Cranio Care Bears are an absolutely amazing organization. I feel blessed to have found them when I was scared out of my mind at the thought of my son having Cranio. The care package we received brought us such joy in such a dark time . I just can't say enough wonderful things about them!
Carenio Care Bears is an organization dear to my hear...I thank them everyday being there for me every step of the way when i needed someone the most...my baby was diagnozed with saggital craniosynostosis at 2 months old and underwent surgery at 4 months...when we found out that she was diagnozed with craniosynostosis we had no idea what to expect thanks to cranio care bears and their support we were able to get through the surgery...their care packeges are amazing and brought nothing but warm and secure feelings to our heartsl...even after my baby's surgery cranio care bear was there for me to answer questions and just to make us feel better when i break down....thank you cranio care bears for everything you do and what you stand for.... the most amazing thing in their care packages is deffenatly the prayer chain....you hold a spacial place in my heart....thank you, from the Lopez Family from New Haven, CT
This charity has been a wealth of support,knowledge sharing and preperation for our family while we deal with our sons craniosynostosis.
When our son was diagnosed with right Lambdoid Craniosynostosis I did what any parent does in that situation and Googled everything I could get my hands on. When I came across Cranio Care Bears it was so full of information and support! Then when I heard they provide care packages for families going through surgery I was thankful to know that someone cared enough to think of my son and our family through the process. I was overwhelmed by the beautiful care package we received. Summer and Shelby were godsends for us at a time we really needed them! Thank you ~ Amy Greathouse
As a new mother, the thought of your child having a major surgery at just a few months old is terrifying. I am so glad I found Cranio Care Bears online! I was inspired by the strength of the families that had already gone through what we were about to experience. The support we received from these families and from Summer was incredible! Summer brought an amazing care package to the hospital. She was so encouraging and positive during her visit. We are so grateful for Cranio Care Bears!
Cranio Care Bears is such a fabulous orginaziation. When my son was diagnosed earlier this year I had no idea what Sagittal metopic was. Because of their time and dedication my sweet baby had an awesome care package, and I learn so much.
Cranio Care Bears are amazing! We were given a week's notice for my son, Liam's, surgery. The care package arrived two days prior to his surgery date. Everything in the care package was very nice.
These ladies are truly a gift!! Seeing first hand the comfort they bring to not only the child but to the family as well. Being a cranio uncle myself, my sister found a lot of comfort and support through Cranio Care Bears. We have donated several times and will continue to donate so they can help others as they helped us through a really hard time. Thanks again to all involved!!!
Words can not express how this organization has helped me in to many ways. They were there to listen and just be there during the hardest time in my life. They sent my son who was diagnosed with sagittal Craniosynostosis, a care package before his surgery filled with stuff for him and I to make the waiting and recovery a little bit better. I will always hold them close to heart and I don't know what I would have done without them. There is not enough "thank you's" in the world that can thank them enough.
Cranio care bears is fabulous. We have found great comfort from them in our sons diagnosis of metopic cranio, unfortunately here in the UK we don't have many support groups for this little unknown/undiagnosed condition. We have made many new friends and have found much support through you guys. Thank you so much. From the Goss family in the UK.
Genuinely caring people who like to help babies going through surgery for Craniosynostosis and their families. What an awesome organization.
there are no words to describe just how great this organization has been. They are truly caring and very sensitive to those facing cranio surgery.receiving a care package from this non-profit organization was definitely life changing and got us through one of the most difficult things and our lives.
Cranio Care Bears provides information, support and care packages for infants/children (and their families) going through surgery for Craniosynostosis. It is a common, often undiagnosed, condition and it's important for folks to be able to find support. My son went through this. It's not an easy time for anyone. CCB is there with kind words, support and awesome merchandise (proceeds go to care packages).
my daughter was diagnosed with craniosynstosis and i was at a loss where to look for genuine help - my sister found the cranio care bears and requested a care package for us which was amazing and so so thoughtful - particularly the prayer chain. All the items were really well thought out and just made me smile, as well as my older daughter who was convinced the package was for her (she ate the candy) and she enjoyed 'sharing' things with her sister in hospital!
we follow all their posts on facebook and their website and the stories form other parents are really helpful, just knowing other people are going through the same as you is calming
Cranio Care Bears is amazing! Our son's surgery was scheduled so fast (1 week notice), I was scrambling online doing research and found this organization. I reached out to them for a care pakcage and never imagined it would make it in time... but it did!!! It was exactly what I needed to make it though - especially the prayer chain. That lifted us all up and got us through the worst experience of our lives. I can't tell you how much it helped knowing there are complete strangers out there that had gone through this and cared so much about us! They are the BEST!
The day our doctor told us our 3 month old son had craniosynostosis it felt like my world was crumbling. I couldn't even say the word, let alone understand what it meant for our family! Finding Cranio Care Bears was a true gift - almost immediately we began to understand that we would make it through this. It was going to be difficult, for sure, (and it was!!!) but the testimony of so many others that our beautiful boy would be just fine was lifechanging. The love of total strangers to send us a care package full of thoughtfulness and prayers was a true gift. I loved hanging the prayer ribbon over little Luke's crib in the hospital - so many people remarked on how special it was, and I loved being able to tell them how many people were praying for him - including all the network from CCB! Thank you!
Cranio Care Bears provided my them 5 month old daughter a wonderful care package for her cranio surgery. The ladies also provided much needed and greatly appreciated support to me during and after surgery. They are awesome. My daughter is almost 6 months post op and still uses the blankie they provided her in her care pack.
Thank you Cranio Care Bears for your help getting us through our surgery. Cranio Care Bears are an amazing organization, with members that truly care about what they do to help. The gifts that we received helped us understand that the organization knows what they are doing and has been in our shoes. From the stress ball that we held during surgery to the toiletries that we forgot because our mind was somewhere else. The prayer chain that we received still hangs in our daughter’s room. Summer was so helpful helping us understanding next steps. It was wonderful to have her visit us in the hospital. Thank you for everything.
When my son had a 7 hour cranial surgery last month, Cranio Care Bears sent us the most wonderful care package. It made such a difference with our hospital stay. There were snacks and toiletries for us parents, and there were little toys and kid toiletries for my son. There was a handmade hat for him and a scarf for me, and a really cool "tough guy" pj set for him. We received a prayer chain with messages on each ribbon link, and all our nurses commented on the wonderful chain. When our family was feeling stressed and miserable, this packaged helped us remember that people from around the country cared about our son and were sending us love and prayers. It gave us strength to make it through a tough time. Thank you, Cranio Care Bears!
Cranio Care Bears are an amazing organisation, helping families in need all around the world. They not only provide products for the child and parents but also assist families to understand what Craniosynostis is and how it can affect a child's health.
Cranio Care Bears was there for me for support and they sent my family a wonderful care package. It was a difficult time and when a mother is told your child will have to have surgery for crainiosynostosis- the world around you stops. After that I went on the web to research what I could to better understand what was about to happen to my little baby girl and how will this impact my family. Cranio Care Bears was teh first web site I came across and then i was forwarded to others. This is the most caring organization and I dont think they will ever know how they helped me.
This is the most caring and genorous group of women I have ever had the privilege to know. They help so many scared and worried kids and FAMILIES. They spend countless hours putting together prayer chains, packages and so much more. They try and send a care package to each and every child who is affected by this deformity. I love to watch them post pray request for each child facing surgery the next day. They also post updates on the childrens progress. They are so willing to answer ANY question you may have and if they dont have an answer then they point you in the direction to where you can find the answers. Thank you guys so much for all the love and support. This journey would be very scared, dark and lonley without you guys. Truly a blessing from above!!!!!
my daughter is having surgery for right coronal craniosynostosis and since i found out and found cranio care bears they have been amazing!! ive never met two women, people for that matter, that care so much about other people, their children, what their going through, and making them feel that their not alone and that people are there for them, as much as these two ladies that started cranio care bears do!! if it wasnt for them, idk where id be or how id feel. im scared about her upcoming surgery tomorrow but because of them i feel better, not alone, and ive learned so much about what craniosynostosis is and the surgery for it. ive met lots of other parents that are there with me! other then the support they give, cranio care bears sends out these awesome care packages and they are huge full of so much stuff all for free for anyone all over the world that has a child/baby going through surgery!! they truly are amazing!! we love u cranio care bears!! thank u so much!!
Cranio care bears are amazing!! They sent us a care package to Mexico, the package arrived one day before the surgery, all the stuff in the package was perfect, and the prayer chain made us feel so special in every way, Thank you cranio care bears!
We love Cranio Care Bears. We received a care package before our daughter's surgery and it was wonderful. They try to provide some necessities for the hospital stay and some personal, encouraging, and thoughtful items for the child and parent - support and hope in a box. Beautiful.
Cranio Care Bears helped my child and I get through a tough time by making it a little brighter and to know others are out there!
I received my son's care package before his surgery and it helped tremendously during our stay at the hospital. Not only during, but as we were leaving the hospital, they did not have a cap to fit over his head at discharge, but thankfully our care package did!!!
Cranio Care Bears is a cranio parent's dream. They are personal, geniune, and super caring. Their care packages are sweet, convenient and helpful, and they offer a TON of support in any way possible. I love that my son and I can also order clothing and other items to bring awareness! CCB is wonderful and I have never had a less than perfect interaction with them!
Cranio Care Bears, what a wonderful human initiative! To parents awaiting surgery of their precious children, Cranio Care Bears send packages with carefully selected items that will be needed in the first couple of post-surgery days. Each of the items - hand made baby cap, colorful blanket, baby slippers or lip conditioner and socks for mommy - is a token of care of mothers who have been there, who know from their own experience what are parents whose children are going through a craniosynostosis surgery going through, both physically and mentally. Thank you again for sending my son a simple yet important package as a sign of human care that lacks so much these days...it felt like it was a package send from a dear cousin living far away, and yet knowing what we need and caring for us...You are really great!
A few days after my daughter was diagnosed with lambdoid and coronal synostosis I was so lost and fearful. While searching on the web I found Cranio Care Bears and immediately found comfort in knowing that their was a non-profit that truly cares about our little ones. Finding other families stories on their website that were on the healing side of the process of surgical correction provided me with such comfort. A few weeks before my daughters surgery I requested a care package for the hospital. When it came in the mail I was incredibly touched and the products that were provided were just what i needed to take with me while we stayed in the hospital for 5 days. It was one of the toughest days of my families life and definitely for my little Dyllan, but i new that we would get through it because I saw other families through Cranio Care Bears that had beautiful success. They do Gods work and I am eternally grateful. I will never forget looking up at Dyllan's prayer chain and thinking about the people that were behind the prayers. It gave such comfort. I still wear my fuzzy pink socks that were provided. Dyllan wore her Carters sunsuit until just a few weeks ago in California. God bless Cranio Care Bears for all of their love they show to all of our families that face this scary process.
My twin boys were both diagnosed with Craniosynostosis. Cranio Care Bears provide much support via a care package but also through messaging, their Facebook group and website. This group is wonderful and and is run with much love and very organization. They assisted us so much in our journey. Thank you!
Cranio Care Bears is an amazing organization. We were so thankful to have found them when my daughter Ellee was having her surgery to repair her cranial synostosis. Another mom told me about them, and even though we were in surgery at that moment, they still sent her a care package and made sure to pray for her and support us through the recovery time. Thank you all so much for what you do! May God continue to bless this ministry!
Cranio Care Bears was the first support source that I found when I learned at my son's birth that he would need surgery on his skull for a condition I had never even heard of. I reached out and this amazing group of people helped me through the scariest time of my life. What Shelby and Summer do is so inspiring and just so wonderful because although the items found inside of the care packages are so nice and thoughtful, what I felt when I opened that box was hope, and you can't put a price on that! It is a beautiful thing they do for cranio kids and families!
Cranio Care Bears was a tremendous support to me when I learned that my son would need skull surgery.. They mailed me the most amazing care package before his surgery and they are extremely helpful in raising awareness of craniosynostosis.
The Cranio Care Bears are truly remarkable. They have brought to light a condition that most people have never even heard of, let alone affected by it. For the many people they help with spreading awareness and in shipping care packages, they have shown these people that they are not alone....that there is an amazing support group out there for people just like them. Not only have the Cranio Care Bears made very difficult situations for families easier to take on, they truly care and want to show the world that. Can't thank them enough for what they do!
We were the happy and thankful recipients of one of Cranio Care Bears care packages. It was so thoughtful and useful and the prayer chain was just what I needed. It was eventually passed onto another mommy who needed it more. Having been there themselves, Shelby & Summer get it and know just what to say, and what little goodies mean the most when you're stuck in the hospital with head surgery.
My daughter was born with Metopic Craniosynostosis. If nobody has been through receiving any type of diagnosis like this before, they are unaware of how suddenly alone you feel in the situation just handed to you. Cranio Care Bears sent us a care package, and all of the little personal items in it for my daughter and even a few for me, let me know that we were indeed not alone. So many loving hearts are involved in this!
It was the day before we left for my son surgery, which we had to travel over 1200 miles for. I remember sitting in the living room and there was a knock at the door. It was the post man with a package from Cranio Care Bears. The tears flowed as my son and I opened the box. Summer and Shebly have true life experience with our cranio kids and they knew exactly what to send. To receive a package, the day before you leave, that is filled with so much love, is truly a blessing! We have the prayer chain on my son's crib now but followed us on our journey and the CD is played every night and was put on repeat in the hospital and days following. The little gifts in the box were very helpful and much needed in a time like ours. Cranio Care Bears are a blessing to all.
My son was born with Metopic craniosynostosis. This means that the front two plates of his skull fused too early. He had to have major surgery to correct his skull and give his brain the right amount of room to grow. Cranio Care Bears was there every step of the way! We were lucky enough to have Shelby from cranio care bears with us the day of our sons surgery. Having some one there who understood exactly what we were going through, was wonderful. The care packages they mail out to families are full of thoughtful goodies that made our hospital stay a little easier at such a hard time. I can't explain how much these women's continued support means to our family.
Cranio Care Bears is amazing!!! When my son was born with Metopic Craniosynostosis, I felt scared, lost and alone. I soon found these wonderful women. I am lucky to live in the Seattle area, so I got to meet Shelby in person. These women were there with their support the 9 long months we had to wait for my son's major reconstructive skull surgery. They answered every question I had, and put me in touch with other moms who have gone through the same thing. On the day of surgery, Shelby met us at the hospital. She stayed with us all day as we waited for my son's surgery to be over. I can not begin to tell you the support she was that day. She brought with her the cranio care bear package, which had everything we would need for our hospital stay! The best item was the prayer chain Shelby hung on my son's hospital crib in the pediatric intensive care unit, right after his surgery. I read that every day while we were there, knowing I was surrounded by people who understood what I was feeling. My son is doing amazingly well, you would never have known he went through anything! I know I could not have done it with out the love and support of Cranio Care Bears!!
When my son Connor had his Cranio Synostosis surgery in April of 2012, we were so lost and confused and had absolutely no idea what to expect other than what we were told. My wife found Cranio Care Bears and Shelby Davidson a couple of weeks before and started getting a lot of first hand information. Then on the day of the surgery, there was Shelby, right there, to sit with me and my wife for the entire day, with calming and encouraging words, letting us know it was all normal. The care package for Michelle was just the icing on the cake. What could have been a horrible, confusing time for us, was still difficult, but not terribly so. Shelby and the Cranio Care Bears are STILL doing so much to spread awareness of Cranio Synostosis and bring some needed sunshine to the hospitals and families they encounter. We are still involved with CCB and will tell everyone we know just how great Shelby and Summer are.
I truly love Cranio Care Bears. After my surgery in December, I received the most amazing care package. I was so thankful to have everything that I might need in order to have a good recovery. Now, 8 months later, Shelby and Summer have become truly some of my closest friends. I have been able to come to them several times and ask for a care package on behalf of some of my friends that have not heard of this organization. I truly love Summer, Shelby, and cranio care bears. XOXO
I cannot thank this organization enough! Everything in the care package was important to us during the surgery from the hat to the snacks to the CD of lullabies. i will be sure to support Cranio Care Bears in the future.
Such a thoughtful care package from people who understood what we were going through was very touching to me. Having your baby go through a major surgery is very scary. I didn't know anyone who had been through this so the package was very comforting. It is amazing that these moms spend their personal time and effort creating these packages.
Words cannot express our heartfelt gratitude to Cranio Care Bears. Finding out about our daughters diagnosis was overwhelming. The thought of this type of surgery was unthinkable. Knowing it was our only option, we eturned for support and could not have received a more personal, thoughtful and meaningful package from this amazing organization. The care that goes into each and every item is so evident that it really touches your heart to know that complete strangers are supporting you and your family. We will never forget you and our appreciation goes beyond words. Thank you for all that you do!!!
This is a terrific non profit. They helped me through a difficult time by providing a wonderful care package for our hospital stay. It truly meant so much to me.
Cranio Care Bears is a wonderful group! It's amazing how a little package in the mail from someone who has been thru what you are going thru can help your spirit during such a scary time. From the items that cover your basic needs during a hospital stay to the personal prayer chain created by so many families. Truly an awesome organization!
These gals will never fully know what their support through their care box meant. Even now, 5 months post op, tears come as I recall my daughter in laws face as she read the prayer chain prior to Andrews surgery and then hung it in his IC room. Because it came from people with first hand experience, this personal touch was even more special! Thank you is just not enough, not only to the gals who put the boxes together but also to the folks who provide the items. Just Amazing....
Our six year old had his second craniosynostosis surgery and the ladies at Cranio Care Bears were a tremendous support, for us and our son. The care package which included hospital necessities but fun items for Gage were very meaningful; especially the prayer chain. Thank you so much for what you do.
The amount of support given to us was so great as we headed into surgery with our 11 week old son. I can not express the gratitude we have for this group. Thank you from the bottom of our hearts.
When our daughter was diagnosed with Craniocynostosis we had never heard of it before. I immediately went online to look for information. Through Facebook I found Cranio Care Bears and I am so fortunate that I did. These moms are amazing and have been such a great source of information, support and encouragement. The care package that they sent before her surgery in March was amazing. The prayer chain alone was such a great gift that we will always cherish and make sure our baby girl knows where it came from. Thanks for all you do to support cranio families and bring awareness to the condition.
Cranio Care Bears is an AMAZING support to families whose children are facing surgery for Craniosynostosis. My 3 month old son was diagnosed with Sagittal Cranio and just had surgery 2 weeks ago. The ladies from Cranio Care Bears offered such kind words of support and guidance. They also offered prayers for my little guy and their own experiences, which was so comforting. The care package they sent for me and my baby was absolutely the most heart-warming and incredible gesture. We so appreciated all of the little items, like snacks and toiletries for the hospital. By far the best thing in the package was a prayer chain to hang on his hospital crib, which is now hanging in his nursery. Other really great items in the package were a hat for my baby boy's sensitive head after surgery, soft socks for me and for him, a soft blanket for him, a soft book and teething toy for him, and lotion and chapstick for me. Those are just a few of the great items in the package.
Don't know what we would have done without CCB and the ladies involved!!! The care package was amazing and the continous support is unbelievable!
My son had his surgery March 24, 2011. The site was down when I went to request a care package, and messaged Summer directly on facebook, and she cared enough to put one together that night and get it in the mail the next morning, even though that morning was the day of my son's surgery. We got the care package the day after surgery, and it was just as important to me, as if I would have received it earlier, if not more. The efforts that Summer and Shelby goes through to help others and make others feel much better about this most difficult experience, is completely outstanding. I can not say enough good things about them. I have since put things together and sent one box already to CCB to be divided into care packages, and I hope to continue to be able to do so. These ladies do so much for others, they are truly heroes!
These ladies are amazing! Not only do they send care packages to families before difficult surgeries, but they actually go to the hospital to be with families that live in their area! They are incredibly supportive of families having to go through a difficult time in their lives!
My daughter had her surgery for sagittal craniosynostosis in November 2011. The care package was great and more than that I felt like I had support in dealing with everything. I didn't feel so alone and I wad so touched by their kindness
My son had his surgery February 14,2012 and I found this group when my son was born in April 2011. These ladies have been so nice caring and supportive. I would not have gotten through this without them. I was very lucky to have Shelby with me this whole entire time we've been on this journey. I hope more people find this group and see how amazing these ladies really are and start donating to this amazing group. - Trine and Skyler
OUR SON HAD SURGERY JAN 19TH 2012. WE FOUND CRANIO CARE BEARS AND WITH THEIR LOVE, SUPPORT, AND GUIDANCE OUR JOURNEY BECAME SO MUCH EASIER. THEIR CARE PACKAGE HELPED US AND BRYCEN THROUGH THE ENTIRE HOSPITAL STAY, AND THEY EVEN SENT US EXTRA HATS BECAUSE I COULDN'T FIND ANY TO FIT BRYCEN THE WAY THEIRS DID. THIS ORGANIZATION IS AMAZING AND WE LOVE THEM!!!
My son has sagittal craniosynostosis and had surgery in January 2012. I found Cranio Care Bears only a week and half before surgery. Summer was prompt and so incredubly nice about offering support and help. She even offered to hand deliver our care package! She did everything possible to get our package to us before the surgery. It landed in our mailbox with a day to spare. We waited until we got to the hospital to open our care package, to help distract us while waiting for our son. Inside, we found a special cranio blanket, various (nice!) toiletries, a first aid kit, some tylenol (yay!), and most importantly, a very special Cranio build-a-bear Teddy. This will be our son's favorite Teddy for sure. It really meant a lot to us that people we didn't even know cared enough to make sure that we felt support through such a heavy experiance. Thank you Summer!
My son has had 3 surgeries to help alleviate his crynostonosis. This was definitely a well thought of program. As a mom, I cried knowing others truly cared about what my family and I are facing and they actually know how hard it is to deal with. Wonderful items sent that were very age appropriate! My son really loved the care package and wants to donate to the organization! To put a smile on someone elses face during this time!
My daughter was diagnosed with metopic craniosynostosis at borth. I found craniocarebears.org when I was looking for information. The care package was wonderful! I put the prayer chain on her crib and the nurses loved it! I gave my friends and family the website to learn more about what we were going through. I highly recommend craniocarebears.org!
My son was diagnosed with Craniosynostosis in April of this year and to say I was overwhelmed would be an understatement. I had never heard of this condition, much less the surgical process required to "fix" it. A friend mentioned this site and from the beginning I felt loved. Within a few weeks of reading about this condition and filling out a form for a care package I received the most tender and sweet box of gifts for both me and my son! I was touched beyond words. The lovely items inside, including comfy slippers and a lovely blanket for my son, both made me feel loved, cared for, special and thought about. They packed things inside (like mints and gum) that I never would have thought to pack, but totally needed for my 3 day stay with my son. The cranio community has shown me such compassion, love, understand, and offered me real life answers and insights ... I can never begin to repay them for the joy and peace they brought to me during such a difficult season of life. I cannot wait to share with my son the love he received from "strangers" who now feel very much like family.
Thank you Shelby and Summer! You're amazing and the work you do an incredible and undescibable gift and expression of love. May the work you do come back 10-fold with moments of joy, peace and blessing to you!
My son felt so blessed to receive such a blessing before his surgery. We hvae had such anxiety with this and what great thing to do to help take our focus off of the surgery and realize we are loved and prayed for. THANK YOU!!! Landon felt so blessed to get his package today.
My son Styles had surgery for sagittal craniosynostosis in March of 2011 & Shelby was there for me through the entire process. She mentored me prior to surgery, sat with me throughout surgery, brought me an AMAZING care package, & continues to be there for me & my family for any questions or concerns we have. It was definitely one of the most difficult times in our lives, but she made it so much easier. I can't not say enough anbout this wonderful, generous organization. They are truly wonderful people.
My little boy Roan was diganoised with craniosynostosis when he was six weeks old. I can honestly say it was the hardest time of my life and had no knowlodge of this condition. It was Cranio Care Bears and all the people on this site that help me in so many ways. I managed to make contact with alot of people in my area in Australia and even got to meet up with them and share there stories over coffee. CCB educated me on craniosynostosis and answered every question I had. Even advised me on what to bring to the hospital etc. I also recieved a lovely care package the week before Roans surgery which brightend up my day. I got through this tough time in my life and we are now on the other side and I am prepared to help anyone who needs me now. Cranio Care Bears is a fantastic website and needs to get all the exposure it deserves. Many thanks to all involved.
CCBs sent our son Oliver a care package when he was in the hospital. The package brightened our day and helped out in the hospital. What a fantastic organization!