research, Health, Public Health

Mission: G-PACT was started by a group of people nationwide who are suffering from Gastroparesis. It is not a very well known condition so therefore patients are often misdiagnosed for years and do not respond well to treatment for other disorders.G-PACT is dedicated to increasing awareness of Gastroparesis among the medical profession, patients, and general population. We provide multiple educational resources and coping mechanisms to the public at no cost.

Results: We have over 12.500 Facebook fans from all 50 states and 50 different countries. We have some of the leading GP physicians on our medical advisory board. We are also conducting the first IRB approved international research study into Gastroparesis. We founded DTP awareness month in August 2010 which has become an international event. We are very highly regarded among the leading GP doctors in the country and are the go-to organization for these conditions. We advocate on Capitol Hill every year, but also expand and pursue different types of treatment options outside of the FDA.

Target demographics: individuals suffering from digestive tract paralysis, caregivers, general population

Direct beneficiaries per year: 12,000 patients, caregivers, physicians

Geographic areas served: The international community with anyone who deals with digestive tract paralysis, including gastroparesis, CIPO, colonic inertia

Programs: Free educational booklets, accessibility cards to use at restaurants, certain venues, and restrooms, support groups online and 1-800 support line, cookbooks for Gastroparesis, unprecedented international IRB approved research study, one-on-one interaction with volunteers who deal with it daily

Community Stories

71 Stories from Volunteers, Donors & Supporters

4 Anna26

Client Served

Rating: 5

My beautiful 16 year old daughter, Faith, was diagnosed in September 2012 with Idiopathic Gastroparesis. We had never heard of this disease before, and to put it bluntly, while I was relieved that the doctors had finally could explain why my daughter had been so ill for several long months, I was also petrified as to what this diagnosis meant for my daughter. I came across the G-PACT website when I was doing research on my daughter's condition while waiting the two weeks it took between getting the diagnosis and actually getting an appointment to see her pediatric GI specialist. Many of the sites I found provided generic information about Gastroparesis, but the G-PACT site is different. As I looked at the information on this site, I knew I had found an organization that cared about my daughter and other people suffering from severe chronic digestive illnesses. Not only is G-PACT actively working to raise funds for research into diseases like Gastroparesis, it also provides support groups for and pertinent information about these disease to people who suffer from them. My daughter has been able to connect with other young people who also have Gastroparesis which has been a blessing because it has helped her realize that she is not alone. It is wonderful for her to be able to share her experiences with others who understand what she is going through. I have learned more about how to meet the needs of my daughter through the information provided by G-PACT than I have through any other source, including her doctor. We live in a state where we have no medical professionals who are specialized in treating Gastroparesis, so this information has been a life saver. I have just signed up to be a volunteer for G-PACT because I truly believe in and appreciate the work they do.

4 Elana N.

Client Served

Rating: 5

Incredible foundation that raises awareness for those who cannot seek the attention they deserve. These are terrible disease which need cures today! No child or adult should starve to find a cure! Thank you G-Pact for raising awareness!

3

Client Served

Rating: 5

G-Pact is a great organization for patients. I have full Digestive Tract Paralysis. As I have gone through varying stages of this disease (diagnosed in 2004...sick since 2000), G-Pact has been there with dietary recommendations, research, resources to become familiar with medical terminology, information about clinical trials and medications, and much more. They are also there when you just need someone to listen or a little pep talk. Thanks G-Pact!!!

2

Client Served

Rating: 5

This is an awesome organization. I was diagosed in 2002 and everyone has been so incredibly helpful; from support and adivice to petitioning my insurance company to cover a surgery for me. Everyone is wonderful!!

2

General Member of the Public

Rating: 5

Great organization that has helped my wife so much. She can get answers to her questions almost anytime during the day and night. They really work hard to help others.

2

Volunteer

Rating: 5

Great group of people who work hard every day to help others. I am proud to be affiliated with this organization.

2 Rodel P.

Volunteer

Rating: 5

very helpful organization. they are helping us gastroparesis patients

2

Client Served

Rating: 5

This organization has helped me learn about my disease and has given me resources that I have found nowhere else.

Debbie138

Client Served

Rating: 5

I was diagnosed with Gastroparesis in 2010. As there is little to no help locally, I felt completely alone and isolated from everyone around me. Absolutely no one in the medical field where I live had been able to offer advise as to how to live with this most debilitating condition. I spent three years in the dark, feeling more and more helpless and alone.
Thank God I stumbled upon G-Pact support group! They have been a tremendous source of help and support to me. I truly thought I was going crazy until I found others going through the same thing! G-pact was the first to give me valuable information on diet, suggestions on pain relief and so helpful in emotional support as well.
They have my undying appreciation!
Thank you,
Debra Montefesco

Jimmysheila C.

Client Served

Rating: 5

I have been sick since Nov. Of 2010. I first found about G-pact by watching you tube. Carissa, the founder of G-pact had made for college. Not only did I learn a lot I was able to see and hear my motility doctor do an interview for Carissa and G-pact. Dr.Kenneth Koch is one of the most sought after motility doctors in the world. Just the fact he did this very happy important video for Carissa and G-pact shows who he is very aware that the is so little education and support for our community. Even before Facebook came about G-pact was reaching those in desperate need of education and support. I remember coming home from my doctors appointment and got the diagnosis of gastroparesis. My doctor then just put me on Reglan and told me to eat 6 small meals a day. But once I looked it up on the internet I learned the sad and scary truth. I was new to all this and G-pact was the first place I found online that did not scare me to death but helped explain my new illness, the best tests, a list if doctors, a support group that was managed by others like myself who suffered and I understood. And now with this great PSA video, the message can reach even more, if only we could get more funding and support. Gastroparesis can be a very isolating illness. Food is the center of every family get together, every holiday, any celebration....food is a major part of the fun. But once food is removed from your life you just can really feel the magnitude if that isolation. The looks you get at a restaurant when everyone else orders food and you can't cause you will get sick and be doubled over in pain. You even stop receiving your invitations. G-pact is a tight bunch. We send out cards and gifts to one another. Even when we are so sick and even when our volunteers who direct these outreach are very I'll, the outreach of love and support touches every need possible. G-pact reaches out to families who have lost a loved one to some form of digestive tract paralysis. They have a phone line that is a toll free number that gives us a chance to actually hear a kind voice on the other end of the line. Online support groups are so important to those like myself that will be on bed rest for awhile or in the hospital fighting for our lives. G-pact has saved lives many times over. They don't spend money on having these huge fund raisers to keep them up and running, unlike many non profits. They keep it fun and despite those volunteers being ill
themselves, tireless hours are donated with no complaint. All to spread the word so more research will be funded, so people will not feel alone and even is used to educate those in the medical field.
Anyway we can promote G-pact and save a life is priceless. Help us to spread the word by adding G-pact to your important list. Once you learn more about digestive tract paralysis and how it affects newborns and seniors. It is a very painful slow starvation. Help us spread the word and educate those who suffer like myself and desperately educate the medical field that gas not always been very kind and to us. People either reach out a hand for help or will run away from what they do not understand.

Kathleen74

Client Served

Rating: 5

I was diagnosed with gastroparesis about 3 years ago after being sick and I diagnosed for over a year. G-Pact had a wealth of information for me with my new diagnosis. The support system and information they provide through their website and online groups has been amazing. I have learned so much from them. Thank you G-Pact for the resources, support and encouragement you provide.

General Member of the Public

Rating: 5

I was diagnosed with Gastroparesis nearly 2 years ago after 5 years of severe illness. This is a disease that can make you feel very alone because it is rare, and there isn't a lot of awareness out there for it. My sister did some research online and found G-PACT for me. They've been a lifesaver! There's so much good information available through this group for people suffering from this disease, and they're constantly working to raise awareness for it, as well as working to encourage the medical community to find more effective treatments. I'm involved with the support group online, and it's been so good for me. There are so many compassionate people there who are willing to share information about the disease. It's gone a long way toward helping me feel less isolated. I've made friends through G-PACT's support group who will be my friends for life!

Volunteer

Rating: 5

I was diagnosed with Gastroparesis about 2.5 years ago after about 1.5 years of symptoms. I had seen a GI Dr several times and my pcp ordered a gastric emptying test as one last attempt to figure out why I was sick all of the time. The results showed delayed emptying. The results of this test have led me down a long, rough road of trying to manage my symptoms day to day (nausea, difficulty going to the bathroom, fatigue..) and making constant adjustments as I learn more about what my body needs. The cause for my Gastroparesis is currently idiopathic (unknown).

I found G-PACT right after my diagnosis and received materials in the mail that gave helpful information about Gastroparesis. My frustrations for lack of knowledge and medical options by the medical field has made me want to volunteer and try to help others who are struggling and those who are newly diagnosed. I can only hope that one day medical professional will have the resources to treat Gastroparesis and hopefully one day there will be a cure! The volunteers are great and all struggle with health issues themselves, but all share the common goal of advocacy and working towards a cure. G-PACT has a lot of wonderful support groups where people can support and encourage one another, and many other programs to support people with digestive tract paralysis, as well as grief programs for those that lost their lives.

Board Member

Rating: 5

When I was first diagnosed in 99 I thought I was alone, I went into remission until 2004. I found G-PACT shortly after being diagnosed. They provided info so that I was able to find a dr who could help me since my local GI's were out of options. With all the support they provided I was able to work with them and became a board member around 2011. I help admin several Facebook groups & a yahoo support group. I have also participated in DDNC since 2011 to fight for better treatment for this disease.

Debbie137

Volunteer

Rating: 5

when I first was diagnosed with gastroparesis, I had no one to turn to for support and help understanding my Condition. i googled gastroparesis and found GPACT. i met many who i could identify with. I found and made friends with many people with the same condition who were able to help me during the beginning. support is critical and GPACT provides support, education, and encouragement along with networking resources. I would be lost with out it. Now I'm a volunteer assisting others in creating hands on support groups across the USA. this group needs to continue to be in active status there is still so much we have to do. Thank You GPACT for making a difference in my life..

Volunteer

Rating: 5

I suffer daily with gastroparesis and if it weren't for G-Pact I don't know how I would get through. A great organization.

Christine119

Client Served

Rating: 5

GPACT is a great organization serving a community that needs a voice!

Client Served

Rating: 5

G-PACT is currently small but growing. Which is good considering it's the only voice for all of us who suffer from debillitating gastroparesis and need support and advocacy more than ever. Gastroparesis is a very serious disease that demands awareness and research, sadly we do not get it. Luckily G-PACT exists for those of us suffering.

2 Deanna14

Volunteer

Rating: 5

G-PACT I have Gastroparesis and this non- profit org has given me so much to see and learn how to have hope for my survival to a dreadful disability education, links,clinical trials support groups, participation to helping others! Thats life oppurtunity that I was so in need to live, Awareness to a condition like no other! Respectful to those lost ! Family comaderity! Kind to all .,. Thank you G-Pact

Volunteer

Rating: 5

I came to know G-PACT through a YouTube video I saw. I had recently been diagnosed with Gastroparesis at that time. As for most people with GP, I began exploring social media to find others who also suffer from GP. I saw all the wonderful things G-PACT did for everyone suffering from Digestive tract paralysis. G-PACT is ran by all passionate volunteers who spread the word and help others with Gastroparesis. G-PACT has given me and so many others a voice and a place to go for help and support for such a rare disease.

Volunteer

Rating: 5

G-PACT has changed not only my life but the life of many people. Being isolated with a "rare" condition that more than 5 million Americans suffer, no doctor could ever give better information that the one provided by G-PACT. A part from amazing guidelines and resources they provide a social network between those who we suffer this daily chronic pain and malnutrition. Please consider G-PACT as one of the best of the best.