The Star Legacy Foundation is the only Stillbirth organization in the United States dedicated to research, prevention and family support for stillbirth. The organization is growing rapidly with chapters across the country. I'm excited to be affiliated with this non-profit. The Star legacy Foundation has personally helped my family and I after we lost our son Landon just before his due date because of a knot in his umbilical cord. Since then, I've been able to connect with doctors and researchers through SLF to understand how these tragedies can be prevented. This organization is the real deal, with an established board, a medical advisory board and chapters throughout the country. I truly believe through the efforts of the Star legacy Foundation we will see a reduction in stillbirth, similar to the national campaign against SIDS.
Keep on rocking Star Legacy!
After losing our son, Finnegan, to stillbirth we searched for some sort of community that could help us understand and connect with others in our situation. We were lucky to find Star Legacy where we raised awareness in Omaha, NE and started a walk to honor all babies gone too soon. We were amazed at the amount of people that also wanted to form a community and support system in Omaha. We continue to bring awareness to the community and many other communities in the US. Star Legacy is a great organization that truly wants to end stillbirth through research and guidance. I'm honored to be a part of this organization.
I have walked in the Star Legacy Walk in Omaha, NE for the past two years and plan on doing it again this year. I walked in memory of my friend's son Finnegan, but also in memory of so many others. This is a wonderful event to honor those precious babies that left us too soon. I was really impressed at how many activites are family oriented luke the childrens fun run abd balloon release.
Star Legacy Foundation is relevant in bringing awareness to families and those touched but those who have been effected. They have a great influence on helping those through difficult times. The members of this foundation are very dedicated and provide tremendous support through their understanding and compassion. In Nebraska, I attended an event called the Stillborn Awareness Walk. They shared their stories of hardship and break throughs and their belief in finding a way to prevent stillborns. This type of dediction is what this communicty needs.
Many poeple do not understand the impact that stillbirths have on families and even the extended families. Often times, families are left feeling confused, vulnerable, and lost. Star Legacy has been a wonderful resource and inspiring organization. In Omaha. NE, Star Legacy hosts walk each year that brings families together that have experienced or been impacted by a stillbirth. The organization brought many together and allowed everyone to gain support and share their stories. It has been remarkable and something that my family and I personally look forward to attending each year! The support and friendships that are made through the annual walk is truly remarkable. It is fun for all ages and they manage to choose beautiful locations! It is always ran very smoothly and I hope to be able to get involved more in the future!
Star Legacy Foundation provides comfort and support to families suffering from the tragedy of stillbirth. After we lost our son Dylan at 33 weeks gestation, we found a community of support through this organization. I have recently started to volunteer with Star Legacy in an effort to get tax credit legislation passed in New York just as the organization had helped influence in Minnesota. I am confident that the research and programs that Star Legacy supports will help prevent some causes of stillbirth in the future.
After my sister and brother-in-law's stillbirth, Star Legacy helped our family tremendously. With their help we've learned so much and have felt included in a community. We are grateful that there's an organization out there to help us put our grief to work. For such a common tragedy, there is a shameful level of public knowledge about stillbirths and other painful pregnancy outcomes. There's a lot more work for them to do!
Star Legacy Foundation provides so many resources to the families its serves and it fills a gaping hole that very few other nonprofits in the U.S. serve - research on stillbirth, pregnancy loss, and neonatal deaths. As a mom to a stillborn daughter, I wanted to help others who are also navigating this unexpected journey and shine some light on this under-researched topic. Star Legacy allows me to do both. Furthermore, the staff and other volunteers are so welcoming and focused on working together for other babies and families.
They are doing such great work supporting families at the darkest time. From the smallest details in the hospital to lifelong support. Excellent work!
What a wonderful organization that provides much needed support to families going through tremendous loss. These strong individuals and families have come together to make a difference in research, fund raising and support.
I lost my baby girl, Lia Penelope, on June 17, 2016. From the moment she was born and throughout this tragic past 8 months, the Star Legacy foundation and it's strong and inspirational members have been a great support to myself and my family. Although tragedy brought us together, we have each other to lean on in the process of healing. In turn we change an extremely unexpected and sad experience into one in which we support each other, further research and bring awareness to an event that seldom is spoken about so that no one suffers alone.
This organization has truly benefitted so many throughout the United States and beyond. I was helped by this organization when my twins were stillborn this past year. I am now an active volunteer with the organization and couldn't be more proud of the work that is being done.
My hospital nurseI referred me to the Star Legacy Foundation after my son was stillborn in 2014. I called the number on their brochure and immediately knew this was an orgaqnization that truly understood my heartache. I was asked if I would like to visit with another mom with a loss similar to mine. I eagerly said yes. Less than two hours later, Lindsey - the Executive Director of the Foundation called me herself. I was amazed that someone as busy as she was still had time to talk to me - just another of the many grieving moms that they must hear from. We talked for over an hour and she reassured me that everything I was experiencing was completely normal and I was not 'crazy' for feeling the way I did and that I was not responsible for my baby's death. I learned that she is a nurse practitioner so she was extremely helpful in helping me to understand why some of the things happened the way they did, what the current research says about cord accidents, and helped me sort out some of the things the doctors and nurses and even my friends and family said that didn't make sense or were hurtful. After that first conversation, I felt like a ton of bricks had been lifted off my chest and I could actually breathe again. And - then she called me back a few days later - just to check in and see how I was doing. We still keep in touch by email on a regular basis and by phone when I just need to talk or have a particular question. She also offered to have another Dad talk to my husband. He was resistant but when this Dad called him they talked for a short time and then met up to have a beer. I saw an entirely new man emerge - he too benefitted so much from just talking to someone who has lived our nightmare. My parents now attend a group for other grandparents and they really enjoy it. I can't say enough for what this organization and Lindsey in particular has done to help us move forward. We attended their run/walk event and were amazed at the volumes of people that came who know the sorrow of losing a child. We are now volunteering as we can and one day hope to be in a place where we too can be there for other families in their darkest hours.
This group of dedicated individuals is impressive. They have a solid grasp of the issues surrounding the problem of stillbirth and have taken very professional approaches to addressing those issues on behalf of the thousands of families that suffer the loss of a stillborn child. As a loss mom as well as a health professional, I have learn a tremendous amount from them and have the highest regard for the work they are doing. It gives me great hope to know that the medical community is being challenged to do better!
The Star Legacy Foundation is an incredibly healing organization. They do all they can to help families personally and to research stillbirth.
I have had individualized attention from them and immediate responses to questions. They are thorough in what they do and great advocates for us all.
I have watched this organization grow from a dedicated family wanting to make their own loss become the hope for the thousands of families into the largest US organization dedicated to stillbirth prevention. They have become the most knowledgable source of information and resources in the US and are backed by a prestigeous medical advisory team from around the world. This organization is one to watch as they remain steadfast to their vision that one day stillbirth will truly be a rare event. I am proud to support this organization in any way that I can.
Review from Guidestar
So impressed with the incredibly organized, thorough, and efficient manner in which this foundation is run. This team works tirelessly and is making important progress very quickly in areas where no one else is working. If anyone can change stillbirth in this country, it's Star Legacy.