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The International Waldenstroms Macroglobulinemia Foundation Inc

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Nonprofit Overview

Causes: Health, Specifically Named Diseases

Mission: Mission objectives: (a) offer mutual support and encouragement to the waldenstrom's macroglobulinemia community and others with an interest in the disease, (b) to provide information and educational programs that address patients and caregivers' concerns and (c) to provide and support research leading to better treatments and ultimately a cure.

Programs: Provided 21 grant payments towards 15 different grants to further research in waldenstrom's macroglobulinemia development of targeted therapies, targeting the tumor microenvironment, development of the role of hypoxia, large scale genomic and proteomic profiling, factors regulating immunoglobulin-producing b-cells, identification of germline and somatic variants associated with predisposition of waldenstrom's macroglobulinemia, further genomic characterization of waldenstrom's macroglobulinemia, unveiling the role of the cxcr4 somatic mutation, a crucial regulator of pathogensis and important target for therapy.

educational forums hosted a national educational forum for waldenstrom's macroglobulinemia patients and provided a grant to fund patient educational forums.

iwmf publications serve to educate and support patients and caregivers. Iwmf torch is a quaterly magazine which covers the latest information on waldenstrom's macroglobulinemia education, research, activities, and treatments.

other program services for international outreach and other program services for support groups.

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