I was diagnosed with keratoconus over 10 years ago. Every year my condition worsened, and my ophthalmologist did her best to fit me in new contacts each year. It has been a struggle, and I eventually could no longer drive at night at the age of 48. The DEF newsletter helped me be informed about this condition and about the corneal crosslinking (CXL) study. This information was so valuable to me as I knew very little about keratoconus, how it was treated, and the status of the study. Because of my age, I wasn't a candidate for the (CXL) study until last year. I had the procedure completed in both of my eyes 6 months apart from each other. Being part of the study took lots of time, patience, and many appointments; not to mention having to live and not being able to drive without my medically necessary contacts for several weeks before and during recovery. But because I was better informed, I felt confident that the CXL procedure was the right choice for me at that point in my life.
DEF has provided me with valuable and timely information about treatment options, lifestyle adaptions, dietary suggestions, and more over the course of the 15+ years I have had AMD. It has helped make an informed patient who can interact intelligently with my doctor about my condition. I have achieved a good perspective and much peace of mind about having AMD largely thanks to DEF.
Review from Guidestar
Discovery Eye puts out a very informative newsletter a few times a year. Judy Delgado has consistently responded promptly and thoroughly to requests I have made for info about macular degeneration treatments, etc. She runs support groups in the LA area that are very helpful for individuals with AMD and their family members. They helped my Dad, who had AMD, and have helped me, with early stages of AMD, a lot.
I have Keratoconus and we need advocates working for us to find a cure to this condition. The monthly newsletter is helpful. In particular information about the research.
I am very grateful to Macular Degeneration Partnership , which allows to not feel lonely people with wet AMD.
Patients are always interested if there are new treatments of their illness. I do not live in the U.S. and I can not take part in various activities organized for patients. But Macular Degeneration Partnership helps us to keep abreast of new research in the field of treatment of wet AMD, eliminating the need to look for this information on different sites on the Internet . It also helps not to tire the eyes and save some vision. And the stories of those who do not give the disease , moral support . Thank you again !
I learned that I have dry macular degenerative disease almost 3years ago. I was told not to worry. The a year later my sight in my right eye became wavy, went back to my eye doctor. He referred me to a specialist . After an exam was told to either get a sho in eye or be blind in a couple of days. Took the shot, that night I had twitching on right side if my face. Did not go back. Found website for age related macular degenerative and have learned a lot more. Learned that there are different forms of dry. Learned that there is a chart to use. Had to request for one from , eye doc. Tried to tell me I didn't need one. I rely on this organization for lots of info.
I have been attending the monthly meetings the Macular Degeneration Partnership gives at my local Senior Center for the last 4 months. I was diagnosed with AMD two years ago and then Wet AMD in my left eye four months ago. These meetings have been life changing as they have enabled me to understand the condition better and to have a more positive attitude toward it. I have received an unbelievable amount of helpful information as well as having the opportunity to meet other people with AMD and share our experiences. The guest speakers have also been very helpful.
Thank you Macular Degeneration Partnership and Discovery Eye Foundation for making such a difference in my life.
I have had macular degeneration for some time now and the Macular Degeneration Partnership has always kept me informed about the latest treatments and what the results are, which gives me hope that I might be able to use a different treatment other than the shots that I get now directly in the eye. They are costly and very uncomfortable, I don't like them at all but at least it has slowed the disease for now.
Discovery Eye Foundation fills many roles to those of us with eye problems. We use the website for information from the Macular Degeneration Partnership since my Mother suffers from this debilitating disease. We have so many eye issues in my family from ambliopia, to eye sockets that are not even that it is truly a blessing to find so much information on one website. Thank you from the bottom of our hearts.
The Macular Degeneration Partnership continually gives good information and help. I have been battling wet AMD in my right eye for 8 years and it is now beginning in the left one. I live in France and have the good fortune to have a specialist here who keeps it under control. Because this is inherited in my case, my 2 sisters are also readers of the MD Partnership site, and it gives all of us good guidance. We are very grateful!
I live in France. The Macular Degeneration Partnership has been a life saver for me! The modest contributions I have been able to make, qualify me only as a very small donor; but my gratitude to this association is huge! They gave me support, information and good advice every time I needed them, helping me overcome very difficult periods in the course of this cruel illness. And very importantly, they made me feel like I had not only qualified, sympathetic and readily available advisors, but also good friends overseas! The mere thought that they are there, just an email away, is very, very comforting. I AM glad of this opportunity to express publicly my immense gratitude!
Monique van de Stadt-Kamber
I am a huge fan of the Macular Degeneration Partnership. I am a biologist and have learned much about Dry Macular Degeneration, which my father has. Thanks for your cutting edge research and clinical trials. Keep up the good work!
I especially appreciate the information provided by the Macular Degeneration Foundation about the latest research on treatments. I cope with the loss of vision caused by Wet Macular Degeneration and have had a total of 88 injections in both eyes since 2005. The knowledge that my children and grandchildren will be affected by this condition is very sad to know. I am grateful that there is hope for them - thanks to the information that I receive from the Macular Degeneration Foundation.
I have been diagnosed with dry Macular Degeneration. My father and grandparents all suffered from the disease and went blind. Thanks to the Macular Degeneration Partnership and the great information that is emailed to me from AMD.org, I am learning more and more about the disease and keeping informed as to things in the pipeline. Thank you for your help!
My father has macular degeneration. I a grateful for the services provided by Discovery Eye Foundation. I always check your email newsletter as soon as it arrives.
I am grateful for the Macular Degeneration Partnership. I depend upon it to keep me up to date with the latest developments in the field. Otherwise I would be lost for reliable and useful information. Again, I am most appreciative of this service.
I was diagnosed with wet & dry macular degeneration two years ago and was devastated I do have sight loss in the eye with wet, because of the cost i was afraid we would have to choose between loosing our home or my eyesight because of your connection with Macular degeneration partnership i receive $ to help with my co pay and have regained some loss in that eye I sincerely want to thank you and your donors for all the help you have helped someone who really needs it and is grateful beyond belief Evelyn
I was diagnosed with macular degeneration at 45. It has been a very scary and life changing diagnosis. At present my eyesight is stable, but by reading articles provided by Macular Degeneration Partnership, I believe I will have better information when I need to make treatment choices in the future. Macular degneration doesn't run in my family, and I have lived a healthy lifestyle, so my risk factors for getting this were low. Never thought I would be dealing with this at my age. Grateful for any information that can help me understand and come to terms with these cards I have been dealt.
Having AMD myself along with several family members and friends, I'm really thankful we have DEF to keep us up to date on the latest information regarding this awful condition of the eye.
I DISCOVERED I HAD MACULAR DEGENERATION ABOUT 2 YRS. AGO. I HAVE HAD SHOTS IN BOTH EYES. I've BEEN ON DIALYSIS FOR 214 YRS. & I'll TAKE THAT ANY DAY TOTHIS PROBLEMATIC EYESIGHT:) I TAKE pRESERVISION & I APPRECIATETHE COUPONS!!
As an Ophthalmologist dealing with patients with Keratoconus, I cannot emphasize enough how much the discovery eye foundation has been helping these patients in ways complementing their medical and surgical treatment thereby obtaining better outcomes both in the patients' function and in their quality of life