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Nonprofit Overview

Causes: Health, Specifically Named Diseases, Specifically Named Diseases Research

Mission: An international nonprofit organization solely dedicated to providing lifesaving educational, emotional, and financial support for families, medical professionals, and other caregivers before, during and after a pregnancy diagnosed with twin to twin transfusion syndrome. Dedicated to saving the babies, improving their future health and care, furthering medical research, providing NICU, special needs and bereavement support, and keeping families together the way twins are meant to be.

Community Stories

66 Stories from Volunteers, Donors & Supporters

Client Served

Rating: 5

In August of 2004 our babies were diagnosed with TTTS. I searched the Internet for more information about the disease and happened upon the TTTS website. I contacted Mary and with in 2 days, a wonderful packet of information was shipped to me. A week after being diagnosed, I went into preterm labor at 22 weeks and we lost both of our girls. I contacted Mary again, and she sent out a bereavement packet with incredibly helpful information.

In August of 2017 I found out that we were once again having mono-di twins. I cried at the ultrasound fearing that this set would develop TTTS and succumb to the same fate. I called Mary and she spent 45 minutes on the phone providing as much information about preventing TTTS as she could. She also got me in touch with Dr. DeLia, who is an invaluable resource.

I felt so supported and cared for throughout my entire pregnancy. Mary would often message me to check up and see how things were going. On January 14, two healthy baby girls (Sierra and Charlotte) were born. Without Mary's support and guidance, I doubt the outcome would have been as successful as it was. The TTTS is an invaluable nonprofit that provides resources and support for those struggling to fight TTTS. I'm so grateful that she founded this wonderful organization!

1

Donor

Rating: 5

Mary was wonderful support after the loss of one of my twins . When you go through something like this you want to talk to someone who knows your pain. Mary knew my pain. She confortd me and taught me how to turn my grief into helping other family's . My suriviving son and our family now do a fundraiser every year and donate it to the foundation

Client Served

Rating: 5

The Twin to Twin Transfusion Syndrome Foundation and Mary Slaman were such an encouragement to us during our TTTS Journey. Our twins were diagnosed with Stage 3 TTTS at 15 1/2 weeks gestation. We had a laser surgery at 17 weeks. The foundation helped alleviate some of our financial burden during our 19 day stay away from home. Since our delivery, Mary has continued to offer support and encouragement to my family and many others. We are truly thankful for all that foundation does to support families going through this terrible disease.

Client Served

Rating: 5

Finding out that my sister was pregnant with identical twins was such an incredible feeling and then finding out about TTTS was frightening. We did not know what to expect. Our whole family was there to support her but without knowing much about TTTS it was hard. Through this foundation, my sister had incredible resources and amazing people to support her, console her, and guide her through her pregnancy and surgery and up until today. It has been over 2 years since my niece was born and my sister still keeps in touch and has made lifelong friends. Thank you for being there for my sister, brother in law and niece when they needed you the most.

Client Served

Rating: 5

One of my closest friends has two happy and healthy TTTS survivors thanks to the help and support offered through this foundation! Such a rarely mentioned disease deserves all the awareness it can get and this foundation is on its way to achieving just that!

Client Served

Rating: 5

When my daughter was diagnosed we had never even heard of this disease but thanks to Mary and all the angels at the TTS foundation we were able to get education and support! We will forever be greatful!

Client Served

Rating: 5

An amazing source of support for families enduring TTTS!

Client Served

Rating: 5

The TTTS foundation helped my wife and I get through our battle with TTTS. They provide support and advice to our family throughout the entire pregnancy. It would have been much harder to go through something like this without them being there.

Client Served

Rating: 5

I remember when we were first diagnosed with TTTS. It was a total shock. I immediately reached out to Mary at the foundation. She was an amazing support and i couldn't thank her enough. She gave me a sense of hope and comfort. She was also a shoulder to cry on. Along with that an amazing resource. I have met amazing people and owe alot to Mary and the foundation. I have made great friendships through this foundation and will be forever grateful

2

Client Served

Rating: 5

Mary is absolutely amazing in all that she does for TTTS awareness and in helping families during their most trying times. From encouraging words to bereavement services, she goes above and beyond for everyone who reaches out to the foundation. I honestly don't know how I would have made it through my TTTS pregnancy without this foundation's support and guidance.