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cureCADASIL

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Causes: Health

Mission: The mission of cureCADASIL Association is to raise awareness of CADASIL, ensuring it will be universally recognized and understood by the medical community, enabling patients to be correctly diagnosed. We are dedicated to helping patients, families, caregivers, and other supporters touched by CADASIL. We aim to unite patients and the medical community toward the common goal of treatments and, ultimately a cure for this rare genetic disease, by promoting Communication, Advocacy, Research, and Education.

Results: Please see our website for news and updates! http://www.cureCADASIL.org

Target demographics: spread awareness and education of CADASIL ensuring it will be universally recognized and understood by the medical community, enabling patients to be correctly diagnosed and to support and assist in the research process to lead to a treatment and ultimately a cure for CADASIL.

Geographic areas served: the United States

Programs: CADASIL Connection an online Webinar Speaker Series providing unique opportunities to educate and connect the audience of researchers, clinicians, and patients on current research and developments in CADASIL. Informational website and newsletters with current CADASIL information. Informational booths at conferences and conference attendance to spread awareness and make valuable connections to increase awareness of CADASIL. The CADASIL Family Registry unites the CADASIL community as a research ready community. We aim to unite patients and the medical community toward the common goal of treatments and, ultimately a cure for this rare genetic disease, by promoting Communication, Advocacy, Research, and Education.

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