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CDH International

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Nonprofit Overview

Causes: Birth Defects & Genetic Diseases Research, Health, Pediatrics Research

Mission: For a quarter of a century, CDH International (formerly known as CHERUBS) has fought Congenital Diaphragmatic Hernia. Our only mission at CDH International is to help families affected by CDH by searching for the cause, prevention and best treatments of Congenital Diaphragmatic through research and awareness while supporting the CDH community. We focus on the whole CDH community, not personal motives or missions, one patient, one hospital or one country. We believe in supporting all CDH families, no matter the medical choices that they make for their children. Our mission is to provide accurate and timely information so that parents can make the best educated decisions for their babies. Our goal is to create and provide as many services as possible so that no CDH family feels alone. We have accomplished that for over 6300 CDH families.

Results: * Over $1,000,000 raised * World's largest natural history CDH Registry * Collaborations with research centers around the world * Patient Advocacy with the CDH Study Group * Collaboration with the World Health Organization * Collaborations with the Rare Disease Community * Proclamations from the US Senate and 50 Governors * Work with the NIH * Light Ups of major buildings around the world * Lobbying on Capitol Hill for CDH Awareness and Research Funding for hospitals * Founding member organization of the Alliance of Congenital Diaphragmatic Hernia Organizations * Mentored over a dozen new non-profits * NGOs in 3 countries * Providing free support and information to over 6300 patient families in 70 countries

Target demographics: families of babies born with Congenital Diaphragmatic Hernia

Geographic areas served: International

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Community Stories

249 Stories from Volunteers, Donors & Supporters

15

Board Member

Rating: 5

I am the mom to an 8 year old CDH survivor. I have been a member of CHERUBS since she was born, started serving on committees approximately 5 years ago, and have been a member of the board for almost 3 years. I served as the Treasurer for CHERUBS for about 2 years, and then moved to the role of Vice-President about a year ago. Through volunteering in these roles, I have had an inside view of CHERUBS for many years and am aware of all facets of the charity- the volunteers, the members of all 3 boards, and the finances. I am proud to say that CHERUBS is run by a team of wonderfully dedicated volunteers led by the charity's sole employee, the President of CHERUBS, Dawn Williamson. It takes a lot of hours, and people from many areas of the world, and with many talents to serve the CDH community. All of the volunteers that I have come in contact with from State Representatives, to Hospital Angels, to those who work on the various committees, to the Parent Advisory Board, and the Executive Board serve dutifully with professionalism and respect to see that families get the help they need while working to raise awareness of CDH and money to further research that is so desperately needed. From my role as Treasurer, and with continued knowledge of the finances of the charity as an executive board member, I can assure you that every donated dollar is used to the best of its ability to help the cause. Meticulous care is taken to see that donations are spent only in the manner with which the donor specifies (research, family assistance, awareness, etc.), and that money is never wasted. I am proud to count myself as a member of the CHERUBS team.

Shereen K.

Client Served

Rating: 5

My CDH survivor Micaela is 19 years old now. We didn't find Cherubs until about 5 years ago. Back then, we weren't given the information from the hospital about it. I felt alone in the CDH journey. It would have made all the difference in the world to have the support we receive now from Cherubs back then as a young family. We will forever be dedicated to lending a hand in any way we can to help the new families beginning their journeys with the CDH monster.

Volunteer

Rating: 5

I am a CDH mom and I volunteer for CHERUBS. I am proud of the work being done at CHERUBS and the transparency of the charity. I know that I am helping people through their journey because others helped me through ours. Thank you CHERUBS for being such a great charity.

Donor

Rating: 5

My son is a 22 yr old RCDH survivor, ECMO x 2 and we were like Dawn in the very beginning not having a place to go for information. I have supported Dawn's efforts since she began.
Please keep up the good work! She is amazing!!!

Client Served

Rating: 5

Wonderful nonprofit charity. They were extremely helpful in supporting affected family and creating awareness!!

Sara Y.

Volunteer

Rating: 5

We love the cherubs!! They have help my family out in so many ways when I found out my daughter would be born with CDH

Debbie197

Client Served

Rating: 5

Our LCDH survivor is 2 now. Cherubs helped so much. Finding support and information in a time of fear was such a blessing.

1 Sara140

Volunteer

Rating: 5

Love them and the work they do fro CDH families! I have been blessed to see a local family helped with the CDH journey of their angel, who was here for 12 days.

1 Bethany P.

Volunteer

Rating: 5

I have a RCDH survivor who is 3 years old. Cherubs has been a awesome support for myself and my family so glad I have them!!

1

Client Served

Rating: 5

Cherubs has been an amazing support for us since getting our son's diagnosis of CDH!❤

1

General Member of the Public

Rating: 5

CHERUBS has been a blessing to our 19 month old LCDH and ECMO survivor!

1

General Member of the Public

Rating: 5

My daughter was born with LCDH. This organization helped us in many ways before she was born, and when she passed. Thank you all for what you do. Your hard word doesn't go unseen!

1

Client Served

Rating: 5

My son was born with CDH and this charity welcomed us and made us feel like we had answers, support and someone we could go to just to listen in a very tough time. They sent us a care kit with a handmade hat and adjusted baby's first book to explain the time he had in the nicu. It's thoughtful things like that that make this charity above all others!

Lisa540

General Member of the Public

Rating: 5

When our son was first diagnosed with CDH in 2002 the Cherubs organization provided us with support and education. We are grateful for all that they do to spread the word about CDH. Providing a way to connect families has also been a blessing.

1

Volunteer

Rating: 5

This charity supported my family and I through the loss of my son. It is filled with amazing supportive people. They have given us opportunities to raise awareness about a horrible birth defect that many do not know about as well as allow us to participate and be a part of the family.

1 Holly82

General Member of the Public

Rating: 5

I've not had a personal experience but I have a friend who's had to go through this. It's mentally exhausting and so scary for them. I believe this needs to be better known.

Katerina M.

Client Served

Rating: 5

Without Cherubs this journey would be so much harder. I learned most of it I know today about CDH because of Cherubs.

General Member of the Public

Rating: 5

CHERUBS has helped our family find out more about CDH when there was hardly any information online about it. Our son was born 10 years ago with CDH. We continue to support CHERUBS and network with other CDH families through them.

Allie6

Volunteer

Rating: 5

Cherubs has given me the opportunity to fulfill a promise to my daughter that I made to her as she was dying in my arms; the promise to continue to fight for her as I knew she couldn't fight anymore. They have paved the way to join a movement of strong brave courageous parents and children that live the unimaginable. I am deeply grateful for this organization and everything they do.

Lindsey33

Client Served

Rating: 5

They have been so caring and supportive since our daughter was born with undiagnosed CDH. They sent a totebag with goodies for us and EK while she was in the hospital. The most in depth information I was able to find while after our daughter was born!

Client Served

Rating: 5

I'm a Nannie to a 2 yr old survivor who is still fighting!! Without CHERUBS we would have been LOST!! Love love love the SUPPORT they GIVE TO EACH FAMILY!! CDH is a VERY LONELEY DIAGNOSIS until you get contacted and supported by CHERUBS!! They are the BEST!!