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Star Legacy Foundation

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Nonprofit Overview

Causes: Health

Mission: Our Mission The Star Legacy Foundation mission is to increase awareness, support research, education and family advocacy regarding stillbirth. Our Vision We believe there is great hope for the future to prevent many stillbirths in the United States and around the world and we intend to bring this hope to light. We envision that through the utilization of technology, education and grassroots efforts, we can empower parents and families to be an advocate for their unborn babies. We Believeā€¦ Many stillbirths are preventable. Expectant parents should be informed about stillbirth risks and educated on ways to protect their pregnancy. Standard prenatal protocols should include a third trimester ultrasound to identify known stillbirth risk factors and subsequent management through home fetal monitoring when risk factors are identified. A national stillbirth registry should be created with mandatory participation to accurately collect stillbirth data. Stillbirth autopsies should be encouraged and performed consistently with established protocols. Stillborn children should be recognized with a certificate of birth. Families deserve and are entitled to support and guidance when facing the delivery of a stillborn child. Stillbirth, birth injury (cerebral palsy and others), premature birth and miscarriages may have some common denominators - finding answers to stillbirth may enlighten the path to reducing miscarriage, premature birth, and birth injury

Results: During 2010 the Star Legacy Foundation accomplished a number of organizational goals including the publishing of a cookbook as a fund raising effort, redesign of the website, board development, the 5th annual Golfing for Garrett benefit and more. In 2011 the Star Legacy Foundation developed a stillbirth awareness and prevention campaign "See Me, Feel Me" designed to encourage parents to advocate for their unborn child. (www.seemefeelme.org) In late 2011 the Star Legacy Foundation will host the first Stillbirth Summit bringing together an international panel of independent researchers to share their research efforts and collaborate on moving the stillbirth prevention agenda forward.

Direct beneficiaries per year: To date the Star Legacy Foundation has donated over $260,000 to the stillbirth research projects. In addition the Foundation held the first ever Stillbirth Summit in 2011; published a Summary of the Stillbirth Summit and is currently conducting a research project - the STARS Study.

Geographic areas served: Nationwide

Programs: See Me, Feel Me - Stillbirth awareness and prevention Birth Planning and Companioning International Stillbirth Research Summit Stillbirth Research The Journal of Stillbirth Stillbirth Registry

Community Stories

68 Stories from Volunteers, Donors & Supporters

Amy_324

Board Member

Rating: 5

After losing our son, Finnegan, to stillbirth we searched for some sort of community that could help us understand and connect with others in our situation. We were lucky to find Star Legacy where we raised awareness in Omaha, NE and started a walk to honor all babies gone too soon. We were amazed at the amount of people that also wanted to form a community and support system in Omaha. We continue to bring awareness to the community and many other communities in the US. Star Legacy is a great organization that truly wants to end stillbirth through research and guidance. I'm honored to be a part of this organization.

Heather297

Donor

Rating: 5

I have walked in the Star Legacy Walk in Omaha, NE for the past two years and plan on doing it again this year. I walked in memory of my friend's son Finnegan, but also in memory of so many others. This is a wonderful event to honor those precious babies that left us too soon. I was really impressed at how many activites are family oriented luke the childrens fun run abd balloon release.

General Member of the Public

Rating: 5

Star Legacy Foundation is relevant in bringing awareness to families and those touched but those who have been effected. They have a great influence on helping those through difficult times. The members of this foundation are very dedicated and provide tremendous support through their understanding and compassion. In Nebraska, I attended an event called the Stillborn Awareness Walk. They shared their stories of hardship and break throughs and their belief in finding a way to prevent stillborns. This type of dediction is what this communicty needs.

Karen466

Donor

Rating: 5

The support this organization offers to families during a tragedy is immeasurable.

Donor

Rating: 5

Many poeple do not understand the impact that stillbirths have on families and even the extended families. Often times, families are left feeling confused, vulnerable, and lost. Star Legacy has been a wonderful resource and inspiring organization. In Omaha. NE, Star Legacy hosts walk each year that brings families together that have experienced or been impacted by a stillbirth. The organization brought many together and allowed everyone to gain support and share their stories. It has been remarkable and something that my family and I personally look forward to attending each year! The support and friendships that are made through the annual walk is truly remarkable. It is fun for all ages and they manage to choose beautiful locations! It is always ran very smoothly and I hope to be able to get involved more in the future!

Volunteer

Rating: 5

Star Legacy Foundation provides comfort and support to families suffering from the tragedy of stillbirth. After we lost our son Dylan at 33 weeks gestation, we found a community of support through this organization. I have recently started to volunteer with Star Legacy in an effort to get tax credit legislation passed in New York just as the organization had helped influence in Minnesota. I am confident that the research and programs that Star Legacy supports will help prevent some causes of stillbirth in the future.

1

General Member of the Public

Rating: 5

After my sister and brother-in-law's stillbirth, Star Legacy helped our family tremendously. With their help we've learned so much and have felt included in a community. We are grateful that there's an organization out there to help us put our grief to work. For such a common tragedy, there is a shameful level of public knowledge about stillbirths and other painful pregnancy outcomes. There's a lot more work for them to do!

Volunteer

Rating: 5

Star Legacy Foundation provides so many resources to the families its serves and it fills a gaping hole that very few other nonprofits in the U.S. serve - research on stillbirth, pregnancy loss, and neonatal deaths. As a mom to a stillborn daughter, I wanted to help others who are also navigating this unexpected journey and shine some light on this under-researched topic. Star Legacy allows me to do both. Furthermore, the staff and other volunteers are so welcoming and focused on working together for other babies and families.

Lourdes S.

Volunteer

Rating: 5

Star Legacy is doing a great job giving support to families that are going through the loss of their babies. We need to raise awareness and funds for research. Through Star Legacy we can help saving some beautiful lives.

General Member of the Public

Rating: 5

They are doing such great work supporting families at the darkest time. From the smallest details in the hospital to lifelong support. Excellent work!

General Member of the Public

Rating: 5

What a wonderful organization that provides much needed support to families going through tremendous loss. These strong individuals and families have come together to make a difference in research, fund raising and support.

6

Client Served

Rating: 5

I lost my baby girl, Lia Penelope, on June 17, 2016. From the moment she was born and throughout this tragic past 8 months, the Star Legacy foundation and it's strong and inspirational members have been a great support to myself and my family. Although tragedy brought us together, we have each other to lean on in the process of healing. In turn we change an extremely unexpected and sad experience into one in which we support each other, further research and bring awareness to an event that seldom is spoken about so that no one suffers alone.

Client Served

Rating: 5

This organization has truly benefitted so many throughout the United States and beyond. I was helped by this organization when my twins were stillborn this past year. I am now an active volunteer with the organization and couldn't be more proud of the work that is being done.

2

Client Served

Rating: 5

My hospital nurseI referred me to the Star Legacy Foundation after my son was stillborn in 2014. I called the number on their brochure and immediately knew this was an orgaqnization that truly understood my heartache. I was asked if I would like to visit with another mom with a loss similar to mine. I eagerly said yes. Less than two hours later, Lindsey - the Executive Director of the Foundation called me herself. I was amazed that someone as busy as she was still had time to talk to me - just another of the many grieving moms that they must hear from. We talked for over an hour and she reassured me that everything I was experiencing was completely normal and I was not 'crazy' for feeling the way I did and that I was not responsible for my baby's death. I learned that she is a nurse practitioner so she was extremely helpful in helping me to understand why some of the things happened the way they did, what the current research says about cord accidents, and helped me sort out some of the things the doctors and nurses and even my friends and family said that didn't make sense or were hurtful. After that first conversation, I felt like a ton of bricks had been lifted off my chest and I could actually breathe again. And - then she called me back a few days later - just to check in and see how I was doing. We still keep in touch by email on a regular basis and by phone when I just need to talk or have a particular question. She also offered to have another Dad talk to my husband. He was resistant but when this Dad called him they talked for a short time and then met up to have a beer. I saw an entirely new man emerge - he too benefitted so much from just talking to someone who has lived our nightmare. My parents now attend a group for other grandparents and they really enjoy it. I can't say enough for what this organization and Lindsey in particular has done to help us move forward. We attended their run/walk event and were amazed at the volumes of people that came who know the sorrow of losing a child. We are now volunteering as we can and one day hope to be in a place where we too can be there for other families in their darkest hours.

1

Professional with expertise in this field

Rating: 5

This group of dedicated individuals is impressive. They have a solid grasp of the issues surrounding the problem of stillbirth and have taken very professional approaches to addressing those issues on behalf of the thousands of families that suffer the loss of a stillborn child. As a loss mom as well as a health professional, I have learn a tremendous amount from them and have the highest regard for the work they are doing. It gives me great hope to know that the medical community is being challenged to do better!

3

General Member of the Public

Rating: 5

The Star Legacy Foundation is an incredibly healing organization. They do all they can to help families personally and to research stillbirth.

2 Alexis D.

Professional with expertise in this field

Rating: 5

I have had individualized attention from them and immediate responses to questions. They are thorough in what they do and great advocates for us all.

3

Volunteer

Rating: 5

I have watched this organization grow from a dedicated family wanting to make their own loss become the hope for the thousands of families into the largest US organization dedicated to stillbirth prevention. They have become the most knowledgable source of information and resources in the US and are backed by a prestigeous medical advisory team from around the world. This organization is one to watch as they remain steadfast to their vision that one day stillbirth will truly be a rare event. I am proud to support this organization in any way that I can.

Review from Guidestar

3

Donor

Rating: 5

So impressed with the incredibly organized, thorough, and efficient manner in which this foundation is run. This team works tirelessly and is making important progress very quickly in areas where no one else is working. If anyone can change stillbirth in this country, it's Star Legacy.

3

Professional with expertise in this field

Rating: 5

This organization does amazing work! They donated money to sponsor a nurses' healing retreat. They even sent speakers and a yoga instructor. They are very involved in our community and are highly respected!