Over 1.8 million nonprofits and charities for donors, volunteers and funders

2018 Top-Rated Nonprofit

Benzodiazepine Information Coalition

465 pageviews

Claim This Nonprofit

More Info

Add to Favorites

Share this Nonprofit

Donate

Volunteering Oportunities

Nonprofit Overview

Causes: Health

Mission: Benzodiazepine Information Coalition is a non-profit organization that advocates for greater understanding of the potentially devastating effects of commonly prescribed benzodiazepines such as Xanax, Ativan, Valium, and Klonopin, as well as prevention of patient injury through medical recognition, informed consent, and education.

Target demographics: prescribers and compliant, benzodiazepine injured patients

Geographic areas served: United States

Programs: awareness campaigns, policy advising, education

Community Stories

39 Stories from Volunteers, Donors & Supporters

3 Charles U. F.

Client Served

Rating: 5

Provided information that has changed my life forever , for the better. Thank you!

3 Kim M.1

Professional with expertise in this field

Rating: 4

Their information is good and needed. I have had some personal experience with some of
these drugs and I wouldn't advise people on there long term use'

3 Jarett B.

General Member of the Public

Rating: 5

They are the only people taking this issue seriously.

3

General Member of the Public

Rating: 5

If it wasn't for Benzodiazepine Information Coalition, I would still be at the Doctor's office, trying to figure out what is going on with me. This site is extremely important for those who had the misfortune of Doctor's giving out this medication like candy, and for those who need information before getting on these highly potent drugs. The information provided by people who have been through withdrawals is so important to us that are experiencing something never imaginable.

2

General Member of the Public

Rating: 5

This website has been invaluable to me, my friends and family, as a source of information on benzodiazepines. I have printed stories and information from this site for others, including doctors and shared links in order to help spread awareness about this class of drugs. I also use the Benzodiazepine Awareness Coalition address on the posters and stickers I put up around my city to help educate the general public about the dangers of these drugs. There are not many comprehensive sites like this around. I can count them on one hand. BIC is very important in my opinion, especially for the United States and Canada who lag behind the UK in terms of public education on benzodiazepines. There is just not enough being done to educate the public and the medical community, so BIC is a providing a great service!

2

Client Served

Rating: 5

This is a horrible place to be-having severe symptoms that started after beginning benzodiazepine (in my case for insomnia). I was on increasing doses for years and kept needing more to get the little bit of sleep I could. Then I tried to go off. Advice from doctors was to just cut dose in half each day. I went nuts. I started seeing things on the road that were not there-swerving on the highway and had to quit driving. I cried and had panic attacks constantly. (I never knew what that felt like before starting clonapin). Finally I asked the doctor to order the med in a compound. The compound pharmacist talked to me about SLOWLY reducing the dose-extremely slow and tiny cuts at a time, possible with compounded med. I have been off completely for 2 years and still have what I call flash backs. Sometime I am so afraid to drive that I just stay home. I since have found out that these drugs should not be taken more than 2 weeks. I remember constantly asking if I was addicted to the drug, but the sleep doctors said no, only if you took doses all day would there be dependency problems, but just taking at night to sleep I was not. How wrong they were. Every time I go to a doc in the box, when they read clonapin, they ask me about other drug abuse and if I am getting it on the street. Suddenly I am the criminal, not the doctors who wrote this prescription for over 10 years. The only supportive person in the system was the pharmacist. I went back to thank him when I had completed the taper and he told me I was the first person he had ever met who had managed to get off it. Then he said, good luck staying off. I am grateful to have found the benzodiazepine information Coalition. At least some people know this is real. I am lucky that I am older and could retire and not try this at work, though I think this is a disability and not an early retirement. My hope now is that I do not have too much brain damage and will not end up senile due to this abuse of my brain for so many years.

2

General Member of the Public

Rating: 5

This organization works diligently to educate physicians and legislative bodies of the dangers of prescribing benzodiazepines. They work towards regulating dosing and put a name to the agony of withdrawal that many have endured. As a parent of a benzo sufferer I know the ravages this medication can cause and I strongly support Benzodiazepine Information Coalition 's work.

2

General Member of the Public

Rating: 5

Information and online support from BIC helped my wife and I understand the problems my wife was facing. BIC filled a gap which the medical community has otherwise failed to address. We are very grateful for their much needed work.

2

Professional with expertise in this field

Rating: 5

This organization is crucial in informing the public of the dangers of benzos

3

Client Served

Rating: 5

My story is too large, to complicated and too traumatic to go into detail here and now. I will simply state that the Benzodiazepine Information Coalition is the one organisation that gives me the hope that I will find the answers to the appalling suffering and injustice I have been subjected to, at the hands of the U.K. Health Authorities with respect to the devastating consequences of longterm prescription of Benzodiazepines.

4 stblues

General Member of the Public

Rating: 5

I lost 21 years and counting to a benzodiazepine, always taken as directed, and wish a outstanding organization like BIC had existed before I accepted taking this life destroying drug.

1 Judy Lovejoy W.

Client Served

Rating: 5

This organization exists to educate the public about the dangers of, benzodiazepines, a class of drugs that has the capacity to completely devastate the lives of people who take it, even those who take it exactly as prescribed by a physician. Because the severe, disabling iatrogenic harm caused by this medication is generally unacknowledged by the pharmaceutical industry and medical community, the work this organization does is vital to the purpose of giving victims (like me) a voice, in addition to the hope of saving others from living through the horrors I've experienced as a result of simply taking a medication prescribed by my doctor. I am immensely thankful for the tireless volunteer efforts put into developing and running this organization. I salute each and every one of you who have worked and continue to work so hard to advocate for people like me!

Client Served

Rating: 5

This nonprofit is much needed serving an all too often ignored and marginalized community. Their understanding of benzodiazepine associated disabilities is unparalleled.

1

General Member of the Public

Rating: 5

Their dedication to be neautral and accurate in disseminating infomation of Benzodiazepines are the second to none.

I'm a non native English speaker in Japan but deeply appreciate their work.

We are the parents of an adult son who has been fighting against iatrogenic Clonazepam induced illness for years. My husband is a biochemist but even he didn't believe what happened to us at first.

I highly recommend to anyone their humane but academic approach which is collaborating with other non profit organizations globally to save people’s life.

It is very long and sometimes energy draining tasks to support people who are affected by Benzodiazepine prescription depenece, but "BIC" always gives me encouraging information.

Thank you so much to you all in BIC.

1 Aida C.

Client Served

Rating: 5

Thank you Janice and Peter for all of your support.

1

Client Served

Rating: 5

This non-profit organization is providing much needed awareness to the horrific subject of benzodiazapine withdrawal syndrome. The Admins are very knowledgeable and advocate for thousands of people who are suffering in silence. I applaud them and their dedication. Thank you.

1

General Member of the Public

Rating: 5

This organization will save lifes. They have an amazing board of very educated people, some that are dealing with the effects of benzodiazepines themselves. I'm proud to know some of them and proud of the changes they will make in the pharmaceutical industry where this class of medication is involved.