Star Legacy Foundation is an amazing organization with a great mission! Whether it comes to the bereavement or pregnancy after loss support programs or the education and research funding Star Legacy is a great service to those who have suffered pregnancy loss or infant death! It has been my honor and privilege to volunteer and see the organization continue to grow and develop. Thank you Star Legacy for all you do for the community!
We are a newly formed Star Legacy Foundation Chapter serving all of Western Washington. I am a loss mom prior to the Star Legacy Foundation's inception and knowing what I know now about what they offer and the work they are doing, I would have been so fortunate to have had them available to me during my loss in 2002. My son, Taylor William Czarnik, was 26 weeks gestation when he passed. I did not want to live after I lost him. Had I had the resources available through SLF I would not have felt like that and my subsequent pregnancy would have been easier and more supported. The people who belong to this organization (20+ chapters now) are like family. We are connected by a common (sad) bond. But the things being accomplished through this nonprofit give all of us a passion and a focus in the name of our lost children. We are there to support other moms who have gone through or are going through a miscarriage or stillbirth themselves. We are there to help raise funds for continued growth and research. We help to promote Pregnancy Research so that we can figure out why this happens and take steps to reduce the rate. We help change legislation such as providing child tax credits for loss parents and providing certificates of birth, not just certificates of death for our precious children. I cannot say enough about what Star Legacy stands for, what they do, and what they plan to do in the future. They are amazing!!!
Where do I even begin with this incredible organization, who exists to help & support you through the worst thing ever..the death of your child. Our daughter Juniper died, stillborn at full term in August 2018 and we were met with incredible support while in the hospital and in the days and weeks following. Star Legacy is committed to stillbirth research which is the most understudied topic in medicine today. The work they are doing is invaluable and the benefit they bring to the community unmatched. While in the hospital with our daughter, they helped us make all these terrible decisions no new parent should have to make, brought us support items (books, candle, etc) and helped us fill out all the necessary paperwork, things that the hospital staff wasn't familiar with.
Star Legacy Foundation is the only United States Based foundation dedicated to stillbirth prevention, research and awareness. They have been my tribe of support in the unexpected loss of my daughter. The United States has higher stillbirth rates then 3rd world countries and our rates are not going down. Other countries (UK and Australia) have initiated platforms to educate expectant Mother’s on the importance of kick counts and monitoring your babies movement to prevent fetal distress/demise. This has contributed to a reduction in their stillbirth rates. This information is not being distributed in the US and Star Legacy makes it their mission to raise awareness and reduce rates so more families bring healthy babies home. It’s a common misconception that stillbirth is not preventable, it most certainly is. Not in all cases, but many.
Amazing work towards researching stillbirth, creating awareness of stillbirth and providing support to families of babies born still.
Being great grandparents to a precious great grandson, Benjamin, perfect, almost full term, stillborn, we shared the grief with our granddaughter and her husband, our daughter and her husband........also, aunts, uncles, cousins, and friends... Stillbirth is such a heartbreaking event and still not discussed openly! Star Legacy strives to bring awareness and funds research to help stop this tragedy from happening to other families!!
Star Legacy is an amazing organization committed to raising awareness, educating the public and supporting loss families who suffer stillbirth.
I love volunteering my time to Star Legacy. They are making such a difference in the lives of so many and I feel honored to be a part of their movement. From supporting families to empowering medical professionals, Star Legacy meets the needs of all. Thank you for all you do and for brining attention to stillbirth!
Just attended the recent Stillbirth Summit in Bloomington, MN. This was an amazing event and as a health professional I was blown away at the depth of information provided by the various presenters. This was by far the best professional conference I have ever attended. I came away with immediate actions items I have already put into place in my own practice.
The programs offered are amazing and the staff that I have come in contact with have been great! I highly recommend.
I cannot say enough about how this foundation has been there for me. After my son was born still on August 18, 2017, I felt the need to find resources and Star Legacy was one of the first (and only) ones I found. They have been a tremendous resource and support system. I am involved as much as I can manage with the Maryland Chapter and support their goals as an organization. A personal goal of mine is to stay involved with advocacy and compassion in order to help those affected by pregnancy and infant loss and to, hopefully, one day, find that all pregnancies are treated as high risk in order to save more lives.
An incredible organization passionate about advancing the research, advocacy and education to reduce stillbirth rates. Extremely supportive staff and incredible volunteers working to spread the mission all across the country.
The Star Legacy Foundation is a great resource, not only after stillbirth occurs but in preventing them also, as well as dealing with pregnancy after loss. Being a part of this team has helped me cope with my loss and nor feel alone.
I have only wonderful things to say about Star Legacy. They are fantastic in getting the word out about stillbirth in such a caring and thoughtful way. They were truly wonderful for my family in their time of need and it is evident that this foundation really does care about all pregnancies and that each one should have a happy ending.
My wife got involved with this organization a few years after the loss of our daughter. While her death was preventable, Star Legacy Foundation allowed my wife and our entire family ways to honor her life by helping others. Whether it was through a donation, memorial star, putting our daughter's name on the backs of t-shirts at events across the country, or the various opportunities, most at no cost, these brought comfort and a sense of belonging in our newly changed life. It has been many years and there is no other organization that does more to educate pregnant women and health care providers on prevention, supports families through the support line, online support groups, and memorial opportunities, and actively participates in research to get to the bottom of why this is happening than Star Legacy Foundation. There is also a new Chapter in our area which has provided even more opportunities to help families right here in our local community. Thank you Star Legacy for all that you to do to help families and all that you do to work towards stillbirth prevention. I will continue to support this organization forever because of the results their work yields.
The Star Legacy Foundation is the only nonprofit of its kind in the country. They fill an essential role: funding studies, raising awareness, and hosting educational events with the goal of reducing pregnancy loss. Tens of thousands of families across the country are grateful for the work they do.
The Star Legacy Foundation has played a crucial role in my life, following the stillbirth of my daughter Tinsley in Dec. 2017. I am immensely grateful for this organization and the wonderful ways it promotes education, awareness, and support for the stillbirth community -- not only to those families affected but also the medical community. The annual 5K was my first chance to meet other moms who have buried their children, and it was incredibly healing not only for me, but also my husband and living children. It's also given me the opportunity to take action in honor of my daughter!!
I was directed to Star Legacy after the stillbirth of our daughter, and I am blown away by what they do. The free support groups have been life-saving, and I love that they include support for grandparents and other family as well. They also do education to help prevent stillbirths, and they advocate for legislation to prevent stillbirths and help stillbirth families.
After the death of my son StarLegacy was the only group I found in the US that was addressing the issue, educating to find a way to help prevent Stillbirth and not just comfort after the fact. They provide so many services, they have made me feel less alone, more educated, and empowered.
When your child dies, the dreams you had for your child's lifetime dies leaving an empty hole in your soul. Part of you is gone forever and living through that loss is painful. Without support, the loss keeps growing. Stillbirth is a tabu, nobody talks about out, but the grieve is so loud that can't be ignored. Star Legacy, has given me a way to speak for my daughter, to talk about her and to help others by creating awareness and providing support. Thanks to Star Legacy for breaking the silence.
Star Legacy is doing a great job giving support to families that are going through the loss of their babies. We need to raise awareness and funds for research. Through Star Legacy we can help saving some beautiful lives.
When our daughter was stillborn in 2015 my family and I were in desperate need for some support. After a quick google search we found SLF. Immediatly they went into action by coming to our home to talk to us and listen to our story, to guide or grief process, and connected us with other loss parents. Through SLF we have connected with other parents, doctors, and researchers from all over the globe. The work and research they do to try and decrease stillbirths in our country, raise awareness for pregnancy loss is immeasurable.
Unfortunately I did not discover Star Legacy Foundation in the hospital, but a few weeks later. It is such a wonderful resource. The list of books for loss parents, free info brochures to pass along to family and friends, specific information for grandparents (including support group meetings) and most especially fundraising and support for education and research surrounding stillbirth. When a parents feels helpless to make a difference in the world and be sure that their child’s life MATTERS, knowing that Star Legacy Foundation is making strides to improve family experiences who have to suffer through the unimaginable by educating medical staff and spreading awareness around the world is such a comfort. Hopefully with continued research there will come a day when fewer families have to even know the tragedy of stillbirth.
The Star Legacy Foundation is dedicated to research and education for families and professionals to improve the care of families experiencing perinatal loss, which is desperately needed in healthcare.
I am the great-aunt of a stillborn baby. I found this foundation when desperately looking for resources for my sister, her daughter and son-in-law and the rest of the family. I found myself glued to the website for hours reading through the volumes of information and listening to the very imformative podcasts. I was able to share so much with my family and we have become enthusiastic supporters of this organization. It was and continues to be an invaluable resource that I share frequently with friends and acquaintances who suffer this most unfortunate and tragic event.
Star Legacy Foundation is an excellent organization that strives to make a difference in the community and across the world. They truly want all pregnancies to end with a happy ending and try day in and day out to make that a reality!
This research and education is a vital component of reducing stillbirths in the United States and around the world. The information put forth by this foundation is extraordinary!
SLF provides much needed support and resources for parents and family who have suffered the loss of a child. The organization and it's members have been there for my family, making coping with our loss more bearable. This is an organization that needs to expand it's footprint and impact.
The Star Legacy Foundation is the only Stillbirth organization in the United States dedicated to research, prevention and family support for stillbirth. The organization is growing rapidly with chapters across the country. I'm excited to be affiliated with this non-profit. The Star legacy Foundation has personally helped my family and I after we lost our son Landon just before his due date because of a knot in his umbilical cord. Since then, I've been able to connect with doctors and researchers through SLF to understand how these tragedies can be prevented. This organization is the real deal, with an established board, a medical advisory board and chapters throughout the country. I truly believe through the efforts of the Star legacy Foundation we will see a reduction in stillbirth, similar to the national campaign against SIDS.
Keep on rocking Star Legacy!
After losing our son, Finnegan, to stillbirth we searched for some sort of community that could help us understand and connect with others in our situation. We were lucky to find Star Legacy where we raised awareness in Omaha, NE and started a walk to honor all babies gone too soon. We were amazed at the amount of people that also wanted to form a community and support system in Omaha. We continue to bring awareness to the community and many other communities in the US. Star Legacy is a great organization that truly wants to end stillbirth through research and guidance. I'm honored to be a part of this organization.
I have walked in the Star Legacy Walk in Omaha, NE for the past two years and plan on doing it again this year. I walked in memory of my friend's son Finnegan, but also in memory of so many others. This is a wonderful event to honor those precious babies that left us too soon. I was really impressed at how many activites are family oriented luke the childrens fun run abd balloon release.
Star Legacy Foundation is relevant in bringing awareness to families and those touched but those who have been effected. They have a great influence on helping those through difficult times. The members of this foundation are very dedicated and provide tremendous support through their understanding and compassion. In Nebraska, I attended an event called the Stillborn Awareness Walk. They shared their stories of hardship and break throughs and their belief in finding a way to prevent stillborns. This type of dediction is what this communicty needs.
The support this organization offers to families during a tragedy is immeasurable.
Many poeple do not understand the impact that stillbirths have on families and even the extended families. Often times, families are left feeling confused, vulnerable, and lost. Star Legacy has been a wonderful resource and inspiring organization. In Omaha. NE, Star Legacy hosts walk each year that brings families together that have experienced or been impacted by a stillbirth. The organization brought many together and allowed everyone to gain support and share their stories. It has been remarkable and something that my family and I personally look forward to attending each year! The support and friendships that are made through the annual walk is truly remarkable. It is fun for all ages and they manage to choose beautiful locations! It is always ran very smoothly and I hope to be able to get involved more in the future!
Star Legacy Foundation provides comfort and support to families suffering from the tragedy of stillbirth. After we lost our son Dylan at 33 weeks gestation, we found a community of support through this organization. I have recently started to volunteer with Star Legacy in an effort to get tax credit legislation passed in New York just as the organization had helped influence in Minnesota. I am confident that the research and programs that Star Legacy supports will help prevent some causes of stillbirth in the future.
After my sister and brother-in-law's stillbirth, Star Legacy helped our family tremendously. With their help we've learned so much and have felt included in a community. We are grateful that there's an organization out there to help us put our grief to work. For such a common tragedy, there is a shameful level of public knowledge about stillbirths and other painful pregnancy outcomes. There's a lot more work for them to do!
Star Legacy Foundation provides so many resources to the families its serves and it fills a gaping hole that very few other nonprofits in the U.S. serve - research on stillbirth, pregnancy loss, and neonatal deaths. As a mom to a stillborn daughter, I wanted to help others who are also navigating this unexpected journey and shine some light on this under-researched topic. Star Legacy allows me to do both. Furthermore, the staff and other volunteers are so welcoming and focused on working together for other babies and families.
They are doing such great work supporting families at the darkest time. From the smallest details in the hospital to lifelong support. Excellent work!
What a wonderful organization that provides much needed support to families going through tremendous loss. These strong individuals and families have come together to make a difference in research, fund raising and support.
I lost my baby girl, Lia Penelope, on June 17, 2016. From the moment she was born and throughout this tragic past 8 months, the Star Legacy foundation and it's strong and inspirational members have been a great support to myself and my family. Although tragedy brought us together, we have each other to lean on in the process of healing. In turn we change an extremely unexpected and sad experience into one in which we support each other, further research and bring awareness to an event that seldom is spoken about so that no one suffers alone.
This organization has truly benefitted so many throughout the United States and beyond. I was helped by this organization when my twins were stillborn this past year. I am now an active volunteer with the organization and couldn't be more proud of the work that is being done.
My hospital nurseI referred me to the Star Legacy Foundation after my son was stillborn in 2014. I called the number on their brochure and immediately knew this was an orgaqnization that truly understood my heartache. I was asked if I would like to visit with another mom with a loss similar to mine. I eagerly said yes. Less than two hours later, Lindsey - the Executive Director of the Foundation called me herself. I was amazed that someone as busy as she was still had time to talk to me - just another of the many grieving moms that they must hear from. We talked for over an hour and she reassured me that everything I was experiencing was completely normal and I was not 'crazy' for feeling the way I did and that I was not responsible for my baby's death. I learned that she is a nurse practitioner so she was extremely helpful in helping me to understand why some of the things happened the way they did, what the current research says about cord accidents, and helped me sort out some of the things the doctors and nurses and even my friends and family said that didn't make sense or were hurtful. After that first conversation, I felt like a ton of bricks had been lifted off my chest and I could actually breathe again. And - then she called me back a few days later - just to check in and see how I was doing. We still keep in touch by email on a regular basis and by phone when I just need to talk or have a particular question. She also offered to have another Dad talk to my husband. He was resistant but when this Dad called him they talked for a short time and then met up to have a beer. I saw an entirely new man emerge - he too benefitted so much from just talking to someone who has lived our nightmare. My parents now attend a group for other grandparents and they really enjoy it. I can't say enough for what this organization and Lindsey in particular has done to help us move forward. We attended their run/walk event and were amazed at the volumes of people that came who know the sorrow of losing a child. We are now volunteering as we can and one day hope to be in a place where we too can be there for other families in their darkest hours.
This group of dedicated individuals is impressive. They have a solid grasp of the issues surrounding the problem of stillbirth and have taken very professional approaches to addressing those issues on behalf of the thousands of families that suffer the loss of a stillborn child. As a loss mom as well as a health professional, I have learn a tremendous amount from them and have the highest regard for the work they are doing. It gives me great hope to know that the medical community is being challenged to do better!
The Star Legacy Foundation is an incredibly healing organization. They do all they can to help families personally and to research stillbirth.
I have had individualized attention from them and immediate responses to questions. They are thorough in what they do and great advocates for us all.
I have watched this organization grow from a dedicated family wanting to make their own loss become the hope for the thousands of families into the largest US organization dedicated to stillbirth prevention. They have become the most knowledgable source of information and resources in the US and are backed by a prestigeous medical advisory team from around the world. This organization is one to watch as they remain steadfast to their vision that one day stillbirth will truly be a rare event. I am proud to support this organization in any way that I can.
Review from Guidestar
So impressed with the incredibly organized, thorough, and efficient manner in which this foundation is run. This team works tirelessly and is making important progress very quickly in areas where no one else is working. If anyone can change stillbirth in this country, it's Star Legacy.
This organization does amazing work! They donated money to sponsor a nurses' healing retreat. They even sent speakers and a yoga instructor. They are very involved in our community and are highly respected!
I cannot tell you what tremendous support our family received at the time when our granddaughter was stillborn in 2015. The nurses at the hospital asked us if we would like to have someone who had experienced a loss come and talk to us - we we hesitant at first but decided to say yes. Two lovely women arrived and from that moment on we felt supported in numerous ways. They helped us understand what to expect and what decisions we would be asked to make and what the options were to us. They called another of their team who was a loss grandmother to come and talk to our parents which was so wonderful. They gave us a phone number to call at any time to ask questions or to just vent. Since then we have become actively involved in their work and support their efforts to advocate for awareness, research, education & family support. This organization was truly a saving grace for us at a very vulnerable time in our lives.
The Star Legacy Foundation plays a vital role in advocating for families who have experienced one of the saddest things a family can endure: the loss of a child at an advanced stage of pregnancy.
In 1974 and 1975 I experienced two miscarriages/pregnancy losses in one year. There was absolutely no support for me through this terrible loss. In fact, one of my friends had a still birth of a full term baby the same year and she wanted a funeral for the baby. She was not allowed to do so. Shortly after I began working as a postpartum nurse where I, too frequently, observed nurses and doctors unable or unwilling to comfort woman who experienced various types of losses. I observed this lack of awareness, policies, and services in the medical community for over three decades despite many efforts and initiatives by many. Sadly, there continues to be insufficient public awareness, education, advocacy, and research related to the needs of a bereaved parent and grandparent of a child lost to miscarriage, stillbirth, prematurity or neonatal death. Star Legacy Foundation is doing important work in attempting to address this important need. I have known Lindsey Wimmer, the Executive Director for over 17 years. She is a very capable educator, nurse practitioner, manager, and creative leader.
I lost my daughter to stillbirth 6 years ago. At the time, I didn't even know stillbirth still happened, let alone at such a high frequency. I do know that nobody talked about it, warned me about it, or wanted to talk about it after the fact. I searched online after losing my daughter and didn't find much support. I noticed there were quite a few small groups trying to do something. They were all started by families, not medical professionals, and most of them had a mission related to post stillbirth support. I believe that is important, however, i am a person who wants something substantive. I want data. I want answers. I want education. I want change. When I came across the Star Legacy Foundation website i found what i was looking for. Not only do they have the personal connection to stillbirth, but they also have the medical tie. Not only do they support grieving families after a loss, but they are focused on education and prevention. I reached out and had a long phone call with the founder, and the rest is history. We are friends and I am now on their board of directors and we are growing quickly. We have held two summits, had multiple research and findings published, conducted a research study of our own when data wasn't available, and are actively working to impact change going forward. We are a passionate group that knows we can make a difference. They clearly feel urgency to do it now. The fact that this isn't even their main 'job' is remarkable to me. Thank you Star Legacy Foundation. You have truly changed my life. Because of Star Legacy Foundation, i am able to use my tragedy to help others. Which in turn, helps me. I know we have saved babies! What could be more important than that?
I had not heard of the Star Legacy Foundation until they reached out to us after we lost our son, Jack, when I was 37.5 weeks pregnant. The loss of our son was completely overwhelming - from not understanding what went wrong, to being asked about performing an autopsy, to being told I'd be planning a funeral and asked if i want to hold our son or have pictures taken. to being induced and delivering our son.
The Star Legacy Foundation's mission is to increase awareness, support research, promote education and encourage family advocacy.
I wish I had the information regarding still birth, warning signs, etc prior to my last pregnancy. I am currently pregnant, and the Star Legacy Foundation provided articles regarding pregnancy monitoring and a Dr Collins - who focused on reducing loss due to Umbilical Cord Accidents (UCA). This information has helped me with knowledge to more efficiently advocate for myself, my child and our care. I can't thank the Star Legacy Foundation for all their support in the loss of our son and the opportunities to get involved, help spread awareness and recognize our children who were lost too soon!
Megan - Minnesota, MN
Star Legacy Foundation has been such a wonderful support and help after losing my triplets. Not only have they helped me connect with other loss families, resources and research through their Stillbirth Summit but they've become my fiscal sponsor for the mission I give to in memory of the children I've lost; baby loss memory boxes and teddy bears.
I'm honored to call them friends as well as allies to help others who are hurting after the loss of a child. I applaud all they do to attempt to prevent these tragedies from happening through awareness efforts and continued research with doctors and researchers from around the world.
Star Legacy Foundation is not only an amazing resource for families who have faced a loss through their fiscal sponsorship of organizations such as 11 Angels and my own project, Blessed with More (providing memory boxes and bears for baby loss families), they also create the missing link for medical professionals and researchers to help prevent stillbirth and infant loss. They've been not only a resource for managing my donations but also a friendly ear to listen and lend advice as I navigate the rough road of grieving the loss of my children.
My wife and I lost our daughter in 2008. We were never given a cause of death. Star Legacy Foundation connected us to a community of medical experts and supporters who understand the years of grief and struggle we have experienced while giving us hope that we can change this outcome for future babies.
Our daughter and son in laws first son was born still at 35 week and a normal healthy pregnancy. As grandparents, we wanted to learn more how this could happen and how it could be prevented going forward. We found Star Legacy one of the few stillbirth organizations that deal with education and research. We called them several times to ask questions to better understand some medical terms. They were supportive and responsive. It also helps that the director is a nurse, as well as a mother of a baby born still. They also have many well written articles on their website to give families and parents information. we are glad they were there when we needed them and will continue to support them in the hope that along with their help there will be greater research and discussion about stillbirths and there will be less and less families having to have a stillborn baby.
As a mother of a stillborn baby I am so thankful for the work that Star Legacy is doing to increase awareness of stillbirths, do important research, and provide support to families and those who are impacted by the loss of a baby. After we lost our son at 34 weeks gestation we began looking into organizations who could provide support and change and Star Legacy has been able to do just that. Currently, we are organizing a 5K to honor our stillborn son, raise awareness, and money to fund research and all of the proceeds are going to Star Legacy because we feel that they will be able to make the most of this money. We can't thank Star Legacy enough and are hopeful that they will continue to make a huge difference in raising awareness and funding research so we can better understand and decrease the amount of stillbirths so that other families do not have to experience this devastating loss.
As a mother who had a stillborn child. I really appreciate the work that Star Legacy Foundation is doing. Working closely with the SLF administration, I know first hand the passion and drive they have to educate people about Stillbirth. I am proud to represent such a great organization as Mrs. New York International 2015
After the loss of our son, my wife and I were looking for people who wanted to prevent these losses. Star Legacy Foundation was exactly what we were looking for. They were very helpful and tried to answer our questions the best they could. It is wonderful to see an organization doing something to help our babies.
We lost our much awaited and loved granddaughter in November of 2014. She was stillborn at birth from an ambilical cord accident. Our family was devastated and didn't know which way to turn. A co-worker told me about the Star Legacy Foundation and I contacted them. Within a day a representative came to my home and asked me to tell my story. She then provided me with resources for education and emotional support. Many of the positive steps that me and my family have taken in the healing process have been thanks to the support from Star Legacy. We so appreciate their role in our lives and in the community.
My son and his wife lost a daughter, at birth, last November. Star Legacy Foundation has been extremely supportive to them, and to the rest of my family, during this very difficult time.
My husband and I lost our son in November of 2013. I didn't find out about Star Legacy until months later, when I learned of an upcoming Stillbirth Summit. This event brings together stillbirth researchers from around the world every few years to present their findings - everything from causes of stillbirth, prevention measures being explored and tested, and especially how to help families that unexpectedly find themselves traveling a road of unanswered questions and grief. This summit was profoundly helpful to me, to learn about the most current scientific research, meet others in the same situation, and to feel like my child mattered. The foundation is an amazing place for support, information, and that fact that they aren't just supporting families but also trying to prevent this tragedy in the future makes them ten stars in my mind.
We lost our daughter in November 2014 and the Star Legacy Foundation has been a tremendous source of support for us. This organization provides an important voice for our children who can't be with us. We believe in the Star Legacy Foundation and the important work they do.
I am a bereaved mom, a stillbirth researcher and a communication educator. What Star Legacy Foundation -- run by a mom and a grandmom of a stillborn baby -- consistently does is bring together stakeholders from the community and institutions in the same room to try to make a difference in how we talk about, care about and take action about the deaths of our wanted babies. It isn't often that people who have been diagnosed get to speak with those trying to figure out what causes the diagnosis and those who deliver the news of the diagnosis.