I support this foundation wholeheartedly. Kim Nye and her TESS Research Foundation tirelessly and joyously aim to make the seemingly impossible possible for kids and families living with SLC13A5. Their mission is to provide support, information, hope, and community to SLC13A5 families, to find treatments for the kids, and to ultimately find a cure. They are a vital, creative force for improving the lives of children born with this form of epilepsy by all means possible.
I have watched this nonprofit grow from the start. Kim Nye and the board work and advocate for treatments and a cure for people with SLC13A5 Deficiency. They have helped bring families together to share information and provide support for one another. Tess Foundation's holistic approach with funding medical research and family supports is a beacon of hope for so many.
Patients with SLC13A5 are lucky to have Kim Nye working tirelessly on their behalf. This organization has moved mountains for children who may otherwise have been overlooked. What a remarkable accomplishment. They have also been acknowledged as leaders through their membership in Rare as One. Bravo!