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2017 Top-Rated Nonprofit

Epilepsy Association of Central Florida Inc

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Nonprofit Overview

Causes: Epilepsy, Health

Mission: "Dedicated to improving the quality of life for persons affected by epilepsy."

Results: We have our own building and clinic that was donated to us saving money that would go to rent going to services! We have a new EEG laboratory saving costs doing them ourselves. We have also created a worldwide online support community and epilepsy education/information site - www.EpilepsyU.com reaching close to a million people around the globe each month. Our newest venture is into epilepsy awareness and social enterprise to support our programs and services, an online store - www.EpilepsyStore.com

Target demographics: Individuals, families and children affected by epilepsy/seizures. Service Area: Central Florida - Orange, Seminole, Osceola nd Brevard counties.

Direct beneficiaries per year: EACF averages nearly 500 active clients per month and reaches millions more with epilepsy educational programs.

Geographic areas served: With offices in Orlando and Melbourne Florida we serve Orange, Seminole, Osceola and Brevard Counties.

Programs: Epilepsy Clinics Epilepsy Diagnostics Case Management Support Groups Epilepsy Prevention and Education Programs Shaken Baby Education and Prevention Programs www.EpilepsyU.com - a worldwide epilepsy news and support community, and, www.EpilepsyStore .com for epilepsy awareness products.

Community Stories

72 Stories from Volunteers, Donors & Supporters

General Member of the Public

Rating: 5

The Epilepsy Association of Central Florida has helped so many families in our community . I have personally witnessed how they have helped a family I know as they discovered their youngest boy of 9 was diagnosed with Epilepsy. It was an emotional roller coaster as they struggled to find a sense of normalcy for the older two children. They reached out to EACF and found the resources and guidance they needed to help their son and family deal with the challenges that faced them. We often don't recognize the importance of such a wonderful organization until it affects someone you know. Chuck Carmen, Executive Director, is a wonderful man with a heart of gold. His willingness to reach out and help this family was a testimony to his mission and heart for the organization!

1

Donor

Rating: 5

As a person with Epilepsy, I wanted to get involved with a cause for awhile that helps people with Epilepsy. In March, one of the bands I play in threw a fundraiser party to benefit the Epilepsy Association of Central Florida (we try to do at least one per quarter, but this is the closest to my heart). Chuck attended and while we were able to raise some awareness, a few hundred dollars, I learned that EACF is one of the oldest and largest Epilepsy Organizations in the country. They provide medical help like doctors visits and medication to those who can't afford it. They do what I want to do, which is educate and inform the public about epilepsy.

Pamela104

General Member of the Public

Rating: 5

Since our daughter was diagnosed with epilepsy we reached out to find others going through what we were. The Epilepsy Association of Central Florida welcomed us and introduced us to families with children living with epilepsy. We love participating in their fundraisers and helping spread awareness. The EACF is commited to providing services, care, assistance with medications for people living in Central Florida with Epilepsy. We consider them our family.

Cathy96

Former staff

Rating: 5

Dedicated folks here to help those who have no other means of obtaining neurological care and assistaning those with this sometimes misunderstood affliction. Assistance in obtaining extremely costly medication to controll this disorder. First and foremost in educating people and helping them have a better understanding of this illnesse.


General Member of the Public

Rating: 5

Amazing non-profit. As an executive with the Orlando Magic, I've been fortunate to partner with Chuck on many great awareness nights here at the Amway Center. A tremendous organization support a ruly great cause, whom really appreciate their dedicated volunteers.

Volunteer

Rating: 5

Chuck Carmen has taken the Epilepsy Association of Central Florida to new heights as he is a very active community figure making sure that this non-profit is on the radar! The countless stories of families that this organization has helped is growing. He is constantly doing outreach and bringing the community leaders together of business and government to know more about the Epilepsy Association of Central Florida.

Hats off to this organization and all that it does to help those struggling with Epilepsy!

Board Member

Rating: 5

The Epilepsy Association of Central Florida has been helping persons affected by epilepsy and their families for decades. It is truly an exceptional organization with great staff lead by a visionary Executive Director that has a passion for helping families in need. Hands down it is one of the best ran organizations in Central Florida .

Donor

Rating: 5

EACF is doing great work in the community - keep up the work!

General Member of the Public

Rating: 5

EACF has helped patients all over Florida receive access to epilepsy treatment & evaluation by local Neurologists, there is no other group doing as much for the epilepsy population as the EACF!!!

Craig34

General Member of the Public

Rating: 5

This organization is dedicated to helping those in need. Please provide them with the support they need.

Professional with expertise in this field

Rating: 5

From my personal knowledge Chuck Carmen and the folks at the Epilepsy Association of Central Florida do an outstanding job in our community and have the respect of everyone that has ever had any involvement with them.

There can never be enough charitable organizations like the Epilepsy Association.

John

Aaron T.

Board Member

Rating: 5

The epilepsy association is a top-tier organization. I have served as a director for the past five years and it is a model for small and medium sized nonprofits. The executive director consistently exceeds my high expectations. The staff follow his lead and do a superb job with everything from providing services to fundraising.

Previous Stories

Board Member

Rating: 5

An excellent organization with caring employees providing necessary and unique services throughout Central Florida. Epilepsy is widespread but relatively unknown. The EACF fights the stigma and supports the sufferers of epilepsy.

Review from Guidestar

Bruce41

Client Served

Rating: 5

I have been working with Epilepsy Association of Central Florida for the past 3 years, and I have to say it is an absolute pleasure working with them, especially Chuck Carmen. They are a great to work with and always go that extra mile to help you with whatever it is you might need. They will do anything to help raise money for the Epilepsy community, and from what I have seen, they are doing a GREAT job at it!! Kudos to an Amazing Association, and a Big thank you to Chuck for all his hard work and effort o get them to where they are today. I would love to have someone like Chuck on my team any day!!

Evan8

Board Member

Rating: 5

fantastic staff and willingness to help those in need. The board is filled with volunteers willing to share their time and expertise.

1

General Member of the Public

Rating: 5

The Epilepsy Association of Central Fl provides a tremendous amount of help to families, and individuals of low income families the necessary information, medication and education needed to live a normal life

1

Professional with expertise in this field

Rating: 5

The EACF is a wonderful organization for patients and their families. They are an invaluable resource for the community and provide excellent care for those in need. It is my privilege to be involved with the EACF and I look forward to working with them for many years to come.

2 Ilka D.

Client Served

Rating: 5

One of my young sons has epilepsy and it can be very scary as a parent when faced with the diagnosis.
Calling the foundation with many questions and fears I have found a source of information, compassion and help - THANK YOU

1

Client Served

Rating: 5

The EACF has given my husband and I a place to feel welcomed. A community where our daughter (that has had epilepsy since she was 10 months old) can feel loved. When we got her diagnosis we felt alone and afraid but the EACF has become our extended family. We love that they are working hard to break the stigma of epilepsy and help people in need. I would recommend the EACF to anyone that knows someone with epilepsy, lives with it or just wants to learn more.

1 Christina53

General Member of the Public

Rating: 5

THIS PLACE AND ALL THAT IT OFFERS TO ALL OF US THAT SUFFER OR LOVE SOMEONE WHO DOES....KNOWS HOW IMPORTANT THIS BEAUTIFUL PLACE IS....

iT IS HARD TO LIVE WITH THIS DISEASE AND WHEN U DO LIVE WITH IT U LOOSE SO MUCH....BUT THE EDUCATION, WARM WISHES AND THE KNOWLEDGE THIS PLACE IT

WELL LET'S JUST SAY ....AMAZING, LOVING, CARING AND JUST BEING THERE WHEN NEEDED....


KEEP HELPIN AND REACHING TO US...CAUSE I KNOW PERSONALLY WOULD BE LOST WITH OUT ALL THAT U DO!!!!!!!!!!!!!!!!!!!!!

1

General Member of the Public

Rating: 5

Epilepsy Association of Central Florida is a well-run organization that contributes significantly to our community and to those families who live with epilepsy. They are energetic and enthusiastic in their search for therapies and cures that will have real impact for real people. Not every organization like theirs is as forward-looking and proactive and ready to serve.

Charles