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Epilepsy Association of Central Florida Inc

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Nonprofit Overview

Causes: Epilepsy, Health

Mission: "Dedicated to improving the quality of life for persons affected by epilepsy."

Results: We have our own building and clinic that was donated to us saving money that would go to rent going to services! We have a new EEG laboratory saving costs doing them ourselves. We have also created a worldwide online support community and epilepsy education/information site - www.EpilepsyU.com reaching close to a million people around the globe each month. Our newest venture is into epilepsy awareness and social enterprise to support our programs and services, an online store - www.EpilepsyStore.com

Target demographics: Individuals, families and children affected by epilepsy/seizures. Service Area: Central Florida - Orange, Seminole, Osceola nd Brevard counties.

Direct beneficiaries per year: EACF averages nearly 500 active clients per month and reaches millions more with epilepsy educational programs.

Geographic areas served: With offices in Orlando and Melbourne Florida we serve Orange, Seminole, Osceola and Brevard Counties.

Programs: Epilepsy Clinics Epilepsy Diagnostics Case Management Support Groups Epilepsy Prevention and Education Programs Shaken Baby Education and Prevention Programs www.EpilepsyU.com - a worldwide epilepsy news and support community, and, www.EpilepsyStore .com for epilepsy awareness products.

Community Stories

72 Stories from Volunteers, Donors & Supporters

1

General Member of the Public

Rating: 5

A wonderful organization that truly cares. I have been involve with the EACF for years and their dedication to help inform, teach and care for those suffering with the disease, and their families, continues to amaze me.

1

Professional with expertise in this field

Rating: 5

I have had the priviledge of working with this organization to share information on the ketogenic and modified atkins diet for seizures. The Epilepsy Association of Central Florida not only cares about the support and education of families and patients, they also strive to help health care professionals learn about the available therapies for epilepsy and provide resources to help patients find what treatment best fits their needs. It is such a vital organization for the support of patients, families, friends and professionals who are affected by this medical condition and I appreciate all they do!

General Member of the Public

Rating: 5

What a wonderful gift to Central Florida to have such a quality, supportive, organization to reach out and help so many. Chuck Carmen is dedicated to making this association outstanding.

General Member of the Public

Rating: 5

The EACF fills a need that most people don't even know exists. Unless you know someone that has been affected by epilepsy, you are probably unaware of the wonderful job that the association does providing help and support. Chuck Carmen and his staff work tirelessly to help epilepsy patients and their families throughout Central Florida.

Todd14

General Member of the Public

Rating: 5

I find this site to be a tremendous help to the public at large who are or have faced Epilepsy!

General Member of the Public

Rating: 5

The Epilepsy Association of Central Florida is a true gift! The guidance, education, and caring that is provided to patients and parents alike is such a wonderful and valuable resource, and many time it's the only resource that we, as parents, can turn to. Thank you for so many years of dedicated service to our community!

Most Sincrely,

Gary Wargo

Volunteer

Rating: 4

I work with many non-profits and rarely do I experience one with such a tight-nit community. The Association has done a wonderful job of not just providing services and fundraising to support those services but of providing an extended family to all those they serve.

Professional with expertise in this field

Rating: 4

I have had the pleasure of working over the past year with Mr Carmen and the Epilepsy Association. I have to say it is one of the friendliest and most professional organization I have worked with. Currently he is working with our students ot allow his clients to have EEGs and for our students to get the experinece to help create strong techs in the community.

Charles34

General Member of the Public

Rating: 5

I have known the Director of The Epilepsy Association of Central Florida for many years. Knowing the kind of man he is makes this organization top shelf. With his leadership the EACF is in the top of its field, helping those that most need help in their time of need. EACF is truly the place to turn to when faced with this debilitating disease.

1

General Member of the Public

Rating: 1

I was turned down because a lady was having a bad day.I was treated like a crook and a bigot. Melbourne is not a good place to visit. Worst time I ever had.And this is what they say.---The Epilepsy Association of Central Florida, Inc. (EACF) is dedicated to improving the quality of life of persons affected by epilepsy/seizure disorders. EACF identifies, defines, and advocates the needs of persons with epilepsy, as well as planning and implementing strategies to meet those needs. ----- It is a total lie. I have only been shunned and talked bad to.

Comments ( 1 )

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chuck.carmen 08/13/2013

This individual has been a troublemaker. The case manager he refers to is a minority and he made derogatory comments about her that were overheard by other tenants in the office area, was threatening to our staff and has been but on notice by the sheriff with a cease and desist order from our legal counsel.

Professional with expertise in this field

Rating: 5

The Epilepsy Association of Central Florida is a wonderful resource for patients, families, and professionals.

Volunteer

Rating: 5

The Epilepsy Assoc. of Central Florida is a great organization and is doing great things here in Central Florida. Chuck Carmen works non stop to bring atttention to the organization and does everything in his power to raise money for the organization.

It has been a my pleasure to be associated with this organization and look forward to doing more to help it's cause.

SIncerely,
Brian

General Member of the Public

Rating: 5

Thank you for all you do in our community. You continue to make a tremendous difference in many lives.

Donor

Rating: 5

For thirty-five years, we have sponsored the AutoClassic Golf Tournament benefitting the Epilepsy Association of Central Florida, During this time, we have seen the EACF grow in professionalism and services provided to their clients and the community. They are continually developing new programs benefiting their clients and are recognized as a leader by not only Epilepsy Associations but other groups and individuals as well. They are caring, knowledgeable and are there to help those in need. We are proud to be associated with this great organization.

Professional with expertise in this field

Rating: 5

Central Florida Epilepsy Association provides to the community what most clients have to be without. The professional team is always available to answer any question one might have, they provide current and updated information to the layman and other professional teams,as well as distrubuting easy to read brochures. If someone needs follow up medical care or medications, arrangements are made. If current updated eduation or continuing educaton is needed a Health Educator is provided. This organization continually meets the needs of the community.

Because of CFEA people understand what is happening to them, are compliant with their medications and are getting their follow up examinations. A Big Thanks goes to these dedicated professionals who work very hard to take care of our community.

Board Member

Rating: 5

EACF is a great organization that has left a positive mark for many decades in the community. It is professionally run and financially well administered which means that the funds go where they're needed most to the people with epilepsy in the community and into the educational and prevention programs. The organization has taken on challenges that that weren't being addressed such educating the public on the shaken baby syndrome which increases the chances of epilepsy episodes for that individual. The organization has gone through very positive restructuring and has advanced it's information technology outreach to the 21st century with it's new educational website and social media integration. There can only be better things to come in the future. So please join us in our events and donate and volunteer to make us even stronger.

Proud member of the board.

Michelle D.

Volunteer

Rating: 5

The EACF organization is such a wonderful place to volunteer. Their team is dedicated to the mission of EACF and thoughful of the patients they serve. I've enjoyed volunteering on the Golf Tournament for the last 8 years. Even though we have a job to do, we always have fun. But the real joy comes from knowing how many families we helped. I'm grateful that EACF is there to serve the community. Without them, I can't imagine where these families would receive the assistance they need. But I've also learned that is not just the doctor visits or the medicine that the patients must take, it's also the support the staff provides to the patients and their families that make a difference. Chuck Carmen has done a great job of matching talent with resources. His team is AWESOME!

Board Member

Rating: 5

This is a fine and professional organization dedicated to the people it serves. There are no exessive admiistration costs and no large salaries for the few people that are paid by the Agency.
The people involved are 100% committed to advancing the cause and providing affordable services to victims who have no other recourse.
Please consider volunteering or donating...or both.

Board Member

Rating: 5

My lovely grandaughter was diagnosed with epilepsy when she was 16. As I tried to find information, I discovered the Epilepsy Association of Central Florida. I was incredibly impressed by this organization, which not only provides information and education but so much more. From case management to clinical services to efforts aimed at prevention, this is an orgnization that makes a difference in Central Florida for people with epilepsy. Most of the clients have nowhere to turn, but EACF is there and ready to help in every way possible. Executive director Chuck Carmen is tireless in his efforts to connect those in need of help with resources.