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Causes: Health
Mission: The Scleroderma and Fibrotic Diseases Foundation is a 501(c)(3) nonprofit organization dedicated to raising funds and awareness to help those affected by scleroderma and other fibrotic diseases. In addition to directly helping the scleroderma and fibrotic diseases community, The SFDF aims to educate others. We spread awareness with a goal of ensuring that more people can recognize the signs of scleroderma and realize the importance of research into scleroderma and other fibrotic diseases. Generally classified as an autoimmune rheumatic disease, scleroderma is a group of rare diseases that involve the tightening and hardening of the skin and connective tissues. In many patients, scleroderma harms structures beyond the skin, such as blood vessels, internal organs, and the digestive tract. Few effective treatments exist, and there is no cure.
Results: The SFDF recently published the first issue of Scleroderma Stories, a publication that sheds light on the experience of living with scleroderma through a series of interviews with scleroderma warriors. The first issue of Scleroderma Stories has reached over 3,900 people in 78 different countries.