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- EIN 47-4011296
- info@meaction.net
- (626) 354-7833
- 1217 Wilshire Blvd. #3639 Santa Monica CA 90403 USA
- Facebook page
- MEActNet
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Nonprofit Overview
Causes: Health, Health Support, Patient & Family Support, Public Health
Mission: The Mission of #MEAction is to build a global movement of patients, families, and allies that leverages the power of technology and community to fight for research funding, medical education, and public awareness for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS). Our Vision is to create a world where all people with ME have support and access to compassionate and effective care.
Results: Together with our staff, volunteers, eight #MEAction USA State Chapters, #MEAction UK and Scotland affiliates, we have accomplished a great detail in our first five years: + We have helped organize annual #MillionsMissing events in almost 100 locations, reaching over 70,000 ME/CFS patients and expanding recognition of this disease around the world. + We helped bring Sundance's award-winning documentary Unrest, featuring #MEAction Co-Founder Jennifer Brea, to Capitol Hill. + #MEAction UK's advocacy with Members of Parliament culminated in a historic House of Commons motion to provide increased funding for ME/CFS research and to support the suspension of Graded Exercise and Cognitive Behaviour Therapies. + We put pressure on US federal agencies, resulting in a historic meeting with NIH Director Francis Collins. + In the face of COVID-19, we developed educational seminars for clinicians and long haulers.
Target demographics: People with Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS), their caregivers and families take action to increase ME/CFS awareness, research, and medical education so that one day, all people with ME/CFS will have access to compassionate, effective care.
Direct beneficiaries per year: Over 20,000 people with ME/CFS, caregivers, and family members get the resources and support they need to fight for medical education, research, and public recognition of ME/CFS so that, one day, all people with ME will have access to compassionate, effective care.
Geographic areas served: The United States with affiliates in the UK and Scotland
Programs: Federal advocacy, medical education, research, and #MillionsMissing, our global annual movement to raise awareness and achieve rights for ME/CFS patients.