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Star Legacy Foundation

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Nonprofit Overview

Causes: Health

Mission: Our Mission The Star Legacy Foundation mission is to increase awareness, support research, promote education, and encourage advocacy and family support regarding stillbirth and neonatal death. Our Vision We believe there is great hope for the future to prevent many stillbirths in the United States and around the world and we intend to bring this hope to light. We envision that through the utilization of technology, education and grassroots efforts, we can empower parents and families to be an advocate for their unborn babies. We Believe… Many stillbirths are preventable. Expectant parents should be informed about stillbirth risks and educated on ways to protect their pregnancy. Standard prenatal protocols should include a third trimester ultrasound to identify known stillbirth risk factors and subsequent management through home fetal monitoring when risk factors are identified. A national stillbirth registry should be created with mandatory participation to accurately collect stillbirth data. Stillbirth autopsies should be encouraged and performed consistently with established protocols. Stillborn children should be recognized with a certificate of birth. Families deserve and are entitled to support and guidance when facing the delivery of a stillborn child. Stillbirth, birth injury (cerebral palsy and others), premature birth and miscarriages may have some common denominators - finding answers to stillbirth may enlighten the path to reducing miscarriage, premature birth, and birth injury

Results: Star Legacy Foundation has supported hundreds of families throughout the United States and beyond who have been impacted by stillbirth, miscarriage, or neonatal death. The Stillbirth Summit brought researchers and advocates from 7 countries to share emerging evidence in stillbirth prevention. We provided over 200 hours of continuing medical education for health professionals. The helpful information for families are in use by over 30 facilities throughout the country and are available in English and Spanish with additional languages coming soon. Eighteen Champions held awareness events in their communities for Star Legacy Foundation in 2017 alone. We currently have 10 active chapters with several more in development!

Target demographics: prevent pregnancy and infant loss and improve care for families when prevention isn't possible

Direct beneficiaries per year: hundreds of families impacted by stillbirth, miscarriage, and neonatal death and hundreds more health professionals who care for these families or work to prevent pregnancy loss and infant death.

Geographic areas served: United States

Programs: STARS Study, Pregnancy Research Project, Health Professionals Continuing Education, Family Education Materials, Awareness Activities, Advocacy for Policies supporting families, International Stillbirth Summit, Support Groups, Support Line, Peer Support Programs, Family Support items

Community Stories

79 Stories from Volunteers, Donors & Supporters

Volunteer

Rating: 5

The Star Legacy Foundation has played a crucial role in my life, following the stillbirth of my daughter Tinsley in Dec. 2017. I am immensely grateful for this organization and the wonderful ways it promotes education, awareness, and support for the stillbirth community -- not only to those families affected but also the medical community. The annual 5K was my first chance to meet other moms who have buried their children, and it was incredibly healing not only for me, but also my husband and living children. It's also given me the opportunity to take action in honor of my daughter!!

Client Served

Rating: 5

I was directed to Star Legacy after the stillbirth of our daughter, and I am blown away by what they do. The free support groups have been life-saving, and I love that they include support for grandparents and other family as well. They also do education to help prevent stillbirths, and they advocate for legislation to prevent stillbirths and help stillbirth families.

Danielle Ondarza C.

Client Served

Rating: 5

After the death of my son StarLegacy was the only group I found in the US that was addressing the issue, educating to find a way to help prevent Stillbirth and not just comfort after the fact. They provide so many services, they have made me feel less alone, more educated, and empowered.

Lourdes S.

Volunteer

Rating: 5

When your child dies, the dreams you had for your child's lifetime dies leaving an empty hole in your soul. Part of you is gone forever and living through that loss is painful. Without support, the loss keeps growing. Stillbirth is a tabu, nobody talks about out, but the grieve is so loud that can't be ignored. Star Legacy, has given me a way to speak for my daughter, to talk about her and to help others by creating awareness and providing support. Thanks to Star Legacy for breaking the silence.

Previous Stories
1

Volunteer

Rating: 5

Star Legacy is doing a great job giving support to families that are going through the loss of their babies. We need to raise awareness and funds for research. Through Star Legacy we can help saving some beautiful lives.

Client Served

Rating: 5

When our daughter was stillborn in 2015 my family and I were in desperate need for some support. After a quick google search we found SLF. Immediatly they went into action by coming to our home to talk to us and listen to our story, to guide or grief process, and connected us with other loss parents. Through SLF we have connected with other parents, doctors, and researchers from all over the globe. The work and research they do to try and decrease stillbirths in our country, raise awareness for pregnancy loss is immeasurable.

Forever I Love You Kainoa

General Member of the Public

Rating: 5

Unfortunately I did not discover Star Legacy Foundation in the hospital, but a few weeks later. It is such a wonderful resource. The list of books for loss parents, free info brochures to pass along to family and friends, specific information for grandparents (including support group meetings) and most especially fundraising and support for education and research surrounding stillbirth. When a parents feels helpless to make a difference in the world and be sure that their child’s life MATTERS, knowing that Star Legacy Foundation is making strides to improve family experiences who have to suffer through the unimaginable by educating medical staff and spreading awareness around the world is such a comfort. Hopefully with continued research there will come a day when fewer families have to even know the tragedy of stillbirth.

Professional with expertise in this field

Rating: 5

The Star Legacy Foundation is dedicated to research and education for families and professionals to improve the care of families experiencing perinatal loss, which is desperately needed in healthcare.

1

General Member of the Public

Rating: 5

I am the great-aunt of a stillborn baby. I found this foundation when desperately looking for resources for my sister, her daughter and son-in-law and the rest of the family. I found myself glued to the website for hours reading through the volumes of information and listening to the very imformative podcasts. I was able to share so much with my family and we have become enthusiastic supporters of this organization. It was and continues to be an invaluable resource that I share frequently with friends and acquaintances who suffer this most unfortunate and tragic event.

1

Donor

Rating: 5

Star Legacy Foundation is an excellent organization that strives to make a difference in the community and across the world. They truly want all pregnancies to end with a happy ending and try day in and day out to make that a reality!

1

General Member of the Public

Rating: 5

This research and education is a vital component of reducing stillbirths in the United States and around the world. The information put forth by this foundation is extraordinary!

1

Client Served

Rating: 5

SLF provides much needed support and resources for parents and family who have suffered the loss of a child. The organization and it's members have been there for my family, making coping with our loss more bearable. This is an organization that needs to expand it's footprint and impact.

1

Board Member

Rating: 5

The Star Legacy Foundation is the only Stillbirth organization in the United States dedicated to research, prevention and family support for stillbirth. The organization is growing rapidly with chapters across the country. I'm excited to be affiliated with this non-profit. The Star legacy Foundation has personally helped my family and I after we lost our son Landon just before his due date because of a knot in his umbilical cord. Since then, I've been able to connect with doctors and researchers through SLF to understand how these tragedies can be prevented. This organization is the real deal, with an established board, a medical advisory board and chapters throughout the country. I truly believe through the efforts of the Star legacy Foundation we will see a reduction in stillbirth, similar to the national campaign against SIDS.
Keep on rocking Star Legacy!

1 Amy_324

Board Member

Rating: 5

After losing our son, Finnegan, to stillbirth we searched for some sort of community that could help us understand and connect with others in our situation. We were lucky to find Star Legacy where we raised awareness in Omaha, NE and started a walk to honor all babies gone too soon. We were amazed at the amount of people that also wanted to form a community and support system in Omaha. We continue to bring awareness to the community and many other communities in the US. Star Legacy is a great organization that truly wants to end stillbirth through research and guidance. I'm honored to be a part of this organization.

1 Heather297

Donor

Rating: 5

I have walked in the Star Legacy Walk in Omaha, NE for the past two years and plan on doing it again this year. I walked in memory of my friend's son Finnegan, but also in memory of so many others. This is a wonderful event to honor those precious babies that left us too soon. I was really impressed at how many activites are family oriented luke the childrens fun run abd balloon release.

1

General Member of the Public

Rating: 5

Star Legacy Foundation is relevant in bringing awareness to families and those touched but those who have been effected. They have a great influence on helping those through difficult times. The members of this foundation are very dedicated and provide tremendous support through their understanding and compassion. In Nebraska, I attended an event called the Stillborn Awareness Walk. They shared their stories of hardship and break throughs and their belief in finding a way to prevent stillborns. This type of dediction is what this communicty needs.

1 Karen466

Donor

Rating: 5

The support this organization offers to families during a tragedy is immeasurable.

1

Donor

Rating: 5

Many poeple do not understand the impact that stillbirths have on families and even the extended families. Often times, families are left feeling confused, vulnerable, and lost. Star Legacy has been a wonderful resource and inspiring organization. In Omaha. NE, Star Legacy hosts walk each year that brings families together that have experienced or been impacted by a stillbirth. The organization brought many together and allowed everyone to gain support and share their stories. It has been remarkable and something that my family and I personally look forward to attending each year! The support and friendships that are made through the annual walk is truly remarkable. It is fun for all ages and they manage to choose beautiful locations! It is always ran very smoothly and I hope to be able to get involved more in the future!

1

Volunteer

Rating: 5

Star Legacy Foundation provides comfort and support to families suffering from the tragedy of stillbirth. After we lost our son Dylan at 33 weeks gestation, we found a community of support through this organization. I have recently started to volunteer with Star Legacy in an effort to get tax credit legislation passed in New York just as the organization had helped influence in Minnesota. I am confident that the research and programs that Star Legacy supports will help prevent some causes of stillbirth in the future.

3

General Member of the Public

Rating: 5

After my sister and brother-in-law's stillbirth, Star Legacy helped our family tremendously. With their help we've learned so much and have felt included in a community. We are grateful that there's an organization out there to help us put our grief to work. For such a common tragedy, there is a shameful level of public knowledge about stillbirths and other painful pregnancy outcomes. There's a lot more work for them to do!

1

Volunteer

Rating: 5

Star Legacy Foundation provides so many resources to the families its serves and it fills a gaping hole that very few other nonprofits in the U.S. serve - research on stillbirth, pregnancy loss, and neonatal deaths. As a mom to a stillborn daughter, I wanted to help others who are also navigating this unexpected journey and shine some light on this under-researched topic. Star Legacy allows me to do both. Furthermore, the staff and other volunteers are so welcoming and focused on working together for other babies and families.