Wake Up Narcolepsy is an inspiring organization born from one family's experience with a child being diagnosed with the life-changing illness, Narcolepsy. It is well- managed and offers multiple services to those affected by Narcolepsy--primarily public education and outreach and fund-raising toward much needed research. As a parent of a child with Narcolepsy, we are deeply grateful for all that they do.
As a Sleep Advocate, I know how hard it can be to get people to return emails and phone calls right away. You sort of expect to have to wait for a bit because so many people need help and resources are thin. I emailed WUN on behalf of a patient who urgently needed help and received an email back very quickly that went above and beyond what we had asked for. I cannot tell you how happy the patient was and how touched I was that WUN responded immediately and we were given to the Director. They did an awesome job!
Wake Up Narcolepsy has made a huge difference for people with narcolepsy by spreading awareness and funding research. I have volunteered with them over the last 4 years and our son with narcolepsy has greatly benefited from the work they do. I like this organization because they collaborate with top narcolepsy physicians and other not-for-profit organizations to maximize communication and effectiveness.