I've worked with the Diabetes Hands Foundation since 2009. I've participated in their excellent Big Blue Test Event, participated in the TuAnalyze project and participted in 5681 discussions at TuDiabetes.org (acidrock23....). Diabetes is a unique disease in that people with diabetes are obligated to beceme their own doctors in order to treat the disease successfully. I have explored online research, both through diabetes and through fantasy baseball and I am certain that a message board, offering conversation as well as checks and balances, is the best way to find answers quickly. Diabetes Hands foundation is clearly an organization committed to being more than a message board by finding innovative and participatory methods to harness the vast amount of data accumulated by people with diabetes in informative events members are able to participate in. Please consider them strongly for your recognition. S
The Diabetes Hands Foundation connects over 150,000 people who have diabetes, allowing them to share their experiences and concerns and benefit from enormous support. As much information as there is all over the web about diabetes, there are still few communities that people feel the kind of connection they do from tudiabetes. Founded by Manny Hernandez, who lives with diabetes, tudiabetes is an organization and a service with an indelible heart-held mission: to improve the lives of those with diabetes through the support and connection of social media
This site is amazing. It has helped bring the diabetes online community together to talk about issues and the ups and downs of diabetes with others. We post questions about everyday things like meds or pump issues and even funny stuff to make us life that only diabetics would understand. It helps you to not feel alone in the journey of diabetes some with type one and some with type 2 but regardless of the type there are people who understand.
I am a late- and recently-diagnosed Type 1 diabetic who was originally diagnosed Type 2. Devastated upon learning the former, I was compelled to search for a non-clinical community where members spoke truth to the vagaries and complexities of diabetes. TuDiabetes has been a lifeline in my darkest moments, and comic relief in lighter times. It gave me hope to turn the corner from devastation to optimism, because the experiences shared there are spoken from the hearts and souls of people who live it and get it. TuDiabetes is my virtual refuge, a diverse and inclusive community where I can be understood or help another understand. It is what society in general ought to be.
The Diabetes Hands Foundation's website is a great source of information from other diabetics! I have learned so much! From the dexcom users' experiences to insights about carbohydrate metabolism, the website has helped me feel more part of a friendly community who are all living with this chronic situation called diabetes. Discussions are candid and respectful.
I received information about this group through a Health Center email. The map is what drew me in. I wanted to participate in the group too and to participate also so that informaton I have as a (not yet diagnosed officially) pre-diabetic can help to cure and save others from diabetes. I believe in prevention and so if an ounce of prevention can prevent me from getting diabetes and help others that I am all for it. I am part of lighting up the map and also have taken part in a few discussions.
this is a great group for people with diabetes to come to get a better understanding of how to eat to keep their blood sugar stable and other ways to manage their diabetes.
TuDiabetes is a social networking site for people with diabetes and those who are touched by this chronic illness (parents, spouses, siblings). There is a wide range of experienced people on this site, from the newly diagnosed, to those who have had the disease for well over 50 years, to the medical community and diabetes device manufacturers and the parents and family members who are dealing with the short and long-term effects of the disease. Because of this wealth of experience, most people who spend time on the site receive a valuable experience by visiting. There is wonderful advice and truth spoken here, capped by the knowledge that the participants truly understand the frustrations of diabetes.
My daughter was diagnosed with diabetes in Dec. 2009. As soon as she was out of the hospital, I was online looking for additional information about her condition. I found TuDiabetes, which is run by the Diabetes Hands Foundation, and have visited the site nearly every day since. It's a wonderful source of information and support.
Diabetes has reached epidemic proportions worldwide, and people are searching for answers about the disease where they have the most access--not in a doctor's office, but online. While there are many places on the Web ready to answer their questions, there are few that are as helpful and reputable as TuDiabetes. Along with beneficial information, there is also a very warm, caring feeling that emanates from the others members that is truly comforting. It is obvious that there are others there that feel the same concern, pain, worry--even joy in victories both large and small. With the diabetic population rising everyday, it is good to know that there is a community such as TuDiabetes and EsTuDiabetes that people can turn to with confidence.
very nice site! makes me feel better to know that I'm not the only one affected by such a horrible sickness like Type 1 diabetes. others give me the hope that all will be ok.
I am terrifically impressed with the Diabetes Hands Foundation and their work to support people touched by diabetes around the US and the world. This non-profit has developed an online social networking community that nurtures ties among people affected by diabetes, perhaps our single most important public health concern. Their efforts have provided opportunity for members of the community to connect with each other in a safe environment, protected from commercial interests, to generate vital social support and shared health information to help many thousands of people address the daily requirements of managing their illness. The Foundation has also taken important steps to align their community with emerging health information technologies and research organizations seeking to improve knowledge, discovery, prevention and treatment--moving beyond an insular approach and working at a top level to support its membership. For example, they have provided opportunities for top tier health organizations such as Children's Hospital Boston, the Centers for Disease Control and Prevention and the Joslin Diabetes Center to engage with their membership and the community in a fashion that protects the integrity of the community but seeks to improve prevention practice and disease self management. They have also instituted important quality controls, welcoming new members, vetting participation to protect against unauthorized lurking, and working diligently to keep the community focused on helping itself through non-judgmental dialogue, and protecting members' private data by not selling it. These policy practices distinguish this site. In social media, it is difficult to balance competing needs of protecting the voice of members and the validity of health information, and this site has worked very hard and successfully to do this, instituting new practices with considerable opportunity for community dialogue and input. They are a great model to other nonprofits. They have also worked to influence the technology platform on which they run to insure that it remains available at low cost to other nonprofits, so that the larger non profit community can benefit from their advocacy. In this regard, their leadership works regularly with other diabetes social media groups to support their efforts--exerting a multiplier effect on the larger society. Very laudable efforts at every level.
TuDiabetes, the social network of people that are affected by diabetes, either directly or indirectly, is a wonderful source of information, tips, and simply friendship and comfort for us diabetics. Diabetes is a situation where the availability of information makes a true difference in the quality of life. TuDiabetes has a clearly established leadership in helping people from all over the world deal with their situation on a daily basis, with the help of friends who have the exact same situation to deal with.
Hello My Name is BiBi,I am a member,I am a diabetic since 04..since then I have had a bad battle with this sickness.I have always felt alone ,my family had no clue about this sickness or how it is effecting me.. Some how I came across their site and I'm very grateful for the foundation and its members as well. They have welcomed me and gave me inforation to seek and learn more from.. I don't feel like a lonely warrior anymore,I have people that like me,know what this disease does to us,how it changes our life for ever.thank you.BiBi
TuDiabetes provides a safe place for people who live with this overwhelming disease to find solace, comfort, support and education. There is nothing that can replace the feeling of being in a "room," virtually or physically. TuDiabetes is that "room" for people across the globe.
Thanks a lot for the feedback, Ginger!
Diabetes Hands Foundation serves diabetics fr. many demographics and needs. Members support one another w/ nutrition, diet, recipes, exercise, pet care, mental illness, etc. We not only give info regarding health, but we make one another laugh.
TuDiabetes has been a wonderful addition to the support community for type 1 diabetics. Although information pertaining to diabetes has been available through other sources for a long time, namely, the American Diabetes Association, TuDiabetes has addressed the younger population of type 1 diabetics with their unique problems, both physically and emotionally. There is such a broad spectrum of challenges that younge type 1 diabetics deal with on a day to day basis, and focusing on this segment of diabetics has been long overdue.
We are glad to have been able to bring useful information and support!
The founders of DHF have a genuine passion for people with diabetes -- and in finding ways to bring them together. DHF's community outreach and services have touched the lives of tens of thousands of people with diabetes. An organization's mission statement means nothing if the people behind the mission lack focus, drive, compassion, and integrity. DHF folks have all these leadership qualities. I cannot praise the founders and board of DHF highly enough.
Thanks so much for sharing your thoughts about DHF with the GreatNonprofits community, LAWolfe!
As I was reading an earlier review, I was struck by someone's comment that "diabetes is a very lonely disease." Having been a Type 1 diabetic for more than 22 years now, I can say that that statement resounds with me still because I remember the days when I felt very alone, isolated, weak, incompetent, and angry because of this disease. I was diagnosed well before the invention of the Internet and I lived in a community too small for a support group. Now that TuDiabetes and the Diabetes Hands Foundation have created an online community of diabetics of all stripes, I now know I'm not alone. We are an incredibly diverse community-- some of us facing challenges that I can't even imagine, the awareness of which snaps me out of my self-pity like a rubber band to the wrist. But we are also united in our common tie. Communities for people with diabetes existed online before TuDiabetes, but of the few I found, I never really felt at home-- most were geared toward parents raising diabetic kids, or older, Type 2 diabetics. On the cusp of the explosion of the social networking trend, TuDiabetes came along and began serving not only those communities, but the rest of us as well, those of us who never really felt we had a home online before now.
I am happy to read that we have been able to help you through our community. Thanks so much for sharing your experience, Jasmine!
I was reading my e-mails when I came upon Guidestar. I began to review the nonprofits and came upon yours. I am an IDDM for 15 years. I am w/c bound and spend a lot of time one the net. If I can help with typing or other tasks that I can do from home let me know.
Review from Guidestar
Diabetes Hands Foundation is a cutting-edge charity in that it was founded in the age of social media and all things peer-to-peer. The founders of this organization understand the importance of and value in enabling people to discuss their health-related issues and work together using the Internet to improve their lives. The founders are very savvy in the non-profit technology space, and are whole-heartedly invested in the ideals of transparency, honesty, and peer-to-peer networking that are new to the non-profit arena.
The Diabetes Hands Foundation is the most innovative, forward-thinking, patient-focused group in the diabetes patient advocacy space. They know first-hand what their members' unmet needs are and work hard to develop programs to address those needs. DHF embraces the concept of partnering wth organizations that bring expert knowledge and other core competencies to the table and operates always with the best interest of people with diabete in mind.
Donna, thank you so much for your kind words!! About the cloning thing, we'll see about that! :D
helping people with diabetes find community. Diabetes can be a lonely disease. I'm the only one in my family with diabetes. Testing, injecting, counting carbs, testing again - no one in my family or friends can really understand that. But ... there is a place where everyone gets it. On TuDiabetes, I can share my challenges and triumphs and learn from others and they can learn from me. It's where everybody know your game.
Thanks a lot for sharing your experience with TuDiabetes. We look forward to do more and help more people like yourself, khrt!
When I was 12, I was diagnosed with type one diabetes. It was a shock. Like so many others, I had only heard of type two. I thought there was only one diabetes. I didn’t know any other people- let alone teens!- with diabetes. At my school, there was no other person with diabetes. I was alone, defeated, scared. When I had to test my blood sugar, I sat in the corner of the office, away from the receptionist who was afraid of blood and needles. There was no nurse at this building in my school- and the temporary school nurse was afraid of needles. For weeks, my mom dutifully arrived at the school at noon and we took over an empty classroom, trying to understand what we were doing. For weeks I came home crying, trying to make my friends understand, trying to convince the math teacher that tests right before lunch weren’t a good idea because I was always low before lunch. Trying to fit in. Even once we got the hang of it and mom stopped coming at lunch, I was always “the girl with the disease” or “the druggie with the needles”. The weird one. The one who “couldn’t eat sweets.” I became desperate to find someone who understood. My doctors studied type one, but they didn’t get the emotional stuff. Therapists didn’t know what diabetes was. And none of these were kids. I’d scan the restaurants, just hoping to find a pump, a needle, a meter, anything that was a sign. Then I found TuDiabetes. Here was this family of people, all who had diabetes, all with their own stories, all with hope and determination. All wanting to find friends to talk to, people to help. Here were these people who lived with diabetes and did amazing things- conquered mountains, go to the Olympics, get on American Idol, the list goes on. Here were people who understood everything Diabetes- the hilariousness in the places where we find test strips, the desperation of trying to get rid of ketones. Here were diabetics all grown up- the people that I want to be. Having kids, getting jobs- living life- even with diabetes. It was TuDiabetes that opened my eyes to the diabetes world- not a world of hate and despair- but a world of hope, determination, acceptance and love. Everyday each and every one of us fights diabetes and we go on to do amazing things. We push past the difficult things- the blood sugars, the ketones, the misconceptions about diabetes- and we live life. With TuDiabetes I met my role models, my friends and my family with diabetes. I met the people that I want to be when I’m older, the other teenagers living like I am and people who have different kinds of diabetes- they helped me learn that type two diabetes isn’t all that I thought it was and that there are types like 1.5 that nearly no one knows about. My family gives me a lot of support, but they’re still learning. They don’t have diabetes, no matter how much they understand about it. Without TuDiabetes, I would be struggling to find a place right now. My pump probably wouldn’t be on my side (and I have Kristin especially to thank for that!) and I most certainly wouldn’t be scheduling CGM classes. My needles wouldn’t be taken with confidence and my head wouldn’t be held high. Today when I walk down the street, through the hallway, around the mall, wherever I am, I walk proudly with diabetes- my pump on my side, my meter in my backpack and a little blood stain on my finger. I like who I am, and I’m that person because of the TuDiabetes family and the support they have given me. TuDiabetes has truly taught me that while I have diabetes, I am not a diabetic. It’s amazing what you can do, what you can get past, when you have this support.
Reading your testimonial we are once again reminded of the reason we do what we do. Thank you very much for sharing it!
Diabetes Hands Foundation is a thought leader in using social media for social good. They care deeply for their mission, and they've proven they can put the resources, skills and talent together to do great things. They are playing a crucial role, blazing a trail that other non-profits working in other areas can follow.
Thanks for your insightful ideas on ways to make our work better, Michael!
The Diabetes Hands Foundation truly does touch & improve the lives of diabetics through their many unique projects. I've been a member of Tu Diabetes for several years. I feel honored to be part of such a dynamic on-line community. Nowhere else is there this level of support & information as is shared daily on Tu Diabetes. The Tu D atmosphere of respect, diversity & caring is unparalleled & exemplary. This is entirely due to the commitment of the Diabetes Hands Foundation, founder Manny Hernandez & their volunteer administrators. The Diabetes Hands Foundation & Tu Diabetes is a lifeline for 15,000 members dealing with a complex & devastating disease. Only through support & exchanging information can we handle the daily struggles diabetes demands of us. Tu D offers all this & more. I was fortunate to find Tu D shortly after diagnosis & no longer feel alone.
From the bottom of our hearts, THANK you for such touching words!
DHF has been very special for me. It has allow me to meet some incredible people that are touch by diabetes. Their stories have inspired me every day to be accepting but resilient. We have seen the power of connecting people to help each other. It's been quite a journey.
The Diabetes Hands Foundation is an awesome foundation for people who live with diabetes, family members and friends. I gained a lot of knowledge and friendships from the TuDiabetes.com community.
Thanks so much for your kind words and for ALL you have continued to do for DHF and the diabetic community at large, diabetic-iz-me!
Diabetes Hands Foundation has saved my life. Although I had type 1 diabetes for many years, TuDiabetes.com helped me connect with many other people who supported me and provided invaluable advice about blood sugar management and better ways to exercise. Life with this chronic disease is a lot easier thanks to TuDiabetes and the work of DHF.
My youngest child was diagnosed with type 1 diabetes at the age of 6. Nine years and four pumps later (longboarding is tough on pumps) he is a healthy and happy teenager who, on a daily basis, grows in his ability to independently manage his diabetes. Diabetes Hands Foundation has greatly contributed to his growth because of the support it offered me, his mother. Receiving advice and gaining perspective from other caregivers, DHF provided a community that kept this mother moving forward one day at a time.
While I don't have diabetes myself, I have friends that do. I was very moved by the way in which the Diabetes Hands Foundation uses art to express the powerful emotions people have in coping with this condition. It really sensitized me to understand what they are going through.
Thanks for your comments, Maggie. We also want to reach the greatest possible audience.
This organization has allowed me to connect with others who have diabetes. This may not seem like a big deal, but it really is. Helping people with a condition, such as diabetes, connect with others allows someone like me to not feel so alone, so isolated. It also provides a lot of helpful information about diabetes management. I know I've learned more about diabetes and how to deal with certain situations from this organization than I have from all of my doctors and educators. This organization is a blessing to anyone touched by diabetes.
We are happy that DHF has helped you connect with others touched by diabetes! Thanks for your support and participation in our community.
The Diabetes Hands Foundation has done a superb job, in a relatively short amount of time, of providing much-needed information, outreach, inspiration and community to thousands of people with diabetes around the world. They have engaged so many people in the online world and have provided a wonderful service, partnership and above all concern for those dealing with this devastating disease.
Thanks for your support and for all you guys do too, Lori!
I first met Manny and Andreina (DHF founders) in the summer of 2008. I myself do not have diabetes but am touched by it: my niece has Type I. For me, DHF has opened my eyes to the day-to-day challenges (and multiple complications) that can come from having diabetes. It has helped me understand the issues my niece has to deal with every day and has given me a new understanding (and respect) for those dealing with diabetes every day. I am also motivated to volunteer my time by the fact that DHF does so much to help others. I feel proud that I am helping this organization make a difference in the lives of so many people. When I read the comments and posts from the community members, I realize how important it is to provide this place where people can share their ups and downs and get support from others.
We are privileged to count you among our board members, Cesar! Thanks for your continued support and guidance.
The Diabetes Hands Foundation is masterful at engaging people with diabetes to educate and spread awareness. Through TuDiabetes.com, they have built a cohesive and inspirational social network for people with diabetes. It is truly first in its class.
Thanks for your kind words, David! It is an honor to work alongside you raising diabetes awareness!