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Wake Up Narcolepsy Inc

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Nonprofit Overview

Causes: Health, Specifically Named Diseases

Mission: Provide funding to accelerate a cure for narcolepsy; Increase awareness of narcolepsy; Decrease time-lapse from symptom onset to proper diagnosis; and Provide supportive resources for people with narcolepsy and their loved ones.

Results: During 2014: Funded over $100,000 in research; Exhibit or present at 12 different health/medical conferences; conduct four awareness/fundraising events in Chicago, New York, Boston and Nashville. Update website with new patient resources and produce 6 minute educational video for broadcast on national public television stations.

Target demographics: people with narcolepsy and their loved ones

Direct beneficiaries per year: the estimated 200,000 Americans diagnosed with narcolepsy and 3 million people worldwide

Geographic areas served: disease awareness

Programs: research funding, public awareness campaigns, medical professional education, patient support services and advocacy

Community Stories

4 Stories from Volunteers, Donors & Supporters

2

Volunteer

Rating: 5

Wake Up Narcolepsy is an inspiring organization born from one family's experience with a child being diagnosed with the life-changing illness, Narcolepsy. It is well- managed and offers multiple services to those affected by Narcolepsy--primarily public education and outreach and fund-raising toward much needed research. As a parent of a child with Narcolepsy, we are deeply grateful for all that they do.

2 Matthew46

Donor

Rating: 5

Wake Up Narcolepsy is a great voice for people with narcolepsy! Increasing awareness about narcolepsy is a big priority of mine. The more people who know about the symptoms can lead to earlier diagnosis. Very grateful for Wake Up Narcolepsy folks for getting the word out, and for funding research.

1 Kasha O.

Client Served

Rating: 5

As a Sleep Advocate, I know how hard it can be to get people to return emails and phone calls right away. You sort of expect to have to wait for a bit because so many people need help and resources are thin. I emailed WUN on behalf of a patient who urgently needed help and received an email back very quickly that went above and beyond what we had asked for. I cannot tell you how happy the patient was and how touched I was that WUN responded immediately and we were given to the Director. They did an awesome job!

2 Tabitha3

Volunteer

Rating: 5

Wake Up Narcolepsy has made a huge difference for people with narcolepsy by spreading awareness and funding research. I have volunteered with them over the last 4 years and our son with narcolepsy has greatly benefited from the work they do. I like this organization because they collaborate with top narcolepsy physicians and other not-for-profit organizations to maximize communication and effectiveness.