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Tourette Syndrome Association Inc

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Nonprofit Overview

Causes: Health, Mental Health, Mental Health Disorders

Mission: to improve the quality of life of individuals (and their families) with Tourette Syndrome.

Target demographics: individuals and families dealing with Tourette's syndrome

Direct beneficiaries per year: thousands of Texans through Camp, Support Groups, In-Service, Education, Professional Educational Counseling and more.

Geographic areas served: the GREAT State of Texas

Programs: vital and unduplicated programs and services, such as Crisis Intervention; a unique Medical Assistance Program; an annual Children’s Camp; Scholarships and Direct Client Services; Support Groups; and many, many more. All programs and services are free to our children and families.

Community Stories

11 Stories from Volunteers, Donors & Supporters

Volunteer

Rating: 5

TSA of Texas meets the needs of families living with Tourette's. What are those needs? After a diagnosis of Tourette's, there is often a feeling of isolation, fear, and panic. Never having had any experience with Tourette's, we didn't know where to turn, how to get information, or how to receive the support families need to cope. By reading the valuable information on the Tourette Texas website, we were able to navigate through solving school issues, finding reliable physicians, and organizing a support group with the help of the TSA of Texas staff. Knowing you are not alone in this TS journey is so important to the peace of mind of so many families. Having a compassionate resource like TSA of Texas has made such an incredible difference in our lives.

Board Member

Rating: 5

My involvement with the TSA of Texas started in the late 90's. Why? Because I have Tourette (and OCD). However, that is the only reason for my initial involvement with this organization. I have continually become more active, with TSA of Texas, over the years. Why? This organization has such a positive impact on families affected by this disorder through the variety of (free) programs they offer. This includes support groups in the larger cities in Texas, which brings together those families 'battling' this difficult disorder. The organization is exceptional in educating the public (i.e., school districts, law enforcement, etc.). They assist families by providing other resources such as guidance in locating professional help. They offer a weekend camp, held annually, for children with TS to attend.
For many TS families, TSA Texas is a last place of hope.

Abraham B.

General Member of the Public

Rating: 5

This is a charity that has a great purpose and objectives. Tourette syndrome is a misunderstood illness ( my son has it), and this organization is trying to help. For now I am not a donor, but I soon will become one.

Professional with expertise in this field

Rating: 5

The Tourette Syndrome Association of Texas has been my resource for educators and parents for over 20 years. They personally address questions, issues, and problem solve. They provide community contacts, maintain a physician referral list, and give support in the clients home, community, and school. They have helped me as an educator and as a parent. Now my daughter and I volunteer for TSA of Texas with great joy!
The National Tourette Syndrome Association is a premier warehouse for everything Tourette and an advocacy that is unmatched!

Board Member

Rating: 5

Best Neurological disorder support charity EVER! Have been helping TS sufferers for over 25 years in TEXAS!!

1

Volunteer

Rating: 5

The Tourette Syndrome Association of Texas goes beyond just helping out those with Tourette Syndrome.

They have support group meetings state wide where families can come together to learn about TS and support one another. There are also school programs to help teachers better understand children with TS,. There are many doctors, psychologists, psychiatrists, and therapists who are some of the best around. The TSA of Texas hosts a camp called Du Ballon Rouge where children can forget all about the stress of having TS and focus only on having fun and meeting new friends! And the best part? It is the ONLY tuition-free Tourette Syndrome camp in the United States!

The Tourette Syndrome Association of Texas may be a small organization but their knowledge, love, and understanding cannot be judged by size because they are a family!

Volunteer

Rating: 5

The Texas chapter is hardworking, loyal, productive, and far exceeds many non-profit groups I have volunteered with over the years. All charity function's I have volunteered at have been a joy to work. Sheryl Kadmon and Cindy Sacks are what makes this Non-profit run as beautifully and successfully as it does. They are amazing intelligent women that have hearts of gold. Truly wonderful people for doing what they do!

Volunteer

Rating: 5

We got involved with TSA of Texas when our son was diagnosed 20 years ago. If I hadn't witnessed how knowledgable, passionate, committed, and caring this group was I would have a hard time believing it. They are amazing.

2

Professional with expertise in this field

Rating: 5

TSA of Texas is an incredible resource for information and support. The leaders have extensive knowledge and familiarity with TS and the members provide a safe place for encouragement and understanding. The kids are able to relate with each other and experience care-free fun at camp and the monthly meetings. This organization truly cares about its members and the TS community. TSA of Texas has had a huge impact in the lives of those diagnosed with TS.

1

Professional with expertise in this field

Rating: 5

TSA Texas has an incredible group of supportive core staff that have experienced the trials of dealing with Tourette Syndrome personally. Because of this personal experience, the information you will find here is caring as well as constructive. Leaders run support groups all over the state with guidance from the core staff, so there is a common goal of giving support at the family level, as well as at the school level where TS can be so trying. This group is an excellent spot to contact when you first get a diagnosis as well as years later when TS symptoms can change and require a different kind of guidance.

2

Volunteer

Rating: 5

TSA of Texas has great and helpful programs for those dealing with Tourette's. They offer programs such as area support groups across the state that bring bring families together to learn and share support, In-Service programs to school districts provide teachers with important understand of this often puzzling disorder, and Camp du Ballon Rouge is the ONLY tuition-free Tourette camp in the country.

Tourette Texas is a small organization, yet it covers the entire huge state of Texas, providing unduplicated programs and services. Their small, yet incredibly dedicated and hard-working staff is to be commended for all they do.