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Star Legacy Foundation

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Nonprofit Overview

Causes: Health

Mission: Our Mission The Star Legacy Foundation mission is to increase awareness, support research, promote education, and encourage advocacy and family support regarding stillbirth and neonatal death. Our Vision We believe there is great hope for the future to prevent many stillbirths in the United States and around the world and we intend to bring this hope to light. We envision that through the utilization of technology, education and grassroots efforts, we can empower parents and families to be an advocate for their unborn babies. We Believe… Many stillbirths are preventable. Expectant parents should be informed about stillbirth risks and educated on ways to protect their pregnancy. Standard prenatal protocols should include a third trimester ultrasound to identify known stillbirth risk factors and subsequent management through home fetal monitoring when risk factors are identified. A national stillbirth registry should be created with mandatory participation to accurately collect stillbirth data. Stillbirth autopsies should be encouraged and performed consistently with established protocols. Stillborn children should be recognized with a certificate of birth. Families deserve and are entitled to support and guidance when facing the delivery of a stillborn child. Stillbirth, birth injury (cerebral palsy and others), premature birth and miscarriages may have some common denominators - finding answers to stillbirth may enlighten the path to reducing miscarriage, premature birth, and birth injury

Results: Star Legacy Foundation has supported hundreds of families throughout the United States and beyond who have been impacted by stillbirth, miscarriage, or neonatal death. The Stillbirth Summit brought researchers and advocates from 7 countries to share emerging evidence in stillbirth prevention. We provided over 200 hours of continuing medical education for health professionals. The helpful information for families are in use by over 30 facilities throughout the country and are available in English and Spanish with additional languages coming soon. Eighteen Champions held awareness events in their communities for Star Legacy Foundation in 2017 alone. We currently have 10 active chapters with several more in development!

Target demographics: prevent pregnancy and infant loss and improve care for families when prevention isn't possible

Direct beneficiaries per year: hundreds of families impacted by stillbirth, miscarriage, and neonatal death and hundreds more health professionals who care for these families or work to prevent pregnancy loss and infant death.

Geographic areas served: United States

Programs: STARS Study, Pregnancy Research Project, Health Professionals Continuing Education, Family Education Materials, Awareness Activities, Advocacy for Policies supporting families, International Stillbirth Summit, Support Groups, Support Line, Peer Support Programs, Family Support items

Community Stories

94 Stories from Volunteers, Donors & Supporters

Amanda F.3

Client Served

Rating: 5

Where do I even begin with this incredible organization, who exists to help & support you through the worst thing ever..the death of your child. Our daughter Juniper died, stillborn at full term in August 2018 and we were met with incredible support while in the hospital and in the days and weeks following. Star Legacy is committed to stillbirth research which is the most understudied topic in medicine today. The work they are doing is invaluable and the benefit they bring to the community unmatched. While in the hospital with our daughter, they helped us make all these terrible decisions no new parent should have to make, brought us support items (books, candle, etc) and helped us fill out all the necessary paperwork, things that the hospital staff wasn't familiar with.

Andrea Robinson B.

Client Served

Rating: 5

Star Legacy Foundation is the only United States Based foundation dedicated to stillbirth prevention, research and awareness. They have been my tribe of support in the unexpected loss of my daughter. The United States has higher stillbirth rates then 3rd world countries and our rates are not going down. Other countries (UK and Australia) have initiated platforms to educate expectant Mother’s on the importance of kick counts and monitoring your babies movement to prevent fetal distress/demise. This has contributed to a reduction in their stillbirth rates. This information is not being distributed in the US and Star Legacy makes it their mission to raise awareness and reduce rates so more families bring healthy babies home. It’s a common misconception that stillbirth is not preventable, it most certainly is. Not in all cases, but many.

Brit I.

Client Served

Rating: 5

We love he Star Legacy Foundation and all of the love and support they continue to offer families.

Client Served

Rating: 5

Amazing work towards researching stillbirth, creating awareness of stillbirth and providing support to families of babies born still.

Client Served

Rating: 5

Being great grandparents to a precious great grandson, Benjamin, perfect, almost full term, stillborn, we shared the grief with our granddaughter and her husband, our daughter and her husband........also, aunts, uncles, cousins, and friends... Stillbirth is such a heartbreaking event and still not discussed openly! Star Legacy strives to bring awareness and funds research to help stop this tragedy from happening to other families!!

Volunteer

Rating: 5

Star Legacy is an amazing organization committed to raising awareness, educating the public and supporting loss families who suffer stillbirth.

Board Member

Rating: 5

I love volunteering my time to Star Legacy. They are making such a difference in the lives of so many and I feel honored to be a part of their movement. From supporting families to empowering medical professionals, Star Legacy meets the needs of all. Thank you for all you do and for brining attention to stillbirth!

Professional with expertise in this field

Rating: 5

Just attended the recent Stillbirth Summit in Bloomington, MN. This was an amazing event and as a health professional I was blown away at the depth of information provided by the various presenters. This was by far the best professional conference I have ever attended. I came away with immediate actions items I have already put into place in my own practice.

Candi C.1

Client Served

Rating: 5

The programs offered are amazing and the staff that I have come in contact with have been great! I highly recommend.

1 Beth W. M.

Volunteer

Rating: 5

I cannot say enough about how this foundation has been there for me. After my son was born still on August 18, 2017, I felt the need to find resources and Star Legacy was one of the first (and only) ones I found. They have been a tremendous resource and support system. I am involved as much as I can manage with the Maryland Chapter and support their goals as an organization. A personal goal of mine is to stay involved with advocacy and compassion in order to help those affected by pregnancy and infant loss and to, hopefully, one day, find that all pregnancies are treated as high risk in order to save more lives.

Volunteer

Rating: 5

An incredible organization passionate about advancing the research, advocacy and education to reduce stillbirth rates. Extremely supportive staff and incredible volunteers working to spread the mission all across the country.

Volunteer

Rating: 5

The Star Legacy Foundation is a great resource, not only after stillbirth occurs but in preventing them also, as well as dealing with pregnancy after loss. Being a part of this team has helped me cope with my loss and nor feel alone.

Donor

Rating: 5

I have only wonderful things to say about Star Legacy. They are fantastic in getting the word out about stillbirth in such a caring and thoughtful way. They were truly wonderful for my family in their time of need and it is evident that this foundation really does care about all pregnancies and that each one should have a happy ending.

2

Client Served

Rating: 5

My wife got involved with this organization a few years after the loss of our daughter. While her death was preventable, Star Legacy Foundation allowed my wife and our entire family ways to honor her life by helping others. Whether it was through a donation, memorial star, putting our daughter's name on the backs of t-shirts at events across the country, or the various opportunities, most at no cost, these brought comfort and a sense of belonging in our newly changed life. It has been many years and there is no other organization that does more to educate pregnant women and health care providers on prevention, supports families through the support line, online support groups, and memorial opportunities, and actively participates in research to get to the bottom of why this is happening than Star Legacy Foundation. There is also a new Chapter in our area which has provided even more opportunities to help families right here in our local community. Thank you Star Legacy for all that you to do to help families and all that you do to work towards stillbirth prevention. I will continue to support this organization forever because of the results their work yields.

1

Board Member

Rating: 5

The Star Legacy Foundation is the only nonprofit of its kind in the country. They fill an essential role: funding studies, raising awareness, and hosting educational events with the goal of reducing pregnancy loss. Tens of thousands of families across the country are grateful for the work they do.

Volunteer

Rating: 5

The Star Legacy Foundation has played a crucial role in my life, following the stillbirth of my daughter Tinsley in Dec. 2017. I am immensely grateful for this organization and the wonderful ways it promotes education, awareness, and support for the stillbirth community -- not only to those families affected but also the medical community. The annual 5K was my first chance to meet other moms who have buried their children, and it was incredibly healing not only for me, but also my husband and living children. It's also given me the opportunity to take action in honor of my daughter!!

1

Client Served

Rating: 5

I was directed to Star Legacy after the stillbirth of our daughter, and I am blown away by what they do. The free support groups have been life-saving, and I love that they include support for grandparents and other family as well. They also do education to help prevent stillbirths, and they advocate for legislation to prevent stillbirths and help stillbirth families.

Danielle Ondarza C.

Client Served

Rating: 5

After the death of my son StarLegacy was the only group I found in the US that was addressing the issue, educating to find a way to help prevent Stillbirth and not just comfort after the fact. They provide so many services, they have made me feel less alone, more educated, and empowered.

1 Lourdes S.

Volunteer

Rating: 5

When your child dies, the dreams you had for your child's lifetime dies leaving an empty hole in your soul. Part of you is gone forever and living through that loss is painful. Without support, the loss keeps growing. Stillbirth is a tabu, nobody talks about out, but the grieve is so loud that can't be ignored. Star Legacy, has given me a way to speak for my daughter, to talk about her and to help others by creating awareness and providing support. Thanks to Star Legacy for breaking the silence.

Previous Stories
2

Volunteer

Rating: 5

Star Legacy is doing a great job giving support to families that are going through the loss of their babies. We need to raise awareness and funds for research. Through Star Legacy we can help saving some beautiful lives.

2

Client Served

Rating: 5

When our daughter was stillborn in 2015 my family and I were in desperate need for some support. After a quick google search we found SLF. Immediatly they went into action by coming to our home to talk to us and listen to our story, to guide or grief process, and connected us with other loss parents. Through SLF we have connected with other parents, doctors, and researchers from all over the globe. The work and research they do to try and decrease stillbirths in our country, raise awareness for pregnancy loss is immeasurable.