Over 1.8 million nonprofits and charities for donors, volunteers and funders

2019 Top-Rated Nonprofit

The MAGIC Foundation

4,296 pageviews

Claim This Nonprofit

More Info

Add to Favorites

Share this Nonprofit

Donate

Nonprofit Overview

Causes: Birth Defects & Genetic Diseases, Health, Voluntary Health Associations & Medical Disciplines

Mission: The MAGIC Foundation Mission: The MAGIC Foundation is a national non-profit organization created to provide support services for the families of children afflicted with a wide variety of chronic and/or critical disorders, syndromes and diseases that affect a child's growth. Since its inception the Foundation has grown to include support services for adults who were also impacted by these disorders. The MAGIC Foundation Vision: Our commitment and vision is, to reduce the emotional and physical trauma caused by growth disorders, resulting in healthier, happier children and consequently, adults. Our Motto: Children have a short time to grow and a lifetime to live with the results!

Target demographics: Children affected with Endocrine Disorder that affect physical growth, and adults with Endocrine Disorders.

Geographic areas served: Support of parents & affected adults

Programs: An Annual Educational Convention, On-line social media via Facebook, Twitter & Instagram, Physician Referrals, Insurance Appeals Assistance, Medical Brochures for Affected Disorders.

Community Stories

86 Stories from Volunteers, Donors & Supporters

1

Client Served

Rating: 5

The Magic Foundation has been instrumental in understanding my son’s condition. My son’s birth was induced at 37 weeks due to IUGR. At 4 pounds 15 ounces and 18 inches long he was immediately given a diagnosis of SGA. Within the next few months, he would have numerous appointments with a pediatric gastroenterologist which would result in a failure to thrive diagnosis, an invasive procedure, and the threat of a hospital stay. He saw a pediatric cardiologist, an endocrinologist, a urologist, and eventually a geneticist. He eventually received an incorrect diagnosis of RSS. After contacting the Magic Foundation and attending the convention, his RSS diagnosis was removed and he was diagnosed as SGA without catchup. I was able to get growth hormone approved with the help of the wonderful staff of the foundation (specifically Jennifer Salem). I continually have to educate my son’s doctors on his condition and his, often unique, needs. I am only able to do this, as a result of the education I have received through the staff, the convention, the Facebook group (specifically from Megan Donnell) and the guidebook all provided and coordinated by the Magic Foundation. My son is a thriving and healthy 3.5 year old with far less doctors appointments. I believe we would be in a way different place if it weren’t for Magic. I can’t say enough wonderful things.

2 Martina P.

Client Served

Rating: 5

My family and I will forever be grateful to The MAGIC Foundation. The amount of resources made available, the caring founders, the dedication to help...it is amazing in every way imaginable.

My daughter was diagnosed with Hypopituitarism last September, 2018. She met all insurance criteria for growth hormone therapy. At 5 years old, she was the height of a 2 year old. She had all of the classic GH features in Pediatric Growth Hormone Deficiency. We’ve learned so much from our Endocrinologist, but we learned so much more from all of the available articles on The MAGIC Foundation’s site.

We are members of The MAGIC Foundation, and with membership comes insurance appeal support. Unfortunately, we lost all appeals for receiving treatment for our daughter, and had one final external appeal left. I lost sleep. I lost weight. I physically got ill at the thought of my daughter being denied treatment. The pain of not being able to help your child is unfathomable. We worked with MAGIC and their insurance appeal assistance and with their dedication, support and knowledge, we WON our external appeal. As a mother, I am forever grateful. I’ll never be able to express the true gratitude I have for this foundations work and dedication in helping my sweet little girl.

4

General Member of the Public

Rating: 5

My son was diagnosed with unilateral ONH when he was 3 months old. I was so confused about this diagnosis and what we would have in store for him in the future. I felt so alone learning how rare this condition is and I broke down in tears often thinking this was all my fault somehow. Becoming a member of the MAGIC Foundation FB group page has been life changing! I not only have received proper information to make sure my son gets all the attention and appointments that he needs, but I no longer feel alone. I know I stand tall and strong with a big group of other brave warriors who also struggle with this condition or raise a kiddo with it. My experience with my first born has been so much easier knowing I have support and a group that I can always reach out to for advice and information. This group is HEAVEN SENT! Thank you from the bottom of my heart!

5

Client Served

Rating: 5

These AMAZING people help a tremendously underserved population of people with rare health needs, those with growth disorders. Growth disorders are about HEALTH, not size. This organization helps families and their medical teams with medical, social, emotional, and practical information and assistance. Our pediatrician keeps the guidebook on her desk and refers to it frequently. We routinely use their resources in daily care for our grandson. I'm not sure that he would be alive without the research that MAGIC has funded for his disorder.

7

General Member of the Public

Rating: 5

I found Magic while doing research when my son was diagnosed GHD. He was 11y9m and we were very scared as parents to start therapy and worried were we making the right decisions. The connections we made through Magic helped to reassure us by sharing their own experiences as well as providing research they had done or read. Now almost 4.5 years later my son is healthy and thriving and I get to be there to help other parents as they start their journey.

7 Anne Marie B.

Client Served

Rating: 5

Having a child diagnosed with a chronic disease is very scary and stressful. The Magic Foundation provide a tremendous amount of information and knowledge regarding our son's diagnosis. It made support groups available to us and insurance advise and advocacy. I am so thankful for the Magic Foundation.

7 Grace D.1

General Member of the Public

Rating: 5

I attended a conference by the Magic foundation and accidentally stumbled into a whole world of support! When you’re facing a rare diagnosis, those kinds of connections help you fight, help you hope—help you survive! I’m grateful to this foundation.

7

Client Served

Rating: 5

Magic is an invaluable source for children and families with growth disorders. Doctors often don’t have experience with rare syndromes, but people at Magic have the knowledge, connections, and resources. Thanks, Magic, for giving us the tools to help our daughter thrive!

6 Justin R.2

General Member of the Public

Rating: 5

When you feel lost and no here to turn to aid in your child’s care and future needs the Magic Foundation provides the insight you need.

6 Jess H.3

General Member of the Public

Rating: 5

I found the MAGIC Foundation while researching my newborn son’s chronic condition: congenital hypothyroidism. Their website was full of helpful information that soon lead me to a Facebook support group. I was able to read story after story of families just like mine, learning how to adapt and grow with a growth disorder.

And then my son was diagnosed with a second growth disorder. Being connected with the MAGIC Foundation prepared me for the road ahead. We were able to transition into our new role as parents of a child with growth hormone deficiency seamlessly. The advice from the group and success stories gave us confidence in our decisions.

I would not be as peaceful with these difficult hurdles without the MAGIC Foundation’s support and resources. Thank you, MAGIC, for all you do.

6

General Member of the Public

Rating: 5

Over 20 years ago, doctors began to tell me that my son wasn't growing properly. The internet was just in its beginning stages back then, I had very few places to turn. I found Magic and we were transformed. I met other parents struggling with the same issues, I found people who had already been down my road and were willing to share their knowledge, I found a home. People who cared. People who were truly dedicated to helping me see the light at the end of a very dark and lonely tunnel. It's been over 20 years, my little son is an adult now but I have never stopped touching base with Magic to share, to learn and to be part of a loving family. Magic changed my son's life for the better and I will always be eternally grateful!

7

General Member of the Public

Rating: 5

I don’t know what I would have done without the Magic Foundation to help me navigate my son’s growth hormone deficiency diagnosis and treatment. Their website contains invaluable information and the volunteers running the Facebook group are angels on earth for their endless patience and generosity of time, advice, and experience. Without Magic we would have been lost and confused and at the mercy of a system that doesn’t necessarily have the best interest of the patient in mind. I will always be indebted to the Magic Foundation and their volunteers.

6

Client Served

Rating: 5

The Magic Foundation has been invaluable as we work to care for a child with a very rare condition. Everything from their social media networks to the annual convention arm us with more information, resources, and relationships that allow us to better care for our daughter in both the short and long term. We are so thankful for Magic!

6 Judy S.2

Client Served

Rating: 5

Back in 2012 I failed a growth hormone stimulation test . My level was in the severe range I also replaced several other pituitary hormones. My endocrinologist did the prior auth and was denied . An appeal was also denied . I had a second endocrinologist also apply get denied, appealed denied, also did a peer to peer with the insurance company . She was told I know nothing about growth hormone deficiency I am denying this medication because it is expensive. I kept having more spinal fractures . I contacted the Magic Foundation. I sent them my records. Well they got me approved in no time. I owe so much to them, I will always be so grateful
Judy Sewell

General Member of the Public

Rating: 2

As a parent with child with a rare genetic bone disease, I was eager to learn as much as I could. When I found out about the Magic Conference details my family was super excited about the possibility of going. Unfortunately, that particular year was extremely rough on us financially. Our son had multiple hospital admissions, tests and ultimately his diagnosis. When I heard of possible scholarship funds, I applied, but with hesitation. I'd not ever experienced the hardships we'd had that year, but knew we could not pay for it. I applied. I had talked to my brother about this opportunity. He recognized the strain my family had been under and offered to pay for us to stay an extra day or so. When I contacted Magic about sending a check for the additional days I was admonished, belittled and made to feel embarrassed because "those who can send a check for other days shouldn't be asking for scholarship monies for the conference. Instead those funds should be given to a truly needy family". I was told despite how they felt, our scholarship would still be given. I asked my application to be withdrawn and informed them my family would not attend.
I understand trying to allocate funds to the most needy, but having an overseer of those funds who can use tact is most beneficial.
What I hear of this group is that it does a lot of good. I personally have not received help or information. Because of my experience I give 2 stars.

7

Client Served

Rating: 5

In 1994, when my two-week old son was diagnosed with panhypopituitarism (PHP), there wasn’t much of an Internet. Finding a support group for parents of kids with rare health conditions could be more a matter of luck than anything else. Maybe the new specialists who suddenly filled your days could point you in the direction of a group or two, or maybe they had other patients with the same health concerns. But maybe not, and then you ended up feeling pretty much alone as you navigated these new medical landscapes.

My son was in and out of the hospital a lot before he turned one, so I’ve lost track of many things during that year, including how I found out about MAGIC. But somehow I did, and somehow because of MAGIC I ended up having a long-distance call with another mom in Florida whose infant son had also been diagnosed with PHP. As the years passed, MAGIC helped me figure out how to effectively work with—and occasionally argue with—my son’s healthcare providers. MAGIC was my bridge to other parents who could tell me how they were dealing with their child’s PHP. MAGIC helped me understand how much the effects of PHP could vary from person to person, and why I needed to convey my son’s individual responses and symptoms to his doctors even when they wanted to find easy answers and explanations.

My son was lucky. He has received appropriate care for his PHP ever since he was two weeks old, and the effects of PHP are manageable. But it’s still a rare condition and its effects can look like many other health issues, and it can be easy for a doctor who is not paying attention to dismiss a parent’s concerns. I am appalled when I hear about doctors who still don’t understand that emergency PHP protocols can save a child’s life, that some kids go for years before they receive an accurate PHP diagnosis, that some parents are given incomplete or even wrong information about PHP even after a diagnosis is made. For these parents and their kids (and for the docs who are willing to listen and learn), MAGIC is a vital resource. MAGIC staffers and volunteers know the questions parents have, because they’ve had the same questions. If they don’t know the answers, they do their best to find out. And they let parents know there’s a whole community waiting to help them.

For awhile I was able to help moderate MAGIC’s Facebook group for parent of kids with PHP. There were so many posts from so many moms and dads whose kids had just been diagnosed with PHP. They were scared, they didn’t know what they needed to know, they didn’t know what this diagnosis would mean for their child a week later or five or ten years later. Sometimes, to try and reassure these scared parents, I would ask other members of the group to post pictures of their PHP kids. The response was always overwhelming. The wall would instantly fill up with kids of all ages—kids in holiday clothes or Halloween costumes or pajamas—kids who were happy and busy and active—kids from across the country and across the world--kids who had a rare health condition and who sometimes had setbacks, but who were kids first and PHP patients second.

MAGIC gave me that support almost 25 years ago, and MAGIC still gives that support and encouragement and guidance today. Is MAGIC magic? Yes, it is.
Ann Perry

7

General Member of the Public

Rating: 5

The magic foundation has been a blessing to our family! They have helped answer so many questions and a provided us with many resources to learn more about early puberty. They are my #1 go to. I recommend them any chance i get!

6 Erica S.3

General Member of the Public

Rating: 5

Magic is helping us so much. They're all so helpfull and Nice. I'm in Argentina. They send me the guidebook. they Made the free screening yo help with the diagnosis, and answered all muy question. Also they conected my son's doctors with the especifict especialist. Amazing Job. Amazing people.

Hola. Soy de Argentina. La gente de Magic nos ayudó muchísimo, no sólo con información sino con la contención. Me enviaron por correo la guia de SSR. Hicieron el screening gratis. Y actualmente están conectando a la genetista de mi hijo con uno de los mayores especialistas. Son increíbles. Ayudan en todo sentido. Muchísimas gracias Magic. Toda la información que tengo y que pude transmitir a los médicos de mi hijo proviene de ustedes.

7 Kathleen O'Connor M.

General Member of the Public

Rating: 5

This organizatiin is great. I had nowhereelse to turn when my son got diagnosed with Growth Hormone Deficiency. They provided tons of education and provided resources so we could afford the medication my sin needed to grow. They continue to be a source if support. When we needed to fi,d a new doctor there they were to point me i the right direction.

5 Brittany E.1

Client Served

Rating: 5

The Magic Foundation has been a great resource for our family! Three out of our five children have been diagnosed with a rare growth disorder and it was very difficult to find information about it. The Magic Foundation gave me the opportunity to attend their annual convention twice through generous scholarships. The conventions had informational sessions hosted by medical experts which helped me gain important knowledge that helped me better understand my children’s condition.