I was diagnosed with wet & dry macular degeneration two years ago and was devastated I do have sight loss in the eye with wet, because of the cost i was afraid we would have to choose between loosing our home or my eyesight because of your connection with Macular degeneration partnership i receive $ to help with my co pay and have regained some loss in that eye I sincerely want to thank you and your donors for all the help you have helped someone who really needs it and is grateful beyond belief Evelyn
I was diagnosed with macular degeneration at 45. It has been a very scary and life changing diagnosis. At present my eyesight is stable, but by reading articles provided by Macular Degeneration Partnership, I believe I will have better information when I need to make treatment choices in the future. Macular degneration doesn't run in my family, and I have lived a healthy lifestyle, so my risk factors for getting this were low. Never thought I would be dealing with this at my age. Grateful for any information that can help me understand and come to terms with these cards I have been dealt.
Having AMD myself along with several family members and friends, I'm really thankful we have DEF to keep us up to date on the latest information regarding this awful condition of the eye.
I DISCOVERED I HAD MACULAR DEGENERATION ABOUT 2 YRS. AGO. I HAVE HAD SHOTS IN BOTH EYES. I've BEEN ON DIALYSIS FOR 214 YRS. & I'll TAKE THAT ANY DAY TOTHIS PROBLEMATIC EYESIGHT:) I TAKE pRESERVISION & I APPRECIATETHE COUPONS!!
As an Ophthalmologist dealing with patients with Keratoconus, I cannot emphasize enough how much the discovery eye foundation has been helping these patients in ways complementing their medical and surgical treatment thereby obtaining better outcomes both in the patients' function and in their quality of life
In the early days of my KC diagnosis, before the KC stabilized, the regular NKCF newsletters/forum provided much needed information and support. Discovery Eye Foundation/NKCF provide a valuable and much need resource for a disease that does not get as much visibility as other more obvious and prevalent conditions. KUDOS!!!
Hi, My name is Lilian and was diagnosed with Keratoconus at 22 years of age. For any sufferers of KC and their families, it can be a rather trying experience. It's been about 10 years since I found NKCF while browsing the web for information about KC. I registered for the forum and received great support and feedback from participants. A recent relocation to a new city left me without a clue about finding a specialist. The efficient and easy referral service offered by NKCF pointed me into the direction to some of the best, most friendly and professional, MD and Optometrist (at a University Hospital in Jackson, MS) who fitted me with perfectly fitting Rigid Gas Permeable lens on the first try. I am so appreciative of the tireless efforts of forum and referral coordinator C. Warren. We are lucky to have her's and NKCF's 100% commitment to the holistic care, treatment and research of KC. Kudos to NKCF!
As a person diagnosed with KC, the NKCF forum on their websitea allowed me to read what others with KC have gone through and are experiencing as well as learn about advances in treatments for this condition.
NKCF is a wonderful part of this non-profit. I applaud this organization's ability to reach patients with this condition who can not find eye doctors with the skills needed to help them see. I just finished fitting a young adult who found me through NKCF. This patient can now see well enough to drive with an unrestricted license; a world of difference for this young parent who works full-time! I look forward to the continued efforts made on patients' behalf by NKCF, especially the work with insurance companies and corresponding legislation to try to get this affordable care covered that allows working adults to remain productive and provide for their families.
I'm Danny prem from India. I'm really happy to have link with this organisation as I live with keratoconus with more than 6 years in a country with less knowledge about the disease and NKCF's newsletter helped to know more about my problem and also boosted my confidence to face this world.. thanks for giving a hope for new life
The NKCF Discovery Eye Foudation is a very practical way to get tons of information about keratoconus.
The monthly newsletter presents the latest development for treatment alternatives. It's also possible to get in touch with other people diagnosed with keratoconus to learn about their experience with different treatments. Overall very pleased with the work of the NKCF Discovery Eye Foudation.
I was told I had kertaconsis in 1990 wen i was 26 and i had 3 small children under 6. It was the most devastating you I can't at the age of 26. A full time working mom wife. The doctor told me the name of the disease I went home and read up on the disease that I had. I recall being scared and ASHAMED aashaking t
This foundation (NKCF) has provided me great information and support. Keratoconus is not a well known condition, it is mostly misdiagnosed. Thanks to this foundation its information is disseminated to patients, families and even ophtalmologists!!! It also provides great service updating the latest research and treatments through the website and newsletter; promotes corneal donation, seminars, research and great support to patients by sharing common experiences. I am very thankful to NKCF. It has been very helpful to us!
I have had keratoconus for more than 30 years. This Foundation provides a great service by disseminating the latest information on treatment and research for this eye disorder through its Website and newsletter. The Foundation also offers a discussion board for patients to be able to ask questions, share information, and find support from others with similar experiences. It is a much needed resource for information and support.
When I was first diagnosed with Keratoconus, after having received several misdiagnoses, I went to the Internet to do research. My most positive experience has been with the NKCF, whose website and newsletters have been truly useful and informational. I was particularly impressed when I announced to the newsletter that I would be having a corneal transplant. I received immediately from Cathy Warren a booklet concerning the whole procedure, including factors which my surgeon didn't think to tell me. I was touched and pleased with her prompt response. The procedure went as described, and now I see well enough to drive with glasses.
Hi My name is Antonio Mendoza, 46 old, I live in Mexico (sorry for my English) I have Keratoconous for +20 years.The reason for typing this message is because I want to share my experience trying to control it. In my case, I have periods with critical sensations in my both eyes. In that moment It has been greatful to use soda can soda cold direct to my eye for a short moments. also I have access to traditional Mexican herbal medicine and with some herbals I have the possiblity to manage my eyes when I have crisis.It has been helpful for me because I have the possibility to stabilize the keratoconus. I share this info in order to help others and also try to give some ideas for making new studies. Regards. Antonio firstname.lastname@example.org
My name is Sandy. I am a 52 year old female. My mother has AMD and she is 86 years old. She is blind. I thought I too had AMD. I started having vision changes in my left eye this past summer. I felt dizzy and nauseated. I also had a migraine headache the day my vision changed. I noticed that my left eye had a gray spot in the center of my vision and words I tried to read were wavy. I also noticed that doorways and window frames were wavy. It was like being in a fun house with those crazy mirrors. The scariest thing was when I closed my right eye and looked in the mirror. It looked like my face was dropping or melting on the right side. I looked like a monster. I went to see a doctor at University of Michigan. He didn't think I had AMD, but diagnosed me with Chronic Serous Chorio Retinopathy. I had laser surgery done. It helped improve my vision only for about a month. It is bad again. I am scared that I will lose my sight in both eyes. I wonder if I too really have AMD like my mother.
I am only 61 and have been dealing with wet Amd for two years. I called Discovery Eye Foundation and was able to speak with Judy Delgado the very same day. She listened and was able to confirm that the course of treatment my doctor is using is standard protocol. She also gave me the name of a doctor at Casey Eye Institute who would be a good physician should I choose to get a second opinion. After the conversation, I felt very reassured. It has been difficult dealing with this disease at such a young age. It was so nice to talk to a knowledgable person who showed compassion. They are providing a great service.
When I was diagnosed with Keratconus the foundation provided me with the information I needed to really understand what was going on with my vision. Hearing from others has been a great source of support for me. i feel so much more well equiped to deal with this eye disease with thier help.
My father is almost blind from Macular Degeneration. Recently I have found out that his sister is also showing symptoms, and I also have beginning signs of developing AMD. This organzation has become a valuable resource for me, to get the information I need to keep my own vision healthy, and to understand the implications of having AMD. Through this organization, I have been able to participate in research regarding the genetic factor in AMD, which is important to me since it clearly runs in my family. I feel very fortunate to have this wonderful resource to help me and my family!