My local Myasthenia Gravis organization immediately put me in contact with one of its "listening ear" volunteers. It turned out the volunteer also had MG, was close to me in age, and lived only 5 minutes away! This wonderful woman had an arsenal of practical tips to help me cointinue to live my life and do the things that were important to me, even though a rocky first couple of years with the disease. The MGFA-Great Lakes Chapter performs extraordinary outreach! Truly above and beyond for people with MG and their families!!
Thank you MGFA Great Lakes Chapter for coming to the hospital every time I had a crisis, and there were a lot! For putting me in touch with other members. for raising funds for research and patient support. For spreading the word throughout the community and for coming up with countless creative ways to get the word out and drum up support.
The Myashtenia Gravis Foundation - Great Lakes Chapter has provided me with a ton of information, great support meetings and new friends as I was recently diagnosed with MG and had never heard of it. There is a huge benefit in speaking with others who have MG, and the Foundation is working to create public awareness of this relatively unkown disease. I have joined in fundraising events as a participant and as a volunteer. We're like a big family.
The Great Lakes Chapter of the MGFA has been a beacon of support after learning I had Myasthenia Gravis. When 1st diagnosed they provided much needed information about my disease and treatment options for patients. The support group meetings are fun and informative. The executive director even came to see me in the hospital. I don't think I would have made it through this year as well as I did without their support and information.
Review from Guidestar