The Joshua Frase Foundation For Congenital Myopathy Research Inc
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- EIN 59-7059890
- (904) 821-4246
- Po Box 2041 Ponte Vedra FL 32004-2041 USA
- www.joshuafrase.org
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Nonprofit Overview
Causes: Health, Nerve, Muscle & Bone Diseases, Nerve, Muscle & Bone Diseases Research, Pediatrics
Mission: Research for myotubular myopathy and other congenital myopathies, educational information, and research support.
Programs: Research
assistance to families with the purchase of needed medical equipment and being a resource for educating families worldwide on the care for these critically ill children as well as providing resources for them