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Spina Bifida Kansas Organization

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Nonprofit Overview

Mission: Super hero parents and adults living with SB, providing education, medical equipment resources, and an incredible network of support and enrichment programs that bring happiness to families living with Spina Bifida. We are committed to building a community that will bring change, prevention and awareness of SB. Lifelong, loving, supportive and compassionate relationships are the foundation of our members only organization.

Target demographics: all families in Kansas living with the daily challenges of Spina Bifida

Direct beneficiaries per year: ...

Geographic areas served: currently Johnson County with a statewide expansion on the horizon!

Programs: happy wheels dance classes, music therapy, parades, recitals. Educational seminars and webinars on medical best practices and the prevention of SB. Medical equipment exchange programs and on the job training for teens and adults living with SB.

Community Stories

8 Stories from Volunteers, Donors & Supporters

1

Board Member

Rating: 5

Passionate. Motivated. Energized. Ready to do some big time trail blazing in the Spina Bifida Community! The sky is the limit and with the help and support of the amazing parents and families in this group, SBKS will be the change the world needs because a life with Spina Bifida is Spina Beautiful!

2 Amy M.9

Client Served

Rating: 5

Amazing way for all abilities to be included in every day life as well as provide education to all.

1 Brianna B.1

General Member of the Public

Rating: 5

I am overjoyed to see what is in store for families and those who are affected by SB! Knowing the great leadership, love and support that will provide the Kansas community with what they need is so exciting!

1

Donor

Rating: 5

Because they have a strong Board with the same vision and passion to get things rolling in Kansas, I am confident the new programs and resources they will bring to our SB community will be Amazing!

Review from Guidestar

2

General Member of the Public

Rating: 5

This Association is going to make a huge difference for many in the area! Can't wait to hear more about upcoming events

2

General Member of the Public

Rating: 5

I’m so excited to hear this is coming to Kansas. I can’t wait for the first event to meet other families as I’ve heard so many good events and building a great supportive and fun network!

2

Professional with expertise in this field

Rating: 5

This organization will continue do great things with the leadership in place. It will provide invaluable resources that children with Spina Bifida need. It will also build the camaraderie between the families and the community and further educate those unaware of what Spina Bifida is and the amazing individuals living with it. What a great organization, I am excited to see the great things to come!

3

Volunteer

Rating: 5

We are so excited we found this organization! Our daughter will benefit immensely from the resources, education and programs that will soon be made available.