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- EIN 68-0592186
- (425) 672-9610
- 11436 Se 208th St Kent WA 98031 USA
- www.wsnfsupport.org
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Nonprofit Overview
Causes: Birth Defects & Genetic Diseases, Health
Mission: Washington state neurofibromatosis families is a network of committed volunteers partnered together for one purpose only to support families and individuals who live with neurofibromatosis (nf) in their lives. We provide nf resources, education, support, nf awareness, and information that contributes to living well with nf. Along with the patient and family assistance we provide through education and referrals, we at wsnf are committed to continuing a strong advocacy for nf research.
Programs: Our purpose is to market hope and improve the well being of those that live with the devastating disorder of neurofibromatosis by providing support, information and guidance to families and individuals affected with neurofibromatosis, by promoting education to medical and health professionals, the public, and the public servants about neurofibromatosis and to serve as resources for these people and by promoting and supporting research to find the cause and cure for neurofibromatosis.
Donor & Volunteer Advisory
This organization's nonprofit status may have been revoked or it may have merged with another organization or ceased operations.