I had prostate cancer and had my prostate removed in 2010. This year I walked in the Zero Prostate Cancer 5k Walk.
Zero the leading patient advocacy organization for prostate cancer Is making an impact. Such a great dedicated staff who tirelessly dedicate their time and energy to help men understand the number one diagnosed cancer in the VA system. zero is making a difference and will be making some noise in 2020
From 5K events around the country, to their annual summit in DC, where we learn about new advances, and go speak to our elected representatives, ZERO does a great job helping men & their families face the issues of prostate cancer
I was diagnosed with an aggressive prostate cancer in January 2010. My prostate was removed in April 2010. Side affects such as inconstancy and impotence last to this day. The cancer remained and spread to my bones. The drugs and procedures developed through the DOD and made possible by the advocacy of ZERO is what keeps the cancer at bay.
I tried some other support groups, and they certainly served a purpose, but they had a passive, not active approach to prostate cancer. ZERO presented the active, energetic, advocacy, patient support, and education that followed my own heart.
You are never cured of cancer. It remains with you for life. You live your life wondering if each new pain is “the” pain the oncologist asks about. Side effects may remain for life.
I would like to be remembered for the positive impact I have made on the world, for fun times and for my relationships with others, not as a survivor. This is where ZERO helps. ZERO is a family of survivors, caregivers, and others who believe in an active, rather than a passive, approach to cancer awareness.
I am a Prostate Cancer survivor and found Zero when I was first diagnosed. I started a team called the Bunch O Nuts four years ago. We have five survivors and one that has gone to be with our father in Heaven. His name is Chaz Heron and he saved my life by sharing his cancer story and recommending that I get my PSA checked. Now I have to pass on my story to help save the lives of others.
Zero has been like a family to me, and they are spreading the word and helping us in our journey.
I Love Zero!!!
Zero has been there for when my family has needed it. From advice, both medical and emotionally, to developing a community of sharing and collaborating, we are very proud to be standing in linked arms with this great cause. Without Zero, we would be lost in a sea of questions and distress.
I was diagnosed with prostate cancer Jun 19 and had my robotic surgery Jul 19. I was moving my girlfriend to Alexandria, Va not knowing Zero was there. I saw on social media they were having an event in Alexandria and I went to the event. OMG they treated me and my girlfriend as if we were famous they showed us around introduced us to all of the staff, provided me with educational literature along with information on connecting to their community. They were amazing.
I have been actively involved with ZERO for the last 7 years that began simply with participation in the 2013 5K Run/Walk. I was so impressed with their dedication, personal touch and commitment to making a difference in the lives of men and their family that I have made ZERO my charity of choice for all of my resources, time and talents. Since that first introduction, I have attended their annual Washington, DC Summit where protecting prostate cancer research funding and educating the attendees about prostate cancer are the main focuses. My commitment to this organization is deeply rooted in ZERO's focus on compassion, intent to serve, and patient assistance - from the top of the organization on down. They love, they care, the serve, they cry and celebrate. And having been a caregiver/advocate for someone who succumbed to this disease - I would not have been able to make it through the experience without my ZERO family. They have my heart for all eternity … wish I could give them a million stars!!
We love advocating with ZERO The End of Prostate Cancer. They are a huge support to our family and we have made so many wonderful friends. No one has to travel this prostate cancer journey alone. We are all here for each other!
ZERO helps men and their families on so many levels. Helping us educate and advocate for a cause that suffers from a lack of awareness yet is so prevalent.
They have been by our family's side since we found them after my husbands Stage 4 Metastatic Prostate cancer diagnosis. We have partnered with them to raise money and awareness. They have provided valuable research information for us to use on our personal social media blitz's. Been involved in two races so far. Phone calls, emails and personal visits of encouragement along the way. #Curdyarmy
My husband and I have been advocating with ZERO -The End Of Prostate Cancer since 2012. It has been our pleasure to do so in our home state of Ohio and on Capitol Hill. As the mother of four sons it is so important to raise awareness for and end prostate cancer.
On June 19, 2009 my life forever changed. My husband and I were given the devastating news: he had an aggressive form of prostate cancer. However, I was not about to sit back and do nothing! I started advocating and raising awareness for this horrible disease that it seems no one talks about. In 2012 I was contacted by ZERO - The End of Prostate Cancer to become an advocate and was honored to be asked to join the “family”! Working with ZERO has given me so many more opportunities to help raise awareness and to be part of ending prostate cancer. Every year ZERO invites advocates to Washington, DC for a Summit to learn about how to do more in locally in our states, and we get to speak with our elected officials to share our journey with them and to encourage them to keep research and funding for prostate cancer in the FY Budget.
I was diagnosed with prostate cancer in November 2013. With the help of Zero Cancer we have started many events in Iowa. It is because of those events that we have been able to reach out to thousands to help raise awareness about prostate cancer.
We have been working with them as a race management company for 8 years for three running races. They are professional and really go the extra effort to make these events special for patients, survivors, and they’re families. Not all running races have repeat runners, but our events have runners coming back year after year which really shows how much of an impression they leave on the community.
Zero has been a blessing to my family and I! Not only were they there for us when my dad was alive with battling prostate cancer. They were one of my rocks and support systems when my father passed away from prostate cancer. I love my Zero family and I love what they due for the cause.
I first heard of ZERO-the end of prostate cancer last year when I was asked to be a Race Director for the city of Omaha. I didn’t know what to expect but everyone with ZERO was really welcoming, friendly, helpful and full of energy. Everyone and mean everyone who works or volunteers with ZERO are extremely passionate about the mission of creating generation ZERO (the first generation free of prostate cancer) and helping men and their families effected by prostate cancer get the support they need. ZERO does more than just raise awareness, they listen and learn from the men that have been effected by prostate cancer. From that they create resources such as support groups, and financial aid to help those that need the help. I’m very blessed that I got to take part in spreading ZEROs message in my community and hope to continue to do so well into the future.
ZERO provides a caring and effective community for all those impacted by prostate cancer. They offer many free resources, programs, and awareness events. And 86 cents of every gollar goes to patient programming which is amazing! Staff is very responsive and kind. i recommend!
ZERO is one big charitable family. This organization has helped me, my family and countless others with awareness, education, and support. I first got involved in 2017 when my father was diagnosed with prostate cancer. Through a Google search, I found ZERO and just started studying the material and forwarding everything to my dad. A few months later I ran their 5K in San Diego and from that point, I decided to be an advocate. It's been an awesome journey, and I can't wait to see what the future holds. Hopefully a generation with ZERO prostate cancer!!
As a Prostate Cancer Survivor, I find this group to be encouraging, positive, and supportive. Through their many outreach/assistance programs, they reach many families dealing with this ugly disease.
Due to my husband's diagnosis and treatment, we went in search of an organization we felt strongly about supporting and being a voice. Zero has FAR exceeded any expectations we had in finding something to support in that they provide so many services to those dealing with treatment but also offer caregiver help and information to as well. I LOVE that the go before congress every year requesting for more research funding as this disease is taking WAY too many of our husbands, fathers, brothers, etc from us needlessly.
So proud to work with ZERO together with my daughters in honor of my husband, their father who lost his life to Prostate Cancer 13 years ago at only 55!
Will always advocate with them until we END Prostate Cancer
Paul Nikituk was diagnosed with prostate cancer in October 2005, and lost his battle to the disease just 14 short months later. Since the loss of their loving husband and father, Paul’s wife Cheryl and their daughters, Meghan and Tara, have become passionate advocates for prostate cancer awareness and early detection.
Cheryl knew that her husband would have wanted his family to fight for other men and families battling the disease, to prevent what happened to him from happening to other men. They work to spread awareness in their community on the importance of early detection, which could have saved Paul’s life.
As DC-area residents, they’ve also participated in ZERO’s Run/Walk – Capital Area from the very first race, raising more than $70,000 for the cause. The Nikituks are on a mission to educate men and their families about prostate cancer, and are fighting for the importance of education to keep more families from losing their loved one the way they lost Paul.
When my father was diagnosed with prostate cancer, we were all adults, but it was hard to hear that the person that you love had cancer. We all really pulled together, all doing our part of researching doctors, researching possible treatments…anything that we could do to help him live, and to help him survive. But there was only so much that we could do. We were always a close family, but it this pulled us together. Meghan Nikituk
We have been involved with ZERO for ten years and are proud to have partnered with them to spread awareness and advocate for research funding.
A great organization with very dedicated people!
Chery, Tara and Meghan Nikituk
I am an almost 7 year survivor who found out about ZERO by participating in my first ZERO 5K three months after my surgery. Since then I have run in 7 more ZERO 5K's (and plan to do 3 more this fall) and am part of the ZERO online Prostate Cancer Support Group. The fact that almost 90% of the money that ZERO collects goes to programs that directly benefit patients and survivors makes what they do even more commendable. I'm hoping the research ZERO funds will find a cure or even treatments that don't have the life changing side effects of current treatments.
Fighting prostate cancer is a mission not only for our medical practice, but for the good of all men and their families. Teaming with Zero and becoming something much larger than ourselves has surpassed our expectations. The level of professionalism, attention to detail, and overall mission to end this disease is more than met with this organization. The support from their Corporate staff to the regional support staff has been amazing. They know how to move quickly to make a difference....rather that be locally or at our nations capital fighting to support further funds for research!
This is our 5th year working with Zero. Our company intentions are to continue to grow our annual Walk each September with Zero and continue to fight along side Zero towards the ultimate goal which is to educate, support and finally end Prostate Cancer.
I was hit with Stage IV PCa in 01/2015. Found ZERO via a web search, signed up for the LA ZERO 5k event in 2017. That was the beginning of a still ongoing relationship with ZERO. They are very supportive of us PCa victims, proactive with encouraging screenings, and hosting 5k events. At those events, they honor us PCa survivors, host a kids dash, have numerous info booths, and even have free PSA screenings.
I've done the TCS NYC marathon three times with Team ZERO, and I have the 4th in a row this November (raising over $14k).
ZERO published a Blog post about me, to share my saga, and maybe get a man screened, or inspired: https://zerocancer.org/blog/ive-been-to-the-mountaintop/
I've done half marathons with the current CA race Director - Vanessa, she even helped me train for the 112km of the Camino Frances (https://prostatecancer.net/stories/hiking-awareness/), by hiking up Mt Baldy with me. I'm like her crazy big bro :-)
ZERO is such a wonderful Non-profit, they really treat their employees well, but more importantly - they really feel like my second Ohana (family). Any man stricken with PCa (God forbid) will benefit greatly with ZERO. #endprostatecancer #stageivpca
In May of 2013 I heard three words that no one wants to hear, but I did hear "You have cancer"! Prostate Cancer to be exact. Like Father, like son, or so I would soon learn that I had joined nearly 40% of all Prostate Cancer sufferers by having a family history. I was shocked, angry, then depressed all at the same time. So I started to research what to do. One of the 1st things I found was a way to involved & help end this disease. I found ZERO the End of Prostate Cancer. They were putting on a 5/10K race in Cincinnati where I live. I signed up before I even decided on my next step. That race helped me become involved. Involved with ZERO. Involved with hundreds of other patients, caregivers and family members who have been affected by this cancer.
ZERO, the staff at ZERO and my fellow advocates all have the same goal, end this disease, stop men from dying from Prostate Cancer. Around 27,000 men will die this year just in the US. There is progress being made and ZERO is a huge part of making that happen. We advocate for research funding in the House and Senate which makes a difference in the amount of research dollars are allocated specifically for out of the box research on finding a cure or treatments for Prostate Cancer. Those dollars are having an impact Several treatments and diagnostic tools have come from that research in the last five years.
ZERO as a non-profit is one of the highest rated in the country. Thousands of men who would not have been tested for this disease have been tested as a result of awareness & testing programs sponsored by ZERO. Men with Prostate Cancer have had their treatments paid for literally saving their lives using funds provided by ZERO. Countless lives and families have been positively impacted by the tests and treatments. Early detection is vital for survival.
I am proud to serve along other patients, survivors, caregivers, and family members as a ZERO the End of Prostate Cancer volunteer and advocate for millions of men throughout the country. ZERO makes a difference in Men's lives.
After battling prostate cancer for 7 years, my husband, John, & I attended a ZERO Conference in September 2012. We were astonished by the amount of in-depth information presented concerning ongoing research & funding, diagnostic procedures & treatments, and so much more. We realized we needed ZERO’s services in addition to John’s medical professionals to beat his advanced prostate cancer. John has benefited from a recently developed treatment which ZERO protected federal prostate cancer research funding from being re-directed. In many ways, ZERO continues to positively impact our lives, so we help fundraise annually for ZERO to help all men get closer to a world without prostate cancer.
I like many others here have a personal connection to prostate cancer. I lost my dad to the disease in 2011, he was only 73. Prostate cancer took my father away prematurely and I truly feel it could have been a better story had I found Zero while my dad was fighting his battle.
Unfortunately, it wasn't until 2015 that I learned about Zero when I started my athlete journey. I had taken up running in late 2014 and I was looking for a 5K to run, but I knew I wanted it to mean something. I ran the Zero 5K in Long Beach that year. I was able to raise funds along the way and also pursue running. I moved to North Carolina in 2016 and was a little sad that there wasn't a 5K event near my hometown of Raleigh. However, I traveled about 80 miles to Greensboro in 2016 to participate in the Zero 5K. I was pleased to learned about the inaugural 5K that took place in Raleigh this year (2017). I have now run a total of 3 5K's for Zero. I've had the pleasure of meeting Shawn Supers the Mid-Atlantic director who has been absolutely great to work with.
I have no doubt that there is plenty of work to be done to one day get to generation Zero. Until, I am committed to do everything that I can to help fundraise and spread the word about the importance of PSA testing. I still have personal goals as an athlete that include joining Team Zero in endurance events, until then, I plan to attend my local 5K in Raleigh and help to generate more awareness of the event, raise more funds for the cause. I know that every dollar generated from these events is going to help families affected by the disease.
My first experience with ZERO was at a follow up support group meeting shortly after I had my prostate removed due to having found 3 areas of cancer out of the 12 taken in my biopsy. Shawn just happened to be the guest speaker that night and I was so impressed by what she was speaking about with all of the things that ZERO was involved in when it comes to fighting and ending prostate cancer. Since then I participated in my first ZERO Prostate Cancer 5k in Harrisburg and was invited to give the mission statement, what an honor that was. How encouraging seeing about 600 people participating in this great cause and getting to hear so many great stories of how others affected have learned to deal with this disease regardless of the stage they were diagnosed. I am hopeful that my personal experience can help someone else, whether in just getting educated, or help with the emotional and physical aspects of it or in whatever capacity I can. My family has a history of prostate cancer, I lost a grandfather and two great uncles to it and thankfully, my Dad was more aware of it because of that and is now a 17 year survivor. With that in my background, I was "on top" of it and began getting my PSA checked at 40. Over the next 10 years it would increase slightly each year and then in June of 2016, at 51, my wonderful urologist, ,Dr. Scott Owens, said that he thought it was time to have the biopsies done. At first I was like, wait a minute, it's doing what it's supposed to do, based on my age and history, so why the rush? He said, well, let's wait 3 more months and we'll take another PSA and decide from there. Sure enough, in Sept, it had gone up another 0.4 points and it was time. In November the biopsies were taken and at that point I was still pretty sure that we would be in a just "wait and watch" period. Well, as I started this out above, nope, 3 of them in one quadrant were grade 7. At 51 we all felt that the best option for me was to have the Robotic procedure done and get it out of there, so that's what we did on Jan 5th 2017. Thankfully, due to the diligence of my doctor, mine was caught while it was still fully contained within the prostate and as of today, 10/27/17, my last PSA level was "undetectable" and I'm cancer free. Now part of my mission in life is to share with as many men that I can to help educate them to the need for early detection and awareness and I'm hoping to do more of that through working along with Shawn and others with ZERO and my local urology group here in PA.
I'm on the Board of Director of Large Urology Group Practice Association. We do quite a bit of advocacy work in Washington DC. The law makers (congressman, senators, and their staff) ALWAYS want to hear from the people. The patients. Their family. In other words, their constituents.
Zero represents the voice of THE PEOPLE. Zero brings patients/family to the legislators and make the issues real for them.
We need more support for the good work that Zero is doing in order to more effectively let the voice of prostate cancer patients/family be heard in Washington DC!
I am an ongoing survivor of prostate cancer and Chronic Lymphocytic Leukemia (CLL). My life partner, Jacqueline Lopez, and I speak around the country to survivors and partners on how to regain intimacy in the face of their cancer - a particularly crucial issue for men and their partners facing prostate cancer (I am clinically impotent).
ZERO Cancer California Chapter Director Vanessa Petersen introduced us to Genesis Healthcare last Spring. They are one of the largest prostate cancer medical groups in the country. As a result we were the closing keynoters for their annual Prostate Cancer Symposium last June, where we shared the stage with Ken Griffey, Sr.
The audience reception to our speech was so powerful that Genesis is now taking active measures to address prostate cancer's impact to couple's intimacy and relationship. This never would have happened without the tremendous proactive work of Vanessa to help prostate cancer survivors in *all* aspects of their lives.
We work with many different cancer support / funding organizations and in our opinion, ZERO Cancer is absolutely the most energized and focused of them all. Jacqueline and I are deeply honored to assist them in their mission in any way we can.
Prostate Cancer Survivor
I am a prostate cancer survivor and I will never forget that day in Sept. 2012 when my doctor looked me in the eye and said that my PSA level was so high that she was referring to a urologist so he could do a biopsy on prostate to see if I had prostate cancer. My first thought was "What is a PSA level?" My next thought was "I am only 51 years old and I feel just fine we just went hiking that weekend and played tennis the day before how can I have cancer?" The biopsy revealed I had cancer in 7 of the 12 quadrants of my prostate and I had a gleason score of 7. So long story short after 20 other procedures and probings the doctors decided that I had an aggressive form of prostate cancer and because of my relatively young age I needed to have my prostate removed ASAP. I had a Robotic Prostatectomy in Dec. of 2012 and my life has never been the same. The doctor discovered that the cancer had escaped the prostate capsule and spread to the nerve endings and lymph nodes surrounding the prostate. I was lucky the doctors found that cancer when they did or the cancer would have metastasized to my bones and other organs. I found ZERO in 2015 when my wife and I volunteered for their 5K run/walk, as soon as we checked in I ran into another prostate survivor and we hit off right away. During the race I had a passerby stop and ask me what was going on. It turns out he was in a similar situation to me when I was first diagnosed and he had multitude of questions about what would happen next. Through my testimony I was able to ease some of his fears and clue him in on some very important questions he should be asking his doctors as he went through the process. This year I took the next step and became involved with organizing the event and trying to attract new sponsors and participates in my local area. I found this very rewarding as it has been one of my goals since I was diagnosed is to spread the word to other men no matter what their age take care of their health, because as I found out the hard way no can feel perfectly fine and still have cancer!!! ZERO has given me a chance spread the word, commune with other men who can understand what I am going through, and take action to help prevent anyone else from going through the trials and tribulations I have been through over the last 5 years. So in closing I would just like to say "MEN, no matter how good you feel or how young you are have a yearly physical and ask your doctor about when you should start checking your PSA level. Working together we can bring the number on men to with prostate cancer to ZERO and End Prostate Cancer!!!!
My father was diagnosed with Prostate Cancer in 2003. He had surgery and the doctors removed his prostate and then had seven weeks of radiation. He was told that he was in remission after that. Three years later the cancer had spread into his skull. The doctors took a quarter of his skulll out and that they were sure his cancer was gone. My father passed away three months later. I became an advocate to fight this horrible disease. I came across a race, ZERO To End Prostate Cancer. That was six years ago and since then I have been getting the word out to have men informed of their Prostate. I have gone to DC to storm the Capital to get our Senators and Congressmen to help in funding research for Prostate Cancer. ZERO, has helped me and educated me on this disease, I now tell the men in my family to go to their doctor and get checked.
With 1 in 8 men diagnosed with prostate cancer during his lifetime, this disease impacts everyone in some way - patients, families, and friends. ZERO-The End of Prostate Cancer is an amazing nonprofit whose work addresses every facet of prostate cancer, from research to advocacy to education to outreach. ZERO was a great source of knowledge and support when my close family member was diagnosed with the aggressive prostate cancer that took his life. As a ZERO supporter, race participant, and social media ambassador, I have had the honor of interacting with many staff and volunteers. Together they form the dedicated and compassionate ZERO community, united with strong resolve to #EndProstateCancer. I know the importance of the cutting-edge research ZERO funds and am heartened to see the significant treatments developed as a result. With much gratitude for all ZERO does, I am deeply committed to supporting ZERO's mission.