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Nonprofit Overview

Causes: Epilepsy, Health

Mission: "Dedicated to improving the quality of life for persons affected by epilepsy."

Results: We have our own building and clinic that was donated to us saving money that would go to rent going to services! We have a new EEG laboratory saving costs doing them ourselves. We have also created a worldwide online support community and epilepsy education/information site - www.EpilepsyU.com reaching close to a million people around the globe each month. Our newest venture is into epilepsy awareness and social enterprise to support our programs and services, an online store - www.EpilepsyStore.com

Target demographics: Individuals, families and children affected by epilepsy/seizures. Service Area: Central Florida - Orange, Seminole, Osceola nd Brevard counties.

Direct beneficiaries per year: EACF averages nearly 500 active clients per month and reaches millions more with epilepsy educational programs.

Geographic areas served: With offices in Orlando and Melbourne Florida we serve Orange, Seminole, Osceola and Brevard Counties.

Programs: Epilepsy Clinics Epilepsy Diagnostics Case Management Support Groups Epilepsy Prevention and Education Programs Shaken Baby Education and Prevention Programs www.EpilepsyU.com - a worldwide epilepsy news and support community, and, www.EpilepsyStore .com for epilepsy awareness products.

Community Stories

72 Stories from Volunteers, Donors & Supporters

1 Saundra

Board Member

Rating: 5

The Epilepsy Association of Central Florida has been helping families impacted by epilepsy for over 50 years. The association has only had two executive directors, founder Merle Evanchyck and current director, Charles (Chuck) Carmen. The dedication of the directors and the loyalty of board members and supporters, demonstrates the confidence people have in the Epilepsy Association of Central Florida. The mission has gone world wide through Epilepsy U, an online information source available to anyone needing information. This organization addresses needs at the source, the patients and families that need help and support. Saundra Gray

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3

Volunteer

Rating: 5

This organization is celebrating 50 years of serving clients and families impacted by epilepsy. It started in Merle Evanchyck's kitchen and has now expanded to world wide influence. Merle has celebrated over 90 years and is so pleased with what she started. The world wide influence is through EpilepsyU, an information site and help platform for professionals, patients, families of patients and just the public at large who wish to know more about the disorder.
I have been involved for over 50 years, since I was searching for help when our 15 month old daughter had her first seizure. Little was available then in the way of information or support and the organization helped our family through those rough years. I serve on the board of directors now as a group of dedicated professionals pilot the organization into our next phase with the engine of the internet helping to spread information and hope to the many patients and their families struggle with a difficult and challenging disorder.

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Professional with expertise in this field

Rating: 5

The Epilepsy Association of Central Florida is consistently providing the highest quality of service for the Community. They are innovative, creative, and understand the needs of people with epilepsy and the families and caregivers that serve them. Their Leadership Team is outstanding and they are not afraid to take calculated risk. The organization goes above and beyond for those they serve. They have a local, regional, national, and international presence.

1 Amy_266

Volunteer

Rating: 5

I volunteer for this organization doing EEGs for them. I do this because it allows optimal treatment for patients who would not receive this care. It helps to decrease hospital visits. It also helps to lead more productive lives for the clients because they can receive the proper medical care for Epilepsy.

ENovak

Client Served

Rating: 5

The EACF has been so much more than just a place to gain knowledge about Epilepsy. They are caring, compassionate, really listen and work towards getting answers and easing fears. They make a very scary time, a little easier to handle. As a parent of a little one with Epilepsy, they have brought us so much knowledge, comfort and help over the years, they are really one of the family. I feel we would still be lost if it were not for the wonderful staff at the EACF.

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1

Donor

Rating: 5

EACF has been a wonderful support structure for myself and my family as our son has gone through his Epilpesy journey. They have given support and advise and calmed us in our hardest moments. I have seen the work they do with other families and it is amazing the difference that they make. We proudly support this organization adn promote their excellence everywhere we go.

Donor

Rating: 5

The Epilepsy Association of Central Florida is a leading voice at the State Capitol for persons with epilepsy, their families, and their caregivers.

General Member of the Public

Rating: 5

The Epilepsy Association of Central Florida has helped so many families in our community . I have personally witnessed how they have helped a family I know as they discovered their youngest boy of 9 was diagnosed with Epilepsy. It was an emotional roller coaster as they struggled to find a sense of normalcy for the older two children. They reached out to EACF and found the resources and guidance they needed to help their son and family deal with the challenges that faced them. We often don't recognize the importance of such a wonderful organization until it affects someone you know. Chuck Carmen, Executive Director, is a wonderful man with a heart of gold. His willingness to reach out and help this family was a testimony to his mission and heart for the organization!

1

Donor

Rating: 5

As a person with Epilepsy, I wanted to get involved with a cause for awhile that helps people with Epilepsy. In March, one of the bands I play in threw a fundraiser party to benefit the Epilepsy Association of Central Florida (we try to do at least one per quarter, but this is the closest to my heart). Chuck attended and while we were able to raise some awareness, a few hundred dollars, I learned that EACF is one of the oldest and largest Epilepsy Organizations in the country. They provide medical help like doctors visits and medication to those who can't afford it. They do what I want to do, which is educate and inform the public about epilepsy.

Pamela104

General Member of the Public

Rating: 5

Since our daughter was diagnosed with epilepsy we reached out to find others going through what we were. The Epilepsy Association of Central Florida welcomed us and introduced us to families with children living with epilepsy. We love participating in their fundraisers and helping spread awareness. The EACF is commited to providing services, care, assistance with medications for people living in Central Florida with Epilepsy. We consider them our family.

Cathy96

Former staff

Rating: 5

Dedicated folks here to help those who have no other means of obtaining neurological care and assistaning those with this sometimes misunderstood affliction. Assistance in obtaining extremely costly medication to controll this disorder. First and foremost in educating people and helping them have a better understanding of this illnesse.


General Member of the Public

Rating: 5

Amazing non-profit. As an executive with the Orlando Magic, I've been fortunate to partner with Chuck on many great awareness nights here at the Amway Center. A tremendous organization support a ruly great cause, whom really appreciate their dedicated volunteers.